An Act to provide for the control of sickle cell anemia
PL 92-294 (S.2676), enacted 05/16/1972

136 
PUBLIC LAW 92-293-MAY 11, 1972 
[86 STAT. 
May 11, 1972 
[S.2713] 
Public Law 92-293 
AN A C T 
To aiiiencl title 18 of the United States Code to authorize the Attorney General 
to provide care for narcotic addicts who are placed on probation, released on 
parole, or mandatorily released. 
Narcotic ad-
dicts on parole or 
probation, treat-
ment. 
62 Stat. 842. 
80 Stat. 1442. 
84 Stat. 1240. 
Parole, condi-
tion. 
62 Stat. 854; 
84 Stat. 1090. 
65 Stat. 98. 
Repeal. 
58 Stat. 699; 
84 Stat. 1240. 
42 u s e 259. 
Be it enacted hy the Senate and House of Represeutatives 
of the 
United States of America in Congress assembled. That section 3651 
of title 18 of the United States Code is amended by inserting the 
following paragraph before the last one: 
"The court may require a person who is an addict within the 
meaning of section 4251(a) of this title, or a drug dependent person 
within the meaning of section 2(q) of the Public Health Service Act, 
as amended (42 U.S.C. 201), as a condition of probation, to participate 
in the community supervision programs authorized by section 4255 of 
this title for all or part of the period of probation: Provided^ That 
the Attorney General certifies a suitable program is available. If the 
Attorney General determines that the person's participation in the 
program should be terminated, because the person can derive no 
further significant benefits from participation or because his partici-
pation advereely affects the rehabilitation of other participants, he 
shall so notify the court, w^hich shall thereupon, by order, make such 
other provision with respect to the person on probation as it deems 
appropriate." 
SEC. 2. Section (a) of section 4203 of such title is amended by 
inserting the following paragraph between the third and fourth: 
"The Board may require a parolee, or a prisoner released pursuant 
to section 4164 of this title, who is an addict within the meaning of 
section 4251(a) of this title, or a drug dependent person within the 
meaning of section 2(q) of the Public Health Service Act, as amended 
(42 L'.S.C. 201), as a condition of parole or release to participate in 
the community supervision programs authorized by section 4255 of 
this title for all or part of the period of parole: Provided^ That the 
xA.ttorney General certifies a suitable program is available. If the 
Attorney General determines that the person's participation in the 
program should be terminated, because the person can derive no fur-
ther significant benefits from participation or because his participation 
adversely affects the rehabilitation of other participants, he shall so 
notif 
J the Board of Parole, which shall thereupon make such other 
provision with respect to the person as it deems appropriate." 
SEC. 3. Subsection 343 (b) of part E of title I I I of the Public Health 
Service Act is repealed. 
Approved May 11, 1972. 
Public Law 92-294 
M 
,fi 1Q70 
AN ACT 
May 16, 1972 
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[S.2676] 
To amend the Public Health Service Act to provide tor the control of sickle 
cell anemia. 
Be it enacted hy the Senate and House of Representatives 
of the 
National Sickle 
Fnited Statcs of Ame/'ica in Congress 
assembled. 
Cell Anemia 
•' 
Control Act. 
SHORT TITLE 
SECTION 1. This Act shall be cited as the "National Sickle Cell 
.Vnemia Control Act". 
86 STAT. ] 
PUBLIC LAW 92-294-MAY 16, 1972 
137 
FINDINGS AND DECLARATION OF PURPOSE 
SEC. 2. (a) The Congress finds and declares— 
(1) that sickle cell anemia is a debilitating^ inheritable disease 
that afflicts approximately two million American citizens and 
has been largely neglected; 
(2) that the disease is a deadly and tragic burden which is 
likely to strike one-fourth of the children born to parents who 
both bear the sickle cell trait; 
(3) that efforts to prevent sickle cell anemia must be directed 
toward increased research in the cause and treatment of the 
disease, and the education, screening, and counseling of carriers 
of the sickle cell trait; 
(4) that simple and inexpensive screening tests have been 
devised which will identify those who have the disease or carry 
the trait; 
(5) that programs to control sickle cell anemia must be based 
entirely upon the voluntary cooperation of the individuals 
involved; and 
(6) that the attainment of better methods of control, diagnosis, 
and treatment of sickle cell anemia deserves the highest priority. 
