Persons With Disabilities Generating Quality Metrics

Study Overview
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Brief Summary
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No standard way exists to measure the quality of medical care or independent living long-term services and supports provided to persons with disabilities. This project will: provide a broader picture of how consumers with disabilities define care and care quality; measure the value of using consumers' expertise in developing, collecting, and assessing quality measures; and use this information to assist One Care providers in improving care delivered to their enrollees

Detailed Description
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The aims of the project are as follows: To work with persons with significant physical disabilities and serious and persistent mental illness to develop two new approaches to assess quality of care: Approach #1: We will survey enrollees about their experiences in One Care and their thoughts about the care they receive. This survey will also ask One Care enrollees about how they manage their care and what self-direction means to them. The survey will be called the Persons with Disabilities Quality Survey (PDQ-S), and it will be available in English and Spanish versions. Approach #2: Enrollees in One Care will provide information about their perceptions of care quality to a trained team of persons with disabilities who will report the information to One Care care teams. The goal of the activity is to support quality improvement in One Care through hearing the consumer's voice. This is called YES Health - Your Experience: Speak up for better health care. We want to test how providing consumer informed and consumer directed quality information to One Care providers affects One Care quality. We want to improve the ability of One Care enrollees to manage their own health care and to recognize and report quality problems

Official Title
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Persons With Disabilities Generating Quality Metrics to Inform Integrated Care

Conditions
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Physical Disability, Chronic Mental Disorder

Intervention / Treatment
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* Other: Survey
* Other: YESHealth


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: One Care enrollee Permanent physical disability and/or serious mental illness Seen at designated practice site English or Spanish speaking Exclusion Criteria: Persons with an intellectual or a developmental disability

Ages Eligible for Study
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Minimum Age: 21 Years
Maximum Age: 64 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Design Details

Primary Purpose: Health Services Research
Allocation: Randomized
Intervention Model: Parallel Assignment
Interventional Model Description: control v Survey v YESHealth
Masking: Double


Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| No Intervention: Control - Standard Practice<br>Standard measures of quality at baseline. No intervention reports sent to providers | |
| Experimental: Survey<br>Persons with Disabilities Quality Survey.PDQS Survey Reports Intervention.reports sent to providers of OneCare enrollees | Other: Survey<br>* PDQS survey reports only<br>|
| Experimental: YESHealth<br>Arm 3: YESHealth Reports and PDQS Survey Reports sent to providers of OneCare enrollees | Other: Survey<br>* PDQS survey reports only<br>Other: YESHealth<br>* Arm 3: YESHealth and PDQS survey reports to providers<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Improved Quality of Care | % who agree that their quality of care Is better, the same or worse than before | 12 months |