Autism CARES Act of 2014

Bill: 113-hr-4631
Sponsor: full_name: Rep. Smith, Christopher H. [R-NJ-4]
Introduced: 2014-05-09
Policy area: Health
Subjects: Advisory bodies

Congressional oversight

Department of Health and Human Services

Disability assistance

Elementary and secondary education

Executive agency funding and structure

Government studies and investigations

Health programs administration and funding

Health promotion and preventive care

Hereditary and development disorders

Housing for the elderly and disabled

Medical research

Neurological disorders

Research administration and funding

Vocational and technical education
Latest action: action_date: 2014-08-08
text: Became Public Law No: 113-157.

Summaries:
action_date: 2014-05-09
action_desc: Introduced in House
text: <p>Combating Autism Reauthorization Act of 2014 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and oversee a National Autism Spectrum Disorder Initiative to implement a strategic plan for the conduct and support of research into the disorder and minimize duplication by HHS programs of other federal research activities.</p> <p>Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Autism Coordinating Committee. </p> <p>Adds members appointed by the Speaker and the minority leader of the House of Representatives, and the majority and minority leaders of the Senate, to the Interagency Autism Coordinating Committee.</p> <p>Requires the Comptroller General (GAO) to study the demographics and needs of individuals with an autism spectrum disorder, make policy recommendations, and include a survey of public and private stakeholders on the needs of adults with such a disorder, the services and resources available, and the effectiveness of the services and resources.</p>

action_date: 2014-06-23
action_desc: Reported to House with amendment(s)
text: <p>Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.</p> <p>Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.</p> <p>(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.</p> <p>(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD. </p> <p>(Sec. 5) Revises responsibilities of the Interagency Committee concerning:</p> <ul> <li> inclusion of school- and community-based interventions in the Committee summary of advances,</li> <li>monitoring of ASD research and federal services and support activities,</li> <li> recommendations to the Director of the National Institutes of Health regarding the strategic plan,</li> <li> recommendations regarding the process by which public feedback can be better integrated into ASD decisions,</li> <li>strategic plan updates and recommendations to minimize duplication, and</li> <li>reports to the President and Congress.</li> </ul> <p>Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.</p> <p>(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood. </p> <p>(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.</p>

action_date: 2014-06-24
action_desc: Passed House amended
text: <p>Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.</p> <p>Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.</p> <p>(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.</p> <p>(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD. </p> <p>(Sec. 5) Revises responsibilities of the Interagency Committee concerning:</p> <ul> <li> inclusion of school- and community-based interventions in the Committee summary of advances,</li> <li>monitoring of ASD research and federal services and support activities,</li> <li> recommendations to the Director of the National Institutes of Health regarding the strategic plan,</li> <li> recommendations regarding the process by which public feedback can be better integrated into ASD decisions,</li> <li>strategic plan updates and recommendations to minimize duplication, and</li> <li>reports to the President and Congress.</li> </ul> <p>Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.</p> <p>(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood. </p> <p>(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.</p>

action_date: 2014-07-31
action_desc: Passed Senate without amendment
text: <p><b>(This measure has not been amended since it was passed by the House on June 24, 2014. The summary of that version is repeated here.)</b></p> <p>Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.</p> <p>Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.</p> <p>(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.</p> <p>(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD. </p> <p>(Sec. 5) Revises responsibilities of the Interagency Committee concerning:</p> <ul> <li> inclusion of school- and community-based interventions in the Committee summary of advances,</li> <li>monitoring of ASD research and federal services and support activities,</li> <li> recommendations to the Director of the National Institutes of Health regarding the strategic plan,</li> <li> recommendations regarding the process by which public feedback can be better integrated into ASD decisions,</li> <li>strategic plan updates and recommendations to minimize duplication, and</li> <li>reports to the President and Congress.</li> </ul> <p>Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.</p> <p>(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood. </p> <p>(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.</p>

action_date: 2014-08-08
action_desc: Public Law
text: <p><b>(This measure has not been amended since it was passed by the House on June 24, 2014. The summary of that version is repeated here.)</b></p> <p>Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.</p> <p>Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.</p> <p>(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.</p> <p>(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD. </p> <p>(Sec. 5) Revises responsibilities of the Interagency Committee concerning:</p> <ul> <li> inclusion of school- and community-based interventions in the Committee summary of advances,</li> <li>monitoring of ASD research and federal services and support activities,</li> <li> recommendations to the Director of the National Institutes of Health regarding the strategic plan,</li> <li> recommendations regarding the process by which public feedback can be better integrated into ASD decisions,</li> <li>strategic plan updates and recommendations to minimize duplication, and</li> <li>reports to the President and Congress.</li> </ul> <p>Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.</p> <p>(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood. </p> <p>(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.</p>

tv_txt: I 113th CONGRESS 2d Session H. R. 4631 IN THE HOUSE OF REPRESENTATIVES May 9, 2014 Mr. Smith of New Jersey (for himself, Mr. Doyle , Mrs. McMorris Rodgers , Mr. Van Hollen , Mr. Sessions , Mr. Wolf , Mr. Stivers , Mr. Meehan , Mr. Moran , Mrs. Blackburn , Mr. Miller of Florida , Mrs. Walorski , Mr. Larson of Connecticut , Ms. Jackson Lee , Mr. Harper , Mr. Lance , Mr. Meadows , Mr. Marino , Mr. Deutch , Mr. Rooney , Mr. Pompeo , Mr. Aderholt , Mr. Bachus , Mr. Gibson , Mrs. Miller of Michigan , Mr. Young of Alaska , Mr. King of New York , Ms. Shea-Porter , Ms. DeLauro , Mr. Murphy of Pennsylvania , Mr. Fitzpatrick , Mr. Terry , Mr. Kelly of Pennsylvania , Mr. Yoder , and Mr. Matheson ) introduced the following bill; which was referred to the Committee on Energy and Commerce A BILL To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.

