Clinical trial NCT03508583: Turkish Version of The Measure of Processes of Care (MPOC)
Official title: Validity and Reliability of Turkish Version of Turkish Version of The Measure of Processes of Care (MPOC 56-20- SP)
Study type: OBSERVATIONAL
Overall status: UNKNOWN
Conditions: Cerebral Palsy
Muscular Dystrophies
Autism Spectrum Disorder
Traumatic Brain Injury
Down Syndrome
Disability, Developmental
Disability Physical
Keywords: mpoc
Validity and Reliability
Lead sponsor: Hacettepe University
Sponsor class: OTHER
First posted: 2018-04-26
Enrollment: 300
Sex: ALL
Minimum age (years): 5
Maximum age (years): 25
Standard ages: CHILD
ADULT
Observational model: CASE_ONLY
Time perspective: PROSPECTIVE
Sampling method: PROBABILITY_SAMPLE
Study population: The subjects will be recruited from children who lives in Turkey and, attend special education centers and hospitals.

Brief summary: Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)

Detailed description: The MPOC is a questionnaire designed to find out what parents of children with disabilities think of the services they and their children receive and how these services affect their psychosocial outcome. MPOC exists in two versions: the 56-item version was published in 1995 and the MPOC-20 in 2004. The20-item version was developed due to disadvantage of the longer version, because its completion can be very time consuming and the consequences of low respondent percentages . King and colleagues assert that the56-item MPOC is useful for research, while the MPOC-20 is better applied as a measure of parents' perceptions of the elements of FCS. The 20 items in the short version are distributed among the same ﬁve scales as in the MPOC-56. This ensures that the MPOC-56/20 captures aspects of care and services that have most importance for parents. The items are included in one of the following ﬁve scales:

1 Enabling and partnership; 2 Providing general information; 3 Providing speciﬁc information about the child; 4 Coordinated and comprehensive care; 5 Respectful and supportive care.

The Measure of Processes of Care for Service Providers (MPOC-SP) was developed to assess FCS from the perspective of professionals. The MPOC-SP has also been used in many different studies with different populations.

Eligibility criteria: Inclusion Criteria:

* To be diagnosed as disabilities and special needs
* Pediatric service providers who agree to participate to study

Exclusion Criteria:

* Children whose family didn't accept to participate to study

Primary outcomes:
measure: The Measure of Processes of Care (MPOC- 56)
timeFrame: MPOC 56 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale.
measure: The Measure of Processes of Care 20 (MPOC- 20)
timeFrame: MPOC 20 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale.
measure: The Measure of Processes of Care for services providers (MPOC- SP)
timeFrame: MPOC SP was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale.
Secondary outcomes:
measure: Child Health Questionnaire - Parent Form 50
timeFrame: At baseline]
Other outcomes:
Locations:
Study officials:
affiliation: Hacettepe University
name: Mintaze Kerem Günel, prof.dr
role: STUDY_CHAIR
References:
citation: Dyke P, Buttigieg P, Blackmore AM, Ghose A. Use of the measure of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev. 2006 Mar;32(2):167-76. doi: 10.1111/j.1365-2214.2006.00604.x.
citation: Hagen AK, Bjorbaekmo WS. Parents evaluation of the processes of care in child rehabilitation: a reliability study of the Norwegian translation of MPOC-20. Child Care Health Dev. 2012 Jan;38(1):48-53. doi: 10.1111/j.1365-2214.2010.01192.x. Epub 2010 Dec 28.
citation: Bjerre IM, Larsson M, Franzon AM, Nilsson MS, Stromberg G, Westbom LM. Measure of Processes of Care (MPOC) applied to measure parent's perception of the habilitation process in Sweden. Child Care Health Dev. 2004 Mar;30(2):123-30. doi: 10.1111/j.1365-2214.2003.00403.x.