lcalvobartolome/proxann_data huggingface dataset:
Topic: Health — R&D
Subject: Armed forces and national security
Date: 2009-01-06 00:00:00

Establishes in the Uniformed Services University of the Health Sciences the United States Military Cancer Institute, headed by a Director, to carry out research studies on: (1) the epidemiological features of cancer among populations of various ethnic origins, as well as complementary research on oncologic nursing; (2) the prevention and early detection of cancer; and (3) basic, translational, and clinical investigation matters relating to such studies. Directs the Institute to conduct the study in collaboration with other cancer research organizations and entities selected by the Institute.
Topic: Health — R&D
Subject: Taxation
Date: 2009-01-06 00:00:00

Ethical Stem Cell Research Tax Credit Act of 2009 - Amends the Internal Revenue Code to allow a tax credit for 30% of qualified stem cell research expenses paid or incurred in a taxable year. Defines "qualified stem cell research expenses" as expenses for carrying out basic and applied research to develop techniques for the isolation, derivation, production, testing, and human clinical use of stem cells that may result in improved understanding of or treatments for diseases and other adverse health conditions. Prohibits a tax credit for any research expenses that may involve: (1) the creation of a human embryo for research purposes; (2) the destruction of or discarding of, or risk of injury to, a human embryo; or (3) the use of any stem cell for prohibited purposes.
Topic: Health — R&D
Subject: Environmental protection
Date: 2009-01-08 00:00:00

Federal Ocean Acidification Research And Monitoring Act of 2009 or FOARAM Act - Defines "ocean acidification," for this Act, as the decrease in pH of the Earth's oceans and changes in ocean chemistry caused by chemical inputs from the atmosphere, including carbon dioxide. Requires that the Joint Subcommittee on Ocean Science and Technology of the National Science and Technology Council coordinate federal activities on ocean acidification and establish an interagency working group. Requires the Subcommittee to develop a strategic plan for federal ocean acidification research and monitoring that provides, among other things, for the development of adaptation and mitigation strategies. Directs the Secretary of Commerce, through the National Oceanic and Atmospheric Administration (NOAA), to enter into an agreement with the National Academy of Sciences (NAS) to review the plan. Directs the Secretary to establish and maintain an ocean acidification program in NOAA to conduct research, monitoring, and other activities, including: (1) providing grants for critical research projects exploring the ecosystem and socioeconomic impacts of ocean acidification; and (2) incorporating a competitive merit-based process for awarding grants that may be conducted jointly with other participating agencies or under the National Oceanographic Partnership Program. Requires the National Science Foundation (NSF) director to continue to carry out ocean acidification research supporting competitive, merit-based, peer-reviewed proposals for research and monitoring of ocean acidification and its impacts. Requires the administrator of the National Aeronautics and Space Administration (NASA) to ensure that space-based monitoring assets are used in as productive a manner as possible for the monitoring of ocean acidification and its impacts.
Topic: Health — R&D
Subject: Health
Date: 2009-01-26 00:00:00

Melanie Blocker Stokes Mom's Opportunity to Access Health, Education, Research, and Support for Postpartum Depression Act or the Melanie Blocker Stokes MOTHERS Act - Encourages the Secretary of Health and Human Services to continue: (1) activities on postpartum depression; and (2) research to expand the understanding of the causes of, and treatments for, postpartum conditions. Expresses the sense of Congress that the Director of the National Institute of Mental Health may conduct a nationally representative longitudinal study of the relative mental health consequences for women of resolving a pregnancy in various ways.Amends the Public Health Service Act to authorize the Secretary to make grants for projects for the establishment, operation, and coordination of effective and cost-efficient systems for the delivery of essential services to individuals with a postpartum condition and their families. Directs the Secretary to ensure that such projects provide education and services with respect to the diagnosis and management of postpartum conditions. Authorizes such projects to include: (1) delivering or enhancing outpatient home-based health and support services; and (2) providing education to new mothers and their families about postpartum conditions to promote earlier diagnosis and treatment. Sets forth grant requirements. Directs the Secretary to study the benefits of screening for postpartum conditions.Prohibits the Secretary from utilizing amounts appropriated under this Act to carry out activities or programs that are duplicative of activities or programs that are already being carried out through the Department of Health and Human Services (HHS).
Topic: Health — R&D
Subject: Health
Date: 2009-01-29 00:00:00

