Sudden Unexpected Death Data Enhancement and Awareness Act

Bill: 113-hr-669
Sponsor: Rep. Pallone, Frank, Jr. [D-NJ-6]
Introduced: 2013-02-13 in the House
Policy area: Health
Subjects: Advisory bodies
Child health
Congressional oversight
Criminal investigation, prosecution, interrogation
Emergency medical services and trauma care
Genetics
Health information and medical records
Health personnel
Health programs administration and funding
Health promotion and preventive care
Law enforcement administration and funding
Licensing and registrations
Medical education
Medical research
Medical tests and diagnostic methods
Sex and reproductive health
Social work, volunteer service, charitable organizations

Summary:
action_date: 2013-02-13
text: 
Sudden Unexpected Death Data Enhancement and Awareness Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to award grants for: (1) improving state comprehensive death scene investigations for sudden unexplained infant death (SUID) and sudden unexplained death in childhood (SUDC), and (2) increasing the rate of comprehensive and standardized autopsies for such deaths.
 
Requires the Director to: (1) develop national guidelines for a standard autopsy protocol for such deaths, and (2) commission a study on the benefits and appropriateness of genetic testing for infant and early childhood deaths that remain unexplained after investigation and autopsy.
 
Requires the Secretary, acting through the Director, to: (1) award grants for death scene investigation training specific for SUID and SUDC; (2) modify the national death case reporting system to assure that such system provides for population-based data for ages 0-4 years of age and facilitates the understanding of the root causes, rates, and trends of SUID and SUDC with respect to such ages; (3) conduct a needs assessment for investigations and determinations of such deaths; (4) develop public education and prevention programs to reduce stillbirths and address the racial and ethnic disparities in occurrence; (5) award grants for surveillance efforts on stillbirths; and (6) develop and conduct public education and prevention program aimed at reducing stillbirths.
 
Directs the Secretary, acting through the Administrator of the Health Resources and Services Administration (HRSA), to: (1) award grants for child death review programs and prevention strategies; (2) establish a public health awareness and education campaign on SUID and SUDC; and (3) award grants for support services to families who have experienced SUID, SUDC, or stillbirth.
 
Requires the Secretary to establish a task force to develop a national research plan to determine the causes of, and how to prevent, stillbirths.

action_date: 2014-07-24
text: 
Sudden Unexpected Death Data Enhancement and Awareness Act - (Sec. 2) Amends the Public Health Service Act to require the Director of the Centers for Disease Control and Prevention (CDC) to continue activities relating to stillbirth, sudden unexpected infant death (SUID), and sudden unexpected death in childhood (SUDC).
 
Requires the CDC to provide for collection of epidemiologic information on stillbirths, including through existing surveillance systems. Requires the CDC to develop and periodically update a standard data collection protocol and guidelines for postmortem stillbirth evaluation.
 
Directs the CDC to provide for collection of sociodemographic, death scene investigation, clinical history, and autopsy information on SUID and SUDC cases through the review of existing records.
 
Requires the CDC to develop and periodically update standard protocols for data collection and death scene investigation for SUID. Sets forth goals for SUID surveillance, including: (1) collecting information about the environmental and medical circumstances of death, (2) supporting multidisciplinary infant death reviews to classify and characterize SUID, and (3) facilitating information sharing to improve reporting of SUID. Requires the death scene investigation protocol to include the collection of infant and family medical history, circumstances surrounding death, the infant's sleep position and sleep environment, and any accidental or environmental factors associated with the death.
 
Directs the CDC to develop and periodically update guidelines for standard autopsy protocols for SUID and SUDC.
 Allows the Attorney General to conduct and support training for medical examiners, coroners, and others regarding standard protocols for death scene investigation and autopsies.
action_date: 2014-09-09
text: 
Sudden Unexpected Death Data Enhancement and Awareness Act - (Sec. 2) Amends the Public Health Service Act to require the Director of the Centers for Disease Control and Prevention (CDC) to continue activities relating to stillbirth, sudden unexpected infant death (SUID), and sudden unexpected death in childhood (SUDC).
 
Requires the CDC to provide for collection of epidemiologic information on stillbirths, including through existing surveillance systems. Requires the CDC to develop and periodically update a standard data collection protocol and guidelines for postmortem stillbirth evaluation.
 
Directs the CDC to provide for collection of sociodemographic, death scene investigation, clinical history, and autopsy information on SUID and SUDC cases through the review of existing records.
 
