text: I have a two year old son who suffers from the same condition as Jonny Kennedy. I never got the chance to meet him but I have never heard anybody say a bad word about him. I hope he knows how much the making of this programme has helped his fellow sufferers by raising awareness of this terrible condition. This man has touched people in a way that a million charity leaflets could not. I believe that this should be compulsory viewing in schools. I also agree with other comments - what have I got to moan about? He took everything that life could throw at him and still managed to retain a sense of humour. God Bless. I couldn't watch the part that showed his dressings being changed. I have enough trouble with my son's.