Understanding Symptom Recognition and Treatment Decision-making in Hispanic/Latino Lung Cancer Patients

Study Overview
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Brief Summary
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The purpose of the study is to understand why Hispanic/Latino patients with lung cancer are diagnosed later than other groups.

Official Title
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Understanding Symptom Recognition and Treatment Decision-making in Hispanic/Latino Lung Cancer Patients

Conditions
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Lung Cancer

Intervention / Treatment
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* Behavioral: semi-structured interviews


Participation Criteria
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Eligibility Criteria
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Inclusion Criteria: Self-identified Hispanic/Latino patients with biopsy-proven primary lung cancer treated at MSKCC, including stages of disease I-IV 18 years of age or older Fluent in English or Spanish Patients must reside in the U.S Exclusion Criteria: Spanish-surnamed patients who do not self identify as Hispanic/Latino (e.g., Philippines-born individuals)

Ages Eligible for Study
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Minimum Age: 18 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| semi-structured interviews<br>A qualitative study of MSKCC lung cancer patients of Hispanic/Latino descent by collecting retrospective patient narratives to understand the processes that led them to seek medical help when they did, their experiences in seeking and receiving medical guidance, as well as their decisions regarding lung cancer treatment. In addition, we will explore how these patients' representations of lung cancer with its associated risk factors and symptoms affected their treatment decisions. | Behavioral: semi-structured interviews<br>* Use semi-structured interview methods to gather narrative data from research participants, as more open-ended interviews allow participants to share information that is most relevant to their own experiences (Patton, 2002; Rubin & Rubin, 2005; Kvale, 1996). Semi-structured interviewing can generate a rich understanding of a participant's life routines, experiences, and attitudes related to a topic of inquiry, and can yield a nuanced and thorough description of a research participant's life story and belief systems.<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| psychosocial issues | related to lung cancer symptom recognition, delays in lung cancer diagnosis of Hispanic/Latino patients and treatment decision-making processes. | 2 years | 
| cultural issues | related to lung cancer symptom recognition, delays in lung cancer diagnosis of Hispanic/Latino patients and treatment decision-making processes. | 2 years | 

Secondary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| identify obstacles | that have been overcome by Hispanic/Latino lung cancer patients who have succeeded in obtaining access to care at an NCI-designated cancer center, and probe for barriers that these individuals believe still need to be addressed or that they were not successful in surpassing. | 2 years | 

 Terms related to the study
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Keywords Provided by Centre Hospitalier Valida
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lung cancer, Hispanic/Latino patients, interviews, 11-109