natgillin/translations-raw huggingface dataset:
Rådets afgørelse 2013/743/EU af 3. december 2013 om særprogrammet til gennemførelse af Horisont 2020 — rammeprogram for forskning og innovation (2014-2020) og om ophævelse af afgørelse 2006/971/EF, 2006/972/EF, 2006/973/EF, 2006/974/EF og 2006/975/EF (EUT L 347 af 20.12.2013, s. 965), særlig artikel 3, stk. 3, litra g).
first, for the patient (improved quality of life and better acceptance) and second, from a health economics point of view.
Denne bevilling skal også dække de udgifter, der svarer til de indtægter, der giver anledning til opførelse af supplerende bevillinger, og som hidrører fra tredjepart eller tredjeland (ikke-EØS), som deltager i aktioner inden for forskning og teknologisk udvikling.
Transplantation is not used as frequently as dialysis, despite the fact that it makes for a far better quality of life and is more cost-efficient.
KAPITEL 18 06 —
Hence, an assessment of the different national organisational practices which play a role in facilitating transplantation (i.e. different organ donor policies, different consent systems, the existence of transplant coordinators, bilateral or multilateral agreements for cross-border exchange of organs between Member States, etc.) is essential in order to identify and support the practices which ultimately have a significant effect on transplantation waiting times.
Støtte til initiativer inden for narkotikapolitikken
These differences in donor policies greatly affect transplantation waiting times, and long waiting times on dialysis have major deleterious effects on kidney transplant candidates:
Afslutning af aktiviteter vedrørende narkotikaforebyggelse og oplysningsaktiviteter
the death rate on dialysis is higher when compared with the survival rate post-transplant,
Kapitel 18 06 - I alt
the longer the waiting time on dialysis, the lower the transplantation success and patient survival rate,
Tidligere artikel 33 03 03
finally, the costs of dialysis are much higher than those associated with a functioning kidney transplant, meaning that the longer the waiting time on dialysis is, the higher the total expenditure will be.
analyseaktiviteter, såsom indsamling af data og statistikker;
All these factors have a significant impact not only on access to transplantation but also on overall spending for the treatment of CKD.
udvikling af fælles metoder og, når det skønnes hensigtsmæssigt, af indikatorer eller benchmarks;
Therefore, it is critical to gather the necessary information about their impact on final treatment outcomes, in terms of both quality of care and cost-efficiency.
undersøgelser, forskning, analyser og rundspørger;
At present, some Member States are better organised than others with regard to dialysis treatment and kidney transplantation.
evalueringer;
This stems from the fact that some Member States have included the role of transplant donor coordination in their national structures and have established collaboration through specialised networks such as Eurotransplant and Scandiatransplant.
aktiviteter vedrørende gensidig læring, samarbejde, bevidstgørelse og formidling, såsom fastlæggelse af, hvad der er god praksis, og udvekslinger herom, innovative tilgange og erfaringer tilrettelæggelse af peer review og gensidig læring, tilrettelæggelse af peer review og gensidig læring, tilrettelæggelse af konferencer, seminarer, informationskampagner, herunder institutionel information om Unionens politiske prioriteter for så vidt de har tilknytning til programmets mål, indsamling og offentliggørelse af materiale med henblik på at formidle oplysninger om programmet og dets resultater, udvikling, drift og vedligeholdelse af IKT-systemer og -redskaber, herunder videreudvikling af e-justiceportalen som et redskab til at forbedre borgernes adgang til klage og domstolsprøvelse
This project will assess the situation in the Member States, sharing and building on the expertise and data from existing initiatives and registers.
Eventuelle indtægter fra bidrag fra tiltrædelseslande, kandidatlande og potentielle kandidatlande til at deltage i Unionens programmer, der opføres under konto 6 0 3 1 i oversigten over indtægter, kan give anledning til opførelse af supplerende bevillinger, jf. finansforordningens artikel 21, stk. 2, litra e)-g).
In addition, the project will take into account the work done in the mid-term review of the action plan on organ donation and transplantation, and other projects in the field, such as ETPOD, EULID, Elupsy and the Accord joint action, which focuses on living donation.
Eventuelle indtægter fra bidrag fra tiltrædelseslande, kandidatlande og potentielle kandidatlande til at deltage i Unionens programmer, der opføres under konto 6 0 3 1 i oversigten over indtægter, kan give anledning til opførelse af supplerende bevillinger, jf. finansforordningens artikel 21, stk. 2, litra e)-g).
Given that advances in the implementation of health policies, including donation policies and waiting list policies, are the responsibility of the competent national authorities, the project will involve those authorities in cooperation with specialised organisations such as the European Society of Organ Transplantation (ESOT) and the European Transplant Coordinators Organisation (ETCO) and give them access to those organisations’ expert input.
Retsgrundlag
Expected outcomes
Tidligere artikel 18 02 06
In summary, investigating the many factors that influence the choice of CKD treatment for kidney patients and the different organisational practices which play a role in facilitating kidney transplantation will help to bring about better and more cost-efficient kidney disease treatment practices in Member States.
Denne bevilling skal dække centrets personale- og driftsudgifter (afsnit 1 og 2) samt driftsudgifter i tilknytning til arbejdsprogrammet (afsnit 3).
The overall project goal is to provide an overview of the different treatment modalities and the factors that influence the selection of those modalities in Member States, with a view to harmonising end-stage kidney disease treatments and improving the availability of transplantation across Member States, while at the same time reducing healthcare costs and improving the quality of care.
Unionens bidrag i 2016 beløber sig til i alt 14794000 EUR.
It is expected that some of the Member States participating in the project will be able to use it as a stepping stone towards successful implementation of Directive 2010/53/EU of the European Parliament and of the Council of 7 July 2010 on standards of quality and safety of human organs intended for transplantation (OJ L 207, 6.8.2010, p. 14) and of the EU action plan on organ donation and transplantation.
70000 EUR kommer fra inddrivelsen af overskydende beløb og lægges til de 14724000 EUR, der er opført på budgettet.
This pilot project will focus on training and social awareness to encourage public reflection on organ donation.
Europa-Parlamentets og Rådets forordning (EF) nr. 1920/2006 af 12. december 2006 vedrørende Det Europæiske Overvågningscenter for Narkotika og Narkotikamisbrug (EUT L 376 af 27.12.2006, s. 1).
It will include training for social activists who will pass on the main positive aspects to the rest of society.
Tidligere artikel 33 03 51 (delvis)
The project is for society as a whole, with special emphasis on families, economic and social actors and health professionals as potential social activists to support organ donors and recipients.
Europa-Parlamentets og Rådets afgørelse nr. 1150/2007/EF af 25. september 2007 om et særprogram for perioden 2007-2013 om »Forebyggelse af narkotikamisbrug og information af offentligheden« som en del af det generelle program om grundlæggende rettigheder og retfærdighed (EUT L 257 af 3.10.2007, s. 23).
Awareness-raising activities will take place in schools and vocational training establishments, helping to increase organ and tissue donation and improve distribution processes and transplantation rates.
Meddelelse fra Kommissionen til Rådet og Europa-Parlamentet af 6. april 2005 om et rammeprogram om grundlæggende rettigheder og retfærdighed for perioden 2007-2013 (KOM(2005) 122 endelig).
Expressed and presumed consent will be encouraged in order to increase the number of donors.
TITEL 19
Good practices, extending to telemedicine, will be shared.
ADMINISTRATIVE UDGIFTER VEDRØRENDE POLITIKOMRÅDET UDENRIGSPOLITISKE INSTRUMENTER
Recommendations will be made in collaboration with authorities and health professionals
INSTRUMENTET TIL FREMME AF STABILITET OG FRED — KRISESTYRING, FOREBYGGELSE AF KONFLIKTER, FREDSOPBYGNING OG KRISEBEREDSKAB
An organ donation and transplantation database for the Union and neighbouring countries will be set up, with a view to:
FÆLLES UDENRIGS- OG SIKKERHEDSPOLITIK (FUSP)
analysing the current situation in the Union and neighbouring countries,
VALGOBSERVATIONSMISSIONER
providing indicators for monitoring overall performance in the management of donated and transplanted organs.
SAMARBEJDE MED TREDJELANDE INDEN FOR RAMMERNE AF PARTNERSKABSINSTRUMENTET
Aims:
Betalinger
to better understand the specific health inequalities experienced by lesbian, gay, bisexual, transgender and intersex (LGBTI) people, focusing in particular on overlapping inequalities stemming from discrimination on other grounds (e.g. age, disability, race and ethnicity) and the barriers faced by health professionals when providing care to those groups,
Titel 19 - I alt
to provide health professionals with specific tools to ensure that they have the right skills and knowledge to overcome those barriers and contribute to the reduction of health inequalities.
