kfajdsl/voxpopuli huggingface dataset:
the epidemiological information on neuroborreliosis will be collected by the european centre for disease prevention and control starting in two thousand and nineteen for cases diagnosed in.
the definition of neuroborreliosis is more standardised than other lyme disease manifestations with the possibility to confirm cases based on a common eu case definition.
as a key element the decision on serious crossborder threats to health which i have just mentioned provides for epidemiological surveillance of communicable diseases through the use of comparable and compatible data.
i hope and indeed trust you share the intention to drive matters forward to strengthen prevention and reduce the prevalence and the suffering associated with lyme disease.
question four as regards diagnostic practices reporting of lyme neuroborreliosis cases from two thousand and eighteen onwards will be done according to a common case definition and diagnostic criteria. this will help to allow for a more accurate picture of the prevalence of lyme disease in the eu.
let me now address each of the questions you raised.
in addition the european centre for disease prevention and control has conducted a systematic literature review on the diagnostic accuracy of serological tests for lyme disease.
in fact lyme disease is the most prevalent tick transmitted infection in europe.
two thousand and seventeen the centre has also conducted community preparedness case studies including on lyme disease focusing on synergies on community and hospitals.
question one the european centre for disease prevention and control and member state experts worked on a proposal to include lyme disease on the eu list of notifiable diseases. however the diagnosis of lyme disease is challenging as the symptoms
this is why based on a scientific assessment it was therefore decided to include lyme neuroborreliosis in the list of eu notifiable diseases under the decision on serious crossborder threats to health. the commission remains fully committed to tackle the disease working with member states to strengthen prevention surveillance and control of lyme disease.
in addition different diagnostic criteria and tests are used in different countries.
neuroborreliosis is the most serious complication of the borrelia bacterial infection seen in about ten of patients with lyme disease.
the remaining two years of horizon two thousand and twenty and in particular its forthcoming calls for research and innovation project proposals will offer further opportunities to support research on lyme disease.
question six let me highlight that there is indeed currently very significant funding behind efforts to improve the prevention diagnosis and treatment of lyme disease in the
two thousand and eighteen in time this will allow a better evaluation of the disease prevalence and trend of lyme disease in europe.
eu. we will further focus on awareness raising improving community preparedness and prevention and supporting research efforts to develop new diagnostic methods and vaccines.
in the absence of a consistent surveillance system in the past it remains difficult to accurately assess the overall trend of lyme disease.
two thousand and nineteen question five as you know the commission is not in a position to harmonise treatment practices as this falls within the competence of the member states. this being said the commission is committed to help develop new and better diagnostics for lyme disease.
currently there is no vaccine against lyme disease so the recommendation is to take general prevention methods such as tick awareness appropriate clothing in tick infested areas and the removal of attached ticks. these are particularly important for citizens living in areas where lyme disease is endemic and high risk groups such as agricultural and forestry workers.
question three the centre is actively contributing to enhance awareness about lyme disease among professionals and the general population.
several publications and tools are available including information about the disease and the vector infographics disease fact sheets for professionals and health practitioners and a communication toolkit on tick borne diseases and preventive measures against tick bites.
we call on the vietnamese authorities to respect human rights and to release those only detained for exercising their human rights.
they really have to start respecting the rights of freedom of expression online and offline and the least we can do in europe is to stop the export of surveillance systems that are used to track and trace human rights defenders.
we remind the vietnamese authorities that human rights are a clear conditionality when it comes to trade relations.
and i wanted to specifically zoom in on freedom of expression online and offline given the fact that vietnam ranks one hundred and seventy fifth out of one hundred and eighty countries on the reporters without borders' list of press freedom in the world.
we urge access for un special rapporteurs on human rights defenders the working group on arbitrary detention and the un special rapporteur for freedom of expression.
the mutual recognition of member states' practices in this respect will avoid refusals at the stage of recognition or enforcement thus allowing a true circulation of judgments in the union.
on the other hand i have to recall that the functioning of the national child protection agencies is governed by national law in cases of concern about the proper functioning of such a system redress had to be sought at a national level. over the past years the commission has used several tools to promote exchanges between member states to facilitate mutual understanding with a view to ensuring the protection of the rights of children. it has done so through
the issues raised by some petitions and the discussions held in the framework of the committee on petitions work have fed into the commission proposal to revise the process to a regulation.
