Biobanks
Subtitle: governance in comparative perspective
By: edited by Herbert Gottweis and Alan Petersen.
Contributors: Gottweis, Herbert, 1958-; Petersen, Alan R., Ph. D.
Publisher: Routledge
Published: 2008
Place of publication: Abingdon, Oxon; New York, NY
Language: eng
Number of pages: 234
ISBN-13: 9780415427371; 9780415427388
Subjects: Human genetics -- Databases -- Moral and ethical aspects -- Cross-cultural studies; Biobanks -- Government policy -- Cross-cultural studies; Biobanks -- Political aspects -- Cross-cultural studies; Databases, Genetic -- legislation & jurisprudence; Confidentiality -- legislation & jurisprudence; Databases, Genetic -- ethics; Public Policy
Genres: Cross-cultural studies.
Notes: Includes bibliographical references and index.
Table of contents: title: Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen; title: Biobanks in action : new strategies in the governance of life / Herbert Gottweis; title: The rise and fall of a biobank : the case of Iceland / Gísli Pálsson; title: Estonia : ups and downs of a biobank project / Rain Eensaar; title: Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer; title: "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider; title: Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher; title: Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis; title: UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen; title: Biobanks and the biopolitics of inclusion and representation / Richard Tutton; title: The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken; title: Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen; title: Governing through biobanks : research populations in Israel / Barbara Prainsack.