Purpose in Life Survey

Study Overview
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Brief Summary
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At present, there is no empirical data that specifies the likely prevalence of purpose in life disruption among various clinical populations. Between one-third and one-half of cancer survivors report some degree of existential distress during or after their treatment, but these findings are not specific to the domain of purpose in life. To address the aforementioned gap, we propose to conduct a survey study to determine the prevalence of purpose disruption in two clinical populations and determine if the prevalence of purpose disruption in these populations is different from that of a normative population.

Official Title
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Evaluating the Prevalence of Purpose-related Existential Distress Among 2 Clinical Populations Compared to a Normative Sample

Conditions
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Breast Cancer, Traumatic Brain Injury

Intervention / Treatment
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* Other: Survey


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: Age 18+ Stage 1, 2, 3 cancer Cancer types: breast cancer, non-Hodgkin's lymphoma; colorectal cancer Receiving oncology services or treatment through AHCI Have completed primary cancer treatment within the past 12 months Able to communicate in English; Able to see and read (with or without assistive devices); Has access to a device (computer, phone, tablet) and an email address; Access to an internet connection. Has a known email address (in EPIC) and/or home telephone number Adults who sustained a traumatic brain injury within the past 12 months. Attending the 2022 MN State Fair Exclusion Criteria: Have declined consent for use of medical records in research during admission to AH facility

Ages Eligible for Study
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Minimum Age: 18 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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Accepts Healthy Volunteers

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Adults with Early Stage Cancer<br> | Other: Survey<br>* Completion of a Purpose in Life Survey<br>|
| Adults with Traumatic Brain Injury<br> | Other: Survey<br>* Completion of a Purpose in Life Survey<br>|
| Health Control Adults<br> | Other: Survey<br>* Completion of a Purpose in Life Survey<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Purpose Status Question | A single forced-choice self-report screener question that we developed in order to characterize existential distress related to purpose in life (PSQ: Related to living with purpose in life, right now I am: moving backwards; stalled; figuring it out; moving forward on a path). | Through Study Completion, about 15 minutes | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Work and Adjustment Scale | A 5-item self-report questionnaire to characterize functioning related to work, social life, leisure, home management, and relationships. | Through Study Completion, about 15 minutes | 
| Meaning in Life Questionnaire | A 10-item questionnaire designed to measure 2 dimensions of meaning in life: Presence of Meaning (how much respondents feel their lives have meaning) and Search for Meaning (how much respondents strive to find meaning and understanding in their lives). | Through Study Completion, about 15 minutes | 
| Life Engagement Test | A 6-item self-report questionnaire that captures the extent to which a person engages in activities that are personally valued. | Through Study Completion, about 15 minutes |