a) at følge WHO's anbefaling og gennem inddragelse af alle relevante aktører at udarbejde nationale handlingsplaner til bekæmpelse af kræft, b) at udvikle yderligere entydige retningslinjer for tidlig diagnosticering, diagnose, behandling og efterfølgende kontrol af brystkræft og løbende opdatere dem, indføre en national koordineringsmetode for brystkræft og sikre gennemførelsen af disse retningslinjer ved hjælp af et åbent revisionssystem, c) med henblik på at sikre kvindernes velbefindende og fysiske integritet at sørge for: - at alle kvinder senest fem hverdage efter såvel en screeningundersøgelse som kliniske undersøgelser underrettes om undersøgelsesresultatet, og at de kvinder, som har fået konstateret brystkræft, højst venter fire uger, inden behandlingen påbegyndes, - at alle kvinder i medicinsk begrundede tilfælde får mulighed for en brystbevarende operation, således at antallet af unødvendige brystamputationer nedsættes, og at brystet så vidt muligt rekonstrueres med kvindens eget væv på kortest mulig tid, - at alle kvinder får en sikker diagnose før operationen (især gennem en biopsi, der er så lidt invasiv som mulig), - at kvinder med et brystimplantat får udleveret et patientpas, hvori de særlige kendetegn og de nødvendige efterbehandlinger efter operationen er angivet; d) at sikre, at patienterne får refunderet udgifterne til hjælpemidler som f.eks. parykker og bh-indlæg samt til lymfedræn i forbindelse med den efterfølgende kontrol, e) gennem tilvejebringelse af passende uddannelses- og videreuddannelsestilbud at udbrede specialisering til f.eks. brystkirurg, brystsygeplejerske eller kræftpsykolog, således som det allerede er tilfældet i visse medlemsstater, f) at etablere organer til medicinsk og psykologisk rådgivning for kvinder, der formodes at have arvelige anlæg for at få brystkræft, og tilbyde intensiverede screeningprogrammer til kvinder med positivt testresultat, g) at vedtage særlige bestemmelser om individuelle patientrettigheder, hvormed patienterne sikres følgende rettigheder: – passende og kvalificeret behandling ved kvalificeret medicinsk personale på behandlingssteder og hospitaler, som er udstyret og organiseret hertil, – forståelig, sagkyndig og passende information og rådgivning ved lægen før, under og efter behandlingen, – selvbestemmelse efter omfattende orientering, – dokumentation for behandlingen og aktindsigt for patienten, – fortrolighed og databeskyttelse, – klageret, – udtalelse fra en anden læge i tilfælde af kræftsygdomme,
(a) comply with the WHO recommendation and, with the involvement of all the major actors concerned, draw up national action plans against cancer, (b) develop and continuously update further evidence-based guidelines on breast-cancer screening, diagnosis, treatment and aftercare, establish a national breast-cancer coordination office and ensure the implementation of the guidelines by means of a transparent auditing process, (c) protect the psychological well-being and physical integrity of women by ensuring that: – every woman is informed of the results of a clinical examination and of a screening examination within five working days and that no woman who has been diagnosed as suffering from breast cancer needs to wait more than four weeks before treatment begins, – in order to reduce the number of breast amputations, breast-conserving surgery is available to every woman in every instance where it is medically justified and that, wherever possible, breast reconstruction operations are performed using the patient’s own tissue and within the shortest possible time, – every woman receives a reliable pre-operation diagnosis (in particular through minimal invasive biopsy), – women who have received breast implants are issued with a patient’s pass which includes an indication of the specific features and requisite post-operative aftercare measures, (d) ensure that the cost of any supplementary aids, such as wigs and bra prostheses and lymphatic drains in follow-up care, is reimbursed, (e) expand medical specialisation schemes leading to qualifications, for example, as breast surgeon, breast cancer nurse or onco‑psychologist which have already proved their worth in some Member States, by setting up appropriate training and further training facilities, (f) set up establishments for the medical and psychological counselling of women with a presumed risk of hereditary breast cancer and offer an intensified screening programme for women whose test results are positive, (g) adopt a specific regulation on individual patients’ rights, giving patients the following rights: - the right to appropriate and qualified medical care provided by qualified medical staff in suitably equipped and organised practices and hospitals, - the right to easily understandable, expert and appropriate information and advice from the physician, before, during and after treatment, - the right to self-determination based on full information, - the right to treatment records and to inspection thereof, - the right to confidentiality and data protection, - the right to lodge a complaint, - the right to a second medical opinion in the case of cancer, (h) involve patients’ organisations in health-policy decisions more heavily than in the past and support their activities in an appropriate manner, (i) improve data compilation and, at the earliest possible opportunity, set up national cancer registers which meet the standards set by the European Network of Cancer Registries, so that the EU may finally have available informative and comparable European data about the development of cancer and breast cancer;