PLAY LONG: The Effect of Sports and Recreation Participation for Young chiLdren With physicAl disabilitY

Study Overview
=================
Brief Summary
-----------------
Ten year longitudinal survey following children with disabilities who have participated in Sports and Recreation from a young age (5 to 10), and the parents of children who have participated in Sports and Recreation at a young age (5 to 10). These children will be followed for 10 years with surveys every 6 months, whether they are currently participating in sports and recreation activities or not. The purpose of this longitudinal study is to examine the effects of early participation in organized sports and recreation activities (S&R) on self-reported health and health-related quality of life of children and youth (C&Y) with disabilities and their parent-reported social participation. This project will examine child and parent reported differences between: C&Y with disabilities who participate in S&R and those who have discontinued participation in S&R programs C&Y with disabilities who participate in sports vs. those who participate in recreation, and C&Y with disabilities who participate in S&R and normative data on C&Y with disabilities and those without disabilities.

Official Title
-----------------
PLAY LONG: The Effect of Sports and Recreation Participation for Young chiLdren With physicAl disabilitY - Longitudinal Study

Conditions
-----------------
Physical Disability, Quality of Life, Social Interaction, Health, Subjective

Intervention / Treatment
-----------------
* Other: No intervention


Participation Criteria
=================
Eligibility Criteria
-----------------
Inclusion Criteria: At the time of enrollment, the child must be between the ages of 5 and 10 and be participating in an adapted sports and recreation program. At the time of enrollment, the parent must have a child between the ages of 5 and 10, who is participating in an adapted sports and recreation program. Children and parents who are enrolled in the study will continue to participate in the study for 10 years. Exclusion Criteria: Children who are younger than 5 or older than 10 will not be entered into the study, nor will parents whose children are younger than 5 or older than 10 be entered into the study. . Individuals who do not read and write in English will be excluded from the study. Children who are wards of the state, or in foster care will be excluded from the study.

Ages Eligible for Study
-----------------
Minimum Age: 5 Years
Maximum Age: 10 Years

Sexes Eligible for Study
-----------------
All

Accepts Healthy Volunteers
-----------------
No

Study Plan
=================
How is the study designed?
-----------------

Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Children in Sports and Rec<br>Children with disabilities who enter the study between ages 5 and 10 who are participating in a Sports and Recreation Program. They will receive no intervention, only surveys. | Other: No intervention<br>* No intervention; surveys/questionnaires only<br>|
| Comparison Children<br>Children with disabilities who enter the study between ages 5 and 10 and end participation in Sports and Recreation Program at a later date. They will receive no intervention, only surveys. | Other: No intervention<br>* No intervention; surveys/questionnaires only<br>|

What is the study measuring?
-----------------
Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Change in health related quality of life | As measured by KIDSCREEN-10 questionnaire | Every 6 months for 10 years. | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Change in general health | Self reported general health as measured by PROMIS Pediatric Global Health Measure | Every 6 months for 10 years. | 
| Change in social participation | Self reported (or parent-reported) social participation as measured by PROMIS Pediatric Global Health Measure | Every 6 months for 10 years. |