A resolution recognizing June 2009 as the first National Hereditary Hemorrhagic Telangiecstasia (HHT) month, established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States.

Bill: 111-sres-161
Sponsor: Sen. Johnson, Tim [D-SD]
Introduced: 2009-05-21 in the Senate
Policy area: Health
Subjects: Blood and blood diseases
Cardiovascular and respiratory health
Commemorative events and holidays
Health care costs and insurance
Health promotion and preventive care
Hereditary and development disorders
Medical research
Medical tests and diagnostic methods

Summary:
action_date: 2009-05-21
text: 
Expresses support for the designation of June 2009 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. 
 
Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages can be prevented through early diagnosis, screening, and treatment of HHT; (5) that severe hemorrhages in the nose and gastrointestinal tract can be controlled through intervention and that heart failure can be managed through proper diagnosis and treatments of HHT; and (6) that a leading medical and academic institution estimated that $6.6 billion of one-time health care costs can be saved through aggressive management of HHT in the at-risk population.
 
Acknowledges the need to identify the approximately 90% of the HHT population that has not yet been diagnosed and that is at risk for death or disability due to sudden rupture of the blood vessels in major organs in the body.

action_date: 2009-05-21
text: 

(This measure has not been amended since it was introduced. The summary of that version is repeated here.)

 
Expresses support for the designation of June 2009 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. 
 
Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages can be prevented through early diagnosis, screening, and treatment of HHT; (5) that severe hemorrhages in the nose and gastrointestinal tract can be controlled through intervention and that heart failure can be managed through proper diagnosis and treatments of HHT; and (6) that a leading medical and academic institution estimated that $6.6 billion of one-time health care costs can be saved through aggressive management of HHT in the at-risk population.
 
Acknowledges the need to identify the approximately 90% of the HHT population that has not yet been diagnosed and that is at risk for death or disability due to sudden rupture of the blood vessels in major organs in the body.


Legislative actions:
action_date: 2009-05-21
text: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S5885; text as passed Senate: CR S5885; text of measure as introduced: CR S5877)
action_date: 2009-05-21
text: Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.(consideration: CR S5885; text as passed Senate: CR S5885; text of measure as introduced: CR S5877)
action_date: 2009-05-21
text: Introduced in Senate