KAPITEL 19 01 —
This project follows on from the Fundamental Rights Agency project ‘Public authorities and fundamental rights of LGBT people’, in which healthcare professionals were interviewed on specific health inequalities faced by LGBTI people.
Udgifter vedrørende tjenestemænd og midlertidigt ansatte inden for politikområdet udenrigspolitiske instrumenter
It will complement pilot projects ‘Reducing health inequalities: building expertise and evaluation of actions’ (Item 17 03 77 12) and ‘Developing evidence-based strategies to improve the health of isolated and vulnerable persons’ (Item 17 03 77 13), which address health inequalities, but not as experienced by LGBTI people.
Udgifter til tjenestemænd og midlertidigt ansatte — hovedsæde
To bridge that gap will be the specific focus of this project.
Udgifter til tjenestemænd og midlertidigt ansatte — EU-delegationer
Outcomes:
Artikel 19 01 01 - Tilsammen
information will be gathered on specific health inequalities experienced by LGBTI people; particular attention will be paid to those within this group who are at risk of inequality as a result of age, disability, race or ethnic background,
Udgifter til eksternt personale og andre administrationsudgifter til støtte for politikområdet udenrigspolitiske instrumenter
health professionals will be aware of both those health inequalities and the barriers that they themselves face when providing care to those groups.
Eksternt personale — EU-delegationer
They will be equipped to overcome these barriers through training modules,
Andre administrationsudgifter — hovedsæde
training modules will be made available to all health stakeholders across the Union.
Andre administrationsudgifter — EU-delegationer
The Commission communication of 4 April 2014 entitled ‘On effective, accessible and resilient health systems’ (COM(2014) 215 final) stressed that accessibility to healthcare was one of the three pillars of the Union agenda for effective, accessible and resilient health systems.
Artikel 19 01 02 - Tilsammen
Access to healthcare in rural areas is a particular problem in various Member States.
Udgifter til IKT-udstyr og -tjenesteydelser, bygninger og beslægtede udgifter inden for politikområdet udenrigspolitiske instrumenter
As populations move to urban areas, resulting in the decay of small and medium-sized cities, the issue of adequate healthcare provision in rural areas will grow in importance in other Member States as well.
Bygninger og dertil knyttede udgifter — EU-delegationer
The project will help to reduce disparities in healthcare accessibility and to ensure equitable access in rural areas within and among the Member States.
Artikel 19 01 03 - Tilsammen
Good practices on policies and tools used to improve access to healthcare in rural areas will be identified and exchanged, taking into account factors such as access to facilities and to medical professionals, as well as the cost and affordability of healthcare, the optimum size of healthcare services and the scope for cross-border collaboration between Member States.
Udgifter til støttefunktioner i forbindelse med foranstaltninger inden for politikområdet udenrigspolitiske instrumenter
The specific activities to be carried out under this project will be laid down after a consultation process among Member States and stakeholders in the field of public health and healthcare policies.
Udgifter til støttefunktioner i forbindelse med instrumentet til fremme af stabilitet og fred
Rare diseases (85 % are genetic) are life-threatening or chronically debilitating diseases which are of low prevalence (less than 5 per 10000).
Udgifter til støttefunktioner til fælles udenrigs- og sikkerhedspolitik (FUSP)
It is estimated that between 5000 and 8000 distinct rare diseases exist today, affecting between 6 % and 8 % of the population (between 27 and 36 million people in the EU).
Udgift til støttefunktioner til Det Europæiske Instrument for Demokrati og Menneskerettigheder — valgobservationsmissioner
About 20-25 % of rare diseases are rare congenital malformations (isolated or multiple, including malformation syndromes).
Udgifter til støttefunktioner til partnerskabsinstrumentet
Eurocat has moved its databases and administrative structures to the Joint Research Centre at Ispra, where the rare diseases platform is sited.
Artikel 19 01 04 - Tilsammen
However combining malformation registries to form a rare diseases registry for rare malformations (isolated and multiple, including rare malformation syndromes) will require targeted action and the collection of additional information.
19 01 06 01 Forvaltningsorganet for Undervisning, Audiovisuelle Medier og Kultur — bidrag fra partnerskabsinstrumentet
That will need to be done at national level and additional resources will be necessary.
Artikel 19 01 06 - Tilsammen
Aim of the pilot project:
Kapitel 19 01 - I alt
to establish a Polish Registry of Rare Congenital Malformations (as part of the Rare Diseases Registry), drawing on the structure, organisation and experience of the Polish Registry of Congenital Malformations.
Der vil blive sat mere kommissionspersonale af til forvaltning af kriseberedskab med henblik på at sikre, at der er tilstrækkelig kapacitet til at følge op på civilsamfundsorganisationernes forslag om kriseberedskab.
This model, if successful, can be implemented also in other Member States.
Kommissionen ansætter højt kvalificeret og specialiseret personale til at håndtere menneskerettighedsanliggender.
The pilot project will complement the JRC-SANTE development of an EU platform on rare diseases registration to provide a common access point to data collections on rare diseases across Europe.
Der afsættes tilstrækkeligt personale til forvaltning af kriseberedskab til opfølgning af civilsamfundsorganisationernes forslag om kriseberedskab.
The pilot project will help in updating policy-relevant and scientifically sound public health indicators and will provide information to other Member States on how to develop national rare disease registration systems based on existing congenital anomalies registries.
udgifter til eksternt personale i EU-delegationerne (kontraktansatte, lokalt ansatte eller udstationerede nationale eksperter) i forbindelse med, at programforvaltningen lægges ud til EU-delegationerne i tredjelande eller at opgaver, der blev varetaget af nu udfasede kontorer for teknisk assistance, internaliseres, såvel som supplerende udgifter til logistik og infrastruktur såsom kurser, møder, tjenesterejser og leje af indkvarteringsfaciliteter, der direkte følger af, at delegationen omfatter eksternt personale, der aflønnes med midler opført under denne konto
Tasks:
Sådanne bidrag, som opføres under artikel 6 3 3 i oversigten over indtægter, udgør formålsbestemte indtægter, jf. finansforordningens artikel 21, stk. 2, litra b).
to use the PRCM platform to produce public health indicators for a special group of rare diseases — rare malformations (isolated and rare malformation syndromes — about 20 to 25 % of all rare diseases),
Bevillingen dækker udgifter til støttefunktioner under kapitel 19 02.
to produce prevalence data and surveillance reports (including trends and clusters where relevant) on a group of selected rare diseases in Poland.
Denne bevilling skal dække støtte til gennemførelsen af foranstaltninger i forbindelse med FUSP, hvor Kommissionen ikke har de nødvendige erfaringer eller har brug for yderligere støtte.
Methods:
Den skal dække:
The PRCM is an excellent model for exploring whether a birth defects registry can be extended to form a rare diseases registry.
udgifterne til teknisk og administrativ bistand, som Kommissionen kan uddelegere til et EU-forvaltningsorgan
The PRCM Central Working Group includes 10 experienced clinical geneticists and its expertise can be applied to the project.
udgifter til undersøgelser, ekspertmøder, informationssystemer og publikationer, der er direkte forbundet med gennemførelsen af målsætningen for programmet.
PRCM collaborates with all genetic clinics in Poland and over 1500 clinics, wards and outpatient care units across Poland.
Idet der tages forbehold af den endelige afgørelse om oprettelsen af en missionsstøtteplatform for FSFP-missioner, skal denne bevilling dække de administrative støtteudgifter til missionsstøtteplatformen.
In order to extend the PRCM to form a rare diseases registry, additional data will be collected and analysed.
Eventuelle indtægter fra FSFP-missioner i form af bidrag til udgifter til centraliserede støttetjenester, som opføres under artikel 5 5 0 i oversigten over indtægter, kan give anledning til opførelse af supplerende bevillinger under denne konto, jf. finansforordningens artikel 21, stk. 3.
Collaboration with patients associations will be introduced.
De formålsbestemte indtægter, jf. finansforordningens artikel 21, stk. 3, anslås til 440000 EUR.
The purpose of this pilot project is to set up a support structure specifically for women, in particular during pregnancy.
Bevillingen dækker udgifter til støttefunktioner under kapitel 19 03.
The aim is to reduce the number of children exposed to alcohol in the womb or suffering from foetal alcohol syndrome (FAS) by taking practical steps such as referring women with an alcohol problem to prevention specialists, coordinating support efforts, setting up discussion groups specifically for women, providing families with support during informal meetings between them and healthcare professionals, and encouraging voluntary participation by women in primary prevention efforts.
udgifter til eksternt personale i hovedkontoret (kontraktansatte, udstationerede nationale eksperter eller vikarer), som skal overtage opgaver, der tidligere er blevet uddelegeret til faglige bistandskontorer, som nu er nedlagt.
