Childhood Cancer STAR Act

Bill: 115-s-292
Sponsor: Sen. Reed, Jack [D-RI]
Introduced: 2017-02-02 in the Senate
Policy area: Health
Subjects: Advisory bodies
Cancer
Child health
Congressional oversight
Department of Health and Human Services
Drug safety, medical device, and laboratory regulation
Drug therapy
Government information and archives
Government studies and investigations
Health care costs and insurance
Health care coverage and access
Health care quality
Health information and medical records
Health personnel
Health programs administration and funding
Home and outpatient care
Long-term, rehabilitative, and terminal care
Medical education
Medical research
Medical tests and diagnostic methods
Mental health
National Institutes of Health (NIH)
Research administration and funding
Social work, volunteer service, charitable organizations

Summary:
action_date: 2017-02-02
text: 

Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2017 or the Childhood Cancer STAR Act
 
 
This bill amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to provide support to collect the medical specimens and information of children, adolescents, and young adults with selected cancers that have the least effective treatments in order to achieve a better understanding of these cancers and the effects of treatment.
 
The national childhood cancer registry is reauthorized through FY2022 and revised to authorize the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers.
 
The Department of Health and Human Services (HHS) may: (1) support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives, (2) establish a task force to develop and test standards for high-quality childhood cancer survivorship care, and (3) carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.
 
HHS must convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors.
 
The NIH may support research on: (1) outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations; and (2) follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.
 The Government Accountability Office must make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.
action_date: 2018-06-05
text: 

Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2018 or the Childhood Cancer STAR Act
 
 
TITLE I--MAXIMIZING RESEARCH THROUGH DISCOVERY
 
Subtitle A--Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act 
(Sec. 101) This bill amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to provide support to collect the medical specimens and information of children, adolescents, and young adults with selected cancers that have the least effective treatments in order to achieve a better understanding of these cancers and the effects of treatment.
 
(Sec. 102) The national childhood cancer registry is reauthorized through FY2023 and revised to authorize the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers.
 
Subtitle B--Pediatric Expertise at NIH
 
(Sec. 111) The bill requires at least one member of the National Cancer Advisory Board, which advises the National Cancer Institute, to be knowledgeable in pediatric oncology. 
 
Subtitle C--NIH Reporting on Childhood Cancer Activities
 
(Sec. 121) The NIH must ensure that information about supported childhood cancer research projects is included in appropriate congressional reports, including the Pediatric Research Initiative report.
 
TITLE II--MAXIMIZING DELIVERY: CARE, QUALITY OF LIFE, SURVIVORSHIP, AND CAREGIVER SUPPORT
 
(Sec. 201) The Department of Health and Human Services (HHS) may support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives.
 
HHS must also review departmental activities relating to workforce development for health care providers who treat pediatric cancer patients and survivors.
 
(Sec. 202) The NIH may continue to support research relating to pediatric cancer survivorship, including outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations.
 
(Sec. 203) HHS may also support the development of best practices regarding childhood and adolescent cancer survivorship care.


Legislative actions:
action_date: 2018-06-05
text: Became Public Law No: 115-180.
action_date: 2018-06-05
text: Became Public Law No: 115-180.
action_date: 2018-06-05
text: Signed by President.
action_date: 2018-06-05
text: Signed by President.
action_date: 2018-05-24
text: Presented to President.
action_date: 2018-05-24
text: Presented to President.
action_date: 2018-05-22
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2018-05-22
text: On motion to suspend the rules and pass the bill Agreed to by voice vote. (text: CR H4350-4352)
action_date: 2018-05-22
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by voice vote.(text: CR H4350-4352)
action_date: 2018-05-22
text: DEBATE - The House proceeded with forty minutes of debate on S. 292.
action_date: 2018-05-22
text: Considered under suspension of the rules. (consideration: CR H4349-4355)
action_date: 2018-05-22
text: Mr. Burgess moved to suspend the rules and pass the bill.
action_date: 2018-03-30
text: Referred to the Subcommittee on Health.
action_date: 2018-03-26
text: Referred to the House Committee on Energy and Commerce.
action_date: 2018-03-26
text: Received in the House.
action_date: 2018-03-23
text: Message on Senate action sent to the House.
action_date: 2018-03-22
text: Passed Senate with an amendment by Unanimous Consent. (consideration: CR S1975-1977; text of measure as reported in Senate: CR S1975-1977)
action_date: 2018-03-22
text: Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.(consideration: CR S1975-1977; text of measure as reported in Senate: CR S1975-1977)
action_date: 2018-03-12
text: Placed on Senate Legislative Calendar under General Orders. Calendar No. 342.
action_date: 2018-03-12
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Alexander with an amendment in the nature of a substitute. Without written report.
action_date: 2018-03-12
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Alexander with an amendment in the nature of a substitute. Without written report.
action_date: 2018-02-28
text: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
action_date: 2017-02-02
text: Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (Sponsor introductory remarks on measure: CR S659)
action_date: 2017-02-02
text: Introduced in Senate

Enacted as: number: 115-180