Ethics and newborn genetic screening
Subtitle: new technologies, new challenges
By: edited by Mary Ann Baily and Thomas H. Murray.
Contributors: Baily, Mary Ann.; Murray, Thomas H., 1946-
Publisher: Johns Hopkins University Press
Published: 2009
Place of publication: Baltimore
Language: eng
ISBN-13: 9780801891519
Subjects: Genetic disorders -- Diagnosis -- Moral and ethical aspects.; Newborn infants -- Diseases -- Diagnosis -- Moral and ethical aspects.; Genetic screening -- Moral and ethical aspects.; Genetic Diseases, Inborn -- diagnosis.; Neonatal Screening -- ethics.; Genetic Screening -- ethics.; Health Policy.; Infant, Newborn.
Notes: Includes bibliographical references and index.
Table of contents: value: Fair distribution of newborn screening costs and benefits / Mary Ann Baily; value: Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse; value: An advocate's perspective on newborn screening policy / Jannine DeMars Cody; value: Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross; value: Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton; value: State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen; value: Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell; value: The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.]; value: What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.]; value: Research for newborn screening : developing a national framework / Jeffrey R. Botkin; value: Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke; value: Parental permission for research in newborn screening / Jeffrey R. Botkin; value: Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin; value: Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond; value: What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.