A resolution designating the month of May 2016 as "Cystic Fibrosis Awareness Month".

Bill: 114-sres-476
Sponsor: full_name: Sen. Markey, Edward J. [D-MA]
Introduced: 2016-05-25
Policy area: Health
Subjects: Cardiovascular and respiratory health

Commemorative events and holidays

Congressional tributes

Health programs administration and funding

Hereditary and development disorders

Medical research
Latest action: action_date: 2016-05-25
text: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S3227; text as passed Senate: CR S3175-3176)

Summaries:
action_date: 2016-05-25
action_desc: Introduced in Senate
text: <p>Designates May 2016 as Cystic Fibrosis Awareness Month. (Cystic fibrosis is an inherited disease that causes persistent lung infections and limits the ability to breathe over time.)</p> <p>Congratulates the individuals who care for patients with cystic fibrosis for their dedication.</p> <p>Recognizes that the care delivery system for cystic fibrosis can be a model for care coordination.</p> <p>Acknowledges the investments and scientific achievements that have improved the lives of individuals with cystic fibrosis.</p> <p>Urges researchers, developers, patients, and providers to work together to find a cure for this deadly disease.</p>

action_date: 2016-05-25
action_desc: Passed Senate without amendment
text: <p>(This measure has not been amended since it was introduced. The summary of that version is repeated here.)</p> <p>Designates May 2016 as Cystic Fibrosis Awareness Month. (Cystic fibrosis is an inherited disease that causes persistent lung infections and limits the ability to breathe over time.)</p> <p>Congratulates the individuals who care for patients with cystic fibrosis for their dedication.</p> <p>Recognizes that the care delivery system for cystic fibrosis can be a model for care coordination.</p> <p>Acknowledges the investments and scientific achievements that have improved the lives of individuals with cystic fibrosis.</p> <p>Urges researchers, developers, patients, and providers to work together to find a cure for this deadly disease.</p>

tv_txt: III 114th CONGRESS 2d Session S. RES. 476 IN THE SENATE OF THE UNITED STATES May 25, 2016 Mr. Markey (for himself and Mr. Grassley ) submitted the following resolution; which was considered and agreed to RESOLUTION Designating the month of May 2016 as Cystic Fibrosis Awareness Month .

Whereas cystic fibrosis (in this preamble referred to as CF ) is a genetic disease affecting more than 30,000 children and adults in the United States and more than 70,000 children and adults worldwide; Whereas, in patients with CF, a defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs, produces life-threatening lung infections, and obstructs the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food; Whereas there are approximately 1,000 new cases of CF diagnosed each year; Whereas infant blood screening to detect genetic defects is the most reliable and least costly method to identify individuals likely to have 1 of 1,800 different CF mutations; Whereas early diagnosis of CF permits early treatment and enhances quality of life, longevity, and the treatment of CF; Whereas CF impacts the families of patients because of the intense daily disease management protocols that patients must endure; Whereas, in the United States, there are more than 120 CF care centers and 55 affiliate programs with highly trained and dedicated providers that specialize in delivering high-quality, coordinated care for CF patients and their families; Whereas the number of adults with CF has steadily grown and the median age of survival for a person with CF is now nearly 40 years of age; and Whereas innovative precision medicines and treatments have greatly improved and extended the lives of patients: Now, therefore, be it

That the Senate— (1) designates the month of May 2016 as Cystic Fibrosis Awareness Month ; (2) congratulates the community of individuals who care for patients with cystic fibrosis for their unrelenting dedication to those patients; (3) recognizes that the care delivery system for cystic fibrosis can be a model for building better care coordination in the larger healthcare system; (4) acknowledges the tremendous investments and scientific achievements that have significantly improved the lives of individuals with cystic fibrosis; and (5) urges researchers, developers, patients, and providers to work together closely to find a cure for this deadly disease.