Clinical trial NCT02861469: Reasons of Transfer in Emergency Units of Patients in End of Life Situation.
Official title: Reasons of Transfer in Emergency Units of Patients in End of Life Situation.
Study type: OBSERVATIONAL
Overall status: COMPLETED
Conditions: End of Life
Palliative Care
Keywords: qualitative study, end of life, ethics, palliative care
Lead sponsor: Centre Hospitalier Universitaire de Besancon
Sponsor class: OTHER
First posted: 2016-08-10
Enrollment: 21
Sex: ALL
Minimum age (years): 18
Standard ages: ADULT
OLDER_ADULT
Accepts healthy volunteers: no
Time perspective: PROSPECTIVE
Sampling method: NON_PROBABILITY_SAMPLE
Study population: * Patients living at their home and admitted in the emergency unit of the university hospital of Besançon, who died within the 3 days following their admission in the emergency unit of a chronic disease in terminal phase.
* General practitioners and main carers (family members or friends) of those patients.

Brief summary: This qualitative study aimed to describe and understand the factors leading to the admission in emergency unit of patients coming from their home, in an end of life situation.

This study was conducted in the university hospital of Besançon, France. Semi-structured interviews were conducted with general practitioners and family members in order to understand the factors leading, from their points of view, to the admission in emergency unit whereas this hospitalization wasn't necessary.


Eligibility criteria: Inclusion Criteria:

* FOR PATIENTS :
* aged of 18 yo or more
* Admitted in the emergency unit of the university hospital of Besançon
* who died within the 3 days following their admission in the emergency unit
* who died of a chronic disease in terminal phase
* for whom therapeutic goals were only focused on comfort
* living at their home or at their family's home before their transfer in emergency unit
* accompanied by at least one main carer (family member or friend) and one general practitioner during the last weeks before death
* FOR MAIN CARERS :
* Family members or friends of the patient
* who were the main carers of the patient during his/her last weeks
* speaking easily in french
* who agreed for being interviewed and whom psychic and emotional state is compatible with a interview
* living within 80km from Besançon
* FOR GENERAL PRACTITIONERS :
* who were the main medical actor for the patient during his/her last weeks
* who agreed for being interviewed
* working within 80km from Besançon

Exclusion Criteria:

* FOR PATIENTS :
* Patients who expressed a wish to not die at home
* Patients who died because of any other medical event than predictable death following the terminal phase of a chronic disease
* minors
* FOR MAIN CARERS AND GENERAL PRACTITIONERS :
* refusal to participate to the interviews

Primary outcomes:
measure: Perceptions of general practitioners and family members toward the reasons of admission in emergency unit of patients coming from home in an end of life situation
timeFrame: day one
Secondary outcomes:
Other outcomes:
Locations:
Study officials:
affiliation: Centre Hospitalier Universitaire de Besancon
name: Régis AUBRY, Pr
role: PRINCIPAL_INVESTIGATOR
References:
citation: Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010 Mar 23;340:c1345. doi: 10.1136/bmj.c1345.
citation: Pennec S, Gaymu J, Monnier A, Riou F, Aubry R, Pontone S, Cases C. [The places of death of people aged 80 and over in France]. Soins Gerontol. 2014 Nov-Dec;(110):12-5. French.