natgillin/translations-raw huggingface dataset:
O. ker je demenca pogubna motnja za bolnike, lahko pa je, če niso zagotovljene ustrezne storitve dobre kakovosti, tudi zelo veliko breme za njihove sorodnike in negovalce zaradi čustvenih, fizičnih in finančnih težav, s katerimi se spopadajo sorodniki in prijatelji obolelih za katerokoli vrsto demence, ker so v vsaki družini z bolnikom v povprečju obremenjene tri osebe, to pomeni, da po ocenah demence neposredno vplivajo na 19 milijonov Evropejcev,
O. whereas dementia is a devastating disorder for the patients themselves but can also, if adequate services of good quality are not provided, become a very heavy burden placed on the shoulders of the patients’ relatives and carers, due to the emotional, physical and financial difficulties faced by the relatives and friends of those affected by all types of dementia; whereas in every family with a patient, on average three persons directly bear the brunt, meaning that an estimated 19 million Europeans are directly affected by dementias,
P. ker je premalo zmogljivosti institucionalne oskrbe za ljudi z Alzheimerjevo boleznijo in jih bo v prihodnosti še manj; ker je zaposlenih v zdravstvu in socialnih delavcev, ki negujejo ljudi z Alzheimerjevo boleznijo premalo in se bo to pomanjkanje v prihodnosti še povečalo; ker je istočasno jasno, da je za takšne ljudi najbolje, da se jim pomaga, da ostanejo doma in v poznanem okolju,
P. whereas there is a shortfall in capacity in institutional care for people suffering from Alzheimer’s disease, and that shortfall will worsen in the future; whereas there is a shortage of healthcare professionals and social workers caring for people suffering from Alzheimer’s, and that shortage will increase in future; whereas at the same time it is clear that the best thing for such people is to assist them to remain in their familiar environment at home,
Q. ker morajo Evropska unija in države članice pri oskrbi bolnikov in pomoči negovalcem stremeti k trojnemu cilju: zagotoviti kakovostno oskrbo bolnikov in čas počitka za negovalce, prilagojenega njihovim potrebam, ter omogočiti oskrbo bolnikov na domu ali v kakovostnih in inovativnih varstvenih ustanovah,
Q. whereas, in connection with the care of dementia sufferers and support for carers, the European Union and the Member States must pursue a threefold objective: provide high-quality care for sufferers, ensure that carers can take advantage of periods of respite tailored to their needs, and ensure that sufferers can be looked after at home or in high-quality, innovative care facilities,
R. ker lahko moderne storitve telemedicine zagotovijo zelo učinkovito podporo bolnikom z Alzheimerjevo boleznijo in njihovim negovalcem ter lahko tako bolnikom pomagajo k boljši kakovosti življenja v znanem okolju in omogočijo dobro alternativo institucionalni oskrbi,
R. whereas modern telemedicine services can deliver very effective support for patients suffering from Alzheimer’s, and for their carers, and can thus contribute to a better quality of life for patients in their familiar environment and provide a good alternative to institutional care,
S. ker je Alzheimerjeva bolezen stigmatizirana in odnos širše javnosti do te bolezni in ljudi, ki jih je prizadela, izolira bolnike in njihove sorodnike; ker je splošni pristop k tej težavi še zmeraj napačen in prizadete ter njihove sorodnike vodi v socialno izključenost; ker obstaja potreba po boljšem razumevanju stigmatizacije, predsodkov in diskriminacije, povezane z demenco in ker je treba preučiti vprašanje, kako preprečiti socialno izključenost in spodbuditi aktivno državljanstvo, da se v jedru vsake aktivnosti ohrani dostojanstvo in spoštovanje ljudi z demenco;
S. whereas there is a stigma attached to Alzheimer’s disease and public attitudes towards the illness and the persons affected by it leave sufferers and their families and relatives isolated; whereas the overall approach to the problem is still the wrong one, leading those affected and their relatives to their social exclusion; whereas, therefore, there is a need for better understanding of the stigma, prejudice and discrimination associated with dementia whilst research is also needed on how to prevent social exclusion and encourage active citizenship so as to maintain the dignity and respect of the people with dementia at the core of any action,
T. ker je izboljšanje kakovosti za bolnike pogosto povezano s čustvenim življenjem bolnikovih sorodnikov,
T. whereas enhancing the quality of the patients is often linked to the emotional lives of the patients' relatives,
U. ker skupine za pomoč nudijo primerno okolje za skupinsko razmišljanje o podpori in delitvi „zavestne odgovornosti“ bolnikovih sorodnikov,
U. whereas Support Groups represent a suitable space for group thinking to support and share the ‘conscious responsibility’ of the patients’ relatives.
