Clinical trial NCT05587647: The Effect of Transition to Adulthood Education Program on Family Quality of Life and Perceived Stress Level
Official title: The Effect of Transition to Adulthood Education Program Given to Mothers of Children With Intellectual Disability on Family Quality of Life and Perceived Stress Level
Study type: INTERVENTIONAL
Overall status: COMPLETED
Phase: NA
Conditions: Intellectual Disability
Lead sponsor: Koç University
Sponsor class: OTHER
First posted: 2022-10-20
Enrollment: 33
Sex: FEMALE
Standard ages: CHILD
ADULT
OLDER_ADULT
Accepts healthy volunteers: yes
Allocation: RANDOMIZED
Intervention model: PARALLEL
Intervention model description: Randomized Controlled Study
Primary purpose: SUPPORTIVE_CARE

Brief summary: Negative emotions experienced during life processes and the burden of caregiving affect the quality of life of parents. It has been found that parents who care for their children with intellectual disability (ID) for a long time have difficulties in coping with stress and their quality of life is adversely affected. However, families play a key role in maintaining the care of their children with ID, so it is very important that parents are supported in the matters they need.

Detailed description: Mothers are generally the people who take on a large part of the burden of care for their children with intellectual disability (ID) in the family and are most affected by the negativities brought by the conditions. Providing support to mothers for the care and future planning of their children who have just passed into adult life and for their future planning is important both in terms of maintaining family well-being and creating positive effects in the lives of individuals with mental disabilities.

With this study, it is aimed to increase the quality of life of mothers and to reduce perceived stress levels with the training (YEGEP) modules to be given for the changing care needs of individuals with ID who have reached adulthood or are in transition. In addition, it is expected that the health risks of young adults with ID will be determined at an early stage, and their health will be improved and protected.

Eligibility criteria: Inclusion Criteria:

* Whose child is registered with the disability center,
* Have a young adult child between the ages of 20 and 35 with moderate and severe mental disabilities,
* Speaking Turkish and literate Turkish,
* Not visually and speech impaired,
* Mothers who volunteered to participate in the study will be included.

Exclusion Criteria:

• Mothers who did not volunteer to participate in the study and were illiterate in Turkish were not included in the study.

Primary outcomes:
measure: Personal Information Form
timeFrame: All mothers will be asked to fill in 1 hour before the training.
measure: Beach Center Family Quality of Life (BCFQOL) Scale
timeFrame: Immediately after the training is completed (average of 5 minutes), mothers will be asked to complete this scale.
measure: Beach Center Family Quality of Life (BCFQOL) Scale
timeFrame: One month after the training is completed, mothers will be asked to complete this scale to evaluate the effectiveness of the training.
measure: Perceived Stress Scale
timeFrame: Immediately after the training is completed (average of 5 minutes), mothers will be asked to complete this scale.
measure: Perceived Stress Scale
timeFrame: Immediately afteImmediately after the training is completed (average of 5 minutes), mothers will be asked to complete this scale.r the training is completed (average of 5 minutes), mothers will be asked to complete this scale.
Secondary outcomes:
Other outcomes:
Locations:
city: Istanbul
country: Turkey
facility: Koc University
Study officials:
References: