The ERN EpiCARE is not a patient’s association. However, the medical teams members of EPICARE work, both at national and at an EU level, with several patient associations.
The EpiCARE Patient Group (ePAG, European Patient Advocacy Group) is represented at all levels of actions and missions of the ERN. Patient advocates ensure that patient voice is heard and implemented throughout the network.
EpiCARE members are working together to create significant added value to patient care, research, education and training, in close collaboration with Scientific Societies.