Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Belgium on Advance Care Planning

Study Overview
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Brief Summary
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In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.

Detailed Description
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Whether or not someone wants to engage in ACP, is often the result of a complex interplay of meanings, events, processes and assumptions constructed by the patient and is best approached by qualitative methods. Semi-structured interviews will be used in order to explore the respondents' knowledge about and experience with ACP, also their views concerning ACP for their relatives and how do they prefer to engage in the process of ACP for their relatives will be explored.

Official Title
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Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Flanders and Brussels, Belgium, on Advance Care Planning: An Exploratory Interview Study

Conditions
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Advance Care Planning, Ethnic Minorities, Family Caregivers

Intervention / Treatment
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* Other: one to one interviews


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: Family carers of older adults with a Turkish or a Moroccan origin who have participated in our previous studies with NCT03930823 and NCT04335214, as identified by the older adults as the most significant family carer. Older adults in our previous studies were men and women, all 65 years and older and living in Flanders and Brussels. and who live in Belgium and are 18 years or older and fluent in French or Dutch language. and who have also given informed consent to participate in this qualitative interview study Exclusion Criteria: None

Ages Eligible for Study
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Minimum Age: 18 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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Accepts Healthy Volunteers

Study Plan
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How is the study designed?
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Design Details

Primary Purpose: Other
Intervention Model: Single Group Assignment
Interventional Model Description: one to one interviews
Masking: None (Open Label)


Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Other: One to one interviews with family carers of older people from Turkish and Moroccan origin<br>one to one interviews | Other: one to one interviews<br>* one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP)<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Knowledge of family carers of older adults from Turkish and Moroccan origin about advance care planning | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you ever heard of advance care planning? Does that term mean anything to you? What do you know about communicating wishes in advance to family members or doctor and notice this? | 12 months | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Experiences of family carers of older adults from Turkish and Moroccan origin have with engaging in the process of ACP for their relatives | This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you personally already spoken with some of your relatives about their future wishes what matters to him/her regarding his/her healthcare? If No: why? If yes: how? | 12 months |