they are the direct interface with parents and should play a key role in supporting the judges in applying the regulation.
under the justice programme one of the funding priorities for two thousand and eighteen is improving the situation of children involved in civil cases for example through better procedures case handling and cooperation in the area of family law in such areas as parental responsibility
international child abduction the protection of children and maintenance.
the annual forum on the rights of the child the calls for proposals under the rights equality and citizenship programme as well as the focus put on the promotion of integrated child protection systems.
in addition we proposed to integrate cooperation with child welfare authorities in the overall cooperation system.
more precisely the proposal aims at strengthening the rights of the child by ensuring that their views are heard in the legal proceedings concerning them.
we hope that the council will reach a political agreement on this file in december.
human rights need to be promoted on a daytoday basis.
i would like to give some numbers about our projects.
so this controversy could be avoided with a bit of common sense by the conference of presidents if they put votes that required a majority of our constituent members higher up the list when you would have all those who were eligible to vote here.
i think the controversy could be avoided in future if when there are votes that require a majority of the constituent members it should be put higher up the list. you can see every day that there are far more voting in the middle or thereabouts. at the end for one reason or another members will have to leave to catch planes or have other meetings.
i'm very conscious colleagues that there are carers who have not slept overnight because they're looking after a sick child a person with a disability or elderly parents and the statistics that eighty of care is unpaid and informal and that seventy five of it is done by women are worth repeating.
and maybe for selfish reasons those of us of a certain age in this house might ponder those difficulties.
this is about the type of society we want for the future.
we are going to face an enormous challenge in encouraging people to get into the paid care sector because it is low paid and indeed we have smaller families so we will have fewer people who are available to care.
this isn't just an ideological debate or about money;
so i think this debate should be about a vision for the future where people who care are cared for by others and have respite and recognition.
in a country where basic freedoms such as the freedom of speech or religious rights are routinely denied to the population and where political opposition is systematically repressed and over one hundred and fifty reported prisoners of conscience and human rights activists are currently detained in often terrible conditions
if the eu was serious about securing progress in terms of human and labour rights in vietnam it would insist on the release of these prisoners and the pre ratification of human rights and ilo core conventions as a precondition to our ratification of the trade and investment agreements. at the very least the eu should articulate a series of tangible human rights benchmarks that vietnam must meet before those agreements come before this house for approval.
human rights defenders report a deteriorating situation on the ground whether they be online bloggers religious minorities or trade union leaders in shoe factories or in the fishing industries.
the government has set up a review of our railways and i hope that it can learn from our european friends as brits spend five times more of our income than our european counterparts on rail travel.
this summer gtr who run thameslink and great northern cancelled eight zero services in the first three weeks of the new timetable being introduced yet these problems were foreseeable. each train needs a driver who has been trained on the model of the train and the route on which they are operating but this does not happen quickly enough and when the problems came to light the rollout wasn't paused.
that will mean that we run our profits in the interests of passengers not for private profit.
this report says that the railway sector has to provide excellent and modern services to customers at an affordable price and i agree.
i blame the fragmented nature of the industry.
this is an extremely debilitating serious disease. we need to see more research more investment in treatments a broadening and a deepening of the medical knowledge of this disease and that is why i support that work taking place at european union level.
it makes sense to do that and i hope that going forward whatever happens in westminster today or indeed in the coming weeks and months that the uk can remain an active full partner of that work and indeed wider medical research work at a european level.
are still extremely welcome and can only serve to benefit customers and providers in the long run.
commissioner my office has been listening to your responses and i have to say i'm not fully satisfied with your response on the need for a proper harmonised approach to diagnosis.
the truth is that many people who have lyme disease are undiagnosed and this is a double whammy for people who suffer from this most debilitating disease.
i know in ireland many patients have to go abroad so that they can be properly tested. it's very expensive for them many of them have suffered for many years and they cannot get a diagnosis in ireland.
specialists and doctors will tell them clinically the results say you're fine.
i believe that the eu can act in a much stronger way by strongly encouraging a harmonised accurate test for lyme disease so that all eu citizens can have access to timely and accurate diagnosis.
we have constantly been appealing to the government of bangladesh to make progress on its commitments under the everything but arms scheme to democracy human rights and the rule of law.