(b) In order to preserve and protect the health and welfare of 
all citizens, it is the purpose of this Act to establish a national program 
for the diagnosis, control, and treatment of, and research in, sickle 
cell anemia. 
AMENDMENTS TO PUBLIC H E A L T H SERVICE ACT 
SEC. 3. (a) Section 1 of the Public Health Service Act is amended g/statf'iso^e!' 
by striking out "titles I to X" and inserting in lieu thereof "titles 
42 use 201* 
I to XI". 
n°te. 
(b) The Act of July 1,1944 (58 Stat. 682), as amended, is amended 
by renumbering title X I (as in effect prior to the enactment of this 
Act) as title XII, and by renumbering sections 1101 through 1114 (as 
in effect prior to the enactment of this Act), and references thereto. 
as sections 1201 through 1214, respectively. 
(c) The Public Health Service Act is further amended by adding 
after title X the following new title: 
42 use 300. 
"TITLE XI—SICKLE CELL ANEMIA PROGRAM 
" S I C K L E 
CELL 
ANEMIA 
SCREENING 
AND 
COUNSELING 
PROGRAMS 
AND 
INFORMATION AND EDUCATION PROGRAMS 
"SEC. 1101. (a) (1) The Secretary may make grants to public and 
nonprofit private entities, and may enter into contracts with public 
and private entities, for projects for the establishment and operation 
of voluntary sickle cell anemia screening and counseling programs, 
primarily through other existing health programs. 
"(2) The Secretary shall carry out a program to develop informa-
tion and educational materials relating to sickle cell anemia and to 
disseminate such information and materials to persons providing 
health care and to the public generally. The Secretary may carry out 
such program through grants to public and nonprofit private entities 
or contracts with public and private entities and individuals. 
" (3) In making any grant or contract under this title, the Secretary 
shall (1) take into account the number of persons to be served by the 
program supported by such grant or contract and the extent to which 
rapid and effective use will be made of funds under the grant or 
138 
PUBLIC LAW 92-294-MAY 16, 1972 
[86 STAT. 
Appropriation. 
Appropriation. 
contract; and (2) give priority to programs operating in areas which 
the Secretary determines have the greatest number of persons in need 
of the services provided under such programs. 
"(b) For the purpose of making payments pursuant to grants and 
contracts under this section, there are authorized to be appropriated 
$20,'000,000 for the fiscal year ending June 30, 1973, $30,000,000 for 
the fiscal year ending June 30,1974, and $35,000,000 for the fiscal year 
ending June 30, 1975. 
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" P R O J E C T G R A N T S AND CONTRACTS 
"SEC. 1102. (a) The Secretary may make grants to public and non-
profit private entities, and may enter into contracts with public and 
private entities and individuals, for projects for (1) research and 
research training in the diagnosis, treatment, and control of sickle 
cell anemia, (2) the development of programs to educate the public 
regarding the nature and inheritance of the sickle cell trait and sickle 
cell anemia, and (3) the development of sickle cell anemia counseling 
and testing programs and other programs for diagnosis, control, and 
treatment of sickle cell anemia. 
"(b) For the purpose of making payments pursuant to grants and 
contracts under this section, there are authorized to be appropriated 
.$5,000,000 for the fiscal year ending June 30, 1973, $10,000,000 for 
the fiscal year ending June 30,1974, and $15,000,000 for the fiscal year 
ending June 30,1975. 
"VOLUNTARY PARTICIPATION 
"SEC. 1103. The participation by any individual in any program 
or portion thereof under this title shall be wholly voluntary and shall 
not be a prerequisite to eligibility for or receipt of any other service 
or assistance from, or to participation in, any other program. 
