Zika Pregnancy and Infant Registry Act of 2016

Bill: 114-hr-6010
Sponsor: full_name: Rep. Bilirakis, Gus M. [R-FL-12]
Introduced: 2016-09-13
Policy area: Health
Latest action: action_date: 2016-09-15
text: Sponsor introductory remarks on measure. (CR H5504)

Summaries:
action_date: 2016-09-13
action_desc: Introduced in House
text: <p><b>Zika Pregnancy and Infant Registry Act of 2016</b></p> <p>This bill amends the Public Health Service Act to require the Centers for Disease Control and Prevention to establish and maintain a registry of: (1) women who are diagnosed during pregnancy as having been infected with Zika virus, and (2) the children of such women. The registry may include information on symptoms experienced by the women and children, testing of the women and children, and development of the children.</p> Information in the registry may be made available only for research.

tv_txt: I 114th CONGRESS 2d Session H. R. 6010 IN THE HOUSE OF REPRESENTATIVES September 13, 2016 Mr. Bilirakis (for himself, Mr. Pierluisi , Mr. Posey , Mr. Sires , Mr. Curbelo of Florida , and Mr. Diaz-Balart ) introduced the following bill; which was referred to the Committee on Energy and Commerce A BILL To amend the Public Health Service Act to require the Director of the Centers for Disease Control and Prevention to establish a registry of women who are diagnosed during pregnancy as having been infected with Zika virus and the children of such women, and for other purposes.

1. Short title This Act may be cited as the Zika Pregnancy and Infant Registry Act of 2016 . 2. Zika virus patient registry Title III of the Public Health Service Act is amended by inserting after section 317T of such Act ( 42 U.S.C. 247b–22 ) the following: 317U. Zika virus patient registry (a) In general The Director of the Centers for Disease Control and Prevention (in this section referred to as the Director ) shall establish and maintain a registry of— (1) women who are diagnosed during pregnancy as having been infected with Zika virus (in this section referred to as the registry ); and (2) the children of such women. (b) Contents The registry— (1) shall include the identity of women and children described in paragraphs (1) and (2) of subsection (a); and (2) may include— (A) any symptoms and other adverse events experienced by such women and children that may be associated with Zika virus; and (B) other information pertaining to— (i) the health of women described in subsection (a)(1) and monitoring and testing of such women during pregnancy; (ii) the results of evaluation and testing at birth of children described in subsection (a)(2); and (iii) the health and development of children described in subsection (a)(2) through the first five years of life or, at the Director’s discretion, longer. (c) Availability of information only for research The Director may make information in the registry available only for research. .