V. ker Alzheimerjeve bolezni in drugih oblik demence ne smemo obravnavati kot normalne težave, s katero se posamezniki soočajo v procesu staranja, ne da bi bili pri tem upravičeni do primernega zdravljenja, zdravstvene pomoči in specializirane oskrbe,
V. whereas Alzheimer’s and the other forms of dementia should not be perceived as a normal problem faced by individuals as part of the ageing process without them being entitled to suitable treatment, medical assistance and specialised care,
W. ker so možnosti za terapijo kljub znatno večji družbeni ozaveščenosti o Alzheimerjevi bolezni in njenemu večjemu znanstvenemu poznavanju, pri čemer je poudarek zlasti na značilnostih bolezni, in sicer ne samo pri klinični demenci, ampak tudi pri pojavu predhodnih stanj demence, še vedno omejene na simptomatska zdravila; ker med državami članicami, pa tudi znotraj njih, obstajajo občutne razlike in vrzeli v izobraževanju in usposabljanju osebja ter razpoložljivosti medicinske opreme za diagnosticiranje in raziskave; ker se Alzheimerjeva bolezen diagnosticira šele leta po pojavu bolezni, kar odloži kakršno koli možno zdravljenje za upočasnitev napredovanja bolezni,
W. whereas, although social awareness and scientific knowledge of Alzheimer’s disease have increased substantially, underlining in particular how the disease is characterised not only by clinical dementia but also by the onset of pre-dementia earlier in time, therapeutic options are still limited to symptomatic drugs; whereas there are currently striking disparities between and even within Member States and shortcomings in terms of staff training and qualifications and the availability of equipment needed for diagnosis and research and whereas the diagnosis of Alzheimer’s often takes place years after the onset of the disease, thus delaying any possible treatment to slow down the disease,
X. ker je najnovejši napredek pri uporabi zanesljivih bioloških označevalcev Alzheimerjeve bolezni spodbudil razvoj novih meril za opredelitev te bolezni kot klinične entitete, ki obsegajo ne samo fazo, v kateri je prizadet spomin in zaznavanje, temveč tudi predhodno fazo;
X. whereas recent advances in the use of reliable biomarkers for Alzheimer’s disease have stimulated the development of new criteria defining Alzheimer’s disease as a clinical entity encompassing not only a phase affecting memory and cognition, but also an earlier phase,
Y. ker Alzheimerjeva bolezen in druge oblike demence ne prizadenejo le starejših ljudi, temveč lahko prizadenejo tudi mlade; ker je treba zato izboljšati dostop do diagnosticiranja, raziskave ter storitve oskrbe, pomoči in nastanitve mladih bolnikov,
Y. whereas Alzheimer’s disease and the other forms of dementia do not affect just the elderly, but may also be developed by young people; whereas access to diagnostic services, research and care, support and accommodation should be improved for young sufferers,
Z. ker naj bi povečanje javne in poklicne ozaveščenosti o Alzheimerjevi bolezni, tako na nacionalni kot na evropski ravni, omogočilo ljudem, da prepoznajo prve znake bolezni, si prizadevajo za zgodnjo diagnostiko ter za dostop do zdravljenja in storitev v zgodnji fazi,
Z. whereas raising greater public and professional awareness about Alzheimer’s disease, both at national and European level, should empower the population to recognise the first signs of the disease, seek early diagnosis, and access treatment and services at an early stage,
AA. ker bi večja osredotočenost na predhodno fazo Alzheimerjeve bolezni lahko prispevala k podpori razvoja ustreznih terapevtskih posegov, ki lahko upočasnijo napredek bolezni ter konec koncev odložijo razvoj najbolj hude oblike Alzheimerjeve bolezni,
AA.whereas a greater focus on the pre-dementia phase of Alzheimer’s disease could contribute to supporting the development of appropriate therapeutic interventions capable of slowing down the disease’s progression, and ultimately delaying patients’ entry into severe Alzheimer’s, i.e. the most debilitating form of the disease,
AB. ker razvoj učinkovitih povzročiteljev, ki spreminjajo bolezen (v nasprotju s čisto simptomatskimi povzročitelji) predstavljajo področje kritičnih in nujnih nezadovoljenih potreb bolnikov z Alzheimerjevo boleznijo,
AB.whereas the development of effective disease-modifying agents (as opposed to purely symptomatic agents ) represents an area of critical and urgent unmet need for patients with Alzheimer’s disease,
AC. ker se poleg tega v diagnozi Alzheimerjeve bolezni, postavljene v skoraj 70 % primerov demence, ne upoštevajo različne vrste ugotovljenih možganskih poškodb in ker mladi in starejši bolniki nimajo enake patološke in klinične slike,
