At our institute - NIMHANS, Bangalore we treat such cases. This could also be managed by any neurology institution. Since confirmation requires muscle biopsy, neuropathologists services are required. Such facility is available at major government neurology institutes such as AIIMS (New Delhi), PGI (Chandigarh), Sree Chitra Tirumal Institute (Trivandrum).
Other questions can be answered only after clinical examination of the patient.