whilst we can see that there has been an improvement more needs to be done.
the accord is at a critical juncture and commitments from the government of bangladesh towards the sustainability compact are highly insufficient as demonstrated by the technical status report recently published.
the roadmap is here requirements are on the table and now we need to see tangible results and steps in the right direction.
it must be clear that we are at a crucial stage and we are moving ever so slowly from issuing further notifications for action to actual action. it has been initiated in terms of investigative reviews for withdrawal of generalised scheme of preferences gsp mechanism for myanmar and cambodia.
if this is the case it is of course extremely distressing for parents and children.
the jugendamt plays a central important role in the german family law system as it is one of the prior parties in all family disputes involving children and so these accusations should be taken seriously.
but in my opinion if there are many concerns like this coming from parents then reassurances should be given and cases should be looked at.
discrimination of any kind is not acceptable and while i would need further evidence and rulings to determine if this is a case of discrimination the petitions brought forward at least highlight that there is a perception of such by some in this case and that perhaps measures could be taken to eliminate any possibility of this.
i think these cases should be looked into but let us reserve judgment until we have more information.
of course at the end of the day the child's best interests must be paramount in all decisions related to childcare.
it is monitoring social media and curtailing freedom of expression in the name of national security.
however as a member of the european parliament i would like to underline the fact that while family law is the sole competence of member states social welfare institutions courts of law or any other competent public body must put the best interest of the child at the centre of the decision or action that they take.
we cannot give those families false hope that we have tools to help bring children back home.
furthermore the european institutions and member states should promote cross border cooperation on family matters providing training for judges and professionals information on legal aid and bilingual lawyers and involving embassies and consular representatives from the start of all childcare proceedings involving their nationals.
i spoke in the debate on this yesterday but i want to raise a slightly different issue which is covered in this report and that is ensuring our railways are accessible for disabled people and particularly wheelchair users.
because time after time on our railways in the uk but indeed in other parts of europe as well i see a system that isn't working. you see people who use wheelchairs having to wait for assistance with ramps and assistance at stations they booked and that assistance not turning up.
that is a system which isn't working.
people have to sit on trains waiting for that assistance.
we have to make sure our railways are accessible to all and today's vote in this house taking this report forward is an important step in doing that.
including at the highest levels calling on the government to end persecution and harassment and to release all peaceful advocates of human rights.
this is also where we discuss a number of individual cases.
we extend specific support to the government in order to strengthen respect for human rights and the rule of law.
vietnam and the eu are committed to work towards a closer partnership by implementing the partnership and cooperation agreement and the free trade agreement.
mr president commissioner with the eu vietnam trade and investment agreements on the table we need to be more serious about the essential elements' clauses.
so commissioner i'd like you to clarify a couple of points please.
in terms of firstly what concrete human rights improvements has vietnam made following the fta negotiations?
secondly how will the commission ensure that vietnam amends its repressive legal framework in particular the penal code the law on cyber security bringing it into full compliance with international human rights standards?
thirdly besides pressing vietnam to release political prisoners has the eu pushed for establishment of an independent police complaints commission to investigate grievances and provide oversight over these authorities?
he is an excellent diplomat but the fact is that we are implementing the dialogue for already two years with basically no results and this is something that we need to acknowledge.
this is in support of the opposition that is to be recognised not just by the cuban regime but also by us.
we should not be calling dictators friends but we should be inviting these people to a dialogue. we should recognise them.
it is not just a message to the cubans emphasising the need to implement but also a message to ourselves.
so yes please who votes against this resolution basically votes against the basic rights of these people.
mr president in today's societies care work is disproportionately carried out by women and girls. they do most of this work for free and it's taken for granted.
women's care work both formal and informal is sadly still a source of shocking inequality.
austerity policies and the resulting increase in poverty have seriously exacerbated the problem as vital services have been cut to the bone.
yet changing demographics mean that more of us are in need of care so we're seeing families and dependants forced to fall back on traditional gender roles. domestic workers who are mostly migrant women are open to terrible abuse by employers.
meanwhile in the uk brexit threatens the future supply of care workers leaving the elderly and disabled vulnerable.
i'm happy to see that the report stresses that eu funding should support the transition from institutionalisation to a community and familybased model of care services both for disabled people and other vulnerable groups such as children and also that the report highlights the need for a worklife balance.
