Family-centered Pediatric Rehabilitation Services in Children With Developmental Disabilities

Study Overview
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Brief Summary
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Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives. Family-centered service has been considered as best practice in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the family-centered concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice. Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services. Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementation of family-centered pediatric rehabilitation for children with developmental disabilities and to identify related influencing factors. This study will provide empirical evidence for family-centered services in Taiwan.

Official Title
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Investigation of Family-centered Pediatric Rehabilitation Services Received by Children With Developmental Disabilities

Conditions
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Developmental Disabilities, Autistic Spectrum Disorder

Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: children aged 2 to 12 years. children with a primary diagnose or condition associated with developmental disabilities, including attention deficit hyperactivity disorder, autism, intellectual disability, Down syndrome, learning disorders, cerebral palsy, and other developmental delay. parents agree to participate in this study. Exclusion Criteria: children with unstable physical conditions, such as cancer, having surgery within 3 months, infection, or other active medical conditions. children with progressive disease (e.g. neuromuscular disease) or degenerative disorders (e.g. degenerative seizures).

Ages Eligible for Study
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Minimum Age: 2 Years
Maximum Age: 12 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Parent-child dyad<br>Children with Developmental Disabilities and their parents | |
| Therapits<br>Therapists experienced in serving children with developmental disabilities | |

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| The Measure of Processes of Care-20 |  | 1 year | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Measure of Processes of Care- for Service Providers |  | 1 year | 
| Children and Adolescent Factor Inventory |  | 1 year | 
| Assessment of Preschool Children's Participation (APCP) |  | 1 year | 
| Children's Assessment of Participation and Enjoyment (CAPE) |  | 1 year | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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Developmental Disabilities, Family-centered services, Pediatric rehabilitation