Pediatric Research Consortia Establishment Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the Director of the National Institute of Child Health and Human Development, to award grants, contracts, or cooperative agreements for planning, establishing, and providing basic operating support for up to 20 national pediatric research consortia. Requires each such consortium to: (1) supplement, but not replace, the establishment of a comprehensive pediatric research portfolio; (2) conduct basic, clinical, behavioral, social, and translational research; and (3) conduct training and demonstration of advanced diagnostic and treatment methods relating to pediatrics.Requires the Director of NIH to provide for the coordination of information and ensure regular communication between consortia.
Topic: Health — R&D
Subject: Health
Date: 2009-02-12 00:00:00

Heart Disease Education, Analysis Research, and Treatment for Women Act or the HEART for Women Act - Amends the Federal Food, Drug, and Cosmetic Act to allow the Secretary of Health and Human Services to deny a new drug application if the application fails to include required information on clinical investigations.Directs the Secretary to: (1) require that a new drug application include any clinical data possessed by the applicant that relates to the safety and effectiveness of the drug involved by gender, age, and racial subgroup; and (2) develop guidance for the staff of the Food and Drug Administration (FDA) to ensure that new drug applications are adequately reviewed to determine whether they include the required clinical data.Authorizes the Secretary to place a clinical hold on an investigation under an investigational new drug application if the sponsor of the investigation fails to meet the requirements of an annual report on the status of each study in progress. Applies provisions relating to clinical data submission for new drug applications to applications for an investigational new drug, a biologics license for a biological product, premarket approval for a class III device, and investigational use of a device.Amends the Public Health Service Act to require the Secretary to provide that all nonidentifiable patient safety work product reported to and among the network of patient safety databases be identified by sex.Directs that analyses of statistics of information reported to the network of patient safety databases take into account data that specifically relates to women and any disparities between treatment and the quality of care between males and females.Requires the Director of the Agency for Healthcare Research and Quality to support research and demonstrations to identify and evaluate clinical and organizational strategies to improve the quality of and access to care for women with heart disease, stroke, and other cardiovascular diseases.Requires the Secretary to: (1) distribute to females age 65 or older and appropriate health care professionals educational materials relating to the prevention diagnosis and treatment of heart disease, stroke, and cardiovascular diseases in women; and (2) conduct an education and awareness campaign for health care professionals relating to such diagnosis and treatment. Expands the grant program authorizing the Secretary to award grants for preventive health services to all states.
Topic: Health — R&D
Subject: Health
Date: 2009-02-26 00:00:00

Stem Cell Research Enhancement Act of 2009 - Amends the Public Health Service Act to require the Secretary of Health and Human Services to conduct and support research that utilizes human embryonic stem cells, regardless of the date on which the stem cells were derived from a human embryo. Limits such research to stem cells that meet the following requirements: (1) the stem cells were derived from human embryos donated from in vitro fertilization clinics, were created for the purposes of fertility treatment, and were in excess of the needs of the individuals seeking such treatment; (2) prior to donation, it was determined that the embryos would never be implanted in a woman and would otherwise be discarded; and (3) the individuals seeking fertility treatment donated the embryos with written informed consent and received no financial or other inducements. Requires the Secretary to develop techniques for the isolation, derivation, production, or testing of stem cells that are capable of producing all or almost all of the cell types of the developing body and may result in improved understanding of treatments for diseases and other adverse health conditions, but that are not derived from a human embryo. Requires the Secretary to: (1) provide guidance concerning the next steps required for additional research; (2) prioritize research with the greatest potential for near-term clinical benefit; and (3) take into account techniques outlined by the President's Council on Bioethics and any other appropriate techniques and research.
Topic: Health — R&D
Subject: Health
Date: 2009-03-11 00:00:00

Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2009 - Requires the Secretary of Health and Human Services, acting through the Director of the National Institutes of Health (NIH), to continue to expand and intensify research and related NIH activities with respect to psoriasis and psoriatic arthritis. Requires the Directors of the National Institute of Arthritis and Musculoskeletal and Skin Diseases and the National Institute of Allergy and Infectious Diseases to continue to conduct and support research to expand understanding of the causes of, and to find a cure for, psoriasis and psoriatic arthritis. Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to undertake psoriasis and psoriatic arthritis data collection and develop a psoriasis and psoriatic arthritis patient registry. Encourages the Secretary to convene a summit on federal efforts regarding psoriasis and psoriatic arthritis research, treatment, education, quality-of-life, and data collection. Directs the Secretary to enter into an agreement with the Institutes of Medicine to study insurance coverage of psoriasis and psoriatic arthritis.
Topic: Health — R&D
Subject: Health
Date: 2009-03-26 00:00:00

21st Century Cancer ALERT (Access to Life-Saving Early detection, Research and Treatment) Act - Amends the Public Health Service Act to revise provisions related to the National Cancer Program, including to require the establishment of an entity within the National Cancer Institute (NCI) to augment ongoing efforts to advance new technologies in cancer research, support the national collection of tissues for cancer research purposes, and ensure the quality of tissue collection. Sets forth provisions governing clinical trials, including ethical and privacy standards. Requires the Secretary of Health and Human Services to award grants for research on cancers with a low five-year survival rate and rare cancers. Expands coverage of colorectal screenings, including through providing grants and allowing states to provide coverage for such screenings under Medicaid. Provides for biomarkers research. Amends the Employee Retirement Income Security Act of 1974 (ERISA) to prohibit a group health plan from discriminating against participants and beneficiaries participating in cancer clinical trials. Sets forth provisions regarding retirement pay for nurses retiring from the Armed Forces. Requires the Secretary to study the current and future cancer care workforce needs. Prohibits the Secretary from awarding patient navigator grants unless entities provide assurances that patient navigators meet minimum core proficiencies. Provides for coverage under Medicare for payment of routine costs of care furnished to individuals participating in cancer clinical trials. Requires the Secretary to conduct a demonstration project under which payment for comprehensive cancer care planning services will be made under Medicare. Provides for coverage of tobacco cessation products. Provides for research on cancer survivorship related to childhood cancer and health disparities in outcomes. Requires the Secretary to convene a Workforce Development Collaborative on Psychosocial Care During Chronic Medical Illness.
Topic: Health — R&D
Subject: Health
Date: 2009-04-28 00:00:00

Cures Acceleration Network and National Institutes of Health Reauthorization Act of 2009 - Establishes the Cures Acceleration Network, an independent agency, to awards grants and contracts to eligible entities to accelerate the development of cures and treatments of diseases, including through the development of medical products and behavioral therapies. Defines "medical product" as a drug, device, biological product, or product that is a combination of drugs, devices, and biological products. Sets forth the functions of the Network. Establishes the Cures Acceleration Network Review Board. Directs the Chairperson of the Board to award matching grants and contracts to eligible entities to: (1) accelerate the development of cures and treatments, including through the development of medical products, behavioral therapies, and biomarkers that demonstrate the safety or effectiveness of medical products; or (2) establish protocols that comply with the standards of the Food and Drug Administration (FDA) and otherwise meet regulatory requirements at all stages of development, manufacturing, review, approval, and safety surveillance of a medical product. Sets forth provisions governing conflict of interest policies for the Network. Amends the Public Health Service Act to rename the National Center on Minority Health and Health Disparities as the National Institute on Minority Health and Health Disparities. Requires the Director of the National Institutes of Health (NIH) to develop and enforce NIH's conflict of interest policies and respond in a timely manner when such policies have been violated by a recipient of funds provided under a grant or contract. Reauthorizes appropriations for NIH for FY2010-FY2012.
Topic: Health — R&D
Subject: Health
Date: 2009-05-05 00:00:00

Inflammatory Bowel Disease Research and Awareness Act - Amends the Public Health Service Act to: (1) require the Centers for Disease Control and Prevention (CDC) to conduct, support, and expand existing epidemiology research on inflammatory bowel disease (i.e., Crohn's disease and ulcerative colitis) in both pediatric and adult populations; (2) authorize the CDC to award grants and enter into cooperative agreements to develop and administer such epidemiology research; and (3) direct the CDC to award grants to increase awareness of inflammatory bowel disease among the general public and health care providers. Expresses the sense of Congress that the Directors of the National Institutes of Health (NIH) and the National Institute of Diabetes and Digestive and Kidney Diseases should support specified research and training goals for inflammatory bowel diseases.
Topic: Health — R&D
Subject: Health
Date: 2009-05-06 00:00:00

