lcalvobartolome/proxann_data huggingface dataset:
Topic: Health — R&D
Subject: Health
Date: 2007-12-11 00:00:00

Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act of 2007 - Amends the Public Health Service Act to direct the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to expand and intensify CDC's cancer control programs. Requires the Secretary to: (1) provide guidance to states, in collaboration with the Director of the National Cancer Institute (NCI), on interventions that may be incorporated into state cancer control programs to improve the long-term health status of childhood cancer survivors; (2) encourage states to incorporate strategies for improving their care into their comprehensive cancer plans; (3) collaborate with the NCI Director to improve or develop systems for tracking cancer survivors; and (4) enhance control programs to include a focus on childhood cancer survivorship.Directs the NCI Director to: (1) coordinate National Institutes of Health (NIH) activities regarding cancer survivorship; (2) make grants for research regarding pediatric cancer survivors and health disparities in cancer survivorship within minority populations; (3) conduct or support research to evaluate followup care for childhood cancer survivors; and (4) make grants to establish pilot programs to develop, study, or evaluate model systems for monitoring and caring for cancer survivors.Directs the Secretary to make grants to: (1) establish or improve training programs for health care professionals to improve followup care for young cancer survivors and to ensure that such care is linguistically and culturally competent; (2) pay costs incurred during the first four years of operating a clinic for comprehensive long-term followup services for childhood cancer survivors; and (3) improve physical and psychosocial care for such survivors.
Topic: Health — R&D
Subject: Health
Date: 2007-12-11 00:00:00

MRSA Research and Study Act of 2007 - Amends the Public Health Service Act to direct the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to establish a six-year program under which the Secretary shall award competitive two-year grants to public or private universities or affiliated teaching hospitals to conduct research into preventing, treating, and finding the cure for Methicillin Resistant Staphylococcus Aureus. Requires the Secretary to award at least 25 grants during each two-year period of the program.
Topic: Health — R&D
Subject: Health
Date: 2008-01-29 00:00:00

Robin Danielson Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to provide for the conduct or support of research on the extent to which additives in feminine hygiene products pose any risks to the health of women or the health of the children of women who use those products during or before the pregnancies involved. Directs the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) collect, analyze, and make available data on toxic shock syndrome, including data on the causes of such syndrome; and (2) determine the national incidence and prevalence of such syndrome.
Topic: Health — R&D
Subject: Health
Date: 2008-02-07 00:00:00

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.Authorizes the Muscular Dystrophy Interagency Coordinating Committee to evaluate the potential need to enhance the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy.Authorizes the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to report to the appropriate congressional committees on MD STARnet and data collection. Authorizes the Secretary to provide prospective health outcome data on the health and survival of people with muscular dystrophy.Authorizes the Secretary, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; (2) cooperate with professional organizations and the patient community to develop, issue, and update care considerations for Duchenne-Baker muscular dystrophy and other forms of muscular dystrophy; and (3) widely disseminate such care considerations as broadly as possible, including through partnership opportunities with the muscular dystrophy patient community.
Topic: Health — R&D
Subject: Health
Date: 2008-02-14 00:00:00

Nino's Act - Amends title XIX (Medicaid) of the Social Security Act to provide for mandatory Medicaid coverage of drugs prescribed for certain research study child participants, regardless of Medicaid eligibility otherwise, if the state provides drug coverage.
Topic: Health — R&D
Subject: Health
Date: 2008-04-15 00:00:00

Women's Environmental Health and Disease Prevention Act of 2008 - Amends the Public Health Service Act to require the Director of the National Institute of Environmental Health Sciences to make grants for the development and operation of centers to conduct multidisciplinary research on environmental factors that may be related to the development of women's health conditions. Requires each such center to: (1) conduct basic or clinical research; (2) develop protocols and conduct training programs for physicians, scientists, nurses, and other health and allied health professionals; (3) disseminate information to such professionals and the public; and (4) emphasize activities that are directed toward preventing the development in women of the diseases and conditions involved. Allows a center to use funds to provide stipends for health and allied health professionals enrolled in training programs.Requires each center to establish and maintain ongoing collaborations with community organizations in the geographic area served by the center, including organizations that represent women or children with disorders that appear to stem from environmental factors.Requires the Director to provide for the coordination of information among centers and ensure regular communication between them.
Topic: Health — R&D
Subject: Health
Date: 2008-04-15 00:00:00

