II Calendar No. 306 114th CONGRESS 1st Session S. 1719 IN THE SENATE OF THE UNITED STATES July 8, 2015 Ms. Collins (for herself, Ms. Baldwin , Ms. Ayotte , Mr. Bennet , Ms. Mikulski , Ms. Klobuchar , Mrs. Capito , Mr. Coons , Ms. Murkowski , Mr. Toomey , Mr. Franken , and Mr. Murphy ) introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions December 1, 2015 Reported by Mr. Alexander , with an amendment Strike out all after the enacting clause and insert the part printed in italic A BILL To provide for the establishment and maintenance of a National Family Caregiving Strategy, and for other purposes.

1. Short title This Act may be cited as the Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act . 2. Definitions In this Act: (1) Advisory Council The term Advisory Council means the Family Caregiving Advisory Council convened under section 4. (2) Family caregiver The term family caregiver means a relative, partner, friend, or neighbor who has a significant relationship with, and who provides a broad range of assistance for, a person with a chronic or other health condition, disability, or functional limitation. (3) Secretary The term Secretary means the Secretary of Health and Human Services. (4) Strategy The term Strategy means the National Family Caregiving Strategy established, maintained, and updated under section 3. 3. National Family Caregiving Strategy (a) In general The Secretary, in consultation with the heads of other appropriate Federal agencies, shall develop, maintain, and periodically update a National Family Caregiving Strategy. (b) Contents The Strategy shall identify specific actions that Federal, State, and local governments, communities, health care, long-term services and supports and other providers, employers, and others can take to recognize and support family caregivers in a culturally competent manner, including with respect to the following: (1) Promoting greater adoption of person- and family-centered care in all health and long-term services and supports settings, with the person receiving services and supports and the family caregiver (as appropriate) at the center of care teams. (2) Assessment and service planning (including care transitions and coordination) involving family caregivers and care recipients. (3) Training and other supports. (4) Information, education, referral, and care coordination, including hospice, palliative care, and advance planning services. (5) Respite options. (6) Financial security. (7) Workplace policies and supports that allow family caregivers to remain in the workforce. (c) Responsibilities of the Secretary The Secretary, in carrying out this section, shall be responsible for the following: (1) Collecting and making publically available information, including evidence-based or promising practices and innovative models (both domestically and internationally) regarding the provision of care by family caregivers or support for family caregivers. (2) Coordinating Federal Government programs and activities to recognize and support family caregivers while ensuring maximum effectiveness and avoiding unnecessary duplication. (3) Providing technical assistance, such as best practices and information sharing, to State or local efforts, as appropriate, to support family caregivers. (4) Addressing disparities in recognizing and supporting family caregivers and meeting the needs of the diverse family caregiving population. (5) Assessing all Federal programs regarding family caregivers, including with respect to funding levels. (d) Initial strategy; updates The Secretary shall— (1) not later than 18 months after the date of enactment of this Act, develop, publish, and submit to Congress the initial Strategy incorporating the items addressed in the Advisory Council's report in section 4(d)(2) and other priority actions for recognizing and supporting family caregivers; and (2) not less than annually, update, republish, and submit to Congress the Strategy, taking into account the most recent annual report submitted under section 4(d)(1)— (A) to reflect new developments, challenges, opportunities, and solutions; and (B) to assess progress in implementation of the Strategy and, based on the results of such assessment, recommend priority actions for such implementation. (e) Process for public input The Secretary shall establish a process for public input to inform the development of, and updates to, the Strategy, including a process for the public to submit recommendations to the Advisory Council and an opportunity for public comment on the proposed Strategy. (f) No preemption Nothing in this Act preempts any authority of a State or local government to recognize or support family caregivers. 4. Family Caregiving Advisory Council (a) Convening The Secretary shall convene a Family Caregiving Advisory Council to provide advice to the Secretary on recognizing and supporting family caregivers. (b) Membership (1) In general The members of the Advisory Council shall consist of— (A) the Federal members under paragraph (2); and (B) the appointed members under paragraph (3). (2) Federal members The Federal members of the Advisory Council shall consist of the following: (A) The Administrator of the Centers for Medicare & Medicaid Services (or the Administrator's designee). (B) The Administrator of the Administration for Community Living (or the Administrator's designee who has experience in both aging and disability). (C) The Assistant Secretary for the Administration for Children and Families (or the Assistant Secretary's designee). (D) The Secretary of Veterans Affairs (or the Secretary's designee). (E) The Secretary of Labor (or the Secretary's designee). (F) The Secretary of the Treasury (or the Secretary's designee). (G) The National Coordinator for Health Information Technology (or the National Coordinator's