thank you mr president friedrich hayek observed that there is all the difference in the world between treating people equally and attempting to make them equal.
the first he said is the precondition for a free society;
if the state decided to offer me someone to wash the dishes and do the housework for me without my having to do it i would have more time to work.
that's true for all of us it doesn't become more or less true when you have children at home.
there is an argument and various regimes down the years some savoury and some not have made the argument that the state should be philoprogenitive;
that we should be encouraging people to have babies through the tax system.
fine if that's the argument you want to make let's make it honestly and openly but let's not pretend that it is an issue of gender equality.
i hope that members of the medical profession are listening to this debate because it has been quite interesting that across the house from all member states what we are hearing from patients is that they are not being listened to when they visit their general practitioner.
that is perhaps because there isn't sufficient awareness of the myriad symptoms of lyme disease but we certainly need greater awareness among the first port of call which is the medical practitioners in the local clinics.
i want to compliment tick talk ireland.
they have been tirelessly campaigning to raise awareness about this disease.
they want patientcentric best practices and we support them in that.
i have read some terrible stories of people who are suffering chronic conditions because of lyme disease misdiagnosis and lack of treatment.
it is about the health of our citizens and i want to thank the commission for the answers you have given to our questions today.
mr president you won't find a single member of this chamber who opposes any of the aims set out in this report making it easier for people to take bicycles on trains having greater information or rights to compensation if you have been mistreated greater access for disabled people.
it is a kind of legislative virtue signalling. our primary purpose is not to remedy and identify a problem but to let the world know what very nice people we are.
the result is that there will be additional bureaucracy additional paperwork additional distraction of resources by the people who know more about it than we do in this chamber which means in the end that they are not able to concentrate on delivering the best possible customer service.
i wish we would have the modesty to accept that we are not always the experts.
this means that the safety of thousands of workers in the garment industry in bangladesh is at stake.
as we all know the government of bangladesh is not yet capable of taking over the inspections of the garment factories and as we all know the labour law reform in the country is still pending.
i condemn the types of practices mentioned in this resolution and call on the vietnamese authorities to release anyone it has imprisoned for exercising their fundamental right.
i would also call for the criminal code to be reassessed and any laws which restrict these basic undertakings.
in my opinion vietnam should ratify all human rights treaties of the united nations and cannot be seen to take human rights seriously until having done so.
at the same time having visited vietnam a couple of years ago on a mission on behalf of inta i know vietnam to be a wonderful beautiful country with exceptionally nice and decent people.
general elections are due by the end of this year but freedom of expression which is a prerequisite for fair elections does not exist.
we lost several minutes all along but we have to accept your decision.
mr president i speak as the chair of parliament's delegation for relations with the countries of south asia which covers bangladesh. as we know it's a relatively young country still facing many difficulties and is looking forward to its full graduation from least developed country' status.
part of that graduation is due to the readymade garment sector and government and manufacturers know that change is needed.
so we're concerned that the government has decided not to take full advantage of all that the accord offers in terms of assisting that change and building on progress to safe and inclusive working environments.
we also recognise as my colleague has said the government's zerotolerance policy towards terrorism.
but that approach has to be built on human rights and we're concerned about continuing unexplained disappearances extrajudicial killings and the direction of legislation at the moment.
lastly i too would echo the call for an open and inclusive peaceful election in which all parties participate to give the people of bangladesh a full and meaningful choice.
we call for his release and for the dropping of all charges against him.
mr president ladies and gentlemen commissioner it's very important that this report underlines the role of women at the care services within the context of the work life balance proposal and emphasises the importance of the availability of diverse quality accessible and affordable care infrastructure and support for childcare and care for other dependents either at home or in home like situations.
i would like to underline the fact that the draft report discusses as well the targets for development of different services and finally includes recommendations related to the funding of care infrastructure and services.
in its dialogue with iraq the union does not hesitate to voice its concerns over human rights including in particular freedom of religion or belief and the elimination of all forms of discrimination.
this is all the more important now as the country is facing serious political difficulties with increased tensions along ethnic and sectarian lines.
in this respect the european union supports the work of the united nations in facilitating dialogue between the major political forces.
the european union has offered to cooperate with iraq in improving human rights protection.