Caring for the Sexual Health and Wellbeing of Cancer Survivors and Their Intimate Partners: An Anonymous Survey

Study Overview
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Brief Summary
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The aim of this survey study is to provide broad information as reported by cancer survivors and their intimate partners about both their sexual health and their experiences of care from the United Kingdom hospital cancer team, including their perspectives on factors that may hinder or help care. This information will be analysed and used to inform the questions asked in a separate, subsequent, qualitative study.

Official Title
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An Anonymous Survey Investigating Care for the Sexual Health of Cancer Survivors and Their Intimate Partners, as Provided by the United Kingdom Hospital Cancer Team

Conditions
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Cancer

Intervention / Treatment
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* Other: No intervention


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: Cancer survivors diagnosed with any type of cancer at age 18 years or over A partner of someone diagnosed with any type of cancer at age 18 years or over Cancer diagnosis must be no more than 10 years ago Cancer survivors or their partners who experienced treatment and follow up care in the United Kingdom Exclusion Criteria: Cancer survivors who were diagnosed with cancer below the age of 18 years Partners of cancer survivors who were diagnosed with cancer below the age of 18 years Cancer diagnosis was more than 10 years ago Cancer survivors/partners of survivors where the cancer treatment and follow up was not in the United Kingdom Previous completion of the survey

Ages Eligible for Study
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Minimum Age: 18 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| People with Cancer<br>No intervention | Other: No intervention<br>* No intervention<br>|
| Partners of People with Cancer<br>No intervention | Other: No intervention<br>* No intervention<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Number of participants who had a sexual health discussion(s) with the hospital cancer team at any point during cancer care | Sexual health discussion:19 examples of the sort of topics that may have been discussed in relation to sexual health | Up to 10 years prior to completing survey (discussion(s) about sexual health could have occurred at any point during cancer care) | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Number of participants with specific levels of impact on their sex lives by cancer and its treatments | As above | From each individual participants' cancer diagnosis/cancer treatment until the date that they completed the survey | 
| Survey questionnaire to measure the nature and prevalence of care for sexual health that cancer survivors and their intimate partners self-report experiencing from the UK hospital cancer team. | An online survey questionnaire (no validated questionnaire available and therefore research created the questionnaire based on a literature reviews on sexual health in oncology | Participants can report care received from prior to their cancer treatment through to their follow-up care (last 10 years only) | 
| Survey questionnaire to measure the nature and prevalence of the perceived barriers to and facilitators for care for sexual health as received by cancer survivors and their intimate partners when provided by the UK hospital cancer team. | As above | Participants can report their perceptions from diagnosis through to their follow-up care (last 10 years only) | 
| Survey questionnaire to measure to what extent groups of cancer survivors and their intimate partners with differing characteristics receive differing care for their sexual health from the UK hospital cancer team. | Participants' responses from outcomes 1-4 will be used toinform this outcome | Participants diagnosed with cancer in the previous 10 years. | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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Sexuality, Cancer Survivors, Neoplasms, Oncology, Sexual Health, Sexual Dysfunction, physiological, Sexual Dysfunctions, psychological, Barrier, Facilitator, Professional-Patient Relations, Communication