designee). (H) The heads of other Federal departments or agencies (or their designees), as appointed by the President or the Chair of the Advisory Council. (3) Appointed members In addition to the Federal members under paragraph (2), the Secretary shall appoint not more than 15 members of the Advisory Council who are not representatives of Federal departments or agencies and who shall include at least one representative of each of the following: (A) Family caregivers. (B) Older adults with long-term services and supports needs, including older adults facing disparities. (C) Individuals with disabilities. (D) Advocates for family caregivers, older adults with long-term services and supports needs, and individuals with disabilities. (E) Health care and social service providers. (F) Long-term services and supports providers. (G) Employers. (H) Direct care workers or advocates for such workers. (I) State and local officials. (J) Accreditation bodies. (K) Relevant industries. (L) Veterans. (M) As appropriate, other experts in family caregiving. (4) Diverse representation The Secretary shall ensure that the membership of the Advisory Council reflects the diversity of— (A) the overall population; and (B) family caregivers. (c) Meetings The Advisory Council shall meet quarterly. Meetings of the Advisory Council shall be open to the public. (d) Advisory Council annual reports (1) In general Not later than 15 months after the date of enactment of this Act, and annually thereafter, the Advisory Council shall submit to the Secretary and Congress a report concerning the development, maintenance, and updating of the Strategy and the implementation thereof, including a description of the outcomes of the recommendations and priorities under paragraph (2), as appropriate. Such report shall be made publically available by the Advisory Council. (2) Initial report The Advisory Council's initial report under paragraph (1) shall include— (A) an inventory and assessment of all federally funded efforts to recognize and support family caregivers and the outcomes of such efforts, including analyses of the extent to which federally funded efforts are reaching family caregivers and gaps in such efforts; (B) recommendations for priority actions— (i) to improve and better coordinate programs; and (ii) to deliver services based on the performance, mission, and purpose of a program while eliminating redundancies and ensuring the needs of family caregivers are met; (C) recommendations to reduce the financial impact and other challenges of caregiving on family caregivers; and (D) an evaluation of how family caregiving impacts the Medicare program, and Medicaid program, and other Federal programs. 5. Sharing of data The heads of Federal departments and agencies, as appropriate, shall share with the Secretary any data that is— (1) maintained by the respective department or agency; and (2) needed by the Secretary to prepare the initial and updated Strategies under section 3(d). 6. Sunset provision The authority and obligations established by this Act shall terminate on December 31, 2030.

1. Short title This Act may be cited as the Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act . 2. Definitions In this Act: (1) Advisory Council The term Advisory Council means the Family Caregiving Advisory Council convened under section 4. (2) Family caregiver The term family caregiver means an adult family member or other individual who has a significant relationship with, and who provides a broad range of assistance to, an individual with a chronic or other health condition, disability, or functional limitation. (3) Secretary The term Secretary means the Secretary of Health and Human Services. (4) Strategy The term Strategy means the National Family Caregiving Strategy established, maintained, and updated under section 3. 3. National Family Caregiving Strategy (a) In general The Secretary, in consultation with the heads of other appropriate Federal agencies, shall develop, maintain, and periodically update a National Family Caregiving Strategy. (b) Contents The Strategy shall identify specific actions that Federal, State, and local governments, communities, health care, long-term services and supports and other providers, employers, and others can take to recognize and support family caregivers in a manner that reflects their diverse needs, including with respect to the following: (1) Promoting greater adoption of person- and family-centered care in all health and long-term services and supports settings, with the person receiving services and supports and the family caregiver (as appropriate) at the center of care teams. (2) Assessment and service planning (including care transitions and coordination) involving family caregivers and care recipients. (3) Training and other supports. (4) Information, education, referral, and care coordination, including hospice, palliative care, and advance planning services. (5) Respite options. (6) Financial security. (7) Workplace policies and supports that allow family caregivers to remain in the workforce. (c) Responsibilities of the Secretary The Secretary, in carrying out this section, shall be responsible for the following: (1) Collecting and making publicly available information, including evidence-based or promising practices and innovative models (both domestically and internationally) regarding the provision of care by family caregivers or support for family caregivers. (2) Coordinating Federal Government programs and activities to recognize and support family caregivers while ensuring maximum effectiveness and avoiding unnecessary duplication. (3) Providing technical assistance, such as best practices and information sharing, to State or local efforts, as appropriate, to support family caregivers. (4) Addressing disparities in recognizing and supporting