A resolution designating April 2016 as "National Congenital Diaphragmatic Hernia Awareness Month".

Bill: 114-sres-408
Sponsor: full_name: Sen. Sessions, Jeff [R-AL]
Introduced: 2016-03-17
Policy area: Health
Subjects: Birth defects

Cardiovascular and respiratory health

Child health

Commemorative events and holidays

Health promotion and preventive care

Medical research

Medical tests and diagnostic methods

Research administration and funding
Latest action: action_date: 2016-03-17
text: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1607; text as passed Senate: CR S1602)

Summaries:
action_date: 2016-03-17
action_desc: Introduced in Senate
text: <p>Designates April 2016 as National Congenital Diaphragmatic Hernia Awareness Month. (Congenital diaphragmatic hernia is a birth defect that occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth.)</p> <p>Encourages that steps should be taken to:</p> <ul> <li>raise awareness of and increase public knowledge about congenital diaphragmatic hernia (CDH);</li> <li>inform all Americans about the dangers of CDH;</li> <li>disseminate information on the importance of quality neonatal care for CDH patients;</li> <li>promote quality prenatal care and the use of ultrasounds to detect CDH in utero; and</li> <li>support research funding of CDH to improve screening and treatment, discover its causes, and develop a cure. </li> </ul>

action_date: 2016-03-17
action_desc: Passed Senate without amendment
text: <p>(This measure has not been amended since it was introduced. The summary of that version is repeated here.)</p> <p>Designates April 2016 as National Congenital Diaphragmatic Hernia Awareness Month. (Congenital diaphragmatic hernia is a birth defect that occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth.)</p> <p>Encourages that steps should be taken to:</p> <ul> <li>raise awareness of and increase public knowledge about congenital diaphragmatic hernia (CDH);</li> <li>inform all Americans about the dangers of CDH;</li> <li>disseminate information on the importance of quality neonatal care for CDH patients;</li> <li>promote quality prenatal care and the use of ultrasounds to detect CDH in utero; and</li> <li>support research funding of CDH to improve screening and treatment, discover its causes, and develop a cure. </li> </ul>

tv_txt: III 114th CONGRESS 2d Session S. RES. 408 IN THE SENATE OF THE UNITED STATES March 17, 2016 Mr. Sessions (for himself and Mr. Cardin ) submitted the following resolution; which was considered and agreed to RESOLUTION Designating April 2016 as National Congenital Diaphragmatic Hernia Awareness Month .

Whereas congenital diaphragmatic hernia (referred to in this preamble as CDH ) occurs in individuals in which the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth; Whereas the Director of the Centers for Disease Control and Prevention recognizes CDH as a birth defect; Whereas the majority of CDH patients suffer from underdeveloped lungs or poor pulmonary function; Whereas babies born with CDH endure extended hospital stays in intensive care with multiple surgeries; Whereas CDH patients often endure long-term complications, such as pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflux, feeding disorders, and developmental delays; Whereas CDH survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition, and hypoxic brain injury; Whereas CDH is treated through mechanical ventilation, a heart and lung bypass (commonly known as extracorporeal membrane oxygenation ), machines, and surgical repair; Whereas surgical repair is often not a permanent solution for CDH and can lead to reherniation and require additional surgery; Whereas CDH is diagnosed in utero in less than 50 percent of cases; Whereas infants born with CDH have a high mortality rate, ranging from 20 to 60 percent, depending on the severity of the defect and interventions available at delivery; Whereas CDH has a rate of occurrence of 1 in every 3,836 live births worldwide; Whereas in the United States, CDH affects approximately 1,088 babies each year; Whereas since 2000, CDH has affected more than 700,000 babies worldwide; Whereas CDH does not discriminate based on race, gender, or socioeconomic status; Whereas the cause of CDH is unknown; Whereas the average CDH survivor will face postnatal care that totals not less than $100,000; and Whereas Federal support for CDH research at the National Institutes of Health for 2015 is estimated to be not more than $3,300,000: Now, therefore, be it

That the Senate— (1) designates April 2016 as National Congenital Diaphragmatic Hernia Awareness Month ; (2) encourages that steps should be taken— (A) to raise awareness of and increase public knowledge about congenital diaphragmatic hernia (referred to in this resolving clause as CDH ); (B) to inform all people of the United States about the dangers of CDH, especially groups of people that may be disproportionately affected by CDH or have lower survival rates; (C) to disseminate information on the importance of quality neonatal care of CDH patients; (D) to promote quality prenatal care and ultrasounds to detect CDH in utero; and (E) to support research funding of CDH— (i) to improve screening and treatment for CDH; (ii) to discover the causes of CDH; and (iii) to develop a cure for CDH; and (3) calls on the people of the United States, interest groups, and affected persons— (A) to promote awareness of CDH; (B) to take an active role in the fight against this devastating birth defect; and (C) to observe National Congenital Diaphragmatic Hernia Awareness Month with appropriate ceremonies and activities.