Expressing support for designation of May 30 as "National Bartter Syndrome Day".

Bill: 116-hres-181
Sponsor: full_name: Rep. Ryan, Tim [D-OH-13]
Introduced: 2019-03-06
Policy area: Health
Subjects: Commemorative events and holidays

Digestive and metabolic diseases

Hereditary and development disorders
Latest action: action_date: 2019-03-06
text: Referred to the House Committee on Oversight and Reform.

Summaries:
action_date: 2019-03-06
action_desc: Introduced in House
text: <p>This resolution supports the designation of National Bartter Syndrome Day. (Bartter syndrome is caused by genetic defects that affect kidney function. Symptoms include muscle weakness and growth delay.)</p>

tv_txt: IV 116th CONGRESS 1st Session H. RES. 181 IN THE HOUSE OF REPRESENTATIVES March 6, 2019 Mr. Ryan submitted the following resolution; which was referred to the Committee on Oversight and Reform RESOLUTION Expressing support for designation of May 30 as National Bartter Syndrome Day .

Whereas Bartter syndrome is a rare kidney condition that causes an imbalance of potassium, sodium, chloride, and other molecules in the body; Whereas the antenatal form of Bartter syndrome, which begins before birth, is often life-threatening and is characterized by abnormally high levels of amniotic fluid surrounding the affected fetus, premature delivery, and salt loss; Whereas the classical form of Bartter syndrome, which begins in early childhood and tends to be less severe, causes individuals to experience fatigue, muscle weakness, growth delay, and developmental delay; Whereas Bartter syndrome likely affects approximately one per million people worldwide, although the exact prevalence is unknown; Whereas increased awareness and research of Bartter syndrome will promote accurate and early recognition of the disorder and help families with children suffering from this condition cope with the associated difficulties; and Whereas May 30 would be an appropriate date to designate as National Bartter Syndrome Day : Now, therefore, be it

That the House of Representatives supports the designation of National Bartter Syndrome Day .