Where Two Worlds Touch: A Spiritual Journey Through Alzheimer's Disease
"Any caregiver who has felt duty-bound to support a spouse, parent, or other loved one with Alzheimer's disease will find a path to compassionate care as they follow Jade Angelica's personal transformation from a wounded, distant daughter to her mother's loving companion inWhere Two Worlds Touch. Embedded in wisdom from a variety of spiritual traditions, Jade's inspirational story provides a new and hopeful way for caregivers to approach the daily challenges of Alzheimer's disease and connect meaningfully with loved ones." --Cordula Dick-Muehlke, Associate Clinical Professor, Department of Family Medicine and Division of Geriatrics, University of California, Irvine School of Medicine"Angelica's life story as an estranged daughter, a Harvard theological student, and eventually the primary caregiver for her mom has led her to a place where she can hold the hands of other caregivers and share her hopeful credo, that two worlds can indeed touch, even if one world is altered by distance and disease. I have decided to gift each of my support group members with a copy of Where Two Worlds Touch." --Joanne Koenig Coste, author ofLearning to Speak Alzheimer's"Where Two Worlds Touchis a timely manifesto that will forever change the way our society cares for individuals with dementia. This is a must-read book for all caretakers of patients with Alzheimer's disease. Angelica is a prescient observer of the human condition and has done a wonderful job of providing rich anecdotes, clear prose, and novel strategies that really work. Given that there is currently no cure for Alzheimer's disease, it is imperative that our society develop and follow a humane standard of care for these individuals. Where Two Worlds Touch provides a blueprint for how we can ameliorate the suffering and dramatically improve the quality of life for Alzheimer's patients." --Justin Feinstein, Clinical Neuropsychologist, Laureate Institute for Brain Research"Where Two Worlds Touchis a perfect blend of sacred/spiritual and everyday insight for caregivers. Angelica bravely describes her relationship with her mother pre-dementia, helping readers to understand that they can have meaningful relationships with loved ones who have Alzheimer's, even when those relationships have been fraught with difficulty in the past. The book offers practical tools, such as improvisational techniques, and spiritual reflection to help readers transform the lives of people with dementia and their own lives as well. Angelica helps care partners to approach people with dementia in a creative way that does not focus on what the person cannot do. Instead, the focus is on entering into the person's reality, which often leaves us surprised, excited, and humbled at the abilities and memories that remain." --Melanie Chavin, Vice President of Program Services, Alzheimer's Association, Greater Illinois Chapter"Inspiring! Angelica's day-to-day journey with her Mom through Alzheimer's to death is a deeply informative story of caring and growing in the process. Through the sharing of her story she makes a profound case for the need to be with and for another who suffers from the disease. She also gives many clues about how to do it. I suggest that it's a "must read" for anyone who has a family member or friend with Alzheimer's, and for everyone who works with Alzheimer's patients as a nurse, an aide, or volunteer." --Janaan Manternach, co-author,Alzheimer's Disease: A Handbook for Caregivers, Family and Friends"The consciousness-raising and worldview-shifting insights found inWhere Two Worlds Touchmight have a positive systemic impact on society if it were to become the go-to book for those whose lives are touched by Alzheimer's." -Patty Sutherland,ForeWord Reviews"Jade Angelica has written an intensely personal yet also universally applicable treatment of Alzheimer's disease that is real, honest, and wise. Blending sound research with helpful and often moving accounts of caring (in every sense of the word) for those with Alzheimer's, her writing is clear and engaging and provides a great deal of practical advice." --Stephen Sapp, Professor of Religious Studies, University of Miami, Coral Gables, FL"Grounded in research and inspired by poetry, spiritual insight, and personal reflection, this testimony to the transforming power of love touches at the root of what makes us human--the ability to maintain relationship despite seemingly insurmountable obstacles. Jade Angelica's indomitable spirit uses every means available to her creative imagination to seek and eventually find a means to heal and be healed through relationship with her mother, who is succumbing to the diminishments of Alzheimer's Disease. This is spiritual direction at its best--alert to Divine guidance while attending to present-moment reality. Ms. Angelica allows knowledge to remain in the background as she deftly gains insight into the nuanced communication of her slowly diminishing mother. Warmly, open-heartedly, keenly, perseveringly, their relationship yields to mutual transformation. This is a testimony to the power of love at work in those who willingly receive. Thank you to Jade Angelica for this witness to the power of the human spirit to prevail in the midst of chaos, darkness, and confusion--a true story of the reality of resurrection for those vulnerable enough to see."