All NISR registries comply with the General Data Protection Regulation (GDPR) (2018) and the Data Protection Act 2018 in processing participant data. These regulations safeguard individuals fundamental rights to data privacy. Password protection and encryption of computer files and data, training of staff in data protection, and regular review of data protection procedures are some of the ways we protect your or child’s information. The GDPR is all about the protection of personal data. The definition of personal data in Chapter 1 Article 4 is any information relating to an identified or identifiable natural person (data subject); an identifiable natural person is one who can be identified, directly or indirectly, in particular by reference to an identifier such as name, identification number, location data, on-line identifier, or one or more factors specific to the physical, physiological, genetic, mental, economic, cultural or social identity of that natural person. All NISR registries are secure web-accessible electronic platforms that support highly secure data entry as well as reporting, sharing and anonymization of the registry dataset for the purposes of patient benefitting research.