jiayi-li23/proxann_data huggingface dataset:
Bill 111-S-487 — Health / R&D
Subject: Health

Stem Cell Research Enhancement Act of 2009 - Amends the Public Health Service Act to require the Secretary of Health and Human Services to conduct and support research that utilizes human embryonic stem cells, regardless of the date on which the stem cells were derived from a human embryo. Limits such research to stem cells that meet the following requirements: (1) the stem cells were derived from human embryos donated from in vitro fertilization clinics, were created for the purposes of fertility treatment, and were in excess of the needs of the individuals seeking such treatment; (2) prior to donation, it was determined that the embryos would never be implanted in a woman and would otherwise be discarded; and (3) the individuals seeking fertility treatment donated the embryos with written informed consent and received no financial or other inducements. Requires the Secretary to develop techniques for the isolation, derivation, production, or testing of stem cells that are capable of producing all or almost all of the cell types of the developing body and may result in improved understanding of treatments for diseases and other adverse health conditions, but that are not derived from a human embryo. Requires the Secretary to: (1) provide guidance concerning the next steps required for additional research; (2) prioritize research with the greatest potential for near-term clinical benefit; and (3) take into account techniques outlined by the President's Council on Bioethics and any other appropriate techniques and research.
Bill 111-S-571 — Health / R&D
Subject: Health

Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2009 - Requires the Secretary of Health and Human Services, acting through the Director of the National Institutes of Health (NIH), to continue to expand and intensify research and related NIH activities with respect to psoriasis and psoriatic arthritis. Requires the Directors of the National Institute of Arthritis and Musculoskeletal and Skin Diseases and the National Institute of Allergy and Infectious Diseases to continue to conduct and support research to expand understanding of the causes of, and to find a cure for, psoriasis and psoriatic arthritis. Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to undertake psoriasis and psoriatic arthritis data collection and develop a psoriasis and psoriatic arthritis patient registry. Encourages the Secretary to convene a summit on federal efforts regarding psoriasis and psoriatic arthritis research, treatment, education, quality-of-life, and data collection. Directs the Secretary to enter into an agreement with the Institutes of Medicine to study insurance coverage of psoriasis and psoriatic arthritis.
Bill 111-S-586 — Health / R&D
Subject: Health

National Neurotechnology Initiative Act - Defines "neurotechnology" to mean the science and technology that allows an individual to analyze, understand, treat, and heal the brain and nervous system.Requires the Secretary of Health and Human Services to implement a National Neurotechnology Initiative, under which the Secretary shall: (1) establish goals, priorities, and metrics for evaluation for federal neurotechnology research, development, and commercialization; (2) increase the investment in federal research, development, and translational programs in neurotechnology to achieve such goals; and (3) increase interagency coordination.Requires the Secretary to establish the National Neurotechnology Coordination Office and the National Neurotechnology Advisory Council.Requires the Director of the National Institutes of Health (NIH) to develop the Blueprint for Neuroscience Research to: (1) identify pervasive challenges in neuroscience and any technological barriers to solving such challenges; and (2) support the development of new tools, training opportunities, and other resources to assist neuroscientists in basic and clinical research. Directs the Commissioner of Food and Drugs to require the Directors of the Center for Drug Evaluation and Research, the Center for Biologics Evaluation and Research, and the Center for Devices and Radiological Health to improve the timelines of the review process for neurology and psychiatry.Requires the Director of the National Neurotechnology Coordination Office to establish the American Neurotechnology Study Center.
Bill 111-S-717 — Health / R&D
Subject: Health

