Expressing support for a month to be known as Cystic Fibrosis Awareness Month, and for other purposes.

Bill: 115-hconres-58
Sponsor: full_name: Rep. Marino, Tom [R-PA-10]
Introduced: 2017-05-19
Policy area: Health
Subjects: Cardiovascular and respiratory health

Commemorative events and holidays

Congressional tributes

Health programs administration and funding

Hereditary and development disorders

Medical research
Latest action: action_date: 2017-05-26
text: Referred to the Subcommittee on Health.

Summaries:
action_date: 2017-05-19
action_desc: Introduced in House
text: <p>Supports the designation of Cystic Fibrosis Awareness Month. (Cystic fibrosis is an inherited disease that causes persistent lung infections and limits the ability to breathe over time.)</p> <p>Congratulates the cystic fibrosis community for their dedication to patients.</p> <p>Recognizes that the care delivery system for cystic fibrosis can be a model for care coordination.</p> <p>Acknowledges the investments and scientific achievements that have improved the lives of cystic fibrosis patients.</p> <p>Urges researchers, developers, patients, and providers to do everything possible to find a cure for this deadly disease.</p>

tv_txt: IV 115th CONGRESS 1st Session H. CON. RES. 58 IN THE HOUSE OF REPRESENTATIVES May 19, 2017 Mr. Marino (for himself and Mr. McGovern ) submitted the following concurrent resolution; which was referred to the Committee on Energy and Commerce CONCURRENT RESOLUTION Expressing support for a month to be known as Cystic Fibrosis Awareness Month, and for other purposes.

Whereas cystic fibrosis, commonly referred to as CF , is a genetic disease affecting more than 30,000 children and adults in the United States and nearly 75,000 children and adults worldwide; Whereas a defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs, and these secretions produce life-threatening lung infections and obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food; Whereas there are approximately 900 new cases of CF each year in the United States; Whereas infant blood screening to detect genetic defects is the most reliable and least costly method to identify individuals likely to have one of 1,800 different CF mu­ta­tions; Whereas early diagnosis of CF permits early treatment and enhances quality of life, longevity, and treatment; Whereas CF impacts families as well as patients because of the intense daily disease management protocols patients must endure; Whereas there are more than 120 world-class treatment centers with highly trained and dedicated providers in the United States that specialize in delivering high-quality, coordinated care for CF patients and their families; Whereas the number of adults with CF has steadily grown and the median age of survival for a person with CF is now nearly 40 years of age in the United States; Whereas innovative precision medicines and treatments have greatly improved and extended the lives of CF patients; and Whereas May would be an appropriate month to establish as Cystic Fibrosis Awareness Month : Now, therefore, be it

That the House of Representatives— (1) supports the designation of Cystic Fibrosis Awareness Month ; (2) congratulates the CF community for their unrelenting dedication to patients; (3) recognizes that the CF care delivery system can be a model for building better care coordination in the larger health care system; (4) acknowledges the tremendous investment and scientific achievements that have significantly improved CF patients’ lives; (5) urges researchers, developers, patients and providers to do everything possible to find a cure for this deadly disease; and (6) encourages the people of the United States to observe Cystic Fibrosis Awareness Month with appropriate ceremonies and activities that promote awareness of the disease.