1. Short title This Act may be cited as the Combating Autism Reauthorization Act of 2014 . 2. Reauthorization of programs relating to autism (a) National Autism Spectrum Disorder Initiative Part R of title III of the Public Health Service Act ( 42 U.S.C. 280i et seq. ) is amended— (1) by redesignating sections 399AA through 399EE as sections 399BB through 399FF, respectively; and (2) by inserting before section 399BB, as redesignated, the following: 399AA. National Autism Spectrum Disorder Initiative (a) Establishment For the purposes described in subsection (b), the Secretary shall designate an official within the Department of Health and Human Services to establish and oversee a National Autism Spectrum Disorder Initiative (in this section referred to as the Initiative ). (b) Purposes The purposes of the Initiative shall be— (1) to implement a strategic plan for the conduct of, and support for, autism spectrum disorder research, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399DD(b); and (2) to ensure that autism spectrum disorder research programs and activities of the Department of Health and Human Services are not unnecessarily duplicative of other Federal research programs and activities. . (b) Developmental disabilities surveillance and research program Section 399BB of the Public Health Service Act ( 42 U.S.C. 280i ), as redesignated, is amended— (1) in subsection (a), by inserting for children and adults after reporting of State epidemiological data ; (2) in subsection (b)(1), by striking establishment of regional centers of excellence and inserting establishment or support of regional centers of excellence ; (3) in subsection (b)(2), by striking center to be established and inserting center to be established or supported ; and (4) in subsection (e), by striking 2014 and inserting 2019 . (c) Autism education, early detection, and intervention Section 399CC(g) of the Public Health Service Act ( 42 U.S.C. 280i–1 ), as redesignated, is amended by striking 2014 and inserting 2019 . (d) Interagency Autism Coordinating Committee (1) Appointment of members by congressional leaders Section 399DD(c)(1) of the Public Health Service Act ( 42 U.S.C. 280i–2(c)(1) ), as redesignated, is amended— (A) in subparagraph (D), by striking and at the end; (B) by redesignating subparagraph (E) as subparagraph (I); and (C) by inserting after subparagraph (D) the following: (E) one member appointed by the Speaker of the House of Representatives; (F) one member appointed by the majority leader of the Senate; (G) one member appointed by the minority leader of the House of Representatives; (H) one member appointed by the minority leader of the Senate; and . (2) Preventing duplication Section 399DD(b) of the Public Health Service Act ( 42 U.S.C. 280i–2(b) ), as redesignated, is amended— (A) in paragraph (5), by striking and at the end; (B) by redesignating paragraph (6) as paragraph (7); and (C) by inserting after paragraph (5) the following: (6) include in such strategic plan recommendations to ensure that autism spectrum disorder research programs and activities of the Department of Health and Human Services are not unnecessarily duplicative of other Federal research programs and activities; and . (3) Extension of sunset provision Section 399DD(f) of the Public Health Service Act ( 42 U.S.C. 280i–2 ), as redesignated, is amended by striking 2014 and inserting 2019 . (e) Report to Congress Section 399EE of the Public Health Service Act ( 42 U.S.C. 280i–3 ), as redesignated, is amended— (1) in subsection (a), by striking Combating Autism Reauthorization Act of 2011 and inserting Combating Autism Reauthorization Act of 2014 ; and (2) in subsection (b)— (A) in paragraph (1), by striking provisions of the Combating Autism Act of 2006 and inserting provisions of this part, section 404H, and section 409C ; (B) in paragraph (2), by striking provisions of Combating Autism Act of 2006 and inserting provisions of this part, section 404H, and section 409C ; (C) in paragraph (3), by striking Combating Autism Act of 2006 and inserting Combating Autism Reauthorization Act of 2011 ; (D) in paragraphs (4) and (5), by striking over the 6-year period beginning on each place it appears and inserting since ; (E) in paragraph (8), by striking and at the end; (F) in paragraph (9), by striking the period at the end and inserting ; and ; and (G) by adding at the end the following: (10) a description of the actions taken to implement, and the progress made on implementation, of the strategic plan developed by the Interagency Autism Coordinating Committee. . (f) Authorization of appropriations Section 399FF of the Public Health Service Act ( 42 U.S.C. 280i–4 ), as redesignated, is amended— (1) in subsection (a)— (A) by striking 399AA and inserting 399BB ; and (B) by striking fiscal years 2012 through 2014 and inserting fiscal years 2015 through 2019 ; (2) in subsection (b)— (A) by striking 399BB and inserting 399CC ; and (B) by striking fiscal years 2011 through 2014 and inserting fiscal years 2015 through 2019 ; and (3) in subsection (c)— (A) by striking 399CC and inserting 399DD ; and (B) by striking $161,000,000 for each of fiscal years 2011 through 2014 and inserting $190,000,000 for each of fiscal years 2015 through 2019 . 3. Report to Congress on demographics and needs of adults with autism spectrum disorder (a) In general Not later than 24 months after the date of enactment of this Act, the Comptroller General of the United States shall complete a study and submit to the Congress a report on the demographics and needs, if any, of individuals in the United States with an autism spectrum disorder (in this section referred to as ASD ). (b) Issues To Be addressed The study and report under subsection (a) shall— (1) address the demographics of individuals with ASD making the transition from a school-based support system to adulthood; (2) address the needs, if any, of adults with ASD with respect to— (A) community integration; (B) housing and residential supports; (C) employment; (D) transportation; (E) vocational training and rehabilitation; (F) continued education; (G) health care and social services; (H) speech therapy; (I) public safety; and (J) day habilitation activities, including those to provide a safe, respectful, and stimulating environment that allows participants to become active members of their community; (3) provide an overview of Federal, State, and local government policies and programs, and any available private (including private nonprofit) sector assistance, for addressing the needs identified in paragraph (2); and (4) provide policy recommendations to— (A) improve outcomes for adults with ASD making the transition from a school-based support system to adulthood; (B) enhance the effectiveness of the policies, programs, and assistance described in paragraph (3); (C) ensure integration of and collaboration among services for addressing the needs of adults with ASD; and (D) encourage independent living, equal opportunity, full participation, and economic self-sufficiency. (c) Survey (1) In general In carrying out this section, the Comptroller General shall conduct a survey of public and private sector stakeholders on— (A) the needs, if any, of adults with ASD; (B) the services and resources available for addressing such needs; and (C) the effectiveness of such services and resources. (2) Stakeholders The stakeholders to be surveyed under paragraph (1) include the following: (A) Individuals from the business community representing both large and small businesses. (B) Institutions of higher education, community colleges, vocational schools, and university centers for excellence in developmental disabilities. (C) Social service providers, including case management experts and health care providers. (D) Vocational rehabilitation experts. (E) State and local housing departments and nonprofit organizations that provide housing services for individuals with disabilities. (F) Individuals with ASD, parents of individuals with ASD, and representatives from advocacy groups that focus on individuals with ASD. (G) Officials or employees of the Federal Government responsible for overseeing disability services at each of the following departments and agencies: (i) The Department of Health and Human Services, including the Administration for Children and Families, the Centers for Disease Control and Prevention, the Centers for Medicare & Medicaid Services, the Health Resources and Services Administration, and the Administration for Community Living. (ii) The Department of Education. (iii) The Department of Housing and Urban Development. (iv) The Department of Labor. (v) The Department of Justice. (vi) The Department of Transportation. (vii) Any other Federal departments and agencies determined appropriate by the Comptroller General.

tv_txt: II 113th CONGRESS 2d Session H. R. 4631 IN THE SENATE OF THE UNITED STATES June 25, 2014 Received AN ACT To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.

