Clinical trial NCT02997514: Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic
Official title: Implementation and Evaluation of Solution Focused Coaching Strategy Within a Paediatric Multidisciplinary Neuromuscular Clinic
Study type: INTERVENTIONAL
Overall status: UNKNOWN
Phase: NA
Conditions: Neuromuscular Diseases
Keywords: Solution focused coaching
Self determination
Lead sponsor: Holland Bloorview Kids Rehabilitation Hospital
Sponsor class: OTHER
Collaborators: name: AHSC AFP Innovation Fund- Ontario Government
First posted: 2016-12-20
Enrollment: 40
Sex: ALL
Minimum age (years): 10
Maximum age (years): 18
Standard ages: CHILD
ADULT
Accepts healthy volunteers: no
Allocation: RANDOMIZED
Intervention model: PARALLEL
Primary purpose: TREATMENT

Brief summary: The purpose of this study is to implement Solution Focused Coaching in pediatric rehabilitation (SFC-peds) within the multidisciplinary neuromuscular clinic at Holland Bloorview Kids Rehabilitation Hospital and evaluate its effect on children's ability to set and attain personally meaningful goals. A secondary goal is to determine the impact of SFC-peds on self-determination in children with neuromuscular conditions. This study aims to compare two methods of SCF-peds delivery, a single coaching session vs. intensive coaching (5 sessions) on goal attainment. This study will also help researchers and clinicians understand the types of goals that are set by children with neuromuscular conditions. Lastly, this study is going to explore with the participants their perception of the feasibility of using this methodology within a clinical context.

Detailed description: Nationally, standards of care have been published for paediatric neuromuscular (NM) conditions to optimize care, improve quality of life and increase life span. Children with NM conditions are followed in regional multidisciplinary clinics in Ontario and across Canada. At each visit they can be seen by 8 health care providers each focusing on and making recommendations for the different aspects of their care. Currently, there are no evidenced based interventions for children with NM conditions evaluating the ability of children to set and attain their care goals and/or other personally meaningful goals.

Self-determination is defined as the ability to "use skills, knowledge and beliefs that enable a person to engage in goal directed, self-regulated, autonomous behavior." The development of self-determination is a process that begins in childhood. Solution Focused Coaching (SFC) is a strengths- based, client-centered approach to service delivery that supports clients to build on their existing capacity to move closer to meaningful goals. This study will evaluate the impact of SFC on goal setting, achievement and self determination in children with NM conditions.

Eligibility criteria: Inclusion Criteria:

* child has a primary NM diagnosis
* child ages 10-18 years
* child able to converse orally in English
* child has a willingness to engage in the coaching intervention
* child is aware that they have a neuromuscular condition
* child is followed clinically in the Neuromuscular Clinic at Holland Bloorview Kids Rehabilitation Hospital at 4-6 month intervals
* child has internet access at home and a device to connect to the internet with a camera
* child is able to demonstrate capacity to consent
* parent is able to read and write in English

Exclusion Criteria:

-child has a moderate to severe intellectual disability

Primary outcomes:
measure: Change on Canadian Occupational Performance Measure (COPM)
timeFrame: Week 0 and Week 14
measure: Change on Goal Attainment Scaling (GAS)
timeFrame: Week 0 and Week 14
Secondary outcomes:
measure: American Research Council's Self Determination Scale (ARC SDS)
timeFrame: Week 0 and Week 14
measure: Solution-Focused Fidelity Instrument (SFFI)
timeFrame: Weeks: 2, 3, 4, 6, 10 and 14
measure: Thematic Analysis of Interview Questions Exploring Solution Focused Coaching Process
timeFrame: Week 14
Other outcomes:
Locations:
Study officials:
affiliation: Holland Bloorview Kids Rehabilitation Hospital
name: Laura McAdam, MD
role: PRINCIPAL_INVESTIGATOR
References:
citation: Baldwin P, King G, Evans J, McDougall S, Tucker MA, Servais M. Solution-focused coaching in pediatric rehabilitation: an integrated model for practice. Phys Occup Ther Pediatr. 2013 Nov;33(4):467-83. doi: 10.3109/01942638.2013.784718. Epub 2013 Apr 24.
citation: Field, S., Martin, J., Miller, R., Ward, M., & Wehmeyer, M. (1998). A practical guide for teaching self-determination. Reston, VA: Council for Exceptional Children. In Field, S., Martin, J., Miller, R., Ward, M., & Wehmeyer, M. (1998). Self-determination for persons with disabilities: A position statement of me division on career development and transition. Career Development for Exceptional Individuals, 21(2), 113-128.