There are a number of places where you can find up to date information on research into FSHD. The Foundation now has a blog where new evidence will be discussed and dissected. If you would like to be kept informed about when new blog posts go live email admin@fshdglobal.org to be added to the mailing list.
FSH Society and Friends of FSH Research also have updates on research. Treat-NMD is another excellent resource.
You may also want to search for research papers on pubmed . Pubmed is the global repository of every scientific paper published. If you come across a study that you would like summarised or explained email admin@fshdglobal.org. We are happy to create posts summarising new research and suggestions are always welcome!