III 117th CONGRESS 2d Session S. RES. 816 IN THE SENATE OF THE UNITED STATES September 29, 2022 Mr. Blunt (for himself and Mr. Cardin ) submitted the following resolution; which was considered and agreed to RESOLUTION Designating September 4, 2022, as National Polycystic Kidney Disease Awareness Day , and raising awareness and understanding of polycystic kidney disease.

Whereas designating September 4, 2022, as National Polycystic Kidney Disease Awareness Day will raise public awareness and understanding of polycystic kidney disease, one of the most prevalent genetic kidney disorders; Whereas autosomal dominant polycystic kidney disease (ADPKD) is the more common type of polycystic kidney disease and affects approximately 200,000 to 600,000 people in the United States and an estimated 12,400,000 people worldwide; Whereas autosomal recessive polycystic kidney disease (ARPKD) is a rare form of polycystic kidney disease that occurs in 1 in 20,000 live births in the United States; Whereas National Polycystic Kidney Disease Awareness Day will help to foster an understanding of the impact polycystic kidney disease has on individuals and their families; Whereas polycystic kidney disease is a progressive, genetic disorder of the kidneys that causes damage to the kidneys and the cardiovascular, endocrine, hepatic, and gastrointestinal organ systems; Whereas, though polycystic kidney disease equally affects individuals of all ages, races, ethnicities, and sexes, gaps in kidney treatment and care disproportionately affect racial and ethnic minorities, especially Black and Hispanic populations; Whereas Black and Hispanic patients with ADPKD reach kidney failure earlier and are less likely to receive a kidney transplant compared with non-Hispanic White patients; Whereas, of the individuals diagnosed with ADPKD, approximately 10 percent have no family history of the disease, with the disease developing as a spontaneous mutation; Whereas there are very few treatments and no cure for polycystic kidney disease, which is 1 of the 4 leading causes of kidney failure in the United States; Whereas almost 50 percent of individuals with ADPKD develop end-stage kidney disease by age 60; Whereas friends, loved ones, spouses, and caregivers of individuals with polycystic kidney disease can assist with the challenges created by polycystic kidney disease, including by helping such individuals maintain a healthy lifestyle and make regular visits to their health care providers; Whereas the severity of the symptoms of polycystic kidney disease and limited public awareness of the disease may cause individuals to forego regular visits to their physicians or avoid following the health recommendations of their doctors, which experts suggest could help prevent further complications should kidney failure occur; Whereas individuals who have chronic, life-threatening diseases like polycystic kidney disease may experience depression; Whereas the PKD Foundation and its more than 35,000 patient and family advocates around the United States are dedicated to— (1) conducting research to find treatments and a cure for polycystic kidney disease; (2) fostering public awareness and understanding of polycystic kidney disease; (3) educating individuals and their families about the disease to improve their treatment and care; and (4) providing support, including by sponsoring the annual Walk for PKD , to raise funds for polycystic kidney disease research, education, advocacy, and awareness; and Whereas, on September 4, 2022, the PKD Foundation is partnering with sister organizations in Canada, Australia, and other countries to increase international awareness of polycystic kidney disease: Now, therefore, be it

That the Senate— (1) designates September 4, 2022, as National Polycystic Kidney Disease Awareness Day ; (2) supports the goals and ideals of National Polycystic Kidney Disease Awareness Day to raise public awareness and understanding of polycystic kidney disease; (3) recognizes the need for additional research to find a cure for polycystic kidney disease; and (4) encourages all people in the United States and interested groups to support National Polycystic Kidney Awareness Day through appropriate ceremonies and activities to promote public awareness of polycystic kidney disease and to foster an understanding of the impact of the disease on individuals and their families.