Risk Behaviors in Adolescents With Chronic Diseases

Study Overview
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Brief Summary
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Little is known about the prevalence of risk behaviors (RBs), in adolescents living with a chronic condition (CC) Objectives Main objective: To characterize the engagement of adolescents with somatic CC recognized as ALD (SCC-ALD) into RBs, compared to the French GP Secondary objectives To identify factors associated with RBs in adolescents with somatic CC-ALD To elicit strategies of preventive action of RBs in adolescents with somatic CC-ALD Methods multicenter, cross-sectional survey , based on a mixed qualitative-quantitative approach with an explanatory sequential design (2 consecutive steps): STEP 1 : QUANTITATIVE COMPONENT N expected =500 Inclusion criteria : 14 to 18 years, With a SCC-ALD,Without cognitive impairment and/or psychiatric disease Pseudonymised self-administered paper questionnaire (50 items) completed by eligible adolescents during a visit at referring hospital statistical analysis : Comparative to the French GP: matching with two datasets (Enclass-HBSC 2022 and Portraits d'Adolescents 2013 surveys); identification of risk factors and risk subgroups STEP 2 : QUALITATIVE COMPONENT: Focus groups of adolescents with somatic CC-ALD (5 focus groups of 6-8 adolescents, conducted by a researcher in SHS) Perspectives CARMAC will : Provide a better understanding of RBs in adolescents with severe somatic CC and Help develop strategies to prevent RBs to enhance the strategies of reducing the addictions to psychoactive substances and health inequalities in this population Serve as a methodological model for future studies

Detailed Description
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Little is known about the prevalence of risk behaviors (RBs), in adolescents living with a chronic condition (CC) Objectives Main objective: To characterize the engagement of adolescents with somatic CC recognized as ALD (SCC-ALD) into RBs, compared to the French GP Secondary objectives To identify factors associated with RBs in adolescents with somatic CC-ALD To elicit strategies of preventive action of RBs in adolescents with somatic CC-ALD Methods multicenter, cross-sectional survey , based on a mixed qualitative-quantitative approach with an explanatory sequential design (2 consecutive steps) STEP 1 : QUANTITATIVE COMPONENT N expected =500 Inclusion criteria : 14 to 18 years, With a SCC-ALD,Without cognitive impairment and/or psychiatric disease Pseudonymised self-administered paper questionnaire (50 items) completed by eligible adolescents during a visit at referring hospital statistical analysis : Comparative to the French GP: matching with two datasets (Enclass-HBSC 2022 and Portraits d'Adolescents 2013 surveys); identification of risk factors and risk subgroups STEP 2 : QUALITATIVE COMPONENT: Focus groups of adolescents with somatic CC-ALD (5 focus groups of 6-8 adolescents, conducted by a researcher in SHS) Perspectives CARMAC will : Provide a better understanding of RBs in adolescents with severe somatic CC and Help develop strategies to prevent RBs to enhance the strategies of reducing the addictions to psychoactive substances and health inequalities in this population Serve as a methodological model for future studies

Official Title
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Risk Behaviors in Adolescents With Chronic Diseases

Conditions
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Chronic Disease, Somatic Disorders

Intervention / Treatment
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* Other: Questionnaire risk behaviors in adolescents with chronic diseases


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: 14 to 18 years, living with a somatic chronic condition, recognized as an ALD (long duration disease) Exclusion Criteria: cognitive impairment and/or psychiatric disease

Ages Eligible for Study
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Minimum Age: 14 Years
Maximum Age: 18 Years

Sexes Eligible for Study
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All

Study Plan
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How is the study designed?
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Arms and Interventions

| Intervention/Treatment |
| --- |
|Other: Questionnaire risk behaviors in adolescents with chronic diseases|Questionnaire risk behaviors in adolescents with chronic diseases|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Prevalence of risky behaviors in adolescents with somatic chronic conditions recognized as ALD (SCC-ALD) compared to the French General Population | prevalence of tobacco, cannabis and alcohol us, of risky sexuality, of dangerous games | 6 months | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Factors associated with high prevalence of risky behaviors in of adolescents with somatic chronic conditions recognized as ALD (SCC-ALD) compared to the French General Population | gender, age, social background, self-esteem, type of chronic condition, perceived burden of chronic condition (pain, treatment, social impact) | 6 months |