A resolution designating May 15, 2021, as "National MPS Awareness Day".

Bill: 117-sres-235
Sponsor: full_name: Sen. Bennet, Michael F. [D-CO]
Introduced: 2021-05-25
Policy area: Health
Subjects: Commemorative events and holidays

Digestive and metabolic diseases

Hereditary and development disorders
Latest action: action_date: 2021-05-25
text: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S3460; text: CR S3428)

Summaries:
action_date: 2021-05-25
action_desc: Introduced in Senate
text: <p>This resolution designates May 15, 2021, as National MPS Awareness Day. Mucopolysaccharidosis (MPS) refers to a group of inherited conditions that interfere with the production of certain enzymes.</p>

action_date: 2021-05-25
action_desc: Passed Senate
text: <p>This resolution designates May 15, 2021, as National MPS Awareness Day. Mucopolysaccharidosis (MPS) refers to a group of inherited conditions that interfere with the production of certain enzymes.</p>

tv_txt: III 117th CONGRESS 1st Session S. RES. 235 IN THE SENATE OF THE UNITED STATES May 25, 2021 Mr. Bennet (for himself and Mr. Graham ) submitted the following resolution; which was considered and agreed to RESOLUTION Designating May 15, 2021, as National MPS Awareness Day .

Whereas mucopolysaccharidosis (referred to in this preamble as MPS ) are a group of genetically determined lysosomal storage diseases that render the human body incapable of producing certain enzymes needed to break down complex carbohydrates; Whereas MPS diseases cause complex carbohydrates to be stored in almost every cell in the body, which progressively leads to cellular damage; Whereas the cellular damage caused by MPS— (1) adversely affects the human body by damaging the heart, lungs, bones, central nervous system, and other internal organs; and (2) often results in intellectual disabilities, short stature, corneal damage, joint stiffness, loss of mobility, speech and hearing impairment, heart disease, hyperactivity, chronic respiratory problems, and, most painfully, a drastically shortened life span; Whereas symptoms of MPS are usually not apparent at birth; Whereas, without treatment, the life expectancy of an individual afflicted with MPS begins to decrease at a very early stage in the life of that individual; Whereas research has resulted in the development of limited treatments for some MPS diseases; Whereas, as of the date of adoption of this resolution, promising advancements in the pursuit of treatments for additional MPS diseases are underway; Whereas, despite the creation of new remedies, the blood-brain barrier continues to be a significant impediment to effectively treating the brain, which prevents the treatment of many of the symptoms of MPS; Whereas the quality of life of individuals afflicted with MPS and the treatments available to those individuals will be enhanced through the development of early detection and early intervention techniques; Whereas treatments for and research advancements relating to MPS are limited by a lack of awareness about MPS diseases; Whereas the lack of awareness about MPS diseases extends to individuals within the medical community; Whereas the cellular damage caused by MPS makes MPS a model for the study of many other degenerative genetic diseases; and Whereas the development of effective therapies and a potential cure for MPS diseases can be accomplished by increased awareness, research, data collection, and information distribution: Now, therefore, be it

That the Senate— (1) designates May 15, 2021, as National MPS Awareness Day ; and (2) supports the goals and ideals of National MPS Awareness Day.