Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023

Bill: 118-hr-3884
Sponsor: full_name: Rep. Burgess, Michael C. [R-TX-26]
Introduced: 2023-06-07
Policy area: Health
Subjects: Blood and blood diseases

Health programs administration and funding

Health promotion and preventive care

Hereditary and development disorders

Medical research
Latest action: action_date: 2024-09-24
text: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Summaries:
action_date: 2023-06-07
action_desc: Introduced in House
text: <p><strong>Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023</strong></p><p>This bill reauthorizes through FY2028 the Sickle Cell Disease Treatment Demonstration Program, which supports efforts to improve treatment and prevention of sickle cell disease and complications from that disease. (Sickle cell disease is an inherited blood disorder that can lead to pain, anemia, infections, and stroke.)&nbsp;</p><!--tinycomments|2.1|data:application/json;base64,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-->

action_date: 2023-08-25
action_desc: Reported to House
text: <p><strong>Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023</strong></p><p>This bill reauthorizes through FY2028 the Sickle Cell Disease Treatment Demonstration Program, which supports efforts to improve treatment and prevention of sickle cell disease and complications from that disease. (Sickle cell disease is an inherited blood disorder that can lead to pain, anemia, infections, and stroke.)&nbsp;</p><!--tinycomments|2.1|data:application/json;base64,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-->

tv_txt: IIB 118th CONGRESS 2d Session H. R. 3884 IN THE SENATE OF THE UNITED STATES September 24, 2024 Received; read twice and referred to the Committee on Health, Education, Labor, and Pensions AN ACT To amend title XI of the Public Health Service Act to reauthorize the program providing for sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment.

1. Short title This Act may be cited as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 . 2. Reauthorization of sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment Section 1106(b) of the Public Health Service Act ( 42 U.S.C. 300b–5(b) ) is amended— (1) in paragraph (3)(A), by inserting , grant, or cooperative agreement after contract ; and (2) in paragraph (6), by striking $4,455,000 for each of fiscal years 2019 through 2023 and inserting $8,205,000 for each of fiscal years 2024 through 2028 .

Passed the House of Representatives September 23, 2024. Kevin F. McCumber, Clerk.

tv_txt: IB 118th CONGRESS 2d Session H. R. 3884 IN THE HOUSE OF REPRESENTATIVES AN ACT To amend title XI of the Public Health Service Act to reauthorize the program providing for sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment.

1. Short title This Act may be cited as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 . 2. Reauthorization of sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment Section 1106(b) of the Public Health Service Act ( 42 U.S.C. 300b–5(b) ) is amended— (1) in paragraph (3)(A), by inserting , grant, or cooperative agreement after contract ; and (2) in paragraph (6), by striking $4,455,000 for each of fiscal years 2019 through 2023 and inserting $8,205,000 for each of fiscal years 2024 through 2028 .

Passed the House of Representatives September 23, 2024. Kevin F. McCumber, Clerk.

tv_txt: IB Union Calendar No. 132 118th CONGRESS 1st Session H. R. 3884 [Report No. 118–166] IN THE HOUSE OF REPRESENTATIVES June 7, 2023 Mr. Burgess (for himself, Mr. Davis of Illinois , and Mr. Carter of Georgia ) introduced the following bill; which was referred to the Committee on Energy and Commerce August 25, 2023 Additional sponsor: Ms. Lee of California August 25, 2023 Reported with an amendment, committed to the Committee of the Whole House on the State of the Union, and ordered to be printed Strike out all after the enacting clause and insert the part printed in italic For text of introduced bill, see copy of bill as introduced on June 7, 2023 A BILL To amend title XI of the Public Health Service Act to reauthorize the program providing for sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment.

1. Short title This Act may be cited as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 . 2. Reauthorization of sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment Section 1106(b) of the Public Health Service Act ( 42 U.S.C. 300b–5(b) ) is amended— (1) in paragraph (3)(A), by inserting , grant, or cooperative agreement after contract ; and (2) in paragraph (6), by striking $4,455,000 for each of fiscal years 2019 through 2023 and inserting $8,205,000 for each of fiscal years 2024 through 2028 .

August 25, 2023 Reported with an amendment, committed to the Committee of the Whole House on the State of the Union, and ordered to be printed

tv_txt: I 118th CONGRESS 1st Session H. R. 3884 IN THE HOUSE OF REPRESENTATIVES June 7, 2023 Mr. Burgess (for himself, Mr. Davis of Illinois , and Mr. Carter of Georgia ) introduced the following bill; which was referred to the Committee on Energy and Commerce A BILL To amend title XI of the Public Health Service Act to reauthorize the program providing for sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment.

1. Short title This Act may be cited as the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 . 2. Reauthorization of sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment Section 1106(b)(6) of the Public Health Service Act ( 42 U.S.C. 300b–5(b)(6) ) is amended by striking 2019 through 2023 and inserting 2024 through 2028 .