Your life Your Health
Publisher: Joseph Kanter Family Foundation
Published: 2014
Place of publication: [Place of publication not identified]
Language: eng
Number of pages: 260
ISBN-13: 9780985636272; 9780985636289
Subjects: MEDICAL; Diseases; Medicine; Data processing; Medical informatics
Description: Your Life, Your Health explores the American patient experience and seeks to transform it through a proposal of to build an historic National Health Outcomes Research Data Sharing Network. When businessman and philanthropist Joe Kanter was diagnosed with prostate cancer he went to multiple specialists and asked each of them the same question: "Based on the real-world experiences of other patients like me, which treatment option is likely to work best for me?" None of these doctors could answer specifically; each could only offer Kanter recommendations based on his or her own anecdotal experiences, rather than on hard scientific evidence. Kanter came to recognize that the most underutilized resources in healthcare are the patients ourselves and the data from our collective health experiences. Frustrated by his own patient experience, Kanter started the Joseph H. Kanter Family Foundation (KFF) to work to ensure that one day patients will no longer face the most important decisions of their lives in an information vacuum. Your Life, Your Health proposes a Learning Health System that, for the first time in history, promises to leverage anonymized data captured in electronic health records as a byproduct of delivering care, to enable us to learn from the collective anonymized experiences of millions of patients over time. It holds the key to unlocking the potential of the best and the brightest researchers by providing them with anonymous and secure information on the real-world health experiences of millions of patients. In turn, such a system would unleash the power of clinicians, and ultimately patients, to make better informed health decisions. Your Life, Your Health will illuminate the path to improving health, saving lives, revolutionizing medical research, redefining the patient experience, and transforming our health system.
Table of contents: title: Cover; Copyright; Contents; List of Abbreviations and Acronyms; Acknowledgments; Preface; Introduction; 1. Guinea Pigs; title: Anecdotal Medicine; "An App for That"-What Is Possible; 2. A Road Map to the Answer; Bringing Together Thought Leaders; Ideal Solution; The Road That Made Me Think It's Possible; What I Hope; 3. The General Problem; McAllen, Texas-Money or Health Focus; The Error Conundrum; 4. Information Is the Key; A Brief History of Evidence-Based Medicine; Leaders of Change; 1. John Snow; 2. Ignaz Semmelweis; 3. Florence Nightingale; 4. A Modern Example: Peter Pronovost.; title: IT-Information Today: A Brief History of Electronic Medical Records (EMRs) and Some FrustrationsWhy the United States Department of Veterans Affairs (VA) Healthcare System Is Better than Yours; Overcoming Resistance; 5. Electronic Medical Records (EMRs); The Challenges toward Full Implementation; The Slow Take-Up; Interoperability; Unmeasured Confounding; Valid Set of Data from Observation-Based Outcomes; The Political Issue; 6. Patient Activist; Thought Leaders' Insights; Health IT Initiative; Archimedes; Person-Centered Health; 7. The Kanter Family Foundation (KFF); title: Distinctive Resources and CapabilitiesMission and Background; Strategy and Accomplishments; Joseph H. Kanter Prize-Incentivizing Change; International Working Meeting on Electronic Medical Records (EMRs) and Outcomes Research; 8. The Future Ownership of Your Data; What Should Be Done; Federal Health Board: The Vision; Governance; The Ultimate Goal; Patient-Centered Outcomes Research Institute (PCORI); How Records Would Be Used; Isolated Hacks, Widespread Media Coverage; 9. Issue; Why We Need an LHS; How We Realize It Together; The LHS Movement is Growing; GAO Hits EHR Incentive Program Hard.; title: Three US Presidents; title: How Should Healthcare Executives Respond?10. Sharing Joe's Vision; 11. Vision; Mission and Approach; Organization; History; Initiatives; A Learning Health System will Make These Things Possible; The National LHS: One Infrastructure that Supports; Meaningful Use (MU) is Necessary but Not Sufficient for an LHS; How will the LHS Actually Work?; How Health Information Technology (IT) Fits in. . .; A Collaboratively-Realized, Transformative Data/Information/Knowledge/Wisdom Superhighway (and More) for Health; 12. The LHS Summit: May 17-18, 2012.; title: The New England Journal of Medicine PerspectiveHealthcare Infomatics; Working Together to Give the Gift of Health to Our Children and Our Nation; Electronic Health Reporter; 13. GAO Government Accountability Report March 24, 2014; Electronic Health Information Exchange; Challenges Are Reported Related to Standards, Privacy, Patient Matching, and Costs of Electronic Exchange; HHS Developed an Electronic Health Information Exchange Strategy That Includes Principles to Address Key Challenges but Lacks Specific Prioritized Actions and Milestones; Core Values; Recommendations for Executive Action.