Patient Considerations of Social Media Account Management After Death

Study Overview
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Brief Summary
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This study examines how supportive care clinic patients have made decisions or had discussions about how their caregivers or family should manage their social media account(s) after death. Collecting information on the use of social media and preferences will allow for a better understanding of patient's needs in the dying process and may identify populations in need of education, identify a possible source of anxiety and stress, and allow for an informed discussion of digital legacy.

Detailed Description
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PRIMARY OBJECTIVE: I. Identify the proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account (e.g. Facebook, Twitter, Instagram) management after death. SECONDARY OBJECTIVE: I. Identify the proportion of social media participation among advanced cancer patients seen in the supportive care clinic. II. Evaluate the baseline awareness advanced cancer patients seen in the supportive care clinic have regarding how their Facebook account may be managed after death. III. Evaluate affect changes and distress as a result from the conversation regarding their social media account management after death. IV. Evaluate if discussion of social media account management among patients with advanced cancer in the supportive cancer clinic will increase their awareness of and motivation to address their social media account management options. OUTLINE: Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management.

Official Title
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Social Media Use in Advanced Cancer: Patient Considerations of Social Media Account Management After Death

Conditions
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Advanced Malignant Solid Neoplasm, Hematopoietic and Lymphoid System Neoplasm

Intervention / Treatment
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* Other: Questionnaire Administration


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: Patients with at least 1 follow-up visit to the outpatient Supportive Care Clinic at MDACC Patients with any type of advanced cancer Patients aged 18 years or older Patients who have used social media Patients able to read and write in English Exclusion Criteria: Delirium as diagnosed by treating Supportive Care Center (SCC) physician or Memorial Delirium Assessment Scale (MDAS) score >= 7

Ages Eligible for Study
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Minimum Age: 18 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Observational (questionnaires)<br>Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management. | Other: Questionnaire Administration<br>* Complete questionnaires<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account | Will be measured by Question 10 in the survey: I have had conversations with my family or friends regarding how I would like any of my social media accounts managed after death, which contains five options: Strongly Disagree, Disagree, Neither Agree or Disagree, Agree, or Strongly Agree. The results will be dichotomized into either Strongly Agree/Agree or Neither Agree or Disagree/ Disagree/Strongly Disagree. A two-sided 95% confidence interval will extend a maximum of 0.063 from the proportion of main interest. | through study completion, an average of 1 year |