--Martha L. Campbell, Former Director, Spiritual Guidance Program, Shalem Institute for Spiritual Formation, Washington, DC"I am so very impressed by this exceptionally well-written and well-researched book. Jade Angelica deserves rave reviews for her unique balance of compassion, insight, and scientific support on a very complex issue. I strongly recommendWhere Two Worlds Touchfor caregivers of individuals with Alzheimer's dementia." --Robert A. Stern, Clinical Core Director, Boston University Alzheimer's Disease Center, Boston University School of Medicine"Jade Angelica captures the essence of being an Alzheimer's care partner. She transforms a task frequently perceived as complex, difficult, and discouraging, into one that is a joyful, rewarding experience for both partners. By being fully present and "saying yes" to her partner's reality, she accepts and validates her partner's persona and joyfully joins her in the world of dementia.Where Two Worlds Touchis a practical and spiritual guide for all who choose to travel the journey through Alzheimer's disease together." --Charles J Farrell, President, Carolyn L Farrell Foundation for Brain Health"A creative and compassionate Unitarian Universalist, Jade Angelica draws on wisdom from the world's religious traditions in a way that is respectful of the integrity of each tradition and deeply relevant to the ethic of care she develops in this important book." --Jennifer Peace, Co-Director of the Center for Interreligious and Communal Leadership Education (CIRCLE), Andover Newton Theological School"This book, in recounting one mother and daughter's poignant caresharing journey into Alzheimer's disease, reflects on the spiritual dimensions of struggle, suffering, and companioning. The author offers wise counsel and practical ideas in rethinking the carer role, sharing through improvisation, and effectively advocating for the personhood of the cared for. Ways to transform the carer role are offered. Spiritual themes addressed throughout the book offer unique and important perspectives on independence and quality of life for both care partners. The book is a first-person account of a journey, yet it speaks to universal concerns. It is a thoughtful and hopeful addition to the literature about dementia and caregiving." --Marty Richards, author,Caresharing: A Reciprocal Approach to CaregivingandCare Receiving in the Complexities of Aging, Illness or Disability"This tender and fiercely challenging account of a daughter's encounter with her mother's journey into Alzheimer's disease takes issue with our cultural consensus around the tragedy of dementia. By refusing to collude in her mother's progressive loss of personhood, the author discovers a deep path of engagement, forgiveness, and growth, including startling moments of joy and the spontaneous flow of love. Jade Angelica's intensely personal story becomes translucent to the universal yearning and wisdom of compassion, illuminating what it might mean for any of us to give, and receive, care. Through this experience, she demonstrates that the opportunity to serve and advocate for a dependent loved one can be as much a gift and a blessing as it is also a burden. Her testimony calls into question our collective denial of our continuing connection to our warehoused elders, and lifts up their humanity as a summoning to authentic presence and spiritual discovery." --Kendyl Gibbons, Unitarian Universalist minister"Jade Angelica has given a blessed gift to all persons whose lives are touched by Alzheimer's or other dementias (and that is all of us)! Wise and witty, Where Two Worlds Touch teaches us to see the whole person who is still very much present within the reality of progressive memory loss. Dementia cannot be cured, but Angelica teaches us that life can remain good, filled with love and laughter, even as cognitive ability declines." --John T. McFadden, co-author,Aging Together: Dementia, Friendship and Flourishing Communities"Where Two Worlds Touchis one of the finest accounts of the spiritual journey of Alzheimer's, for both the caregiver and care recipient, that I've read. Jade Angelica gives us the gift of an honest, reflective account of journeying through Alzheimer's with her mom. Jade brings to the journey and to the telling of it the fruit of years of theological study and reflection, meditative practice, improvisational theater techniques, spiritual direction, and a pastoral heart. It was a journey fraught with personal, emotional, and spiritual difficulties, but it was in the crucible of Alzheimer's disease where her relationship with her mom was transformed and healed. As she notes in the introduction, this book may not be comforting or helpful for everyone. But for those who want to reframe Alzheimer's to focus on the gifts that remain and who want to be stretched in mind, heart, and spirit--this is the book to read." --Nancy Gordon, Director, California Lutheran Homes Center for Spirituality and Aging"Jade Angelica is a sojourner from the land of Alzheimer's bearing witness that all there is not lost. Her testimony is even more outrageous: We can experience in that far country depths of being alive, and in love, that the worlds of perfect health may never understand.Where Two Worlds Touchis a treasure chest of spiritual gems, the boon of an adventure into and out of the valley of the shadow of death. If you or someone you love are in the land of Alzheimer's, read this spirited-inspired travel log and find your way home." --Michael Verde, Founder and Director, Memory Bridge"Jade Angelica has written an engaging and reflective book that is both personal and political. The commandment to honor your parent is not always easy. Angelica's focus on the care of people with Alzheimer's highlights this and brings out the often unspoken challenges of the practical, emotional, moral, and spiritual work we need to do to protect the most vulnerable members of our society." --Rabbi Sara Paasche-Orlow, Spiritual Care Director, Hebrew SeniorLife, Boston"Every chaplain, theologian, caregiver, and healthcare professional can find profound truth captured on each page ofWhere Two Worlds Touch.  Jade Angelica builds from the narrative of her experience as a caregiver, and invites the reader to journey with her into the highly significant theo-philosophical literature that has arisen in the last decade around the experience of the deeply forgetful and those who care for them. The reader will find that there is a place for love and hope and continuing selfhood in an experience that is more than just half-full if we can see it rightly. This is a beautiful book and the deepest I have read on the topic." -Stephen G. Post, author ofThe Moral Challenge of Alzheimer Disease"Where Two Worlds Touchis an accessible and compassionate guide to understanding and loving someone with Alzheimer's. Through her own personal experience and spiritual training, Jade Angelica offers a shift in perspective about Alzheimer's  that shines a loving light on what is still there instead of what is lost. This is the book I wished for when my grandmother had Alzheimer's." --Lisa Genova, author ofStill Alice