1. Short title This Act may be cited as the Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 . 2. National Autism Spectrum Disorder Initiative (a) In general The Secretary of Health and Human Services shall designate an existing official within the Department of Health and Human Services to oversee, in consultation with the Secretaries of Defense and Education, national autism spectrum disorder research, services, and support activities. (b) Duties The official designated under subsection (a) shall— (1) implement autism spectrum disorder activities, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b) of the Public Health Service Act ( 42 U.S.C. 280i–2(b) ); and (2) ensure that autism spectrum disorder activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative. 3. Research program Section 399AA of the Public Health Service Act ( 42 U.S.C. 280i ) is amended— (1) in subsection (a)(1), by inserting for children and adults after reporting of State epidemiological data ; (2) in subsection (b)(1)— (A) by striking establishment of regional centers of excellence and inserting establishment or support of regional centers of excellence ; and (B) by inserting for children and adults before the period at the end; (3) in subsection (b)(2), by striking center to be established and inserting center to be established or supported ; and (4) in subsection (e), by striking 2014 and inserting 2019 . 4. Autism intervention Section 399BB of the Public Health Service Act ( 42 U.S.C. 280i–1 ) is amended— (1) in subsection (b)(1), by inserting culturally competent after provide ; (2) in subsection (c)(2)(A)(ii), by inserting (which may include respite care for caregivers of individuals with an autism spectrum disorder) after services and supports ; (3) in subsection (e)(1)(B)(v), by inserting before the semicolon the following: , which may include collaborating with research centers or networks to provide training for providers of respite care (as defined in section 2901) ; (4) in subsection (f), by striking grants or contracts and all that follows through for individuals with and inserting grants or contracts, which may include grants or contracts to research centers or networks, to determine the evidence-based practices for interventions to improve the physical and behavioral health of individuals with ; and (5) in subsection (g), by striking 2014 and inserting 2019 . 5. Interagency Autism Coordinating Committee Section 399CC of the Public Health Service Act ( 42 U.S.C. 280i–2 ) is amended— (1) in subsection (b)— (A) in paragraph (1)— (i) by striking and annually update ; and (ii) by striking intervention and inserting interventions, including school and community-based interventions ; (B) by striking paragraph (2); (C) by redesignating paragraph (1) as paragraph (2), and inserting before such redesignated paragraph the following: (1) monitor autism spectrum disorder research, and to the extent practicable services and support activities, across all relevant Federal departments and agencies, including coordination of Federal activities with respect to autism spectrum disorder; ; (D) in paragraph (3), by striking recommendations to the Director of NIH ; (E) in paragraph (4), by inserting before the semicolon the following: , and the process by which public feedback can be better integrated into such decisions ; and (F) by striking paragraphs (5) and (6) and inserting the following: (5) develop a strategic plan for the conduct of, and support for, autism spectrum disorder research, including as practicable for services and supports, for individuals with an autism spectrum disorder and the families of such individuals, which shall include— (A) proposed budgetary requirements; and (B) recommendations to ensure that autism spectrum disorder research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and (6) submit to Congress and the President— (A) an annual update on the summary of advances described in paragraph (2); and (B) an annual update to the strategic plan described in paragraph (5), including any progress made in achieving the goals outlined in such strategic plan. ; (2) in subsection (c)— (A) in paragraph (1)— (i) by striking the paragraph designation, the heading, and the matter preceding subparagraph (A) and inserting the following: (1) Federal membership The Committee shall be composed of the following Federal members— ; (ii) in subparagraph (C)— (I) by inserting , such as the Administration for Community Living, Administration for Children and Families, the Centers for Medicare & Medicaid Services, the Food and Drug Administration, and the Health Resources and Services Administration before the semicolon at the end; and (II) by adding at the end and ; (iii) in subparagraph (D)— (I) by inserting and the Department of Defense after Department of Education ; and (II) by striking at the end ; and and inserting a period; and (iv) by striking subparagraph (E); (B) in paragraph (2)— (i) in the paragraph heading, by striking Additional and inserting Non-Federal ; (ii) in the matter preceding subparagraph (A), by striking Not fewer than 6 members of the Committee, or 1/3 of the total membership of the Committee, whichever is greater and inserting Not more than 1/2 , but not fewer than 1/3 , of the total membership of the Committee ; (iii) in subparagraph (A), by striking one such member shall be an individual and inserting two such members shall be individuals ; (iv) in subparagraph (B), by striking one such member shall be a parent or legal guardian and inserting two such members shall be parents or legal guardians ; and (v) in subparagraph (C), by striking one such member shall be a representative and inserting two such members shall be representatives ; and (C) by adding at the end the following: (3) Period of appointment; vacancies (A) Period of appointment for Non-Federal members Non-Federal members shall serve for a term of 4 years, and may be reappointed for one or more additional 4-year terms. (B) Vacancies A vacancy on the Committee shall be filled in the manner in which the original appointment was made and shall not affect the powers or duties of the Committee. Any member appointed to fill a vacancy for an unexpired term shall be appointed for the remainder of such term. A member may serve after the expiration of the member’s term until a successor has been appointed. ; (3) in subsection (d)— (A) by striking paragraph (2); and (B) by redesignating paragraphs (3) and (4) as paragraphs (2) and (3), respectively; and (4) in subsection (f), by striking 2014 and inserting 2019 . 6. Reports Section 399DD of the Public Health Service Act ( 42 U.S.C. 280i–3 ) is amended— (1) in the section heading, by striking Report and inserting Reports ; (2) in subsection (b), by redesignating paragraphs (1) through (9) as subparagraphs (A) through (I), respectively, and realigning the margins accordingly; (3) by redesignating subsections (a) and (b) as paragraphs (1) and (2), respectively, and realigning the margins accordingly; (4) by inserting after the section heading the following: (a) Progress report ; (5) in subsection (a)(1) (as so redesignated)— (A) by striking 2 years after the date of enactment of the Combating Autism Reauthorization Act of 2011 and inserting 4 years after the date of enactment of the Autism CARES Act of 2014 ; (B) by inserting and the Secretary of Defense after the Secretary of Education ; and (C) by inserting , and make publicly available, including through posting on the Internet Web site of the Department of Health and Human Services, after Representatives ; and (6) in subsection (a)(2) (as so redesignated)— (A) in subparagraph (A), (as so redesignated), by striking Combating Autism Act of 2006 and inserting Autism CARES Act of 2014 ; (B) in subparagraph (B) (as so redesignated), by striking particular provisions of Combating Autism Act of 2006 and inserting amendments made by the Autism CARES Act of 2014 ; (C) by striking subparagraph (C) (as so redesignated), and inserting the following: (C) information on the incidence and prevalence of autism spectrum disorder, including available information on the prevalence of autism spectrum disorder among children and adults, and identification of any changes over time with respect to the incidence and prevalence of autism spectrum disorder; ; (D) in subparagraph (D) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across population subgroups ; (E) in subparagraph (E) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across population subgroups ; (F) in subparagraph (F) (as so redesignated), by inserting and, as appropriate, on how such average time varies across population subgroups before the semicolon at the end; (G) in subparagraph (G) (as so redesignated)— (i) by striking including by various subtypes, and inserting including by severity level as practicable, ; and (ii) by striking child may and inserting child or other factors, such as demographic characteristics, may ; and (H) by striking subparagraph (I) (as so redesignated), and inserting the following: (I) a description of the actions taken to implement and the progress made on implementation of the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b). ; and (7) by adding at the end the following new subsection: (b) Report on young adults and transitioning youth (1) In general Not later than 2 years after the date of enactment of the Autism CARES Act of 2014, the Secretary of Health and Human Services, in coordination with the Secretary of Education and in collaboration with the Secretary of Transportation, the Secretary of Labor, the Secretary of Housing and Urban Development, and the Attorney General, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood. (2) Contents The report submitted under paragraph (1) shall contain— (A) demographic characteristics of youth transitioning from school-based to community-based supports; (B) an overview of policies and programs relevant to young adults with autism spectrum disorder relating to post-secondary school transitional services, including an identification of existing Federal laws, regulations, policies, research, and programs; (C) proposals on establishing best practices guidelines to ensure— (i) interdisciplinary coordination between all relevant service providers receiving Federal funding; (ii) coordination with transitioning youth and the family of such transitioning youth; and (iii) inclusion of the individualized education program for the transitioning youth, as prescribed in section 614 of the Individuals with Disabilities Education Act ( 20 U.S.C. 1414 ); (D) comprehensive approaches to transitioning from existing school-based services to those services available during adulthood, including— (i) services that increase access to, and improve integration and completion of, post-secondary education, peer support, vocational training (as defined in section 103 of the Rehabilitation Act of 1973 ( 29 U.S.C. 723 )), rehabilitation, self-advocacy skills, and competitive, integrated employment; (ii) community-based behavioral supports and interventions; (iii) community-based integrated residential services, housing, and transportation; (iv) nutrition, health and wellness, recreational, and social activities; (v) personal safety services for individuals with autism spectrum disorder related to public safety agencies or the criminal justice system; and (vi) evidence-based approaches for coordination of resources and services once individuals have aged out of post-secondary education; and (E) proposals that seek to improve outcomes for adults with autism spectrum disorder making the transition from a school-based support system to adulthood by— (i) increasing the effectiveness of programs that provide transition services; (ii) increasing the ability of the relevant service providers described in subparagraph (C) to provide supports and services to underserved populations and regions; (iii) increasing the efficiency of service delivery to maximize resources and outcomes, including with respect to the integration of and collaboration among services for transitioning youth; (iv) ensuring access to all services necessary to transitioning youth of all capabilities; and (v) encouraging transitioning youth to utilize all available transition services to maximize independence, equal opportunity, full participation, and self-sufficiency. . 7. Authorization of appropriations Section 399EE of the Public Health Service Act ( 42 U.S.C. 280i–4 ) is amended— (1) in subsection (a), by striking fiscal years 2012 through 2014 and inserting fiscal years 2015 through 2019 ; (2) in subsection (b), by striking fiscal years 2011 through 2014 and inserting fiscal years 2015 through 2019 ; and (3) in subsection (c), by striking $161,000,000 for each of fiscal years 2011 through 2014 and inserting $190,000,000 for each of fiscal years 2015 through 2019 .

