Unfortunately, restrictive lung disease with severe scoliosis does cause chronic respiratory failure and dependency on oxygen. Indeed, sometimes a permanent tracheostomy is necessary to make breathing easier. Bone wasting may occur, and calcium {1-1.5 grams a day} with Vitamin D are advised.
Any form of tolerable exercise is helpful, and the assistance of a physiotherapist should be sought to plan a suitable regimen.
Of interest is the finding that methtylphenidate (Ritalin) can stimulate the respiratory center of the brain and improve the depth of breathing, thereby discouraging the deterioration that is bound to slowly occur in this condition. Early and appropriate use of antibiotics is very important should an infectious exacerbation occur.