Clinical trial NCT05035667: Patient Considerations of Social Media Account Management After Death
Official title: Social Media Use in Advanced Cancer: Patient Considerations of Social Media Account Management After Death
Study type: OBSERVATIONAL
Overall status: ACTIVE_NOT_RECRUITING
Conditions: Advanced Malignant Solid Neoplasm
Hematopoietic and Lymphoid System Neoplasm
Lead sponsor: M.D. Anderson Cancer Center
Sponsor class: OTHER
First posted: 2021-09-05
Enrollment: 117
Sex: ALL
Minimum age (years): 18
Standard ages: ADULT
OLDER_ADULT
Accepts healthy volunteers: no
Observational model: CASE_ONLY
Time perspective: PROSPECTIVE
Sampling method: NON_PROBABILITY_SAMPLE
Study population: Patients with advanced cancer attending outpatient Supportive Care Clinic at M D Anderson Cancer Center (MDACC)

Brief summary: This study examines how supportive care clinic patients have made decisions or had discussions about how their caregivers or family should manage their social media account(s) after death. Collecting information on the use of social media and preferences will allow for a better understanding of patient's needs in the dying process and may identify populations in need of education, identify a possible source of anxiety and stress, and allow for an informed discussion of digital legacy.

Detailed description: PRIMARY OBJECTIVE:

I. Identify the proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account (e.g. Facebook, Twitter, Instagram) management after death.

SECONDARY OBJECTIVE:

I. Identify the proportion of social media participation among advanced cancer patients seen in the supportive care clinic.

II. Evaluate the baseline awareness advanced cancer patients seen in the supportive care clinic have regarding how their Facebook account may be managed after death.

III. Evaluate affect changes and distress as a result from the conversation regarding their social media account management after death.

IV. Evaluate if discussion of social media account management among patients with advanced cancer in the supportive cancer clinic will increase their awareness of and motivation to address their social media account management options.

OUTLINE:

Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management.

Eligibility criteria: Inclusion Criteria:

* Patients with at least 1 follow-up visit to the outpatient Supportive Care Clinic at MDACC
* Patients with any type of advanced cancer
* Patients aged 18 years or older
* Patients who have used social media
* Patients able to read and write in English

Exclusion Criteria:

* Delirium as diagnosed by treating Supportive Care Center (SCC) physician or Memorial Delirium Assessment Scale (MDAS) score \>= 7

Primary outcomes:
measure: Proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account
timeFrame: through study completion, an average of 1 year
Secondary outcomes:
Other outcomes:
Locations:
city: Houston
country: United States
facility: M D Anderson Cancer Center
state: Texas
Study officials:
affiliation: M.D. Anderson Cancer Center
name: Jacqueline M Tschanz, MD
role: PRINCIPAL_INVESTIGATOR
References: