The still point of the turning world
By: Emily Rapp
Edition: Large print edition.
Series: Thorndike Press large print nonfiction; Thorndike Press large print nonfiction series
Published: 2013
Language: eng
Number of pages: 335
ISBN-13: 9781410457349
Subjects: Family relationships; Tay-Sachs disease; Patients; Terminally ill children; Biography
Description: Like all mothers, Emily Rapp had big plans for her first and only son, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. Then Ronan was diagnosed at nine months old with Tay-Sachs disease. Not expected to live beyond three, Ronan would be stalled at a developmental level of six months. In this story of a mother's journey through grief and beyond it, Rapp shares the wisdom to be gained from parenting without a future.