Study of the Health Information Needs of Brain Cancer Patients

Study Overview
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Brief Summary
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The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.

Detailed Description
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A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs. This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.

Official Title
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Informed Brain Cancer Patients

Conditions
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Brain Tumor

Intervention / Treatment
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* Other: Focus Group


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: BRAIN TUMOR PATIENTS: 18 to 89 years of age Have or have had any type of brain tumor Ability to communicate in English Willingness to participate in a 30-60 minute focus group HEALTH CARE PROVIDERS: 18 to 89 years of age Be a health care provider who cares for any type of brain tumor Ability to communicate in English Willingness to participate in a 30-60 minute focus group Exclusion Criteria: None

Ages Eligible for Study
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Minimum Age: 18 Years
Maximum Age: 89 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Brain Tumor Patient<br>A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a saturation of themes has been identified. | Other: Focus Group<br>* A single focus group will be held until a saturation of themes has been identified.<br>|
| Health Care Provider<br>A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a saturation of themes has been identified. | Other: Focus Group<br>* A single focus group will be held until a saturation of themes has been identified.<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Explore the factors involved in health care literacy from the perspective of brain cancer patients. | An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions. | 1 Year | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Explore the factors involved in health care literacy from the perspective of health care providers. | An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions. | 1 Year | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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Brain Tumor, Brain Neoplasm