Many neurological disorders do not have effective treatment options. Clinical trials (also called research trials) offer hope for many people and an opportunity to help researchers find better ways to safely detect, treat, or prevent disease.
Finding clinical trials
For more information about finding clinical trials on ALS, visit www.clinicaltrials.gov.  Use the search terms “amyotrophic lateral sclerosis” or “ALS AND (your state)” to locate trials in your area.
National ALS Registry
The National ALS Registry is a program to collect, manage, and analyze data about people with ALS in the United States. Developed by the Center for Disease Control and Prevention’s Agency for Toxic Substances and Disease Registry (ATSDR), this registry establishes information about the number of ALS cases, collects demographic, occupational and environmental exposure data from people with ALS to learn about potential risk factors for the disease, and notifies participants about research opportunities. The Registry includes data from national databases as well as de-identified information provided by individuals with ALS. All information is kept confidential.
People with ALS can add their information to the Registry by visiting www.cdc.gov/als.