Colorectal Cancer Survivors' Needs and Preferences for Survivorship Information

Study Overview
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Brief Summary
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We are doing this study to learn more about colon and rectal cancer survivors. We want to know if survivors want more information about life after cancer. Do cancer survivors want to know more about their own cancer? Do cancer survivors want to know about their treatment? Do cancer survivors want to know what health care they should get in the future? We want to know what information to give to cancer survivors when they finish treatment.

Official Title
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Colorectal Cancer Survivors' Needs and Preferences for Survivorship Information

Conditions
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Colon Cancer, Rectal Cancer

Intervention / Treatment
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* Behavioral: Questionnaire


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: 18 years of age or older at diagnosis Diagnosed with first primary colorectal cancer (stage I-III) Completed last treatment for colorectal cancer (surgery, chemotherapy, or radiation) at least 6 months and no more than 2 years before the date of study enrollment Able to speak English, because questionnaire is only available in English Able to provide informed consent Received all treatment for colorectal cancer at MSKCC or QCC or, surgical treatment at an outside facility, and all other treatment (chemotherapy or radiation) at MSKCC or QCC Exclusion Criteria: Undergoing active treatment for colorectal cancer Diagnosed with metastatic colorectal cancer Prior history of colorectal or any other cancer (except non-melanoma skin cancer) Diagnosed with new or recurrent colorectal or other cancer after the primary colorectal cancer diagnosis Received a survivorship care plan from the treating institution

Ages Eligible for Study
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Minimum Age: 18 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Questionnaire<br>This study is a cross-sectional survey study to be administered to adults who completed treatment for nonmetastatic colorectal cancer at MSKCC or at Queens Cancer Center (QCC) at Queens Hospital between 6 months and 2 years ago and have no evidence of disease at the time of study enrollment. | Behavioral: Questionnaire<br>* The questionnaire will be administered by telephone and will take approximately 20-30 minutes. The questionnaire will elicit survivor responses along five domains: knowledge about diagnosis and treatment, knowledge about ongoing risks and recommended testing, history of health care utilization since the end of treatment, preferences for relevant information about these topics, and employment after the end of cancer treatment.<br>* Other names: conducted on the phone or in person.;|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Assess colorectal cancer survivors' basic knowledge of their own cancer history, including date of diagnosis, stage, and treatments received. |  | 6 months to 2 years after completion of treatment | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Assess survivors' knowledge of medical issues relevant to colorectal cancer survivors. |  | 6 months to 2 years after completion of treatment | 
| Describe the types of health care providers that survivors have visited since completing treatment for colorectal cancer. |  | 6 months to 2 years after completion of treatment | 
| Assess survivors' preferences for the content, format, and delivery of survivorship care plans. |  | 6 months to 2 years after completion of treatment | 
| Assess whether survivors who had concerns about working after cancer treatment spoke with health care professionals about their concerns. |  | 6 months to 2 years after completion of treatment | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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Survivorship, Quality of Life, Questionnaire, 09-133