Arthritis Prevention, Control, and Cure Act of 2009 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS): (1) to develop and implement a National Arthritis Action Plan; and (2) acting through the Director of the Centers for Disease Control and Prevention (CDC), to conduct, support, and promote the coordination of arthritis and other rheumatic diseases research. Requires the Secretary to award grants to: (1) support arthritis-specific research projects at the Centers for Prevention Research by the CDC; (2) support state comprehensive arthritis control and prevention programs and public health surveillance, prevention, and control activities; and (3) assist in the implementation of a national strategy for arthritis control and prevention. Requires the Secretary to coordinate a national education and outreach program on arthritis and other rheumatic diseases. Requires the Secretary to establish an Arthritis and Rheumatic Diseases Interagency Coordinating Committee to: (1) improve coordination of federal research activities related to arthritis and rheumatic diseases; and (2) convene a summit to provide a detailed overview of such current federal research. Requires the Director of the National Institutes of Health (NIH) to expand and intensify juvenile arthritis research. Allows the Secretary, acting through the Director of the CDC, to award grants to support juvenile arthritis data collection. Requires the Secretary, acting through the Director of the CDC, to support the development of a National Juvenile Arthritis Patient Registry. Requires the Secretary to promote and support pediatric rheumatology training, including by allowing the Secretary to establish a loan repayment program. Requires the Comptroller General to conduct a study on the economic impact of arthritis in the workplace.
Topic: Health — R&D
Subject: Health
Date: 2009-05-21 00:00:00

SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field. Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy. Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages. Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders. Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.
Topic: Health — R&D
Subject: Health
Date: 2009-06-09 00:00:00

Patient-Centered Outcomes Research Act of 2009 - Amends title XI (General Provisions, Peer Review, and Administrative Simplification) of the Social Security Act (SSA) to provide for a program of comparative effectiveness research for health care. Defines "comparative effectiveness research" as research evaluating and comparing the implications and outcomes of two or more health care strategies to address a particular medical condition for specific patient populations. Establishes the Patient-Centered Outcomes Research Institute (PCORTI) as a nonprofit, nongovernmental corporation to conduct Iresearch on the effectiveness of health care treatments, including pharmaceuticals, medical devices and procedures, and other therapies. Requires the PCORTI to: (1) identify national priorities for comparative clinical effectiveness research; (2) establish and update a research project agenda for comparative clinical effectiveness research and provide for peer review of primary research; (3) establish a standing methodology committee for developing the science of comparative effectiveness research; and (4) disseminate research findings. Amends the Internal Revenue Code to establish in the Treasury the Patient-Centered Outcomes Research Trust Fund. Imposes a fee on certain accident or health insurance policies and self-insured health plans to create revenue for the Fund. Amends the American Recovery and Reinvestment Act of 2009 to require the Federal Coordinating Council for Comparative Effectiveness Research to support the PCORTI. Directs the Comptroller General of the United States to report to Congress on the process for making national coverage determinations under SSA title XVIII (Medicare).
Topic: Health — R&D
Subject: Health
Date: 2009-07-30 00:00:00

Scleroderma Research and Awareness Act - Requires the Director of the National Institute of Arthritis and Musculoskeletal and Skin Diseases to expand, intensify, and coordinate the research and training activities with respect to scleroderma. Directs the Centers for Disease Control and Prevention (CDC) to carry out an educational campaign to increase public awareness of scleroderma.
Topic: Health — R&D
Subject: Social welfare
Date: 2009-09-15 00:00:00

(This measure has not been amended since it was introduced. The summary of that version is repeated here.) Improving Access to Clinical Trials Act of 2009 - Amends title XVI (Supplemental Security Income) (SSI) of the Social Security Act (SSA) to exclude from income for SSI eligibility purposes any compensation in the amount of the first $2,000 per year received by an individual for participation in clinical trials involving research and testing of treatments for rare diseases or conditions. Amends SSA title XIX (Medicaid) to make a similar exclusion from income of such compensation for the purposes of eligibility under the Medicaid program. Directs the Comptroller General to study and report to Congress on the impact of this Act on enrollment of individuals who receive SSI benefits in clinical trials for rare diseases or conditions.