Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011

Bill: 112-hr-2123
Sponsor: Rep. Gallegly, Elton [R-CA-24]
Introduced: 2011-06-03 in the House
Policy area: Health
Subjects: Advisory bodies
Cardiovascular and respiratory health
Health care costs and insurance
Health facilities and institutions
Health information and medical records
Health programs administration and funding
Hereditary and development disorders
Medical research
Medical tests and diagnostic methods
Medicare
Research administration and funding

Summary:
action_date: 2011-06-03
text: 
Hereditary Hemorrhagic Telangiectasia Diagnosis and Treatment Act of 2011 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS) to establish and implement a hereditary hemorrhagic telangiectasia (HHT, a vascular genetic bleeding disorder that causes abnormalities of the blood vessels) initiative to assist in coordinating activities to improve early detection, screening, and treatment of people who suffer from HHT, focusing on advancing research on the causes, diagnosis, and treatment of HHT and increasing physician and public awareness of HHT.
 
Directs the Secretary to establish the HHT Coordinating Committee to develop and coordinate implementation of a plan to advance research and understanding of HHT, including by: (1) conducting or supporting research across relevant National Institutes of Health (NIH) institutes, and (2) conducting evaluations and making recommendations regarding the prioritization and award of NIH research grants relating to HHT.
 
Requires the Director of the Centers for Disease Control and Prevention (CDC) to carry out activities with respect to HHT, including conducting population screening and establishing an HHT resource center to provide comprehensive education on, and disseminate information about, HHT to health professionals, patients, industry, and the public. Sets forth requirements for HHT population screening, including requiring the Director of CDC to designate and provide funding for HHT Treatment Centers of Excellence.
 
Requires the Administrator of the Centers for Medicare & Medicaid Services (CMS) to award grants for: (1) an analysis of the Medicare Provider Analysis and Review (MEDPAR) file to develop preliminary estimates on the totals costs to Medicare for items, services, and treatments for HHT; and (2) recommendations regarding an enhanced data collection protocol to permit a more precise determination of such costs.


Legislative actions:
action_date: 2011-06-16
text: Referred to the Subcommittee on Health.
action_date: 2011-06-03
text: Referred to the Subcommittee on Health.
action_date: 2011-06-03
text: Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
action_date: 2011-06-03
text: Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
action_date: 2011-06-03
text: Introduced in House
action_date: 2011-06-03
text: Introduced in House