Passed the House of Representatives June 24, 2014. Karen L. Haas, Clerk

tv_txt: I 113th CONGRESS 2d Session H. R. 4631 IN THE HOUSE OF REPRESENTATIVES AN ACT To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.

1. Short title This Act may be cited as the Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 . 2. National Autism Spectrum Disorder Initiative (a) In general The Secretary of Health and Human Services shall designate an existing official within the Department of Health and Human Services to oversee, in consultation with the Secretaries of Defense and Education, national autism spectrum disorder research, services, and support activities. (b) Duties The official designated under subsection (a) shall— (1) implement autism spectrum disorder activities, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b) of the Public Health Service Act ( 42 U.S.C. 280i–2(b) ); and (2) ensure that autism spectrum disorder activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative. 3. Research program Section 399AA of the Public Health Service Act ( 42 U.S.C. 280i ) is amended— (1) in subsection (a)(1), by inserting for children and adults after reporting of State epidemiological data ; (2) in subsection (b)(1)— (A) by striking establishment of regional centers of excellence and inserting establishment or support of regional centers of excellence ; and (B) by inserting for children and adults before the period at the end; (3) in subsection (b)(2), by striking center to be established and inserting center to be established or supported ; and (4) in subsection (e), by striking 2014 and inserting 2019 . 4. Autism intervention Section 399BB of the Public Health Service Act ( 42 U.S.C. 280i–1 ) is amended— (1) in subsection (b)(1), by inserting culturally competent after provide ; (2) in subsection (c)(2)(A)(ii), by inserting (which may include respite care for caregivers of individuals with an autism spectrum disorder) after services and supports ; (3) in subsection (e)(1)(B)(v), by inserting before the semicolon the following: , which may include collaborating with research centers or networks to provide training for providers of respite care (as defined in section 2901) ; (4) in subsection (f), by striking grants or contracts and all that follows through for individuals with and inserting grants or contracts, which may include grants or contracts to research centers or networks, to determine the evidence-based practices for interventions to improve the physical and behavioral health of individuals with ; and (5) in subsection (g), by striking 2014 and inserting 2019 . 5. Interagency Autism Coordinating Committee Section 399CC of the Public Health Service Act ( 42 U.S.C. 280i–2 ) is amended— (1) in subsection (b)— (A) in paragraph (1)— (i) by striking and annually update ; and (ii) by striking intervention and inserting interventions, including school and community-based interventions ; (B) by striking paragraph (2); (C) by redesignating paragraph (1) as paragraph (2), and inserting before such redesignated paragraph the following: (1) monitor autism spectrum disorder research, and to the extent practicable services and support activities, across all relevant Federal departments and agencies, including coordination of Federal activities with respect to autism spectrum disorder; ; (D) in paragraph (3), by striking recommendations to the Director of NIH ; (E) in paragraph (4), by inserting before the semicolon the following: , and the process by which public feedback can be better integrated into such decisions ; and (F) by striking paragraphs (5) and (6) and inserting the following: (5) develop a strategic plan for the conduct of, and support for, autism spectrum disorder research, including as practicable for services and supports, for individuals with an autism spectrum disorder and the families of such individuals, which shall include— (A) proposed budgetary requirements; and (B) recommendations to ensure that autism spectrum disorder research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and (6) submit to Congress and the President— (A) an annual update on the summary of advances described in paragraph (2); and (B) an annual update to the strategic plan described in paragraph (5), including any progress made in achieving the goals outlined in such strategic plan. ; (2) in subsection (c)— (A) in paragraph (1)— (i) by striking the paragraph designation, the heading, and the matter preceding subparagraph (A) and inserting the following: (1) Federal membership The Committee shall be composed of the following Federal members— ; (ii) in subparagraph (C)— (I) by inserting , such as the Administration for Community Living, Administration for Children and Families, the Centers for Medicare & Medicaid Services, the Food and Drug Administration, and the Health Resources and Services Administration before the semicolon at the end; and (II) by adding at the end and ; (iii) in subparagraph (D)— (I) by inserting and the Department of Defense after Department of Education ; and (II) by striking at the end ; and and inserting a period; and (iv) by striking subparagraph (E); (B) in paragraph (2)— (i) in the paragraph heading, by striking Additional and inserting Non-Federal ; (ii) in the matter preceding subparagraph (A), by striking Not fewer than 6 members of the Committee, or 1/3 of the total membership of the Committee, whichever is greater and inserting Not more than 1/2 , but not fewer than 1/3 , of the total membership of the Committee ; (iii) in subparagraph (A), by striking one such member shall be an individual and inserting two such members shall be individuals ; (iv) in subparagraph (B), by striking one such member shall be a parent or legal guardian and inserting two such members shall be parents or legal guardians ; and (v) in subparagraph (C), by striking one such member shall be a representative and inserting two such members shall be representatives ; and (C) by adding at the end the following: (3) Period of appointment; vacancies (A) Period of appointment for Non-Federal members Non-Federal members shall serve for a term of 4 years, and may be reappointed for one or more additional 4-year terms. (B) Vacancies A vacancy on the Committee shall be filled in the manner in which the original appointment was made and shall not affect the powers or duties of the Committee. Any member appointed to fill a vacancy for an unexpired term shall be appointed for the remainder of such term. A member may serve after the expiration of the member’s term until a successor has been appointed. ; (3) in subsection (d)— (A) by striking paragraph (2); and (B) by redesignating paragraphs (3) and (4) as paragraphs (2) and (3), respectively; and (4) in subsection (f), by striking 2014 and inserting 2019 . 6. Reports Section 399DD of the Public Health Service Act ( 42 U.S.C. 280i–3 ) is amended— (1) in the section heading, by striking Report and inserting Reports ; (2) in subsection (b), by redesignating paragraphs (1) through (9) as subparagraphs (A) through (I), respectively, and realigning the margins accordingly; (3) by redesignating subsections (a) and (b) as paragraphs (1) and (2), respectively, and realigning the margins accordingly; (4) by inserting after the section heading the following: (a) Progress report ; (5) in subsection (a)(1) (as so redesignated)— (A) by striking 2 years after the date of enactment of the Combating Autism Reauthorization Act of 2011 and inserting 4 years after the date of enactment of the Autism CARES Act of 2014 ; (B) by inserting and the Secretary of Defense after the Secretary of Education ; and (C) by inserting , and make publicly available, including through posting on the Internet Web site of the Department of Health and Human Services, after Representatives ; and (6) in subsection (a)(2) (as so redesignated)— (A) in subparagraph (A), (as so redesignated), by striking Combating Autism Act of 2006 and inserting Autism CARES Act of 2014 ; (B) in subparagraph (B) (as so redesignated), by striking particular provisions of Combating Autism Act of 2006 and inserting amendments made by the Autism CARES Act of 2014 ; (C) by striking subparagraph (C) (as so redesignated), and inserting the following: (C) information on the incidence and prevalence of autism spectrum disorder, including available information on the prevalence of autism spectrum disorder among children and adults, and identification of any changes over time with respect to the incidence and prevalence of autism spectrum disorder; ; (D) in subparagraph (D) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across population subgroups ; (E) in subparagraph (E) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across population subgroups ; (F) in subparagraph (F) (as so redesignated), by inserting and, as appropriate, on how such average time varies across population subgroups before the semicolon at the end; (G) in subparagraph (G) (as so redesignated)— (i) by striking including by various subtypes, and inserting including by severity level as practicable, ; and (ii) by striking child may and inserting child or other factors, such as demographic characteristics, may ; and (H) by striking subparagraph (I) (as so redesignated), and inserting the following: (I) a description of the actions taken to implement and the progress made on implementation of the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b). ; and (7) by adding at the end the following new subsection: (b) Report on young adults and transitioning youth (1) In general Not later than 2 years after the date of enactment of the Autism CARES Act of 2014, the Secretary of Health and Human Services, in coordination with the Secretary of Education and in collaboration with the Secretary of Transportation, the Secretary of Labor, the Secretary of Housing and Urban Development, and the Attorney General, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood. (2) Contents The report submitted under paragraph (1) shall contain— (A) demographic characteristics of youth transitioning from school-based to community-based supports; (B) an overview of policies and programs relevant to young adults with autism spectrum disorder relating to post-secondary school transitional services, including an identification of existing Federal laws, regulations, policies, research, and programs; (C) proposals on establishing best practices guidelines to ensure— (i) interdisciplinary coordination between all relevant service providers receiving Federal funding; (ii) coordination with transitioning youth and the family of such transitioning youth; and (iii) inclusion of the individualized education program for the transitioning youth, as prescribed in section 614 of the Individuals with Disabilities Education Act ( 20 U.S.C. 1414 ); (D) comprehensive approaches to transitioning from existing school-based services to those services available during adulthood, including— (i) services that increase access to, and improve integration and completion of, post-secondary education, peer support, vocational training (as defined in section 103 of the Rehabilitation Act of 1973 ( 29 U.S.C. 723 )), rehabilitation, self-advocacy skills, and competitive, integrated employment; (ii) community-based behavioral supports and interventions; (iii) community-based integrated residential services, housing, and transportation; (iv) nutrition, health and wellness, recreational, and social activities; (v) personal safety services for individuals with autism spectrum disorder related to public safety agencies or the criminal justice system; and (vi) evidence-based approaches for coordination of resources and services once individuals have aged out of post-secondary education; and (E) proposals that seek to improve outcomes for adults with autism spectrum disorder making the transition from a school-based support system to adulthood by— (i) increasing the effectiveness of programs that provide transition services; (ii) increasing the ability of the relevant service providers described in subparagraph (C) to provide supports and services to underserved populations and regions; (iii) increasing the efficiency of service delivery to maximize resources and outcomes, including with respect to the integration of and collaboration among services for transitioning youth; (iv) ensuring access to all services necessary to transitioning youth of all capabilities; and (v) encouraging transitioning youth to utilize all available transition services to maximize independence, equal opportunity, full participation, and self-sufficiency. . 7. Authorization of appropriations Section 399EE of the Public Health Service Act ( 42 U.S.C. 280i–4 ) is amended— (1) in subsection (a), by striking fiscal years 2012 through 2014 and inserting fiscal years 2015 through 2019 ; (2) in subsection (b), by striking fiscal years 2011 through 2014 and inserting fiscal years 2015 through 2019 ; and (3) in subsection (c), by striking $161,000,000 for each of fiscal years 2011 through 2014 and inserting $190,000,000 for each of fiscal years 2015 through 2019 .

