Clinical trial NCT02753452: Optimizing Life Success Through Residential Immersive Life Skills (RILS) Programs for Youth With Disabilities
Official title: Optimizing Life Success Through Residential Immersive Life Skills Programs for Youth With Disabilities
Study type: INTERVENTIONAL
Overall status: COMPLETED
Phase: NA
Conditions: Child-onset Disability
Keywords: youth
disability
transition
life skills
adolescence
Lead sponsor: Holland Bloorview Kids Rehabilitation Hospital
Sponsor class: OTHER
Collaborators: name: ErinoakKids Centre for Treatment and Development
name: McMaster Children's Hospital
First posted: 2016-04-27
Enrollment: 29
Sex: ALL
Minimum age (years): 14
Maximum age (years): 21
Standard ages: CHILD
ADULT
Accepts healthy volunteers: no
Allocation: NON_RANDOMIZED
Intervention model: PARALLEL
Primary purpose: OTHER

Brief summary: In Canada, between 3.6% and 7.7% of children under 19 years old are thought to have a chronic health condition that results in disability or limits to activity. These young people have difficulty finding jobs, attending school, living independently, and forming relationships with other people. These poorer life outcomes are partly the result of a lack of life skills. Life skills include the ability to solve problems and set goals, which allows youth to deal with the demands of everyday life. Several children's treatment centres in Ontario offer short-term residential immersive life skills (RILS) programs to provide youth with these life skills to help them take on adult roles. RILS programs are very promising in terms of making a long-term difference in youths' lives because they provide a place where youth can learn by doing, working with peers and taking risks in a safe environment. However, we do not yet know how well skills that are learned in RILS programs are kept up as time passes or how well RILS programs support broader skills, such as the ability to make one's own choices.

The proposed research will examine these issues and will ask the following questions:

1. What opportunities are youth given when they participate in RILS programs? What specific strategies do RILS service providers use to support youth in learning life skills?;
2. How do youth experience and perceive their participation in a RILS program, before, during and after they take part? What do their parents expect and experience in terms of their child's participation?; and
3. What changes do youth experience, particularly in terms of their ability to make choices for themselves and their sense of being able to cope with things that come up in their lives? The study will involve youth from several treatment centres in Ontario over the next three years.

Youth who are attending RILS programs will be compared with:

1. youth who are similar to the RILS youth, but who are taking part in a life skills program that is not residential;
2. youth who applied to a RILS program and were accepted, but who will take part in the program in a different year; and
3. a group of youth who are similar to the RILS youth but who are not taking part in any life skills program.

Youth will provide data at four time points: before the program starts, immediately after the program finishes, three months after the program is over and 12 months after the program is over.


Eligibility criteria: Inclusion Criteria:

* All youth must be between 14 and 21 years of age, have a child-onset disability, be able to set goals for themselves, and speak English.
* Parents who are enrolled must speak English.

Exclusion Criteria:

* Youth with severe behavioral issues will be excluded, since these would restrict the youth's ability to participate in a group learning experience.

Primary outcomes:
measure: Change in Arc's Self-Determination Scale scores
timeFrame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention
Secondary outcomes:
measure: Change in General Self-Efficacy Scale scores
timeFrame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention
Other outcomes:
Locations:
city: Toronto
country: Canada
facility: Holland Bloorview Kids Rehabilitation Hospital
state: Ontario
Study officials:
affiliation: Holland Bloorview Kids Rehabilitation Hospital
name: Gillian King, PhD
role: PRINCIPAL_INVESTIGATOR
affiliation: Holland Bloorview Kids Rehabilitation Hospital
name: Amy C McPherson, PhD
role: PRINCIPAL_INVESTIGATOR
References:
citation: McPherson AC, King G, Rudzik A, Kingsnorth S, Gorter JW; Ontario Independence Program Research (OIPR) team. Optimizing life success through residential immersive life skills programs for youth with disabilities: study protocol of a mixed-methods, prospective, comparative cohort study. BMC Pediatr. 2016 Sep 6;16(1):153. doi: 10.1186/s12887-016-0694-7.