AC.whereas, furthermore, the diagnosis of Alzheimer’s disease delivered in almost 70 % of cases of dementia fails to take full account of the variety of cerebral lesions encountered in sufferers and of the fact that young and elderly sufferers do not show the same pathological and clinical picture,
3. poziva Svet in Komisijo, naj koncept demence upoštevata pri pripravi prihodnjih ukrepov na področju politike preventivnega zdravstva, zlasti v povezavi z boleznimi srca in ožilja, duševnim zdravjem, fizično aktivnostjo, izobraževanjem na področju zdravstva in novimi tehnologijami;
Calls on the Council and the Commission to take account of the concept of dementia when preparing future actions in the area of preventive health policy, notably in relation to its interaction with cardiovascular illnesses, mental health, physical activity, education in the field of health and new technologies;
Kazalniki zdravja bodo prispevali k znatnemu izboljšanju gospodarskih kazalnikov;
Health indicators will contribute to significant improvement of the economic indicators;
10. poziva Svet in Komisijo, naj zagotovita ozaveščanje javnosti v Uniji o demenci, kar bi pripomoglo k prepoznavanju zgodnjih simptomov demence ter omogočilo zgodnje diagnosticiranje ter ustrezno zdravljenje in primerno podporo;
Calls on the Council and the Commission to act to raise public awareness in the Union concerning dementia, facilitating recognition of the early symptoms of dementia with a view to early diagnosis and the corresponding treatment and appropriate support;
15. spodbuja države članice, naj zagotovijo, da bodo zdravila, ki zavirajo nastop Alzheimerjeve bolezni, na voljo vsem obolelim za to boleznijo in ne samo tistim, pri katerih je bila ugotovljena huda oblika;
Encourages Member States to ensure that drugs able to slow the onset of Alzheimer’s are made available to all patients suffering from the disease and not only patients who are diagnosed with severe cases of Alzheimer’s;
21. priznava pomen podpore Evropske unije 34 projektom o nevrodegenerativnih boleznih v višini 159 milijonov EUR; meni pa, da je v okviru prihodnjega 8. okvirnega programa za raziskave in razvoj nujno odpraviti razdrobljenost raziskav, zlasti o Alzheimerjevi bolezni, in vključiti projekte na nezadostno raziskanih področjih zdravljenja brez zdravil ter vedenjskega in kognitivnega zdravljenja;
Recognises the current importance of the European Union’s support, totalling EUR 159 million, for 34 projects on neurodegenerative diseases; considers it essential, nevertheless, in the context of the forthcoming 8th RDFP, to address the fragmented nature of research, particularly that on Alzheimer’s, and to include projects in the insufficiently explored fields of non-drug, behavioural and cognitive therapies;
23. poziva Komisijo, Svet in države članice, naj na področju zdravstvenih in socialnih raziskav ter politike zaposlovanja, zdravstvene in socialne politike upoštevajo posebne potrebe žensk, ki jih je med obolelimi dvakrat več, med negovalci pa nesorazmerno veliko;
Calls on the Commission, the Council and Member States to take into account the specific needs of women, who account for twice the number of sufferers and a disproportionate number of carers, in the areas of medical and social research, health, employment and social policies;
27. poziva države članice, naj sodelujejo s Komisijo pri preučitvi morebitnih pobud Komisije za pomoč državam članicam pri razvoju in izvajanju skupnega raziskovalnega programa;
Invites the Member States to cooperate with the Commission with a view to exploring possible Commission initiatives to assist Member States in developing and implementing the common research agenda;
30. poudarja, da je treba raziskati povezave in razlike med staranjem in demenco, med demenco in depresijo pri starejših osebah ter med razlikami, povezanimi s spolom, in različnimi oblikami demence; poleg tega spodbuja države članice, naj pospešujejo posebne programe zdravstvene oskrbe in raziskovalne programe, ki pripisujejo velik pomen bolnikovi izbiri in obetom, ter oblikujejo priporočila, osredotočena na temeljna načela dostojanstva in socialne vključenosti, ter tako pospeši samostojnost in samostojno odločanje bolnikov;
Points to the importance of research into the connection as well as the distinction between the ageing process and dementia, between dementia and depression in older people, and between gender differences and the various types of dementia; encourages the Member States, furthermore, to promote specific healthcare and research programmes that give great importance to patient choice and perspective, and to formulate recommendations centered on the core principles of dignity and social inclusion, thereby promoting the autonomy and self determination of patients;
