Comprehensive Study of Social Representation of Platelet Transfusion in Patients Followed for Advanced Hematological Malignancies (R-PLQ)

Study Overview
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Brief Summary
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Limited data is available for end of life care in hematologic malignancies, moreover with thrombocytopenic patients. Thrombopenia is a frequent complication, specific of bone marrow involvement in those diseases or its treatments. Yet, a few studies was interested in, whereas platelet transfusion is the only treatment indicated. As it represent a scarce, limited resource, the ethical principles are in conflict in this setting and there's a lack of recommendation. The final decision is take by the clinician and his patient, but no study exist in representation of the two parts. We provide a qualitative study to understand what this decision is made of.

Official Title
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Comprehensive Study of Social Representation of Platelet Transfusion in Patients Followed for Advanced Hematological Malignancies (R-PLQ)

Conditions
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Platelet Transfusion, Hematological Malignancy, Palliative Care

Intervention / Treatment
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* Other: multi method questionary (developped by De Rosa, in 1995 and 2014)


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: major patient patient with advanced hematological malignancies patient transfused in platelet regularly (3 time at least in last month) medical practioner, hematologist, prescribing platelet transfusion at least one per week. nurse working in hematology, practicing platelet transfusion at lest one peer week. Exclusion Criteria: minor patient non communicant patient non transfused platelet patient non voluntary patient or hematologist or nurses non graduated hematologist

Ages Eligible for Study
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Minimum Age: 18 Years
Maximum Age: 100 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| patient<br>patient with advanced, non curative hematological malignancies multi method questionary, at least 1 hour per patient | Other: multi method questionary (developped by De Rosa, in 1995 and 2014)<br>* questions from an association network according to the subject and the grounded theorise (Glasser and Strauss)<br>|
| hematologist<br>medical practitioner of platelet transfusion multi method questionary, at least 1 hour per hematologist | Other: multi method questionary (developped by De Rosa, in 1995 and 2014)<br>* questions from an association network according to the subject and the grounded theorise (Glasser and Strauss)<br>|
| Nurses<br>nurses working in hematology, practicing platelet transfusion multi method questionary, at least 1 hour per nurse | Other: multi method questionary (developped by De Rosa, in 1995 and 2014)<br>* questions from an association network according to the subject and the grounded theorise (Glasser and Strauss)<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| measure the impact of social representation on platelet transfusion practice | inner core and peripheral items of platelet transfusion of each participant will be collected until reaching saturation, it's to say that the repetition of some terms will be measured between each interview thank's to a questionnaire of at least two principals opened questions. | 3 months | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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social representation