Passed the House of Representatives June 24, 2014. Karen L. Haas, Clerk.

tv_txt: IB Union Calendar No. 365 113th CONGRESS 2d Session H. R. 4631 [Report No. 113–490] IN THE HOUSE OF REPRESENTATIVES May 9, 2014 Mr. Smith of New Jersey (for himself, Mr. Doyle , Mrs. McMorris Rodgers , Mr. Van Hollen , Mr. Sessions , Mr. Wolf , Mr. Stivers , Mr. Meehan , Mr. Moran , Mrs. Blackburn , Mr. Miller of Florida , Mrs. Walorski , Mr. Larson of Connecticut , Ms. Jackson Lee , Mr. Harper , Mr. Lance , Mr. Meadows , Mr. Marino , Mr. Deutch , Mr. Rooney , Mr. Pompeo , Mr. Aderholt , Mr. Bachus , Mr. Gibson , Mrs. Miller of Michigan , Mr. Young of Alaska , Mr. King of New York , Ms. Shea-Porter , Ms. DeLauro , Mr. Murphy of Pennsylvania , Mr. Fitzpatrick , Mr. Terry , Mr. Kelly of Pennsylvania , Mr. Yoder , and Mr. Matheson ) introduced the following bill; which was referred to the Committee on Energy and Commerce June 23, 2014 Additional sponsors: Mr. Roe of Tennessee , Ms. Jenkins , Mr. McGovern , Mr. Israel , Ms. Slaughter , Mr. Vargas , Mr. David Scott of Georgia , Mr. Grimm , Mr. Fortenberry , Mr. Bishop of Georgia , Ms. Norton , Ms. Roybal-Allard , Mr. Ellison , Mr. Carson of Indiana , Mr. Schock , Mr. Daines , Mr. Quigley , Mrs. Capito , Mr. Huffman , Mr. Fattah , Mr. McIntyre , Mr. Lipinski , Mr. Peterson , Mr. Bilirakis , Mr. Shimkus , Mr. Roskam , Mr. Burgess , Mr. Gerlach , Ms. Schwartz , Mr. Holding , Mrs. Carolyn B. Maloney of New York , Mr. Braley of Iowa , Mr. Schiff , Ms. Kaptur , Mr. Griffin of Arkansas , Mr. Heck of Nevada , Mr. McKeon , Mrs. McCarthy of New York , Mr. Carney , Mr. Welch , Ms. Esty , Ms. Eshoo , Mr. Kennedy , Mr. Sensenbrenner , Mr. Joyce , Mr. Kline , Mr. Walz , Mrs. Bustos , Mr. Holt , Mr. Barletta , Ms. Bass , and Ms. Duckworth June 23, 2014 Reported with an amendment, committed to the Committee of the Whole House on the State of the Union, and ordered to be printed Strike out all after the enacting clause and insert the part printed in italic For text of introduced bill, see copy of bill as introduced on May 9, 2014 A BILL To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.

