The ethics and regulation of human genetic databases
Subtitle: global perspectives
By: edited pby Bernice Elger ... [et al.].
Contributors: Elger, Bernice.
Publisher: Ashgate Pub. Ltd.
Published: 2008
Place of publication: Aldershot, England; Burlington, VT
Language: eng
Number of pages: 257
ISBN-13: 9780754672555
Subjects: Human genetics -- Databases -- Moral and ethical aspects; Human genetics -- Databases -- Law and legislation; Genome, Human; Confidentiality; Databases, Genetic -- ethics; Databases, Genetic -- legislation & jurisprudence; Genetic Research -- ethics; Genetics, Population -- ethics
Notes: Includes bibliographical references and index.
Table of contents: title: Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron; title: Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman; title: Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno; title: Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.]; title: The results of the interviews: consensus and unresolved controversies among international and US experts concerning research involving genetic databases / Bernice Elger, Agononi Ganguli-Mitra, Andrea Boggio; title: Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron; title: Biobanks and genomic research: what shape the future? / Alex Capron.