family caregivers and meeting the needs of the diverse family caregiving population. (5) Assessing all Federal programs regarding family caregivers, including with respect to funding levels. (d) Initial strategy; updates The Secretary shall— (1) not later than 18 months after the date of enactment of this Act, develop, publish, and submit to Congress the initial Strategy incorporating the items addressed in the Advisory Council's report in section 4(d)(2) and other priority actions for recognizing and supporting family caregivers; and (2) not less than every 2 years, update, republish, and submit to Congress the Strategy, taking into account the most recent annual report submitted under section 4(d)(1)— (A) to reflect new developments, challenges, opportunities, and solutions; and (B) to assess progress in implementation of the Strategy and, based on the results of such assessment, recommend priority actions for such implementation. (e) Process for public input The Secretary shall establish a process for public input to inform the development of, and updates to, the Strategy, including a process for the public to submit recommendations to the Advisory Council and an opportunity for public comment on the proposed Strategy. (f) No preemption Nothing in this Act preempts any authority of a State or local government to recognize or support family caregivers. 4. Family Caregiving Advisory Council (a) Convening The Secretary shall convene a Family Caregiving Advisory Council to provide advice to the Secretary on recognizing and supporting family caregivers. (b) Membership (1) In general The members of the Advisory Council shall consist of— (A) the appointed members under paragraph (2); and (B) the Federal members under paragraph (3). (2) Appointed members In addition to the Federal members under paragraph (3), the Secretary shall appoint not more than 15 members of the Advisory Council who are not representatives of Federal departments or agencies and who shall include at least one representative of each of the following: (A) Family caregivers. (B) Older adults with long-term services and supports needs, including older adults facing disparities. (C) Individuals with disabilities. (D) Advocates for family caregivers, older adults with long-term services and supports needs, and individuals with disabilities. (E) Health care and social service providers. (F) Long-term services and supports providers. (G) Employers. (H) Paraprofessional workers. (I) State and local officials. (J) Accreditation bodies. (K) Relevant industries. (L) Veterans. (M) As appropriate, other experts in family caregiving. (3) Federal members The Federal members of the Advisory Council, who shall be nonvoting members, shall consist of the following: (A) The Administrator of the Centers for Medicare & Medicaid Services (or the Administrator's designee). (B) The Administrator of the Administration for Community Living (or the Administrator's designee who has experience in both aging and disability). (C) The Assistant Secretary for the Administration for Children and Families (or the Assistant Secretary's designee). (D) The Secretary of Veterans Affairs (or the Secretary's designee). (E) The Secretary of Labor (or the Secretary's designee). (F) The Secretary of the Treasury (or the Secretary's designee). (G) The National Coordinator for Health Information Technology (or the National Coordinator's designee). (H) The Administrator of the Small Business Administration (or the Administrator's designee). (I) The Chief Executive Officer of the Corporation for National and Community Service (or the Chief Executive Officer's designee). (J) The heads of other Federal departments or agencies (or their designees), as appointed by the Secretary or the Chair of the Advisory Council. (4) Diverse representation The Secretary shall ensure that the membership of the Advisory Council reflects the diversity of family caregivers and individuals receiving services and supports. (c) Meetings The Advisory Council shall meet quarterly during the 1-year period beginning on the date of enactment of this Act and at least three times during each year thereafter. Meetings of the Advisory Council shall be open to the public. (d) Advisory Council annual reports (1) In general Not later than 12 months after the date of enactment of this Act, and annually thereafter, the Advisory Council shall submit to the Secretary and Congress a report concerning the development, maintenance, and updating of the Strategy and the implementation thereof, including a description of the outcomes of the recommendations and priorities under paragraph (2), as appropriate. Such report shall be made publicly available by the Advisory Council. (2) Initial report The Advisory Council's initial report under paragraph (1) shall include— (A) an inventory and assessment of all federally funded efforts to recognize and support family caregivers and the outcomes of such efforts, including analyses of the extent to which federally funded efforts are reaching family caregivers and gaps in such efforts; (B) recommendations for priority actions— (i) to improve and better coordinate programs; and (ii) to deliver services based on the performance, mission, and purpose of a program while eliminating redundancies and ensuring the needs of family caregivers are met; (C) recommendations to reduce the financial impact and other challenges of caregiving on family caregivers; and (D) an evaluation of how family caregiving impacts the Medicare program, and Medicaid program, and other Federal programs. (e) Nonapplicability of FACA The Federal Advisory Committee Act (5 U.S.C. App.) shall not apply to the Advisory Council. 5. Sunset provision The authority and obligations established by this Act shall terminate on December 31, 2025.

December 1, 2015 Reported with an amendment