1. Short title This Act may be cited as the Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 . 2. National Autism Spectrum Disorder Initiative (a) In general The Secretary of Health and Human Services shall designate an existing official within the Department of Health and Human Services to oversee, in consultation with the Secretaries of Defense and Education, national autism spectrum disorder research, services, and support activities. (b) Duties The official designated under subsection (a) shall— (1) implement autism spectrum disorder activities, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b) of the Public Health Service Act ( 42 U.S.C. 280i–2(b) ); and (2) ensure that autism spectrum disorder activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative. 3. Research program Section 399AA of the Public Health Service Act ( 42 U.S.C. 280i ) is amended— (1) in subsection (a)(1), by inserting for children and adults after reporting of State epidemiological data ; (2) in subsection (b)(1)— (A) by striking establishment of regional centers of excellence and inserting establishment or support of regional centers of excellence ; and (B) by inserting for children and adults before the period at the end; (3) in subsection (b)(2), by striking center to be established and inserting center to be established or supported ; and (4) in subsection (e), by striking 2014 and inserting 2019 . 4. Autism intervention Section 399BB of the Public Health Service Act ( 42 U.S.C. 280i–1 ) is amended— (1) in subsection (b)(1), by inserting culturally competent after provide ; (2) in subsection (c)(2)(A)(ii), by inserting (which may include respite care for caregivers of individuals with an autism spectrum disorder) after services and supports ; (3) in subsection (e)(1)(B)(v), by inserting before the semicolon the following: , which may include collaborating with research centers or networks to provide training for providers of respite care (as defined in section 2901) ; (4) in subsection (f), by striking grants or contracts and all that follows through for individuals with and inserting grants or contracts, which may include grants or contracts to research centers or networks, to determine the evidence-based practices for interventions to improve the physical and behavioral health of individuals with ; and (5) in subsection (g), by striking 2014 and inserting 2019 . 5. Interagency Autism Coordinating Committee Section 399CC of the Public Health Service Act ( 42 U.S.C. 280i–2 ) is amended— (1) in subsection (b)— (A) in paragraph (1)— (i) by striking and annually update ; and (ii) by striking intervention and inserting interventions, including school and community-based interventions ; (B) by striking paragraph (2); (C) by redesignating paragraph (1) as paragraph (2), and inserting before such redesignated paragraph the following: (1) monitor autism spectrum disorder research, and to the extent practicable services and support activities, across all Federal departments and agencies, including coordination of Federal activities with respect to autism spectrum disorder; ; (D) in paragraph (3), by striking recommendations to the Director of NIH ; (E) in paragraph (4), by inserting before the semicolon the following: , and the process by which public feedback can be better integrated into such decisions ; and (F) by striking paragraphs (5) and (6) and inserting the following: (5) develop a strategic plan for the conduct of, and support for, autism spectrum disorder research and services and supports for individuals with an autism spectrum disorder and the families of such individuals, which shall include— (A) proposed budgetary requirements; and (B) recommendations to ensure that autism spectrum disorder research, services, and support activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and (6) submit to Congress and the President— (A) an annual update on the summary of advances described in paragraph (2); and (B) an annual update to the strategic plan described in paragraph (5), including any progress made in achieving the goals outlined in such strategic plan. ; (2) in subsection (c)— (A) in paragraph (1)— (i) by striking the paragraph designation, the heading, and the matter preceding subparagraph (A) and inserting the following: (1) Federal membership The Committee shall be composed of the following Federal members— ; (ii) in subparagraph (C)— (I) by inserting , such as the Administration for Community Living, Administration for Children and Families, the Centers for Medicare & Medicaid Services, the Food and Drug Administration, and the Health Resources and Services Administration before the semicolon at the end; and (II) by adding at the end and ; (iii) in subparagraph (D)— (I) by inserting and the Department of Defense after Department of Education ; and (II) by striking at the end ; and and inserting a period; and (iv) by striking subparagraph (E); (B) in paragraph (2)— (i) in the paragraph heading, by striking Additional and inserting Non-Federal ; (ii) in the matter preceding subparagraph (A), by striking Not fewer than 6 members of the Committee, or 1/3 of the total membership of the Committee, whichever is greater and inserting Not more than ½, but not fewer than 1/3, of the total membership of the Committee ; (iii) in subparagraph (A), by striking one such member shall be an individual and inserting two such members shall be individuals ; (iv) in subparagraph (B), by striking one such member shall be a parent or legal guardian and inserting two such members shall be parents or legal guardians ; and (v) in subparagraph (C), by striking one such member shall be a representative and inserting two such members shall be representatives ; and (C) by adding at the end the following: (3) Period of appointment; vacancies (A) Period of appointment for Non-Federal members Non-Federal members shall serve for a term of 4 years, and may be reappointed for one or more additional 4-year terms. (B) Vacancies A vacancy on the Committee shall be filled in the manner in which the original appointment was made and shall not affect the power or duties of the Committee. Any member appointed to fill a vacancy for an unexpired term shall be appointed for the remainder of such term. A member may serve after the expiration of the member’s term until a successor has been appointed. ; (3) in subsection (d)— (A) by striking paragraph (2); and (B) by redesignating paragraphs (3) and (4) as paragraphs (2) and (3), respectively; and (4) in subsection (f), by striking 2014 and inserting 2019 . 6. Reports Section 399DD of the Public Health Service Act ( 42 U.S.C. 280i–3 ) is amended— (1) in the section heading, by striking Report and inserting Reports ; (2) in subsection (b), by redesignating paragraphs (1) through (9) as subparagraphs (A) through (I), respectively, and realigning the margins accordingly; (3) by redesignating subsections (a) and (b) as paragraphs (1) and (2), respectively, and realigning the margins accordingly; (4) by inserting after the section heading the following: (a) Progress report ; (5) in subsection (a)(1) (as so redesignated)— (A) by striking 2 years after the date of enactment of the Combating Autism Reauthorization Act of 2011 and inserting 4 years after the date of enactment of the Autism CARES Act of 2014 ; (B) by inserting and the Secretary of Defense after the Secretary of Education ; and (C) by inserting , and make publicly available, including through posting on the Internet Web site of the Department of Health and Human Services, after Representatives ; and (6) in subsection (a)(2) (as so redesignated)— (A) in subparagraph (A), (as so redesignated), by striking Combating Autism Act of 2006 and inserting Autism CARES Act of 2014 ; (B) in subparagraph (B) (as so redesignated), by striking particular provisions of Combating Autism Act of 2006 and inserting amendments made by the Autism CARES Act of 2014 ; (C) by striking subparagraph (C) (as so redesignated), and inserting the following: (C) information on the incidence and prevalence of autism spectrum disorder, including available information on the prevalence of autism spectrum disorder among children and adults, and identification of any changes over time with respect to the incidence and prevalence of autism spectrum disorder; ; (D) in subparagraph (D) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across populations subgroups ; (E) in subparagraph (E) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across populations subgroups ; (F) in subparagraph (F) (as so redesignated), by inserting and, as appropriate, on how such average time varies across populations subgroups before the semicolon at the end; (G) in subparagraph (G) (as so redesignated)— (i) by striking including by various subtypes, and inserting including by severity level as practicable, ; and (ii) by striking child may and inserting child or other factors, such as demographic characteristics, may ; and (H) by striking subparagraph (I) (as so redesignated), and inserting the following: (I) a description of the actions taken to implement and the progress made on implementation of the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b). ; and (7) by adding at the end the following new subsection: (b) Report on young adults and transitioning youth (1) In general Not later than 2 years after the date of enactment of the Autism CARES Act of 2014, the Secretary, in coordination with the Secretary of Education and in collaboration with the Secretary of Transportation, the Secretary of Labor, the Secretary of Housing and Urban Development, and the Attorney General, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood. (2) Contents The report submitted under paragraph (1) shall contain— (A) demographic characteristics of youth transitioning from school-based to community-based supports; (B) an overview of policies and programs relevant to young adults with autism spectrum disorder relating to post-secondary school transitional services, including an identification of existing Federal laws, regulations, policies, research, and programs; (C) proposals on establishing best practices guidelines to ensure— (i) interdisciplinary coordination between all relevant service providers receiving Federal funding; (ii) coordination with transitioning youth and the family of such transitioning youth; and (iii) inclusion of the individualized education program for the transitioning youth, as prescribed in section 614 of the Individuals with Disabilities Education Act ( 20 U.S.C. 1414 ); (D) comprehensive approaches to transitioning from existing school-based services to those services available during adulthood, including— (i) services that increase access to, and improve integration and completion of, post-secondary education, peer support, vocational training (as defined in section 103 of the Rehabilitation Act of 1973 ( 29 U.S.C. 723 )), rehabilitation, self-advocacy skills, and competitive, integrated employment; (ii) community-based behavioral supports and interventions; (iii) community-based integrated residential services, housing, and transportation; (iv) nutrition, health and wellness, recreational, and social activities; (v) personal safety services for individuals with autism spectrum disorder related to public safety agencies or the criminal justice system; and (vi) evidence-based approaches for coordination of resources and services once individuals have aged out of post-secondary education; and (E) proposals that seek to improve outcomes for adults with autism spectrum disorder making the transition from a school-based support system to adulthood by— (i) increasing the effectiveness of programs that provide transition services; (ii) increasing the ability of the relevant service providers described in subparagraph (C) to provide supports and services to underserved populations and regions; (iii) increasing the efficiency of service delivery to maximize resources and outcomes, including with respect to the integration of and collaboration among services for transitioning youth; (iv) ensuring access to all services necessary to transitioning youth of all capabilities; and (v) encouraging transitioning youth to utilize all available transition services to maximize independence, equal opportunity, full participation, and self-sufficiency. . 7. Authorization of appropriations Section 399EE of the Public Health Service Act ( 42 U.S.C. 280i–4 ) is amended— (1) in subsection (a), by striking fiscal years 2012 through 2014 and inserting fiscal years 2015 through 2019 ; (2) in subsection (b), by striking fiscal years 2011 through 2014 and inserting fiscal years 2015 through 2019 ; and (3) in subsection (c), by striking $161,000,000 for each of fiscal years 2011 through 2014 and inserting $190,000,000 for each of fiscal years 2015 through 2019 .

