Ethics and newborn genetic screening
Subtitle: new technologies, new challenges
By: edited by Mary Ann Baily and Thomas H. Murray.
Contributors: Baily, Mary Ann.; Murray, Thomas H., 1946-
Publisher: Johns Hopkins University Press
Published: 2009
Place of publication: Baltimore
Language: eng
Number of pages: 354
ISBN-13: 9780801891519
Subjects: Genetic disorders -- Diagnosis -- Moral and ethical aspects; Newborn infants -- Diseases -- Diagnosis -- Moral and ethical aspects; Genetic screening -- Moral and ethical aspects; Genetic Diseases, Inborn -- diagnosis; Neonatal Screening -- ethics; Genetic Screening -- ethics; Health Policy; Infant, Newborn
Notes: Includes bibliographical references and index.
Table of contents: title: Fair distribution of newborn screening costs and benefits / Mary Ann Baily; title: Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse; title: An advocate's perspective on newborn screening policy / Jannine DeMars Cody; title: Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross; title: Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton; title: State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen; title: Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell; title: The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.]; title: What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.]; title: Research for newborn screening : developing a national framework / Jeffrey R. Botkin; title: Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke; title: Parental permission for research in newborn screening / Jeffrey R. Botkin; title: Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin; title: Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond; title: What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.