Younger Onset Alzheimer’s Act

Bill: 116-hr-1903
Sponsor: full_name: Rep. Rice, Kathleen M. [D-NY-4]
Introduced: 2019-03-27
Policy area: Social Welfare
Subjects: Aging

Congressional oversight

Health care coverage and access

Long-term, rehabilitative, and terminal care

Neurological disorders
Latest action: action_date: 2019-03-27
text: Referred to the House Committee on Education and Labor.

Summaries:
action_date: 2019-03-27
action_desc: Introduced in House
text: <p><b>Younger Onset Alzheimer's Act</b></p> <p>This bill makes individuals with younger-onset Alzheimer's disease (i.e., individuals who experienced onset of the disease before age 60) eligible for certain federal grants and programs that support older adults. Under current law, these grants and programs serve only individuals 60 and older.</p>

tv_txt: I 116th CONGRESS 1st Session H. R. 1903 IN THE HOUSE OF REPRESENTATIVES March 27, 2019 Miss Rice of New York (for herself, Ms. Stefanik , Mr. King of New York , Mr. Trone , Mr. Smith of New Jersey , and Ms. Waters ) introduced the following bill; which was referred to the Committee on Education and Labor A BILL To amend the Older Americans Act of 1965 to support individuals with younger onset Alzheimer’s disease.

1. Short title This Act may be cited as the Younger Onset Alzheimer’s Act . 2. Findings Congress finds the following: (1) Approximately 5,800,000 individuals in the United States are living with Alzheimer’s disease. This includes approximately 200,000 individuals with younger onset Alzheimer’s disease. (2) Alzheimer’s disease costs the United States more than $290,000,000 per year, including $195,000,000 in costs to Medicare and Medicaid. (3) The Older Americans Act of 1965 ( 42 U.S.C. 3001 et seq.) includes services that focus on the needs of individuals with Alzheimer’s disease and related disorders. The need to specifically support individuals with younger onset Alzheimer’s disease is growing. 3. Younger onset Alzheimer’s disease The Older Americans Act of 1965 is amended— (1) in section 102 ( 42 U.S.C. 3002 ), by adding at the end the following: (55) The term younger onset Alzheimer’s disease , with respect to an individual, means an individual with Alzheimer’s disease or a related disorder who has not attained 60 years of age. ; (2) in section 302(3) ( 42 U.S.C. 3022(3) ), by inserting , including an individual with younger onset Alzheimer’s disease before the period; (3) in section 711(6) ( 42 U.S.C. 3058f(6) ), by inserting of any age after individual ; and (4) in section 721(b)(13) ( 42 U.S.C. 3058i(b)(13) )— (A) in subparagraph (B), by striking ; or ; (B) in subparagraph (C), by striking the period and inserting ; or ; and (C) by adding at the end the following: (D) individuals with Alzheimer’s disease, including those with younger onset Alzheimer’s disease. . 4. Report (a) In general Not later than 300 days after the date of enactment of this Act, and annually thereafter, the Assistant Secretary for Aging shall submit a report, to the committees of Congress described in subsection (b), that includes— (1) an overview of programmatic functions and performance with respect to the amendments made by section 3, including information about individuals with younger onset Alzheimer’s disease; and (2) an identification of the gaps in needs of individuals with younger onset Alzheimer’s disease. (b) Committees The committees of Congress described in this subsection are— (1) the Special Committee on Aging, the Committee on Health, Education, Labor, and Pensions, and the Committee on Finance, of the Senate; and (2) the Committee on Education and Labor, and the Committee on Energy and Commerce, of the House of Representatives. 5. Definition of younger onset Alzheimer’s disease In this Act, the term younger onset Alzheimer’s disease has the meaning given the term in section 102(55) of the Older Americans Act of 1965 ( 42 U.S.C. 3002(55) ), as added by section 3.