DeOndra Dixon INCLUDE Project Act of 2024

Bill: 118-hr-7406
Sponsor: Rep. McMorris Rodgers, Cathy [R-WA-5]
Introduced: 2024-02-16 in the House
Policy area: Health
Subjects: Congressional oversight
Genetics
Health programs administration and funding
Hereditary and development disorders
Medical research
Research administration and funding

Summary:
action_date: 2024-02-16
text: 

DeOndra Dixon INCLUDE Project Act of 2024

This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.)

Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome. 

 

 
 
action_date: 2024-05-14
text: 

DeOndra Dixon INCLUDE Project Act of 2024

This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.)

Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome. 

 

 
 

Legislative actions:
action_date: 2024-09-18
text: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2024-09-17
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2024-09-17
text: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5304-5305)
action_date: 2024-09-17
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5304-5305)
action_date: 2024-09-17
text: DEBATE - The House proceeded with forty minutes of debate on H.R. 7406.
action_date: 2024-09-17
text: Considered under suspension of the rules. (consideration: CR H5304-5306)
action_date: 2024-09-17
text: Mrs. Rodgers (WA) moved to suspend the rules and pass the bill, as amended.
action_date: 2024-05-14
text: Placed on the Union Calendar, Calendar No. 419.
action_date: 2024-05-14
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 118-504.
action_date: 2024-05-14
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 118-504.
action_date: 2024-03-20
text: Ordered to be Reported (Amended) by the Yeas and Nays: 45 - 0.
action_date: 2024-03-20
text: Committee Consideration and Mark-up Session Held
action_date: 2024-03-12
text: Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote.
action_date: 2024-03-12
text: Subcommittee Consideration and Mark-up Session Held
action_date: 2024-02-23
text: Referred to the Subcommittee on Health.
action_date: 2024-02-16
text: Referred to the House Committee on Energy and Commerce.
action_date: 2024-02-16
text: Introduced in House
action_date: 2024-02-16
text: Introduced in House