The public shaping of medical research
Subtitle: patient associations, health movements and biomedicine
By: edited by Peter Wehling, Willy Viehöver, and Sophia Koenen
Series: Routledge studies in the sociology of health and illness; Routledge studies in the sociology of health and illness
Publisher: Routledge, Taylor & Francis Group; Routledge
Published: 2015
Place of publication: London; New York
Language: eng
Number of pages: 290
ISBN-13: 9780415858236; 9781315741871
Subjects: Biomedical Research; Public Opinion; Patient Advocacy; Patient Participation
Notes: Includes bibliographical references and index.
Table of contents: title: A seat at the table, "a lab of our own" and working with what we know now : how the U.S. environmental breast cancer movement shapes research / Lori Baralt; title: Initiating and funding medical research on a rare disease : the approach of the German Cystic Fibrosis Association / Andreas Reimann; title: Eurordis : empowering patients living with rare diseases to participate in biomedical knowledge production / Christel Nourissier, Monica Ensini and Maria Mavris; title: The entanglement of scientific and political claims : towards a new form of patients' activism / Madeleine Akrich, Orla O'Donovan and Vololona Rabeharisoa; title: Obesity, the alternative food movement, and complete streets : new forms of "patient" activism and the evolution of health social movements / Mercedes C. Lyson and Stephen Zavestoski; title: Autism, the Internet and medicalization / Peter Conrad and Catherine Tan; title: A community fractured : Canada's breast cancer movement, pharmaceutical company funding, and science-related advocacy / Sharon Batt; title: Beyond scientific controversies : scientific counterpublics, countervailing industries, and undone science / David J. Hess; title: Interpellating patients as future users of biomedical technologies : the case of patient associations and stem cell research / Henriette Langstrup; title: Patient organizations as biosocial communities? : conceptual clarifications and critical remarks / Thomas Lemke; title: Changing contexts for science and society interaction : from deficit to dialogue, from dialogue to participation- and beyond? / Massimiano Bucchi; title: The virtues (and some perils) of activist participation : the political and epistemic legitimacy of patient activism / Peter Wehling and Willy Viehöver; title: The ethical legitimacy of patient organizations' involvement in politics and knowledge production : epistemic justice as a conceptual basis / Silke Schicktanz; title: Conclusion : effects of and challenges to the public shaping of medical research / Willy Viehöver, Peter Wehling and Matthias Roche.