Measure of Acceptance of chRonic Visible sKin conditionS

Study Overview
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Brief Summary
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The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness).

Detailed Description
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The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness). The investigator will screen the patients and give them a link to complete the questionnaire (according to the age), that includes a pre-scale of acceptation of 50-55 items.

Official Title
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Acceptance Des Maladies Chroniques Dermatologiques Visibles : Constitution d'échelles Pour le Patient et Son Cluster Familial

Conditions
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Acceptance of Visible Chronic Dermatological Disease, Disease Acceptance, Psychological Well-Being, Social Segregation

Intervention / Treatment
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* Behavioral: Questionnaire


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: Targeted pathologies: Flat angioma Primary hypopigmentation and early vitiligo Primary hyperpigmentation Refractory alopecia areata or congenital alopecia Persons concerned: Children (≥ 6 years old) suffering from one of the aforementioned pathologies Adults suffering from one of the above-mentioned pathologies Parents of children suffering from one of the aforementioned pathologies Parents of young adult patients if they live under the same roof Oral agreement for each person (major/minor) and, where applicable, one of the holders of parental authority (minor) Exclusion Criteria: Secondary marks (post-inflammatory, post-medication, post-traumatic, etc.) Major psychiatric disorders

Ages Eligible for Study
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Minimum Age: 6 Years

Sexes Eligible for Study
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All

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Children aged 6-13 years<br>Children aged 6-13 years with a chronic skin visible disease | Behavioral: Questionnaire<br>* Questionnaire according to age (6-13;14-17); the parents for minors and adults<br>|
| Adolescents aged 14-17 years<br>Adolescents aged 14-17 years years with a chronic skin visible disease | Behavioral: Questionnaire<br>* Questionnaire according to age (6-13;14-17); the parents for minors and adults<br>|
| Adult patients<br>Adult patients aged 18 years and more with a chronic skin visible disease | Behavioral: Questionnaire<br>* Questionnaire according to age (6-13;14-17); the parents for minors and adults<br>|
| Parents of children aged 6 years and more<br>Parents of children aged 6 years and more with a chronic skin visible disease | Behavioral: Questionnaire<br>* Questionnaire according to age (6-13;14-17); the parents for minors and adults<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Questionnaire analysis | Analysis of responses to the 4 questionnaires (scales) evaluating the acceptance of chronic dermatological diseases visible in children, adolescents, adults and parents, respectively. | Up to 4 weeks | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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alopecia areata, Psychology, Chronic dermatological disease, Sociology, Disease Acceptance, Vitiligo, port wine stain, hyperpigmentation