Prospective National Survey of the Palliative Situation Among Inmates in French Prisons

Study Overview
=================
Brief Summary
-----------------
PARME study had 3 objectives: To identify the specific number of incarcerated individuals with terminal illness in need of palliative care. To describe the health and penal situation of these prisoners. To analyse the situation of these ill prisoners especially in the context of suspended sentence for medical ground In order to answer these questions, the investigators used a mixed method research.

Detailed Description
-----------------
First, in order to establish a baseline, the investigators contacted the medical units in all French prisons, which means 178 care units and 8 secures inpatient care units. The investigators census every patient with terminal illness, which was defined in this study as an evolutive pathology with a life prognosis less than a year. A questionnaire was completed by these physicians for every situation. The census was conducted for three months across France. For the qualitative study, the investigators selected 14 specific situations chosen into these which had been identified by the physicians. The investigators wanted to get 3 types of patients : patient who had obtained a compassionate release patient whose demand has been refused patient who did not demand any release. The four interviews (patients, physisians, judges, probation workers) for each situation has explained the global situation. Each interviewee spoke about the situation with his/her perspective and sense that they attributed to the actions of others. This research analyzes the particularity of each of these end of life situations in prison.

Official Title
-----------------
Prospective National Survey of the Palliative Situation Among Inmates in French Prisons

Conditions
-----------------
Critical Illness, Terminal Illness

Intervention / Treatment
-----------------
* Other: qualitative interview


Participation Criteria
=================
Eligibility Criteria
-----------------
Inclusion Criteria: prisonners serious and evolving pathology vital prognosis less than a year Exclusion Criteria: less than 18 year person under tutelage patient who refuse to participate

Ages Eligible for Study
-----------------
Minimum Age: 18 Years

Sexes Eligible for Study
-----------------
All

Accepts Healthy Volunteers
-----------------
No

Study Plan
=================
How is the study designed?
-----------------

Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| census<br>qualitative interview | Other: qualitative interview<br>* some patient are interviewed.<br>|

What is the study measuring?
-----------------
Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| census ill prisonners with vital prognosis less than a year and understand how penal and medical professional are coping with these situations |  | 1 year | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| uderstand how professionnels are coping with not condamned prisonners |  | 1 year | 
| Question the meaning of the sentence for ill prisonners |  | 1 year | 
| Compare the way professionnal are coping with these situation around France |  | 1 year | 

 Terms related to the study
=================
Keywords Provided by Centre Hospitalier Valida
-----------------
palliative care, vulnerable population, qualitative research