Environmental Hormone Disruption Research Act of 2008 - Amends the Public Health Service Act to require the Director of the National Institute of Environmental Health Sciences to establish a comprehensive program to: (1) research the health effects on women and children that may result through disruption of the hormone systems; (2) carry out research, development, and demonstrations on technologies to mitigate the occurrence of hormone-disrupting pollutants in the environment and their unintended effects on ecological and wildlife health, in cooperation with the United States Geological Survey (USGS); and (3) coordinate U.S. research on hormone disruption with research conducted in other nations.Requires the program to provide for: (1) the collection and dissemination of scientifically valid information on human health effects of hormone-disrupting pollutants, the extent of human exposure to such pollutants, and the exposure of wildlife species to such pollutants and possible associated health effects; and (2) research on mechanisms by which such pollutants interact with biological systems, testing for hormone disruption, and the identity and fate of hormone-disrupting pollutants in the environment.Gives the Director principal responsibility for conducting and coordinating research on the unintended effects of hormone-disrupting pollutants on human health and the environment.Requires the Secretary of Health and Human Services to establish the Hormone Disruption Research Interagency Commission. Establishes a Hormone Disruption Research Panel to make recommendations on the design and implementation of the program.
Topic: Health — R&D
Subject: Health
Date: 2008-04-24 00:00:00

Eliminating Disparities in Breast Cancer Treatment Act of 2008 - Amends title XVIII (Medicare) of the Social Security Act to direct the Secretary of Health and Human Services to establish a breast cancer treatment quality performance system to: (1) assess and disclose publicly, through the use of quality measures, the quality of care provided for the treatment of breast cancer by specified health care providers; and (2) base payment to such providers for such treatment on their performance with respect to such measures. Requires reduced payments to providers that either do not submit data in accordance with the reporting process in the system, or furnish low quality care for treatment of breast cancer.
Topic: Health — R&D
Subject: Crime and law enforcement
Date: 2008-04-24 00:00:00

Human-Animal Hybrid Prohibition Act of 2008- Amends the federal criminal code to prohibit and to set penalties for: (1) creating or attempting to create a human-animal hybrid (a being with human and non-human tissue as specified in this Act); (2) transferring or attempting to transfer a human embryo into a non-human womb, or a non-human embryo into a human womb; or (3) transporting or receiving for any purpose a human-animal hybrid.
Topic: Health — R&D
Subject: Health
Date: 2008-05-07 00:00:00

National Neurotechnology Initiative Act - Defines "neurotechnology" to mean the science and technology that allows an individual to analyze, understand, treat, and heal the brain and nervous system.Requires the Secretary of Health and Human Services to implement a National Neurotechnology Initiative, under which the Secretary shall: (1) establish goals, priorities, and metrics for evaluation for federal neurotechnology research, development, and commercialization; (2) increase the investment in federal research, development, and translational programs in neurotechnology to achieve such goals; and (3) increase interagency coordination.Requires the Secretary to establish the National Neurotechnology Coordination Office and the National Neurotechnology Advisory Council.Requires the Director of the National Institutes of Health (NIH) to develop the Blueprint for Neuroscience Research to: (1) identify pervasive challenges in neuroscience and any technological barriers to solving such challenges; and (2) support the development of new tools, training opportunities, and other resources to assist neuroscientists in basic and clinical research. Directs the Commissioner of Food and Drugs to require the Directors of the Center for Drug Evaluation and Research, the Center for Biologics Evaluation and Research, and the Center for Devices and Radiological Health to improve the timelines of the review process for neurology and psychiatry.Requires the Director of the National Neurotechnology Coordination Office to establish the American Neurotechnology Study Center.
Topic: Health — R&D
Subject: Armed forces and national security
Date: 2008-05-08 00:00:00

National Trauma Institute Research Program Act - Directs the Secretary of Defense to establish a National Trauma Institute Research Program at the National Trauma Institute as a military-civilian public-private partnership to nationally fund trauma research.
Topic: Health — R&D
Subject: Health
Date: 2008-07-10 00:00:00