June 23, 2014 Reported with an amendment, committed to the Committee of the Whole House on the State of the Union, and ordered to be printed

tv_txt: I One Hundred Thirteenth Congress of the United States of America At the Second Session Begun and held at the City of Washington on Friday, the third day of January, two thousand and fourteen H. R. 4631 AN ACT To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.

1. Short title This Act may be cited as the Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 . 2. National Autism Spectrum Disorder Initiative (a) In general The Secretary of Health and Human Services shall designate an existing official within the Department of Health and Human Services to oversee, in consultation with the Secretaries of Defense and Education, national autism spectrum disorder research, services, and support activities. (b) Duties The official designated under subsection (a) shall— (1) implement autism spectrum disorder activities, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b) of the Public Health Service Act ( 42 U.S.C. 280i–2(b) ); and (2) ensure that autism spectrum disorder activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative. 3. Research program Section 399AA of the Public Health Service Act ( 42 U.S.C. 280i ) is amended— (1) in subsection (a)(1), by inserting for children and adults after reporting of State epidemiological data ; (2) in subsection (b)(1)— (A) by striking establishment of regional centers of excellence and inserting establishment or support of regional centers of excellence ; and (B) by inserting for children and adults before the period at the end; (3) in subsection (b)(2), by striking center to be established and inserting center to be established or supported ; and (4) in subsection (e), by striking 2014 and inserting 2019 . 4. Autism intervention Section 399BB of the Public Health Service Act ( 42 U.S.C. 280i–1 ) is amended— (1) in subsection (b)(1), by inserting culturally competent after provide ; (2) in subsection (c)(2)(A)(ii), by inserting (which may include respite care for caregivers of individuals with an autism spectrum disorder) after services and supports ; (3) in subsection (e)(1)(B)(v), by inserting before the semicolon the following: , which may include collaborating with research centers or networks to provide training for providers of respite care (as defined in section 2901) ; (4) in subsection (f), by striking grants or contracts and all that follows through for individuals with and inserting grants or contracts, which may include grants or contracts to research centers or networks, to determine the evidence-based practices for interventions to improve the physical and behavioral health of individuals with ; and (5) in subsection (g), by striking 2014 and inserting 2019 . 5. Interagency Autism Coordinating Committee Section 399CC of the Public Health Service Act ( 42 U.S.C. 280i–2 ) is amended— (1) in subsection (b)— (A) in paragraph (1)— (i) by striking and annually update ; and (ii) by striking intervention and inserting interventions, including school and community-based interventions ; (B) by striking paragraph (2); (C) by redesignating paragraph (1) as paragraph (2), and inserting before such redesignated paragraph the following: (1) monitor autism spectrum disorder research, and to the extent practicable services and support activities, across all relevant Federal departments and agencies, including coordination of Federal activities with respect to autism spectrum disorder; ; (D) in paragraph (3), by striking recommendations to the Director of NIH ; (E) in paragraph (4), by inserting before the semicolon the following: , and the process by which public feedback can be better integrated into such decisions ; and (F) by striking paragraphs (5) and (6) and inserting the following: (5) develop a strategic plan for the conduct of, and support for, autism spectrum disorder research, including as practicable for services and supports, for individuals with an autism spectrum disorder and the families of such individuals, which shall include— (A) proposed budgetary requirements; and (B) recommendations to ensure that autism spectrum disorder research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and (6) submit to Congress and the President— (A) an annual update on the summary of advances described in paragraph (2); and (B) an annual update to the strategic plan described in paragraph (5), including any progress made in achieving the goals outlined in such strategic plan. ; (2) in subsection (c)— (A) in paragraph (1)— (i) by striking the paragraph designation, the heading, and the matter preceding subparagraph (A) and inserting the following: (1) Federal membership The Committee shall be composed of the following Federal members— ; (ii) in subparagraph (C)— (I) by inserting , such as the Administration for Community Living, Administration for Children and Families, the Centers for Medicare & Medicaid Services, the Food and Drug Administration, and the Health Resources and Services Administration before the semicolon at the end; and (II) by adding at the end and ; (iii) in subparagraph (D)— (I) by inserting and the Department of Defense after Department of Education ; and (II) by striking at the end ; and and inserting a period; and (iv) by striking subparagraph (E); (B) in paragraph (2)— (i) in the paragraph heading, by striking Additional and inserting Non-Federal ; (ii) in the matter preceding subparagraph (A), by striking Not fewer than 6 members of the Committee, or 1/3 of the total membership of the Committee, whichever is greater and inserting Not more than 1/2 , but not fewer than 1/3 , of the total membership of the Committee ; (iii) in subparagraph (A), by striking one such member shall be an individual and inserting two such members shall be individuals ; (iv) in subparagraph (B), by striking one such member shall be a parent or legal guardian and inserting two such members shall be parents or legal guardians ; and (v) in subparagraph (C), by striking one such member shall be a representative and inserting two such members shall be representatives ; and (C) by adding at the end the following: (3) Period of appointment; vacancies (A) Period of appointment for Non-Federal members Non-Federal members shall serve for a term of 4 years, and may be reappointed for one or more additional 4-year terms. (B) Vacancies A vacancy on the Committee shall be filled in the manner in which the original appointment was made and shall not affect the powers or duties of the Committee. Any member appointed to fill a vacancy for an unexpired term shall be appointed for the remainder of such term. A member may serve after the expiration of the member’s term until a successor has been appointed. ; (3) in subsection (d)— (A) by striking paragraph (2); and (B) by redesignating paragraphs (3) and (4) as paragraphs (2) and (3), respectively; and (4) in subsection (f), by striking 2014 and inserting 2019 . 