A resolution supporting the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.

Bill: 116-sres-225
Sponsor: full_name: Sen. Markey, Edward J. [D-MA]
Introduced: 2019-05-23
Policy area: Health
Subjects: Commemorative events and holidays

Disability and paralysis

Health promotion and preventive care

Medical research
Latest action: action_date: 2019-05-23
text: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Voice Vote. (consideration: CR S3127; text: CR S3117-3118)

Summaries:
action_date: 2019-05-23
action_desc: Introduced in Senate
text: <p>This resolution expresses support for the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.</p>

action_date: 2019-05-23
action_desc: Passed Senate
text: <p>This resolution expresses support for the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.</p>

tv_txt: III 116th CONGRESS 1st Session S. RES. 225 IN THE SENATE OF THE UNITED STATES May 23 (legislative day, May 22), 2019 Mr. Markey (for himself, Ms. Collins , Mr. Cramer , Mr. Blumenthal , Mr. Coons , Mr. Hoeven , Mr. Booker , Mr. Van Hollen , Mrs. Feinstein , Mr. King , Ms. Stabenow , Ms. Sinema , Mr. Casey , Ms. Harris , and Ms. Warren ) submitted the following resolution; which was considered and agreed to RESOLUTION Supporting the goals of International Myalgic En­ceph­a­lo­my­eli­tis/Chronic Fatigue Syndrome Awareness Day.

Whereas the National Academy of Medicine (referred to in this preamble as NAM ), formerly known as the Institute of Medicine, has found Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (referred to in this preamble as ME/CFS ) to be a serious, chronic, complex, and systemic disease that frequently and dramatically limits the activities of affected patients ; Whereas between 836,000 and 2,500,000 individuals of all ages, races, and sexes in the United States are believed to be afflicted with ME/CFS, with millions more afflicted by ME/CFS worldwide, and the vast majority of individuals with ME/CFS are undiagnosed or misdiagnosed; Whereas ME/CFS is approximately 4 times more prevalent in women than in men; Whereas ME/CFS is a chronic disease with no known cure and leaves 1/4 of individuals with ME/CFS housebound or bedbound for extended periods of time; Whereas 50 to 75 percent of individuals with ME/CFS cannot work or attend school; Whereas medical expenses and lost productivity related to ME/CFS cost the economy of the United States an estimated $17,000,000,000 to $24,000,000,000 annually; Whereas the cause of ME/CFS is unknown, there is no diagnostic test for ME/CFS, and there is no treatment for ME/CFS that is approved by the Food and Drug Administration; Whereas NAM has noted a paucity of research on ME/CFS and that more research is essential ; Whereas the Centers for Disease Control and Prevention has called ME/CFS America’s Hidden Health Crisis ; Whereas individuals with ME/CFS struggle to find doctors to care for them, and ME/CFS is included in less than 1/3 of medical school curricula; Whereas, in recognition of the dearth of research on ME/CFS and the profound impact that the disease has on individuals with ME/CFS and their loved ones and caretakers, the National Institutes of Health (referred to in this preamble as the NIH ) is committed to unraveling the underlying biologic cause(s) of ME/CFS as swiftly as possible, and promoting research that will inform the development of effective strategies for treatment and prevention of this devastating condition ; Whereas, in 2017, 11 Institutes at the NIH and the Office of the Director of the NIH contributed more than $7,000,000 in grants to assist in establishing Collaborative Research Centers and a Data Management Coordinating Center to improve the coordination of ME/CFS research and help accelerate understanding of ME/CFS; and Whereas, in 2019, May 12 is recognized as International ME/CFS Awareness Day: Now, therefore, be it

That the Senate— (1) supports the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Aware­ness Day; (2) recognizes and affirms the commitment of the United States to— (A) supporting research and medical education for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and (B) promoting awareness among health professionals and the public about Myalgic En­ceph­a­lo­my­eli­tis/Chronic Fatigue Syndrome; and (3) recognizes the continued importance of— (A) health care professionals and medical researchers who care for individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and (B) those who work to discover the cause of, and develop and improve diagnosis of, treatments for, and a cure for, Myalgic En­ceph­a­lo­my­eli­tis/Chronic Fatigue Syndrome.