An Act to amend the Public Health Service Act to provide assistance for programs for the diagnosis, prevention, and treatment of, and research in, Cooleys anemia
PL 92-414 (H.R.15474), enacted 08/29/1972

650 
PUBLIC LAW 92-414-AUG. 29, 1972 
[86 STAT. 
August 29, 1972 
[H. R.15474] 
National 
Cooley's Anemia 
Control Act. 
Ante, p. 137. 
Public Law 92-414 
' '^ ...•..«.., ...pr.-..-. 
AN ACT 
To amend the Public Health Service Act to provide assistance for programs for 
the diagnosis, prevention, and treatment of, and research in, Cooley's anemia. 
Be it enacted hy the Senate and House of Remesentat'iven 
of the 
United States of America in Congress a^sembled^ 
SHORT TITLE 
SECTION" 1. This Act may be cited as the "National Cooley's Anemia 
Control Act". 
FINDINGS AND DECLARATION OF PURPOSE 
SEC. 2. (a) The Congress finds and declares— 
(1) that Cooley's anemia is a debilitating, inheritable disease 
that afflicts thousands of American citizens and has been largely 
neglected; 
(2) that efforts to prevent Cooley's anemia must be directed 
toward increased research in the cause and treatment of the dis-
ease, and the education, screening, and counseling of carriers of 
the trait; 
(3) that programs to prevent Cooley's anemia must be based 
entirely upon the voluntary cooperation of the individuals 
involved; and 
(4) that the attainment of better methods of prevention, 
diagnosis, and treatment of Cooley's anemia deserves the highest 
priority. 
(b) In order to preserve and protect the health and welfare of all 
citizens, it is the purpose of this Act to establish a national program 
for the diagnosis, prevention, and treatment of, and research in, 
Cooley's anemia. 
COOLEY'S ANEMIA PROGRAMS 
SEC. 3. Title X I of the Public Health Service Act is amended by 
adding after section 1106 the following: 
"PART B—COOLEY'S ANEMIA PROGRAMS 
"COOLEY'S ANEMIA SCREENING, TREATMENT, AND COUNSELING, RESEARCH, 
AND INFORMATION AND EDUCATION PROGRAMS 
"SEC. 1111. (a) (1) The Secretary may make grants to public and 
nonprofit private entities, and may enter into contracts with public 
and private entities, for projects for the establisliment and operation, 
primarily through other existing health programs, of Cooley's anemia 
screening, treatment, and counseling programs. 
" (2) The Secretary may make grants to public and nonprofit private 
entities, and may enter into contracts with public and private entities 
and individuals, for projects for research in the diagnosis, treatment, 
and prevention of Cooley's anemia, including projects for the develop-
ment of effective and inexpensive tests which will identify those who 
have the disease or carry the trait. 
"(3) The Secretary shall carry out a program to develop informa-
tion and educational materials relating to Cooley's anemia and to 
disseminate such information and materials to persons providing 
health care and to the public generally. The Secretary may carry out 
such program through grants to public and nonprofit private entities 
or contracts with public and private entities and individuals. 
86 STAT. ] 
PUBLIC LAW 92-414-AUG. 29, 1972 
651 
"(b) (1) For the purpose of making payments pursuant to grants 
Appropriation. 
and contracts under subsection (a)(1), there are authorized to be 
appropriated $1,000,000 for the fiscal year ending June 30, 1973, and 
for each of the next two fiscal years. 
"(2) For the purpose of making payments pursuant to grants and 
contracts under subsection (a) (2), there are authorized to be appro-
priated $1,700,000 for the fiscal year ending June 30, 1973, and for 
each of the next two fiscal years. 
"(3) For the purpose of carrying out subsection (a) (3), there are 
authorized to be appropriated $1,000,000 for the fiscal year ending 
June 30, 1973, and for each of the next two fiscal years. 
" V O L U N T A R Y PARTICIPATION 
- 
. 
•' - ' 
"SEC. 1112. The participation by any individual in any program 
or j>ortion thereof under this part shall be wholly voluntary and 
shall not be a prerequisite to eligibility for or receipt of any other 
service or assistance from, or to participation in, any other program. 
"APPLICATIONS; ADMINISTRATION or GRANT AND CONTRACT PROGRAMS 
"SEC. 1113. (a) A grant under this part may be made upon applica- 
^ 
tion to the Secretary at such time, in such manner, containing and 
accompanied by such information, as the Secretary deems necessary. 
Each application shall— 
"(1) provide that the programs and activities for which 
assistance under this part is sought will be administered by or 
under the supervision of the applicant; 
"(2) provide for strict confidentiality of all test results, med-
ical records, and other information regarding screening, coun-
seling, or treatment of any person treated, except for (A) such 
information as the patient (or his giiardian) consents to be 
released, or (B) statistical data compiled without reference to 
the identity of any such patient; 
"(3) provide lor appropriate community representation in the 
development and operation of any program funded by a grant 
under this part; 
"(4) set forth such fiscal control and fund accounting proce-
dures as may be necessary to assure proper disbursement of and 
accounting for Federal funds paid to the applicant under this 
part; and 
"(5) provide for making such reports in such form and con-
taining such information as the Secretary may reasonably require. 
"(b)(1) In making any grant or contract under this title, the 
Secretary shall (A) take into account the number of persons to be 
served by the program supported by such grant or contract and the 
extent to which rapid and effective use will be made of funds under 
the grant or contract; and (B) give priority to programs operating in 
areas which the Secretary determines have the greatest number of 
persons in need of the services provided under such programs. 
"(2) The Secretary may make a grant under section 1111(a)(1) 
for a screening, treatment, and counseling program when he deter-
mines that the screening provided by such program will be done 
through an effective and inexpensive Cooley's anemia screening test. 
652 
PUBLIC LAW 92-415-AUG. 29, 1972 
[86 STAT. 
a 
, n o ', t iJ J'; (4 r.. 7tj -4 A 
Report to 
President, trans-
mittal to Con-
gress. 
Ante, 
p, 137. 
PUBLIC H E A L T H 
SERVICE 
F A C I L m E S 
"SEC. 1114. The Secretary shall establish a program within tlie 
Public Health Service to provide for voluntary Cooley's anemia 
screening, counseling, and treatment. Such program shall utilize effec-
tive and inexpensive Cooley's anemia screening tests, shall be made 
available through facilities of the Public Health Service to any person 
requesting screening, counseling, or treatment, and shall include 
appropriate publicity of the availability and voluntary nature of such 
programs. 
,,.,..,. 
[,. ,y- -..., 
"REPORTS 
,.:.,: ,j,,., ;.,,,. _,• • 
"SEC. 1115. (a) The Secretary shall prepare and submit to the 
President for transmittal to the Congress on or before April 1 of each 
year a comprehensive rej)ort on the administration of this part. 
"(b) The report required by this section shall contain such rec-
ommendations for additional legislation as the Secretary deems 
necessary." 
ClONFORMING AMENDMENTS TO TITLE XI OF T H E PUBLIC H E A L T H 
SERVICE 
ACT 
SEC. 4. Title X I of the Public Health Service Act is amended— 
(1) by striking out 
; ' 
"TITLE XI—SICKLE CELL ANEMIA PROGRAM'' 
' ' and inserting in lieu thereof 
"TITLE XI—GENETIC BLOOD DISORDERS 
"PART A—SICKLE CELL ANEMIA PROGRAMS"; 
•>- 
(2) by striking out paragraph (3) of section 1101 (a) ; and 
(3) by striking out "title" each place it occurs in sections 1103, 
1104, and 1106 and inserting in lieu thereof "part". 
Approved August 29, 1972. 
August 29, 1972 
[H. R, 12392] 
Court of Claims. 
Jurisdiction. 
68 Stat. 1241; 
84 Stat. 449. 
Effective 
date. 
Public Law 92-415 
. 
/ „ 
AN ACT 
To amend title 28, United States Code, section 1491, to authorize the Court of 
Claims to implement its judgments for compensation. 
Be it enacted hy the Senate and Home of Representatives 
of the 
United /States of America in Congress assembled^ That the first para-
graph of section 1491 of title 28, United States Code, is amended by 
adding thereto the following: "To provide an entire remedy and 
to complete the relief afforded by the judgment, the court may, as an 
incident of and collateral to any such judgment, issue orders directing 
restoration to office or position, placement in appropriate duty or 
retirement status, and correction of applicable records, and such 
orders may be issued to any appropriate official of the United States. 
In any case within its jurisdiction, the court shall have the power to 
remand appropriate matters to any administrative or executive body 
or official with such direction as it may deem proper and just." 
SEC. 2. This Act shall be applicable to all judicial proceedings 
pending on or instituted after the date of its enactment. 
Approved August 29, 1972.