We will be collecting your information through a secure website. We do not collect any personally identifiable information. The information that we do collect from you is stored safely and protected so that you remain anonymous in accordance with General Data Protection Regulation (GDPR). The information is stored in secure servers that are built and hosted by UKCloud, in compliance with best practice.
The study team will analyze the information and it will only be used for the purposes of scientific and medical research in the public interest. Sharing information with researchers will always be under relevant data protection and information governance regulations. Your information will not be used for commercial purposes. PsoProtectMe is a not-for-profit initiative.
The survey has been formally approved by an independent ethical review board (Yorkshire & The Humber – Leeds West Research Ethics Committee; REC reference 20/YH/0135).