6. Reports Section 399DD of the Public Health Service Act ( 42 U.S.C. 280i–3 ) is amended— (1) in the section heading, by striking Report and inserting Reports ; (2) in subsection (b), by redesignating paragraphs (1) through (9) as subparagraphs (A) through (I), respectively, and realigning the margins accordingly; (3) by redesignating subsections (a) and (b) as paragraphs (1) and (2), respectively, and realigning the margins accordingly; (4) by inserting after the section heading the following: (a) Progress report ; (5) in subsection (a)(1) (as so redesignated)— (A) by striking 2 years after the date of enactment of the Combating Autism Reauthorization Act of 2011 and inserting 4 years after the date of enactment of the Autism CARES Act of 2014 ; (B) by inserting and the Secretary of Defense after the Secretary of Education ; and (C) by inserting , and make publicly available, including through posting on the Internet Web site of the Department of Health and Human Services, after Representatives ; and (6) in subsection (a)(2) (as so redesignated)— (A) in subparagraph (A), (as so redesignated), by striking Combating Autism Act of 2006 and inserting Autism CARES Act of 2014 ; (B) in subparagraph (B) (as so redesignated), by striking particular provisions of Combating Autism Act of 2006 and inserting amendments made by the Autism CARES Act of 2014 ; (C) by striking subparagraph (C) (as so redesignated), and inserting the following: (C) information on the incidence and prevalence of autism spectrum disorder, including available information on the prevalence of autism spectrum disorder among children and adults, and identification of any changes over time with respect to the incidence and prevalence of autism spectrum disorder; ; (D) in subparagraph (D) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across population subgroups ; (E) in subparagraph (E) (as so redesignated), by striking 6-year period beginning on the date of enactment of the Combating Autism Act of 2006 and inserting 4-year period beginning on the date of enactment of the Autism CARES Act of 2014 and, as appropriate, how this age varies across population subgroups ; (F) in subparagraph (F) (as so redesignated), by inserting and, as appropriate, on how such average time varies across population subgroups before the semicolon at the end; (G) in subparagraph (G) (as so redesignated)— (i) by striking including by various subtypes, and inserting including by severity level as practicable, ; and (ii) by striking child may and inserting child or other factors, such as demographic characteristics, may ; and (H) by striking subparagraph (I) (as so redesignated), and inserting the following: (I) a description of the actions taken to implement and the progress made on implementation of the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b). ; and (7) by adding at the end the following new subsection: (b) Report on young adults and transitioning youth (1) In general Not later than 2 years after the date of enactment of the Autism CARES Act of 2014, the Secretary of Health and Human Services, in coordination with the Secretary of Education and in collaboration with the Secretary of Transportation, the Secretary of Labor, the Secretary of Housing and Urban Development, and the Attorney General, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood. (2) Contents The report submitted under paragraph (1) shall contain— (A) demographic characteristics of youth transitioning from school-based to community-based supports; (B) an overview of policies and programs relevant to young adults with autism spectrum disorder relating to post-secondary school transitional services, including an identification of existing Federal laws, regulations, policies, research, and programs; (C) proposals on establishing best practices guidelines to ensure— (i) interdisciplinary coordination between all relevant service providers receiving Federal funding; (ii) coordination with transitioning youth and the family of such transitioning youth; and (iii) inclusion of the individualized education program for the transitioning youth, as prescribed in section 614 of the Individuals with Disabilities Education Act ( 20 U.S.C. 1414 ); (D) comprehensive approaches to transitioning from existing school-based services to those services available during adulthood, including— (i) services that increase access to, and improve integration and completion of, post-secondary education, peer support, vocational training (as defined in section 103 of the Rehabilitation Act of 1973 ( 29 U.S.C. 723 )), rehabilitation, self-advocacy skills, and competitive, integrated employment; (ii) community-based behavioral supports and interventions; (iii) community-based integrated residential services, housing, and transportation; (iv) nutrition, health and wellness, recreational, and social activities; (v) personal safety services for individuals with autism spectrum disorder related to public safety agencies or the criminal justice system; and (vi) evidence-based approaches for coordination of resources and services once individuals have aged out of post-secondary education; and (E) proposals that seek to improve outcomes for adults with autism spectrum disorder making the transition from a school-based support system to adulthood by— (i) increasing the effectiveness of programs that provide transition services; (ii) increasing the ability of the relevant service providers described in subparagraph (C) to provide supports and services to underserved populations and regions; (iii) increasing the efficiency of service delivery to maximize resources and outcomes, including with respect to the integration of and collaboration among services for transitioning youth; (iv) ensuring access to all services necessary to transitioning youth of all capabilities; and (v) encouraging transitioning youth to utilize all available transition services to maximize independence, equal opportunity, full participation, and self-sufficiency. . 7. Authorization of appropriations Section 399EE of the Public Health Service Act ( 42 U.S.C. 280i–4 ) is amended— (1) in subsection (a), by striking fiscal years 2012 through 2014 and inserting fiscal years 2015 through 2019 ; (2) in subsection (b), by striking fiscal years 2011 through 2014 and inserting fiscal years 2015 through 2019 ; and (3) in subsection (c), by striking $161,000,000 for each of fiscal years 2011 through 2014 and inserting $190,000,000 for each of fiscal years 2015 through 2019 .

Speaker of the House of Representatives. Vice President of the United States and President of the Senate.