Clinical trial NCT06635070: The Relationship Between Education Status and Care Burden of Mothers of Individuals With Cerebral Palsy
Official title: The Relationship Between Education Status and Care Burden of Mothers of Individuals With Cerebral Palsy
Study type: OBSERVATIONAL
Overall status: NOT_YET_RECRUITING
Conditions: Cerebral Palsy
Keywords: Cerebral palsy
Caregiver Burden
Mother
Educational Status
Lead sponsor: Muş Alparslan University
Sponsor class: OTHER
First posted: 2024-10-10
Enrollment: 120
Sex: FEMALE
Minimum age (years): 20
Maximum age (years): 65
Standard ages: ADULT
OLDER_ADULT
Observational model: OTHER
Time perspective: CROSS_SECTIONAL
Sampling method: PROBABILITY_SAMPLE
Study population: Mothers of individuals with cerebral palsy

Brief summary: This study, examines how maternal education affects caregiving burdens for children with cerebral palsy. Cerebral palsy requires long-term, intensive care, often leading to significant physical, emotional, and financial strain on caregivers. The study aims to assess whether higher maternal education is associated with lower care burdens, possibly due to increased access to resources or coping strategies, and whether lower educational levels result in greater challenges. A survey, combined with standardized measures such as the Caregiver Burden Scale, will be used to quantify the caregiving burden. The results are expected to inform policies or interventions aimed at reducing caregiver strain.

Detailed description: This study titled "The Relationship Between the Education Status of Mothers and the Care Burden of Individuals with Cerebral Palsy" aims to explore how the education level of mothers influences their caregiving responsibilities and burdens while caring for individuals with cerebral palsy. Cerebral palsy, a neurological disorder affecting movement and muscle tone, often requires lifelong caregiving, which can be physically, emotionally, and financially demanding.

The study seeks to investigate whether mothers with higher levels of education experience lower care burdens due to greater access to resources, knowledge of coping strategies, or better healthcare utilization. Conversely, the study will also examine if mothers with lower educational attainment face more significant challenges due to limited access to support systems or information.

The research will involve a mixed-methods approach, including a survey to assess the education level of mothers and the care burden they experience. Specific tools to measure care burden, such as the Caregiver Burden Scale, will be employed. The findings aim to provide insights into the role of education in mitigating caregiving challenges and inform potential interventions or policies that could support caregivers in these situations.

Eligibility criteria: Inclusion Criteria:

* Having a child who is receiving education in special education institutions
* The child's diagnosis was made at least 6 months ago
* The disabled individuals must be between the ages of 0-18

Exclusion Criteria:

-

Primary outcomes:
measure: Zarit Caregiver Burden Interview
timeFrame: one month
Secondary outcomes:
Other outcomes:
Locations:
Study officials:
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