Principles and practice in biobank governance
By: [edited] by Jane Kaye and Mark Stranger.
Contributors: Kaye, Jane, 1962-; Stranger, Mark.
Publisher: Ashgate
Published: 2009
Place of publication: Farnham, Surrey; Burlington, VT
Language: eng
ISBN-13: 9780754678250
Subjects: Tissue banks -- Management; Biobanks -- Management; Tissues -- Collection and preservation -- Government policy; Biological specimens -- Collection and preservation -- Government policy; Procurement of organs, tissues, etc. -- International cooperation; Bioethics; Biological Specimen Banks -- standards; Clinical Governance; Public Policy
Notes: Includes bibliographical references and index.
Table of contents: title: What benefit sharing arrangements do people want from biobanks? A survey of public opinion in Australia / Dianne Nicol and Christine Critchley; title: Reconsidering altruism, introducing reciprocity, and empowerment in the governance of biobanks in the UK / Nadja Kanellopoulou; title: From benefit sharing to power sharing : partnership governance in population genomics research / David E. Winickoff; title: Co-determination of donors in biobanks / Lukas Gundermann and Ulrich Stockter; title: Developing an appropriate consent model for biobanks : in defence of "broad" consent / Margaret Otlowski; title: Consent by research ethics committees : the new law on biomedical research in Spain / Antonio Casado da Rocha and Ismael Etxeberria Agiriano; title: Addressing the ethical objections to pediatric biobanks / Kristien Hens and Kris Dierickx; title: Deciding whether to participate in a biobank : the concerns of healthy volunteers / R. Jean Cadigan and Arlene M Davis; title: Privacy interests in biobanking : a preliminary view on a European perspective; title: David townend ... [et al.]; title: Feeding back significant findings to participants and relatives / Loane Skene; title: Ensuring participant privacy in networked biobanks / Atieh Zarabzadeh ... [et al.]; title: hSERN : a tool to help researchers with the legal requirements of cross-border exchange of biological material / Emmanuelle Rial-Sebbag ... [et al.]; title: Biobanking networks : what are the governance challenges? / Jane Kaye; title: Potential conflicts in governance mechanisms used in population biobanks / Karine Bédard ... [et al.]; title: UK biobank ethics and governance council : an exercise in added value / Martin Richards, Adrienne Hunt, and Graeme Laurie; title: The end of individual control over health information : promoting fair information practices and the governance of biobank research / Trudo Lemmens and Lisa Austin; title: From public inquiry to policy : biobanks, population genetics and the public interest / David Weisbrot.