21st Century Cancer ALERT (Access to Life-Saving Early detection, Research and Treatment) Act - Amends the Public Health Service Act to revise provisions related to the National Cancer Program, including to require the establishment of an entity within the National Cancer Institute (NCI) to augment ongoing efforts to advance new technologies in cancer research, support the national collection of tissues for cancer research purposes, and ensure the quality of tissue collection. Sets forth provisions governing clinical trials, including ethical and privacy standards. Requires the Secretary of Health and Human Services to award grants for research on cancers with a low five-year survival rate and rare cancers. Expands coverage of colorectal screenings, including through providing grants and allowing states to provide coverage for such screenings under Medicaid. Provides for biomarkers research. Amends the Employee Retirement Income Security Act of 1974 (ERISA) to prohibit a group health plan from discriminating against participants and beneficiaries participating in cancer clinical trials. Sets forth provisions regarding retirement pay for nurses retiring from the Armed Forces. Requires the Secretary to study the current and future cancer care workforce needs. Prohibits the Secretary from awarding patient navigator grants unless entities provide assurances that patient navigators meet minimum core proficiencies. Provides for coverage under Medicare for payment of routine costs of care furnished to individuals participating in cancer clinical trials. Requires the Secretary to conduct a demonstration project under which payment for comprehensive cancer care planning services will be made under Medicare. Provides for coverage of tobacco cessation products. Provides for research on cancer survivorship related to childhood cancer and health disparities in outcomes. Requires the Secretary to convene a Workforce Development Collaborative on Psychosocial Care During Chronic Medical Illness.
Bill 111-S-914 — Health / R&D
Subject: Health

Cures Acceleration Network and National Institutes of Health Reauthorization Act of 2009 - Establishes the Cures Acceleration Network, an independent agency, to awards grants and contracts to eligible entities to accelerate the development of cures and treatments of diseases, including through the development of medical products and behavioral therapies. Defines "medical product" as a drug, device, biological product, or product that is a combination of drugs, devices, and biological products. Sets forth the functions of the Network. Establishes the Cures Acceleration Network Review Board. Directs the Chairperson of the Board to award matching grants and contracts to eligible entities to: (1) accelerate the development of cures and treatments, including through the development of medical products, behavioral therapies, and biomarkers that demonstrate the safety or effectiveness of medical products; or (2) establish protocols that comply with the standards of the Food and Drug Administration (FDA) and otherwise meet regulatory requirements at all stages of development, manufacturing, review, approval, and safety surveillance of a medical product. Sets forth provisions governing conflict of interest policies for the Network. Amends the Public Health Service Act to rename the National Center on Minority Health and Health Disparities as the National Institute on Minority Health and Health Disparities. Requires the Director of the National Institutes of Health (NIH) to develop and enforce NIH's conflict of interest policies and respond in a timely manner when such policies have been violated by a recipient of funds provided under a grant or contract. Reauthorizes appropriations for NIH for FY2010-FY2012.
Bill 111-S-981 — Health / R&D
Subject: Health

Inflammatory Bowel Disease Research and Awareness Act - Amends the Public Health Service Act to: (1) require the Centers for Disease Control and Prevention (CDC) to conduct, support, and expand existing epidemiology research on inflammatory bowel disease (i.e., Crohn's disease and ulcerative colitis) in both pediatric and adult populations; (2) authorize the CDC to award grants and enter into cooperative agreements to develop and administer such epidemiology research; and (3) direct the CDC to award grants to increase awareness of inflammatory bowel disease among the general public and health care providers. Expresses the sense of Congress that the Directors of the National Institutes of Health (NIH) and the National Institute of Diabetes and Digestive and Kidney Diseases should support specified research and training goals for inflammatory bowel diseases.
Bill 111-S-984 — Health / R&D
Subject: Health

Arthritis Prevention, Control, and Cure Act of 2009 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS): (1) to develop and implement a National Arthritis Action Plan; and (2) acting through the Director of the Centers for Disease Control and Prevention (CDC), to conduct, support, and promote the coordination of arthritis and other rheumatic diseases research. Requires the Secretary to award grants to: (1) support arthritis-specific research projects at the Centers for Prevention Research by the CDC; (2) support state comprehensive arthritis control and prevention programs and public health surveillance, prevention, and control activities; and (3) assist in the implementation of a national strategy for arthritis control and prevention. Requires the Secretary to coordinate a national education and outreach program on arthritis and other rheumatic diseases. Requires the Secretary to establish an Arthritis and Rheumatic Diseases Interagency Coordinating Committee to: (1) improve coordination of federal research activities related to arthritis and rheumatic diseases; and (2) convene a summit to provide a detailed overview of such current federal research. Requires the Director of the National Institutes of Health (NIH) to expand and intensify juvenile arthritis research. Allows the Secretary, acting through the Director of the CDC, to award grants to support juvenile arthritis data collection. Requires the Secretary, acting through the Director of the CDC, to support the development of a National Juvenile Arthritis Patient Registry. Requires the Secretary to promote and support pediatric rheumatology training, including by allowing the Secretary to establish a loan repayment program. Requires the Comptroller General to conduct a study on the economic impact of arthritis in the workplace.
Bill 111-S-1158 — Health / R&D
Subject: Health

SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field. Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy. Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages. Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders. Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.
Bill 111-S-1213 — Health / R&D
Subject: Health

Patient-Centered Outcomes Research Act of 2009 - Amends title XI (General Provisions, Peer Review, and Administrative Simplification) of the Social Security Act (SSA) to provide for a program of comparative effectiveness research for health care. Defines "comparative effectiveness research" as research evaluating and comparing the implications and outcomes of two or more health care strategies to address a particular medical condition for specific patient populations. Establishes the Patient-Centered Outcomes Research Institute (PCORTI) as a nonprofit, nongovernmental corporation to conduct Iresearch on the effectiveness of health care treatments, including pharmaceuticals, medical devices and procedures, and other therapies. Requires the PCORTI to: (1) identify national priorities for comparative clinical effectiveness research; (2) establish and update a research project agenda for comparative clinical effectiveness research and provide for peer review of primary research; (3) establish a standing methodology committee for developing the science of comparative effectiveness research; and (4) disseminate research findings. Amends the Internal Revenue Code to establish in the Treasury the Patient-Centered Outcomes Research Trust Fund. Imposes a fee on certain accident or health insurance policies and self-insured health plans to create revenue for the Fund. Amends the American Recovery and Reinvestment Act of 2009 to require the Federal Coordinating Council for Comparative Effectiveness Research to support the PCORTI. Directs the Comptroller General of the United States to report to Congress on the process for making national coverage determinations under SSA title XVIII (Medicare).
Bill 111-S-1545 — Health / R&D
Subject: Health

Scleroderma Research and Awareness Act - Requires the Director of the National Institute of Arthritis and Musculoskeletal and Skin Diseases to expand, intensify, and coordinate the research and training activities with respect to scleroderma. Directs the Centers for Disease Control and Prevention (CDC) to carry out an educational campaign to increase public awareness of scleroderma.
Bill 111-S-1674 — Health / R&D
Subject: Social welfare

(This measure has not been amended since it was introduced. The summary of that version is repeated here.) Improving Access to Clinical Trials Act of 2009 - Amends title XVI (Supplemental Security Income) (SSI) of the Social Security Act (SSA) to exclude from income for SSI eligibility purposes any compensation in the amount of the first $2,000 per year received by an individual for participation in clinical trials involving research and testing of treatments for rare diseases or conditions. Amends SSA title XIX (Medicaid) to make a similar exclusion from income of such compensation for the purposes of eligibility under the Medicaid program. Directs the Comptroller General to study and report to Congress on the impact of this Act on enrollment of individuals who receive SSI benefits in clinical trials for rare diseases or conditions.
Bill 111-S-1760 — Health / R&D
Subject: Health

Family Asthma Act - Amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to award grants for pilot projects to prevent and control asthma symptoms and to reduce asthma attacks and improve self-management for individuals and families. Requires the Secretary of Health and Human Services (HHS), acting through the Director of NIH, in awarding grants, to give: (1) priority to entities that serve populations disproportionately impacted by asthma; and (2) consideration to an adequate national understanding of asthma prevalence. Authorizes additional appropriations for FY2010-FY2014 to the National Heart, Lung, and Blood Institute to develop a National Asthma Action Plan and to fund a report to Congress by the National Asthma Education and Prevention Program on federal asthma activities. Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) collaborate with state and local health departments to conduct activities to inform and educate the public regarding asthma; (2) conduct asthma surveillance activities to collect data on the prevalence and severity of asthma, the effectiveness of public heath asthma intervention, and the quality of asthma management; and (3) compile and annually publish data on childhood and adult asthma.
Bill 111-S-2752 — Health / R&D
Subject: Health

