Clinical trial NCT00924976: Improving Representative Payeeship for People With Psychiatric Disabilities and Their Families
Official title: Improving Representative Payeeship for People With Psychiatric Disabilities and Their Families
Study type: INTERVENTIONAL
Overall status: COMPLETED
Phase: NA
Conditions: Schizophrenia
Bipolar Disorder
Major Depressive Disorder
Lead sponsor: University of North Carolina, Chapel Hill
Sponsor class: OTHER
Collaborators: name: U.S. Department of Education
First posted: 2009-06-19
Enrollment: 303
Sex: ALL
Minimum age (years): 18
Maximum age (years): 65
Standard ages: ADULT
OLDER_ADULT
Accepts healthy volunteers: no
Allocation: RANDOMIZED
Intervention model: PARALLEL
Primary purpose: HEALTH_SERVICES_RESEARCH

Brief summary: Representative payees, mostly family members, manage Social Security Administration funds of more than one million people with psychiatric disabilities. Although studies show payeeship can be used coercively, foster dependency, reduce work incentives, lead to family conflict and even violence, there has been little systematic research on how to lower these significant barriers to community integration.

The investigators' long term goal is to promote recovery among adults with psychiatric disabilities who have payees by reducing downsides associated with what has been called "the nation's largest guardianship system." The investigators' objective in the current application is to evaluate a pilot-tested, stakeholder-informed intervention that is grounded in principles of psychiatric rehabilitation and encourages consumers with psychiatric disabilities and their family members to collaborate within the representative payee arrangement.

Detailed description: To do this, we will test the Steps for Achieving Financial Empowerment (SAFE) intervention by randomly assigning N=200 consumer-family payee dyads into one of two groups: (a) the SAFE intervention (n=100); or (b) a "usual care" control (n=100). The SAFE is a brief, 5 component educational intervention that aims to facilitate a cooperative consumer-payee relationship, increase accurate knowledge about representative payeeship, promote collaborative money management and effective budgeting, and prepare mutually developed plans for carrying out the payeeship in the future.

We will interview people with psychiatric disabilities and their family payees at baseline and six-months. This study aims to examine the effects of the SAFE intervention on community participation, employment, and family support of adults with psychiatric disabilities who have family representative payees. Our central hypothesis, based on strong preliminary data, is that the SAFE will benefit consumers by enhancing autonomy, boosting motivation to work, and reducing family conflict.

Eligibility criteria: Inclusion Criteria:

* For disability recipients:

  1. Meets DSM-IV criteria for schizophrenia, schizoaffective disorder, bipolar disorder, or depressive disorder with psychotic features;
  2. age 18-65;
  3. Has a family member (parent or sibling) as a representative payee.
* For payees:

  1. Has family member (child or sibling) with schizophrenia, schizoaffective disorder, bipolar disorder, or depressive disorder with psychotic features; and
  2. Is the family member's representative payee.

Exclusion Criteria:

* None.

Primary outcomes:
measure: employment
timeFrame: six months
measure: empowerment
timeFrame: six months
measure: family support
timeFrame: six months
Secondary outcomes:
Other outcomes:
Locations:
city: Chapel Hill
country: United States
facility: UNC-Chapel Hill
state: North Carolina
Study officials:
affiliation: UNC-Chapel Hill
name: Eric B Elbogen, Ph.D.
role: PRINCIPAL_INVESTIGATOR
References:
citation: Elbogen EB, Ferron JC, Swartz MS, Wilder CM, Swanson JW, Wagner HR. Characteristics of representative payeeship involving families of beneficiaries with psychiatric disabilities. Psychiatr Serv. 2007 Nov;58(11):1433-40. doi: 10.1176/ps.2007.58.11.1433.
citation: Elbogen EB, Wilder C, Swartz MS, Swanson JW. Caregivers as money managers for adults with severe mental illness: how treatment providers can help. Acad Psychiatry. 2008 Mar-Apr;32(2):104-10. doi: 10.1176/appi.ap.32.2.104.
citation: Elbogen EB, Tiegreen J, Vaughan C, Bradford DW. Money management, mental health, and psychiatric disability: a recovery-oriented model for improving financial skills. Psychiatr Rehabil J. 2011 Winter;34(3):223-31. doi: 10.2975/34.3.2011.223.231.