• A P P L I C A T I O N S ; 
A D M I N I S T R A T I O N 
O F 
G R A N T A N D 
C O N T R A C T PROGRAMS 
"SEC. 1104. (a) A grant under this title may be made upon applica-
tion to the Secretary at such time, in such manner, containing and 
accompanied by such information, as the Secretary deems necessary. 
Each applicant shall— 
"(1) provide that the programs and activities for which assist-
ance under this title is sought will be administered by or under 
the supervision of the applicant; 
" (2) provide for strict confidentiality of all test results, medical 
records, and other information regarding screening, counseling, 
or treatment of any person treated, except for (A) such informa-
tion as the patient (or his guardian) consents to be released; or 
(B) statistical data compiled without reference to the identity of 
any such patient; 
(3) provide for appropriate community representation in the 
development and operation of any program funded by a grant 
under this title; 
"(4) in the case of an application for a grant under section 
1101(a) (1), provide assurances satisfactory to the Secretary that 
(A) the screening and counseling services to be provided under 
the program for which the application is made will be directed 
first to those persons who are entering their child-producing 
years, and secondly to children under the age of 7, and (B) appro-
priate arrangements have been made to provide counseling to 
persons found to have sickle cell anemia or the sickle cell trait; 
86 STAT.] 
PUBLIC LAW 92-295-MAY 16, 1972 
^ 139 
"(5) set forth such fiscal control and fund accounting proce-
dures as may be necessary to assure proper disbursement of and 
accounting for Federal funds paid to the applicant under this 
title; and 
"(6) provide for making such reports in such form and con-
taining such information as the Secretary may reasonably require. 
*' (b) In making any grant or contract under this title, the Secretary 
shall (1) take into account the number of persons to be served by the 
program supported by such grant or contract and the extent to whicli 
rapid and effective use will be made of funds under the grant or 
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contra<;t; and (2) give priority to programs operating in areas which 
the Secretary determines have the greatest number of persons in need 
of the services provided under such programs. 
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PUBLIC HEALTH SERVICE FACILITIES 
" . *, , j_ 
"SEC. 1105. The Secretary shall establish a program within the 
Public Health Service to provide for voluntary sickle cell anemia 
screening, counseling, and treatment. Such program shall be made 
available through facilities of the Public Health Service to any person 
requesting screening, counseling, or treatment, and shall include 
appropriate publicity of the availability and voluntary nature of such 
programs. 
"EEPORTS 
"SEC. 1106. (a) The Secretary shall prepare and submit to the 
President for transmittal to the Congress on or before April 1 of 
each year a comprehensive report on the administration of this title. 
"(b) The report required by this section shall contain such recom-
mendations for 
additional legislation as the Secretary 
deems 
necessary." 
Approved May 16, 1972. 
Public Law 92-295 
AN ACT 
May 16, 1972 
To provide for the clisiX)sition of funds appropriated to imy a jndguieiit in favor 
[H. R. 9019] 
of the Jiearilla Apache Tribe in Indian Claims Commission docket numbered 
22-A, and for other purposes. 
Be it enacted hy the Senate and Houne of RepreHeutatires of the 
Ignited States of America 
in Congress assembled^ That the funds 
Indians. 
appropriated to pay a judgment to the Jiearilla Apache Tribe in Tribe^'^N^lwtx^'^*'^ 
Indian Claims Commission docket numbered 22-A, together with the 
judgment funds. 
interest thereon, after payment of attorney fees and other litigation 
expenses, may be advanced, expended, invested, or reinvested for any 
purpose that is authorized by the tribal governing body and approved 
by the Secretary of the Interior. 
SEC, 2. Sums payable to enrollees or their heirs or legatees who are 
less than eighteen years of age or who are under a legal disability 
shall be paid in accordance with such procedures, including the estab-
lishment of trusts, as the Secretary of the Interior determines appro-
priate to protect the best interests of such persons. 
SEC. 3. None of the funds distributed per capita under the provi- 
Tax exemption. 
sions of this Act shall be subject to Federal or State income taxes. 
SEC. 4. The Secretary of the Interior is authorized to prescribe rules 
Rules and 
and regulations to carry out the provisions of this Act. 
regulations. 
Approved May 16, 1972.