In our country, the heel blood test is included in the national program, but there is no judicial obligation. Families can refuse; to do so, they must sign a form stating their refusal.
While new diseases are being added to the diseases that need to be screened all over the world, and screening methods that will lead to the most accurate and fastest diagnosis are being developed, parents' rejection of this screening, which does not harm the baby, can only be interpreted as reactionism and ignorance. And the real ethical problem is the ethical problem that may arise if a baby who refuses that screening develops that disease and the child dies or remains disabled for life.