Clinical trial NCT04881084: Exploring Empathy and Compassion Using Digital Narratives
Official title: Learning to Care: Exploring Empathy and Compassion Using Digital Narratives
Study type: INTERVENTIONAL
Overall status: RECRUITING
Phase: NA
Conditions: Mental Disorders, Severe
Mental Illness
Stigma, Social
Compassion
Empathy
Keywords: Digital Narratives
Digital Testimonials
Digital Stories
Social Marketing
Fundraising campaigns
Stigma
Mental Illness
Lead sponsor: McGill University
Sponsor class: OTHER
Collaborators: name: Social Sciences and Humanities Research Council of Canada
First posted: 2021-05-11
Enrollment: 80
Sex: ALL
Minimum age (years): 18
Maximum age (years): 35
Standard ages: ADULT
Accepts healthy volunteers: yes
Allocation: RANDOMIZED
Intervention model: PARALLEL
Intervention model description: Two-armed, parallel-design, individually randomized trial.
Primary purpose: PREVENTION

Brief summary: Stories of suffering and struggle are shared continuously through digital formats such as internet videos, news stories, social marketing, and fundraising campaigns. Digital stories are often created and shared to generate awareness about a problem, impart knowledge on contemporary issues, or promote compassion. The practice of sharing critical life events and insights provided by these experiences are valuable for tellers and the listeners alike for catharsis, healing, reconciliation, and connectiveness. Portrayals of mental suffering are a matter of cultural and social interest as new media products become available to the public. Studies published since the 1990s overwhelmingly conclude that formal media depictions are biased, promoting the stereotype that people who suffer emotionally are mentally ill, dangerous, violent, or insane. Various agencies, organizations, and corporations are actively working to provide alternative stories/narratives to mainstream media by means of video testimonials in social marketing and fundraising campaigns and, ultimately, by taking advantage of the Internet. The impact of this work is under-researched. However, preliminary evaluations of social marketing campaigns report mixed results and raise questions about their effectiveness. As well, the first-person narrative prepared digitally and shared online is also providing alternative narratives to mainstream media stories. People are increasingly using digital videos to share their stories, viewing this as an opportunity to understand their emotions and thoughts, come to terms with disgrace around sensitive, personal issues and marginalization while providing hope and encouragement to others. This proposed study focuses on the process of creating digital narratives/stories, especially stories of mental and emotional suffering, and their impact in terms of inciting empathy, compassion, and good citizenship among viewers.

Detailed description: Digital stories -- first person, self-made 2-3-minute videos -- aim to generate awareness about problems, impart knowledge, or promote compassion. Sharing critical life events and related insights are invaluable for tellers and listeners alike, supporting catharsis, healing, reconciliation, and connectiveness. Digital stories are created and shared among organizations or citizens ( "ordinary" people without a background in filmmaking) to promote awareness of particular problems. They impact peoples' knowledge of contemporary issues, shaping attitudes by stimulating empathy, compassion, and active citizenship.

The proposed study explores digital stories/narratives, particularly those focused on mental health recovery, and how stories elicit empathy and compassion by addressing three main questions: (1) How is mental and emotional suffering depicted in video testimonies presented by social marketing/fundraising campaigns, versus the stories of ordinary people told through digital videos? (2) What impact does digital storytelling have for the creators, as ordinary people willing to revisit difficult life moments and transform them into digital videos? (3) What is the impact of video depictions on viewers in terms of empathy and compassion?

This mixed-method study has 3 phases: In Phase 1 (Preparation), a search will be conducted to identify activities related to Canadian social marketing and fundraising campaigns. Digital storytelling workshops will be held simultaneously, and in-depth interviews conducted before and after each workshop. Social service and community organizations located in Montreal, Canada, will be contacted to promote the digital storytelling workshops, to be implemented in the community and on university campuses. In Phase 2, a pilot randomized controlled trial (RCT) will be undertaken and more in-depth interviews conducted. Phase 3 will consist of knowledge dissemination activities.

The knowledge acquired through this study on individual and societal responses to stories of human suffering will have a practical impact on future social marketing campaigns promoted by government agencies, fundraising campaigns launched by nonprofit and for-profit organizations, and the public. Results will consolidate previous knowledge while providing new insights into what prompts citizens to help others.

Eligibility criteria: Inclusion Criteria:

* 18-35 years of age
* Not currently admitted to a hospital

Exclusion Criteria:

* Not in age range (18-35 years of age)
* Currently admitted to a hospital
* Attended the digital storytelling workshop and made a digital story used in the RCT

Primary outcomes:
measure: Empathy
timeFrame: Baseline, immediately after the intervention
measure: Compassion
timeFrame: Baseline, immediately after the intervention
Secondary outcomes:
measure: Positive emotions
timeFrame: Baseline, immediately after the intervention
measure: Mental health self-stigma
timeFrame: Baseline, immediately after the intervention
measure: Mental health public stigma
timeFrame: Baseline, immediately after the intervention
Other outcomes:
Locations:
city: Montreal
country: Canada
facility: McGill University
state: Quebec
Study officials:
References:
citation: Ferrari M, Fazeli S, Mitchell C, Shah J, Iyer SN. Exploring Empathy and Compassion Using Digital Narratives (the Learning to Care Project): Protocol for a Multiphase Mixed Methods Study. JMIR Res Protoc. 2022 Jan 13;11(1):e33525. doi: 10.2196/33525.