33. poudarja, da so potrebni ukrepi, ki ne bodo usmerjeni le v zdravljenje Alzheimerjeve bolezni z zdravili po tem, ko se je bolezen že razvila, temveč tudi na preprečevalne ukrepe za zmanjšanje možnosti za razvoj Alzheimerjeve bolezni, vključno z dieto in prehrano; poziva k obsežni raziskavi učinkov diete in prehrane na bolezen in k svetovanju, tudi o prehrani, o preprečevanju razvoja bolezni, in k njunemu razširjanju v javnosti prek kampanj za povečanje ozaveščenosti;
Stresses the need for actions which do not just focus on drug-based treatment of Alzheimer’s once the condition has developed, but also on preventative measures, including diet and nutrition, to reduce the chances of developing Alzheimer’s; calls for extensive research into the effects of diet and nutrition on Alzheimer’s and for advice, including nutritional advice, on preventing the disease to be developed and disseminated to the public through awareness raising campaigns;
36. poziva Komisijo, Svet in države članice, naj razmislijo o vzpostavitvi varnostnih standardov za institucije, specializirane za oskrbo starejših, za skupnosti, katerim pripadajo, in za ureditev oskrbe na domu;
Urges the Commission, the Council and the Member States to consider establishing safety standards applicable to institutions specialising in care for the elderly, to the communities to which they belong and to home care arrangements;
39. poziva Komisijo, naj uporabi sredstva vodilne pobude„Unija inovacij“ v strategiji Evropa 2020 in načrtovanega pilotnega partnerstva o dejavnem in zdravem staranju (ki se bo začelo v začetku leta 2011) za spoprijem z demenco v Evropi;
Calls on the Commission to leverage the resources of the flagship initiative ‘Innovation Union’ in the Europe 2020 Strategy and the planned pilot partnership on active and healthy ageing (to be launched by early 2011) to tackle dementia in Europe;
41. priznava, da družine, negovalci in skupnosti bistveno prispevajo k temu, da oboleli uresničijo svoje zmogljivosti, in poziva države članice, naj podprejo družino, negovalce in življenje v skupnosti;
Recognises the vital contribution families, carers and communities play in enabling suffering patients to realise their potential and asks the Member States to support family, carers and community life;
43. priporoča, naj Komisija pregleda, kako bi bilo mogoče razširiti pobude EU na področju pravic ljudi z demenco, vključno z uporabo predhodnih aktov (oporoke v času življenja) in vprašanjem sistemov skrbništva;
Recommends that the Commission examine how EU initiatives in the field of rights of people with dementia, including the use of advance directives (living wills) and the issue of guardianship systems, can be extended;
49. poziva države članice, naj vzpostavijo evropsko mrežo referenčnih centrov, v katerih bi bilo združeno znanje o diagnosticiranju, zdravljenju in negi bolnikov z demencami in Alzheimerjevo boleznijo ter v katerih bi potekala izmenjava ter ocena informacij in podatkov med državami članicami;
Calls on the Member States to set up an interconnected European network of centres of reference where expertise in the diagnosis, treatment and care of dementia and Alzheimer’s would be concentrated and by means of which information and data could be exchanged and evaluated between the Member States;
52. poziva Evropsko unijo in države članice, naj okrepijo raziskave, izboljšajo dostop do diagnosticiranja in prilagodijo storitve nege in pomoči potrebam mladih bolnikov;
Calls on the European Union and the Member States to strengthen research, improve access to diagnostic services and adapt care and support services to the needs of young sufferers;
55. opozarja Komisijo na poročilo Bowis iz leta 2006, ki poziva delodajalce, naj v okviru odgovornosti, ki jo imajo za zdravje in varnost pri delu, uvedejo ukrepe za „duševno zdravje pri delu“, da bi zagotovile osebam z duševnimi motnjami najboljšo možno vključitev na trg dela, ter te politike objavijo in spremljajo v skladu z veljavno zakonodajo na področju zdravja in varnosti; opozarja Komisijo, da Parlament še vedno pričakuje objavo teh politik;
Reminds the Commission of the 2006 Bowis report calling on employers to introduce ‘Mental Health at Work’ policies as a necessary part of their health and safety at work responsibility, with a view to ensuring the best possible incorporation into the labour market of persons with mental disorders, and that these policies should be published and monitored within existing health and safety legislation; reminds the Commission that Parliament is still waiting for these policies to be published;