Access to America's Orthopedic Services Act of 2008 - Requires the Secretary of Health and Human Services to establish criteria for accounting and reporting the effort expended by researchers on musculoskeletal research funded with certain grants.Sets forth reporting requirements related to musculoskeletal health, including on: (1) research funded by the National Institutes of Health (NIH); (2) federal programs and activities relating to musculoskeletal trauma care; (3) a standard unit for the measurement of bone mass under the Medicare program; (4) access to orthopedic services by certain federal health program beneficiaries; and (5) childhood musculoskeletal diseases, conditions, and injuries in the United States.Amends the Public Health Service Act to require the Organ Procurement and Transplantation Network to establish the Transplantation Transmission Sentinel Network to track disease transmission from organ, tissue, or eye transplants.Requires the Secretary to issue regulations relating to the accreditation of: (1) establishments engaged in the manufacture of human cells, tissues, and cellular and tissue-based products; and (2) personnel who participate in related activities.Requires the Secretary to conduct studies related to: (1) a national registry of artificial joint replacements in Medicare beneficiaries; (2) severe trauma to extremities resulting from motor vehicle crashes; (3) workplace-related musculoskeletal injuries and conditions; (4) funding available for graduate medical education in orthopedics; (5) methods for measuring bone mass in Medicare beneficiaries; and (6) aging in the United States.Requires the Secretary to: (1) conduct a national public awareness program on musculoskeletal health; and (2) award grants for certain health and aging activities for seniors.Provides for musculoskeletal diseases and conditions to be treated as a priority within the Office of Minority Health.
Topic: Health — R&D
Subject: Health
Date: 2008-07-15 00:00:00

Genomics and Personalized Medicine Act of 2008 - Directs the Secretary of Health and Human Services to: (1) establish the Genomics and Personalized Medicine Interagency Working Group (IWG) to facilitate collaboration, coordination, and integration of activities among federal agencies relating to genomic research and initiatives; (2) expand and accelerate research and programs to collect genetic and genomic data that will advance the field of genomics and personalized medicine; (3) establish a national biobanking distributed database for the collection and integration of genomic data and associated environmental and clinical health information; (4) establish a grant program for academic medical centers and other entities to develop or expand biobanking initiatives; (5) improve genetics and genomics training for diagnosis, treatment, and counseling of adults and children for both rare and common disorders; (6) establish a registry on the analytical and clinical validity of laboratory-developed genetic tests; (7) contract with the National Academy of Sciences to study incentives to encourage companion diagnostic test development; and (8) make information available on the safety and efficacy of genetic tests and commission a study for improving federal oversight and regulation of such tests. Requires the Director of the Centers for Disease Control and Prevention (CDC) to: (1) conduct an analysis of the public health impact of direct-to-consumer marketing of genetic tests; and (2) expand efforts to educate the public about genomics and its health applications.Amends the Internal Revenue Code to establish a companion diagnostic tax credit for qualified diagnostic tests designed to provide information that can be used to increase the safety or effectiveness of a drug.
Topic: Health — R&D
Subject: Health
Date: 2008-07-22 00:00:00

Pulmonary Fibrosis Research Enhancement Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on pulmonary fibrosis and other interstitial lung diseases; (2) establish the National PF Registry; and (3) establish the National Pulmonary Fibrosis Advisory Board.Allows the Secretary, acting through the Director of the CDC, to provide for the collection, analysis, and reporting of data on pulmonary fibrosis and other interstitial lung diseases that can be confused with, misdiagnosed as, and progress to pulmonary fibrosis.Requires the Secretary, in developing the Registry, to: (1) expand and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure; and (2) provide for research access to pulmonary fibrosis data.Directs the Secretary to ensure that epidemiological and other types of information are made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA).Requires the Director of the National Heart, Lung, and Blood Institute to expand, intensify, and coordinate Institute pulmonary fibrosis research activities.Requires the Director of CDC to prepare the National Pulmonary Fibrosis Action Plan.Requires the Secretary to: (1) convene a summit of individuals with expertise in research and care of pulmonary fibrosis to provide a detailed overview of NIH research activities and discuss potential collaborations between NIH and other federal health agencies; and (2) make information about NIH activities relating to pulmonary fibrosis publicly available.
Topic: Health — R&D
Subject: Health
Date: 2008-07-22 00:00:00