Gulf Oyster Industry Jobs Protection Act - Prohibits the use of funds made available to the Secretary of Health and Human Services (HHS) to require that oysters be treated with post-harvest processing or other treatment or cooking requirements that result in a prohibition on selling or consuming raw oysters. Directs the Secretary, acting through the Commissioner of Food and Drugs (FDA) and in cooperation with the oyster industry and the Interstate Shellfish Sanitation Conference, to conduct an education campaign to increase awareness of the risks associated with consuming raw oysters. Prohibits any proposed regulation or guidance issued by the Secretary that affects the harvesting, processing, or transportation of seafood harvested in the United States from becoming final or taking effect until the Secretary submits to the appropriate congressional committees a report that contains: (1) a cost-benefit analysis, economic impact study, and health impact analysis of such proposed regulation or guidance; and (2) an analysis that compares such proposed regulation or guidance to any similar regulations or guidance with respect to other regulated foods and that compares the risks associated with seafood and the instances of those risks in such other regulated foods.
Bill 111-S-2858 — Health / R&D
Subject: Health

Brittany Wilkinson Mitochondrial Disease Research and Treatment Enhancement Act - Amends the Public Health Service Act to establish the Office of Mitochondrial Disease within the National Institutes of Health (NIH). Requires the Director of the Office to develop, make publicly available, and implement a written plan to facilitate and coordinate research into mitochondrial disease. Authorizes the Director to award grants for: (1) integrated, multi-project research programs related to mitochondrial disease and planning activities associated with such programs; and (2) the establishment of Mitochondrial Disease Centers of Excellence to promote interdisciplinary research and training related to mitochondrial disease. Requires the Director of the Centers for Disease Control and Prevention (CDC) to establish: (1) a national registry of medical information collected from patients with mitochondrial disease for research purposes; and (2) a national biodepository of tissues and DNA collected from patients with mitochondrial disease for research purposes.
Bill 111-S-3418 — Health / R&D
Subject: Health

Comprehensive Problem Gambling Act of 2010 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Administrator of the Substance Abuse and Mental Health Services Administration, to: (1) establish and implement programs for the identification, prevention, and treatment of pathological and other problem gambling; (2) carry out a national campaign to increase knowledge and raise awareness of problem gambling; (3) establish and implement a national program of research on problem gambling; and (4) make grants to states, local and tribal governments, and nonprofit agencies to provide comprehensive services with respect to treatment and prevention of, and education about, problem gambling. Authorizes the Secretary, in carrying out the national campaign, to: (1) administer and coordinate the voluntary donation of resources to assist in implementing new programs and augmenting and supporting existing national campaigns; and (2) encourage media outlets to provide information aimed at preventing problem gambling. Requires the Secretary to target radio and television audiences of events including sporting and gambling events. Directs the Secretary to develop a treatment improvement protocol for problem gambling.
Bill 111-S-3596 — Health / R&D
Subject: Health

Culture of Safety Hospital Accountability Act of 2010 - Directs the Secretary of Heatlh and Human Services (HHS) to study for a report made available on the Internet website of the Centers for Medicare and Medicaid Services: (1) existing activities and programs in hospitals for quality assurance, patient safety, and performance improvement; and (2) any best practices that should be replicated in hospitals to improve patient safety and quality of care, consistent with the quality assessment and performance improvement program, as required by the conditions of participation for hospitals under title XVIII (Medicare) of the Social Security Act. Directs the Secretary to establish the Culture of Safety Hospital Accountability demonstration program to support establishing partnerships and other cooperative approaches among hospitals, state health care agencies, and HHS to promote and implement the best practices.
Bill 111-S-3694 — Health / R&D
Subject: Animals

Great Ape Protection Act of 2010 - Prohibits: (1) conducting invasive research on great apes; (2) knowingly breeding, possessing, renting, loaning, donating, purchasing, selling, housing, maintaining, leasing, borrowing, transporting, moving, delivering, or receiving a great ape for the purpose of conducting such research; or (3) using federal funds to conduct such research. Defines "invasive research" as research that may cause death, bodily injury, pain, distress, fear, injury, or trauma to great apes, including drug testing or exposure to a substance that may be detrimental to the ape's health or psychological well-being. Requires the Secretary of Health and Human Services (HHS) and other appropriate federal authorities to provide for the permanent retirement of all great apes that are owned or under the control of the federal government and that are being maintained in any facility for the purpose of breeding for, holding for, or conducting invasive research. Sets forth civil penalties for violations of this Act.