Exploring Telehealth to Deliver Me & My Wishes During Coronavirus-19

Study Overview
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Brief Summary
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Due to Coronavirus-19, we are exploring the plausibility of delivering the Me & My Wishes intervention via telehealth.

Detailed Description
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Me & My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me & My Wishes via a telehealth platform.

Official Title
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Me & My Wishes: An Efficacy Trial of Long Term Care Residents With Alzheimer's Using Videos to Communicate Care Preferences With Caregivers

Conditions
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Health Communication

Intervention / Treatment
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* Behavioral: Me & My Wishes


Participation Criteria
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Eligibility Criteria
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Resident Inclusion Criteria: Identified as having Alzheimer's or related dementia Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only) Makes Self Understood = <1 (MDS B0700)/present in medical record Understood By Others = <1 (MDS B0800)/present in medical record Reside at the facility at least 2 weeks identified as a long-term resident Age >65 years Speaks English Family Inclusion Criteria: Speaks English Willing and able to watch the videos Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating. Staff Inclusion Criteria: Speaks English Willing to watch the videos Willing to complete short surveys Resident Exclusion Criteria: Limited communication capacity (e.g. aphasia) Comatose Cognitively intact Severe cognitive impairment

Ages Eligible for Study
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Minimum Age: 65 Years

Sexes Eligible for Study
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All

Accepts Healthy Volunteers
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No

Study Plan
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How is the study designed?
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Design Details

Primary Purpose: Supportive Care
Intervention Model: Single Group Assignment
Interventional Model Description: The investigators propose to examine the plausibility of delivering Me & My Wishes using a telehealth platform. A convenience sample of five residents, their family members and long term care staff will be enrolled.
Masking: None (Open Label)


Arms and Interventions

| Participant Group/Arm | Intervention/Treatment |
| --- | --- |
| Other: Telehealth<br>Me & My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me & My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. | Behavioral: Me & My Wishes<br>* Me & My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me & My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts.<br>|

What is the study measuring?
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Primary Outcome Measures

| Outcome Measure | Measure Description | Time Frame |
| --- | --- | --- |
| Feasibility of telehealth-delivered Me & My Wishes | ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better | baseline | 
| Feasibility of telehealth-delivered Me & My Wishes | ease of use, connecting to internet, communicating with participants. 1-5 scale 1 = strongly disagree, 5 = strongly agree; we also asked what worked well and what could go better | 90 days |