57. spodbuja države članice, naj pripravijo informativne kampanje za javnost in posebne skupine, kot so šolski otroci, zaposleni v zdravstvu in socialni delavci, v katerih bodo primerjali podporne ukrepe za družinske negovalce, združenja bolnikov in nevladne organizacije ter si o teh ukrepih izmenjali izkušnje, s spodbujanjem izdajanja in distribucije letakov, tudi na spletu, z informacijami glede usposabljanja in organizacije prostovoljnih delavcev ter pravnih, psiholoških in zdravstvenih pomočnikov na domu in v dnevnih centrih s spodbujanjem ali ustanavljanjem združenj za Alzheimerjevo bolezen, da bi prizadetim omogočili izmenjavo izkušenj; poudarja, kako pomembna je zmožnosti prepoznavanja simptomov demence v vseh kampanjah za ozaveščanje;
Encourages the Member States to develop information campaigns for the general public and for specific groups such as schoolchildren, healthcare professionals, and social workers, comparing and exchanging experiences on support measures for family carers, patients associations and non-governmental organisations by promoting the publication and distribution of information pamphlets – including online – on the training and organisation of voluntary workers and legal, psychological and health assistants both at home and at day centres by promoting or setting up Alzheimer’s associations to enable those concerned to exchange experiences; highlights the importance in all awareness and education campaigns of the ability to recognise the symptoms of dementia;
64. poudarja, da je potrebno doseči še velik napredek pri dostopu bolnikov z Alzheimerjevo boleznijo ali podobnimi boleznimi do terapevtskih raziskav, da bi zagotovili učinkovitost novih molekul; poudarja tudi, da bi bilo to vprašanje treba obravnavati v prihodnjih spremembah direktive EU o kliničnem preskušanju zdravil (2001/20/ES);
Points out that considerable progress still needs to be made in the area of access to therapeutic trials for patients with Alzheimer’s and similar diseases in order to ensure that the new molecules are effective; emphasises that this problem should be addressed in the next revision of the EU Directive on clinical trials on medicinal products (2001/20/EC);
Sporočilo Komisije Evropskemu parlamentu in Svetu o evropski pobudi o Alzheimerjevi bolezni in drugih demencah je bistveni korak v smeri konkretnih predlogov za povezavo različnih obstoječih politik in načinov obravnave te bolezni.
The communication from the Commission to the European Parliament and the Council on a European initiative on Alzheimer's disease and other dementias is a fundamental step on the way towards specific proposals to link up the various existing policies and ways of tackling this type of disease.
Razdrobljenost ukrepov, neenaki odzivi v Evropi in neenaki pogoji glede dostopa in zdravljenja bolezni so več kot dovolj za upravičenost te pobude.
Fragmented action, the uneven responses that exist in Europe and the prevalence of unequal conditions regarding access and treatment for the disease provide more than sufficient justification for this initiative.
Na podlagi štirih glavnih ciljev: spodbujati zgodnje diagnosticiranje in kakovost življenja; izboljšati epidemiološko znanje o tej bolezni in uskladiti obstoječe raziskave; podpirati solidarnost med državami članicami z izmenjavo dobre prakse; in spoštovati pravice dementnih oseb, Komisija predlaga vrsto ukrepov, namen tega poročila pa je njihova poglobitev.
Basing itself on four key objectives - promoting early diagnosis and quality of life; improving epidemiological knowledge of the disease and coordinating existing research; supporting solidarity between the Member States through sharing best practices; and, finally, respecting the rights of people living with dementias - the Commission is proposing a series of measures which this report aims to take further.
Predstavljeni so tudi dodatni ukrepi, namenjeni zlasti boljši vključitvi družbenih vidikov bolezni in njihovih posledic.
Additional measures are also set out aimed at better incorporating the social dimensions of the disease and their implications.
Poleg teh področij je posebna pozornost namenjena zaposlenim v zdravstvu in negovalcem, okrepitvi različnih sistemov nege, usposabljanju družin in drugih oseb, ki se vsakodnevno srečujejo z demenco, ter podpori zanje.
In addition to these aspects, particular attention is paid to health care professionals and providers, action to strengthen the various care systems, and training and support for families and other people coping with dementia on a daily basis.
V skladu s podatki, ki so jih predstavila združenja bolnikov, se vsako leto pri 1,4 milijona državljanov, ki živijo v Evropi, razvije ena od vrst demence.
According to the figures presented by patients' associations, every year 1.4 million citizens living in Europe develop some type of dementia.
Vsakih 24 sekund je diagnosticiran nov bolnik.
A new case is diagnosed every 24 seconds.
Skoraj vsaka dvajseta oseba, starejša od 65 let, in vsaka peta, starejša od 80 let, trpi za demenco.
Almost one in 20 people over the age of 65 and one in five over 80 suffer from dementia.