By reaching out to women in difficulties, bringing them together, providing them with medical and social support and involving their families, the support structure will seek to foster a strong commitment on the women’s part to receiving treatment for their addiction and to offer a dedicated, comprehensive and coordinated care package overseen by professionals.
Udgifterne til eksternt personale i hovedsædet er begrænset til 336727 EUR.
Background
Dette skøn er baseret på en foreløbig årlig enhedsudgift pr. mandår, hvoraf 95 % går til vederlag til personale og 5 % til yderligere udgifter til uddannelse, møder, tjenesterejser, informationsteknologi og telekommunikation for eksternt personale af denne bevilling
Prenatal exposure to alcohol and the societal problems it causes are an extremely serious public health issue.
Denne bevilling dækker udgifter til støttefunktioner under kapitel 19 04.
FAS rates currently stand at 1 % to 2 % of live births in Europe as a whole, and more than 4 % in some communities (in Italy, Croatia and Réunion).
Denne bevilling skal dække driftsudgifter for Forvaltningsorganet for Undervisning, Audiovisuelle Medier og Kultur i forbindelse med den forvaltning af projekter, der er finansieret af bevillingerne under kapitel 19 05 og overdraget til organet.
It is estimated that 1 % of the children of the 20 % of women who have reported drinking during their pregnancy will suffer from problems that are not always detected at birth.
Rådets forordning (EF) nr. 1934/2006 af 21. december 2006 om oprettelse af et instrument til finansiering af samarbejdet med industrialiserede og andre højindkomstlande og -territorier (EUT L 405 af 30.12.2006, s. 41).
Female problem drinking and binge drinking among young people are currently increasing in all the Member States, thus heightening the risks associated with inappropriate alcohol consumption.
Europa-Parlamentets og Rådets forordning (EU) nr. 234/2014 af 11. marts 2014 om oprettelse af et partnerskabsinstrument for samarbejde med tredjelande (EUT L 77 af 15.3.2014, s. 77).
In response to this situation, on 29 April 2015 Parliament adopted a resolution calling on the Commission to devise a new European alcohol strategy.
KAPITEL 19 02 —
In many places, there is still a taboo about women drinking, and those who do so are stigmatised.
Indsats over for eksisterende eller begyndende krisesituationer
The blame is placed on the drinker, not the drink.
Støtte til forebyggelse af konflikter, fredsopbygning og kriseberedskab
A mother who suffers from the disease of alcoholism is doubly guilty, firstly because of her abusive habit and secondly because she is seen as a bad mother whose children could be placed in care.
Afslutning af foranstaltninger på området kriseberedskab (2007 til 2013)
Experience shows that women who are struggling with an alcohol problem are extremely unlikely to turn to formal support and addiction treatment services.
Pilotprojekt: program for fredsskabende NGO-aktiviteter
Thought therefore needs to be given to what is stopping such women from accessing treatment, and they need to be given the support and follow-up they require.
Artikel 19 02 77 - Tilsammen
Identifying at-risk persons at the earliest possible age and offering them appropriate medical and paramedical care and social, educational and occupational support are of key importance, not only in order to ensure that everyone gets a proper chance in life but also because of the economic and social consequences of not doing so.
Kapitel 19 02 - I alt
Making sure that alcohol problems are identified at the earliest possible stage in a pregnancy — and ideally before its onset — so that the women concerned may be helped to stop drinking must be a priority.
Denne bevilling skal bidrage hurtigt til stabilitet ved at yde en effektiv indsats til at hjælpe med at opretholde, etablere eller genetablere de betingelser, som er nødvendige for en korrekt gennemførelse af Unionens eksterne politikker og foranstaltninger i overensstemmelse med artikel 21 i traktaten om Den Europæiske Union.
Although high-quality addiction treatment is available in most parts of Europe, there is no special provision for the specific needs of women struggling with an alcohol problem.
Den tekniske og finansielle bistand kan ydes i tilfælde af en nødsituation, en eksisterende eller begyndende krisesituation, en situation, som udgør en trussel mod demokratiet, lov og orden, beskyttelsen af menneskerettighederne og de grundlæggende frihedsrettigheder eller enkeltpersoners sikkerhed, navnlig personer, der er udsat for kønsrelateret vold i situationer med ustabilitet, eller en situation, der truer med at udvikle sig til en væbnet konflikt eller alvorligt at destabilisere det eller de berørte tredjeland(e).
Such women are in need of someone who is willing to listen, to take them seriously, to reassure them and to offer them support without interfering with their personal lives.