Yes. All KPMP sites and investigators must share all data (including, but not limited to, raw data, metadata, digital pathology images, and computational data sets), protocols (including analytical methods), ontologies, technologies, biological samples (including, but not limited to, biopsies, nephrectomy tissue, tissue blocks, all slides in any form, blood, urine and stool), and other research resources. All de-identified KPMP data will be released to the research community immediately upon validation. KPMP data will only be made publicly available once the risk of explicit or inferred identification has been mitigated in consultation with the KPMP Community Engagement Committee and the DSMB. The Central Hub will house all personally identifiable data (under the control of an Honest Broker), while the KTACC will house all de-identified data. The KTACC will support a publicly available and highly interactive data hub with de-identified clinical, physiologic, imaging, cellular, and molecular data using FAIR principles (findable, accessible, interoperable, and reusable) to promote data retrieval, exploration, discovery, and analysis by the community.
It is expected that the KPMP will seed future partnerships, ancillary studies, investigator-initiated endeavors, and industry collaborations, and play an active role in recruiting and training the next generation of kidney researchers. Importantly, this will include a dedicated effort to recruit, train, and retain underrepresented scientists and stakeholders.
All KPMP institutions, investigators and collaborators must sign the KPMP Confidential Disclosure Agreement (CDA) (DOCX, 52 KB)  and Material/Data Transfer Agreement (MTA) (DOCX, 63 KB) documents. No edits to either the CDA or MTA will be allowed.