Tom Lantos Pulmonary Hypertension Research and Education Act of 2008 - Title I: Research on Pulmonary Hypertension - (Sec. 101) Expresses the sense of the Congress that: (1) the Secretary of Health and Human Services, acting through the Director of the National Institutes of Health (NIH) and the Director of the National Heart, Lung, and Blood Institute, should continue aggressive work on pulmonary hypertension; and (2) the Director of the Institute should continue research to expand the understanding of the causes of, and to find a cure for, pulmonary hypertension.Requires inclusion of information on the status of pulmonary hypertension research at NIH in biennial reports to Congress. Title II: Increasing Awareness of Pulmonary Hypertension - (Sec. 201) Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to carry out an educational campaign to increase public awareness of pulmonary hypertension, which may include information on: (1) pulmonary hypertension and its symptoms; (2) the incidence and prevalence of pulmonary hypertension; (3) diseases and conditions that can lead to pulmonary hypertension as a secondary diagnosis; (4) the importance of early diagnosis; and (5) the availability of a range of treatment options.(Sec. 202) Requires the Secretary, acting through the Administrator of the Health Resources and Services Administration (HRSA) and the Director of CDC, to carry out an educational campaign to increase awareness of pulmonary hypertension among health care providers, which may include information on: (1) the symptoms of pulmonary hypertension; (2) the importance of early diagnosis; (3) current diagnostic criteria; and (4) Food and Drug Administration-approved therapies for the disease. Requires such campaign to target health care providers, including cardiologists, pulmonologists, rheumatologists, primary care physicians, pediatricians, and nurse practitioners.Sets forth reporting requirements.Authorizes appropriations for FY2009-FY2011.
Topic: Health — R&D
Date: 2008-09-11 00:00:00

Bone Marrow Failure Disease Research and Treatment Act of 2008 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on acquired bone marrow failure diseases; (2) establish the National Acquired Bone Marrow Failure Disease Registry; and (3) establish the Advisory Committee on Acquired Bone Marrow Failure Diseases to provide recommendations to the Secretary on the Registry.Allows the Secretary, acting through the Director, to award grants to, and enter to contracts and cooperative agreements with, public or private nonprofit entities for the management of the Registry.Requires the Secretary, acting through the Administrator of the Agency for Toxic Substances and Disease Registry, to conduct pilot studies to determine which environmental factors may cause acquired bone marrow failure diseases.Requires the Secretary, acting through the Deputy Assistant Secretary for Minority Health, to: (1) establish outreach and information programs targeted to minority populations affected by such diseases; (2) undertake a coordinated outreach effort to connect Hispanic, Asian American, and Pacific Islander communities with comprehensive services focused on treatment of, and information about, such diseases; and (3) awards grants to, or enter into cooperative agreements with, entities to perform research on such diseases.Requires the Secretary, acting through the Director of the Agency for Healthcare Research and Quality (AHRQ), to award grants to entities to improve diagnostic practices and quality of care with respect to patients with such diseases.
Topic: Health — R&D
Subject: Health
Date: 2008-09-24 00:00:00

National Plan to Advance Pancreatic Cancer Act of 2008 - Amends the Public Health Service Act to require the Secretary of Health and Human Services to establish and implement a Pancreatic Cancer Initiative to assist in coordinating activities to address the high mortality rate associated with pancreatic cancer.Requires the Secretary to establish the Interdisciplinary Pancreatic Cancer Coordinating Committee to: (1) provide advice on overall research objectives and benchmarks for pancreatic cancer research; (2) develop and annually update a strategic plan for pancreatic cancer research awareness; and (3) conduct evaluations and make recommendations to the Secretary, the Director of the National Institutes of Health (NIH), and the Director of the National Cancer Institute regarding the prioritization and award of NIH research grants relating to pancreatic cancer.Requires the Secretary to develop a primary care provider education program on pancreatic cancer.Requires the Director of NIH and the Director of the Centers for Disease Control and Prevention (CDC) to develop a communication tool kit for patients and their families that focuses on specific pancreatic cancer issues relating to patient choices and patient care.Allows the Secretary to award grants to research institutions for use in developing innovative compounds or technologies for the prevention, early detection, or treatment of those cancers with five-year survival rates of less than 50%. Requires the Secretary to focus on pancreatic cancer during the initial five fiscal years of awarding such grants.Allows the Secretary to designate two additional Specialized Programs of Research Excellence focusing solely on pancreatic cancer research.