In Your Face Duchenne Muscular Dystrophy All Pain All Glory
Misty VanderWeele is a wife and mother first, who has went from young going-no-where single mom to finding her voice to assist in the Duchenne Movement to conquer the most common genetic child-hood muscle disease, called Duchenne. Duchenne Muscular Dystrophy claims lives 2 a day, affects 300,000 world-wide with 300 to 400 new diagnoses each year and there is no known cure. Misty started to  raise awareness almost immediately upon her son being diagnosed with Duchenne, (15+ years ago) and believes you can thrive not just survive, all you have to do is set you mind to it. She refuses to live in the"OH  MY GOD MY SON IS DYING MODE"and encourages other Duchenne parents to do the same. Her mission is to inspire the Duchenne Movement through helping parents not only cope with the emotional roller-coaster Duchenne  causes but to lead by example. She is committed to keep writing books and creating Duchenne advocacy awareness until a cure is found or she is 6 feet under.