Autism Collaboration, Accountability, Research, Education, and Support Act of 2014

Bill: 113-s-2449
Sponsor: Sen. Menendez, Robert [D-NJ]
Introduced: 2014-06-09 in the Senate
Policy area: Health
Subjects: Advisory bodies
Congressional oversight
Department of Health and Human Services
Elementary and secondary education
Executive agency funding and structure
Government information and archives
Health programs administration and funding
Health promotion and preventive care
Hereditary and development disorders
Medical research
Neurological disorders
Research administration and funding
Vocational and technical education

Summary:
action_date: 2014-06-09
text: 
Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.
 
Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.
 
 Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.
 
 Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD. 
 
 Revises responsibilities of the Interagency Committee concerning:
 
 
 inclusion of school- and community-based interventions in the Committee summary of advances,
 
monitoring of ASD research and federal services and support activities,
 
 recommendations to the Director of the National Institutes of Health regarding the strategic plan,
 
 recommendations regarding the process by which public feedback can be better integrated into ASD decisions,
 
strategic plan updates and recommendations to minimize duplication, and
 
reports to the President and Congress.
 
 
Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.
 
 Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood. 
 
 Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.

action_date: 2014-06-26
text: 
Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 - (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.
 
Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.
 
(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.
 
(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD. 
 
(Sec. 5) Revises responsibilities of the Interagency Committee concerning:
 
 
 inclusion of school- and community-based interventions in the Committee summary of advances,
 
monitoring of ASD research and federal services and support activities,
 
 recommendations to the Director of the National Institutes of Health regarding the strategic plan,
 
 recommendations regarding the process by which public feedback can be better integrated into ASD decisions,
 
strategic plan updates and recommendations to minimize duplication, and
 
reports to the President and Congress.
 
 
Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.
 
(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood. 
 
(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.


Legislative actions:
action_date: 2014-06-26
text: Placed on Senate Legislative Calendar under General Orders. Calendar No. 444.
action_date: 2014-06-26
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Harkin with an amendment in the nature of a substitute. Without written report.
action_date: 2014-06-26
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Harkin with an amendment in the nature of a substitute. Without written report.
action_date: 2014-06-25
text: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
action_date: 2014-06-09
text: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2014-06-09
text: Introduced in Senate