A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief
This book is an insightful resource for those who have been there and for those who will someday live through such an experience.(Kathy BensonExhale: A Literary Magazine)A Gift of Timeis a gift. With their beautiful writing, the authors honor the families who contributed to this book, comfort the families who will, sadly, need to make use of this book, and deepen and enrich every reader’s human experience... We owe them our gratitude.(Dia BoyleMercatorNet.com)A compelling read... the book will, naturally, be most of use to families who are facing these heartbreaking situations right now and need guidance and fellowship. But for all of us who value the lives of children with special needs, especially those who society most devalues, it offers an incredibly hopeful message.(About.com)The authors have achieved their goals in writing this book; they bring comfort to the families going through this traumatic time, and make the health care providers who read it determined to 'do better.'(Advances in Neonatal Care)This informative and heartbreaking book provides information to parents and families in the critical are of continuation of pregnancy in light of a terminal diagnosis... Quotes from patients and families offer a view to help encourage, inspire, and help others feel they are not alone... The health care team can learn much from this text.(Deborah RobertsPediatric Nursing)[A] beautifully written, touching book... It is a must-read not only for parents who find themselves facign such a heart-wrenching situation, but also for those who care for and support these families.(Difficult Decisions)Amy Kuebelbeck and Dr. Deborah L. Davis have bravely published a wonderful book... For childbirth educators, this is an important read.(Jeanine M. EstradaInternational Journal of Childbirth Education)These knowledgeable authors speak eloquently for families, parents, prospective parents, and health care professionals across many disciplines who share in the experiences of life with, and without, a hoped-for 'perfect baby.' A thread of continuity runs across the gestational journeys of real parents grappling with bad and sad news, complex interwoven lives, and the hard work of seeking to bring joy into brief, yet eternal, moments together with their babies. The book will mean so much to those who have already endured these trials as well as those who are met daily with such news.(Brian S. Carter, M.D., Monroe Carell Jr. Children's Hospital at Vanderbilt)