Requires the CDC to develop and periodically update standard protocols for data collection and death scene investigation for SUID. Sets forth goals for SUID surveillance, including: (1) collecting information about the environmental and medical circumstances of death, (2) supporting multidisciplinary infant death reviews to classify and characterize SUID, and (3) facilitating information sharing to improve reporting of SUID. Requires the death scene investigation protocol to include the collection of infant and family medical history, circumstances surrounding death, the infant's sleep position and sleep environment, and any accidental or environmental factors associated with the death.
 
Directs the CDC to develop and periodically update guidelines for standard autopsy protocols for SUID and SUDC.
 Allows the Attorney General to conduct and support training for medical examiners, coroners, and others regarding standard protocols for death scene investigation and autopsies.
action_date: 2014-11-20
text: 
Sudden Unexpected Death Data Enhancement and Awareness Act - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to continue and report on activities related to stillbirth, sudden unexpected infant death, and sudden unexplained death in childhood, including collaborating with states and experts to improve the quality and consistency of data collected after one of these deaths.

action_date: 2014-12-18
text: 

(This measure has not been amended since it was passed by the Senate on November 20, 2014. The summary of that version is repeated here.)

 
Sudden Unexpected Death Data Enhancement and Awareness Act - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to continue and report on activities related to stillbirth, sudden unexpected infant death, and sudden unexplained death in childhood, including collaborating with states and experts to improve the quality and consistency of data collected after one of these deaths.


Legislative actions:
action_date: 2014-12-18
text: Became Public Law No: 113-236.
action_date: 2014-12-18
text: Became Public Law No: 113-236.
action_date: 2014-12-18
text: Signed by President.
action_date: 2014-12-18
text: Signed by President.
action_date: 2014-12-08
text: Presented to President.
action_date: 2014-12-08
text: Presented to President.
action_date: 2014-12-03
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2014-12-03
text: On motion that the House agree to the Senate amendments Agreed to without objection. (text as House agreed to Senate amendment: CR H8345)
action_date: 2014-12-03
text: Resolving differences -- House actions: On motion that the House agree to the Senate amendments Agreed to without objection.(text as House agreed to Senate amendment: CR H8345)
action_date: 2014-12-03
text: Mr. Bilirakis asked unanimous consent to take from the Speaker's table and agree to the Senate amendments. (consideration: CR H8344-8345)
action_date: 2014-11-21
text: Message on Senate action sent to the House.
action_date: 2014-11-20
text: Passed Senate with an amendment and an amendment to the Title by Unanimous Consent.
action_date: 2014-11-20
text: Passed/agreed to in Senate: Passed Senate with an amendment and an amendment to the Title by Unanimous Consent.
action_date: 2014-11-20
text: Measure laid before Senate by unanimous consent. (consideration: CR S6219)
action_date: 2014-11-20
text: Senate Committee on Health, Education, Labor, and Pensions discharged by Unanimous Consent.
action_date: 2014-11-20
text: Senate Committee on Health, Education, Labor, and Pensions discharged by Unanimous Consent.
action_date: 2014-11-19
text: Committee on Health, Education, Labor, and Pensions. Ordered to be reported without amendment favorably.
action_date: 2014-09-10
text: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2014-09-09
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2014-09-09
text: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H7341-7342)
action_date: 2014-09-09
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H7341-7342)
action_date: 2014-09-09
text: DEBATE - The House proceeded with forty minutes of debate on H.R. 669.
action_date: 2014-09-09
text: Considered under suspension of the rules. (consideration: CR H7341-7343)
action_date: 2014-09-09
text: Mr. Burgess moved to suspend the rules and pass the bill, as amended.
action_date: 2014-07-24
text: Placed on the Union Calendar, Calendar No. 417.
action_date: 2014-07-24
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-557.
action_date: 2014-07-24
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-557.
action_date: 2014-07-15
text: Ordered to be Reported (Amended) by Voice Vote.
action_date: 2014-07-15
text: Committee Consideration and Mark-up Session Held.
action_date: 2014-07-14
text: Committee Consideration and Mark-up Session Held.
action_date: 2014-06-19
text: Forwarded by Subcommittee to Full Committee (Amended) by Unanimous Consent .
action_date: 2014-06-19
text: Subcommittee Consideration and Mark-up Session Held.
action_date: 2013-02-15
text: Referred to the Subcommittee on Health.
action_date: 2013-02-13
text: Referred to the House Committee on Energy and Commerce.
action_date: 2013-02-13
text: Introduced in House
action_date: 2013-02-13
text: Introduced in House

Enacted as: number: 113-236