Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023

Bill: 118-s-1852
Sponsor: full_name: Sen. Scott, Tim [R-SC]
Introduced: 2023-06-07
Policy area: Health
Subjects: Blood and blood diseases

Genetics

Health promotion and preventive care

Hereditary and development disorders

Medical research

Research administration and funding
Latest action: action_date: 2023-09-06
text: Placed on Senate Legislative Calendar under General Orders. Calendar No. 201.

Summaries:
action_date: 2023-06-07
action_desc: Introduced in Senate
text: <html><body bgcolor="#FFFFFF"><p><b>Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023</b></p> <p>This bill reauthorizes through FY2028 the Sickle Cell Disease Treatment Demonstration Program, which supports efforts to improve treatment and prevention of sickle cell disease and complications from that disease. (Sickle cell disease is an inherited blood disorder that can lead to pain, anemia, infections, and stroke.)</p></body></html>

action_date: 2023-09-06
action_desc: Reported to Senate
text: <p><b>Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023</b></p> <p>This bill reauthorizes through FY2028 the Sickle Cell Disease Treatment Demonstration Program, which supports efforts to improve treatment and prevention of sickle cell disease and complications from that disease. (Sickle cell disease is an inherited blood disorder that can lead to pain, anemia, infections, and stroke.)</p>

tv_txt: II Calendar No. 201 118th CONGRESS 1st Session S. 1852 IN THE SENATE OF THE UNITED STATES June 7, 2023 Mr. Scott of South Carolina (for himself, Mr. Booker , and Mr. Warnock ) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions September 6, 2023 Reported by Mr. Sanders , without amendment A BILL To amend the Public Health Service Act to reauthorize a sickle cell disease prevention and treatment demonstration program.

1. Short title This Act may be cited as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 . 2. Sickle cell disease treatment prevention and treatment (a) In general Section 1106(b) of the Public Health Service Act ( 42 U.S.C. 300b–5(b) ) is amended— (1) in paragraph (1)(A)(iii), by striking prevention and treatment of sickle cell disease and inserting treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease ; (2) in paragraph (2)(D), by striking prevention and treatment of sickle cell disease and inserting treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease ; (3) in paragraph (3)— (A) in subparagraph (A), by striking enter into a contract with and inserting make a grant to, or enter into a contract or cooperative agreement with, ; and (B) in subparagraph (B), in each of clauses (ii) and (iii), by striking prevention and treatment of sickle cell disease and inserting treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease ; and (4) in paragraph (6), by striking $4,455,000 for each of fiscal years 2019 through 2023 and inserting $8,205,000 for each of fiscal years 2024 through 2028 . (b) Sense of Congress It is the sense of Congress that further research should be undertaken to expand the understanding of the causes of, and to find cures for, heritable blood disorders, including sickle cell disease.

September 6, 2023 Reported without amendment

tv_txt: II 118th CONGRESS 1st Session S. 1852 IN THE SENATE OF THE UNITED STATES June 7, 2023 Mr. Scott of South Carolina (for himself and Mr. Booker ) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions A BILL To amend the Public Health Service Act to reauthorize a sickle cell disease prevention and treatment demonstration program.

1. Short title This Act may be cited as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 . 2. Sickle cell disease treatment prevention and treatment (a) In general Section 1106(b) of the Public Health Service Act ( 42 U.S.C. 300b–5(b) ) is amended— (1) in paragraph (1)(A)(iii), by striking prevention and treatment of sickle cell disease and inserting treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease ; (2) in paragraph (2)(D), by striking prevention and treatment of sickle cell disease and inserting treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease ; (3) in paragraph (3)— (A) in subparagraph (A), by striking enter into a contract with and inserting make a grant to, or enter into a contract or cooperative agreement with, ; and (B) in subparagraph (B), in each of clauses (ii) and (iii), by striking prevention and treatment of sickle cell disease and inserting treatment of sickle cell disease and the prevention and treatment of complications of sickle cell disease ; and (4) in paragraph (6), by striking $4,455,000 for each of fiscal years 2019 through 2023 and inserting $8,205,000 for each of fiscal years 2024 through 2028 . (b) Sense of Congress It is the sense of Congress that further research should be undertaken to expand the understanding of the causes of, and to find cures for, heritable blood disorders, including sickle cell disease.