Acquired Bone Marrow Failure Disease Research and Treatment Act of 2010

Bill: 111-hr-1230
Sponsor: Rep. Matsui, Doris O. [D-CA-5]
Introduced: 2009-02-26 in the House
Policy area: Health
Subjects: Advisory bodies
Blood and blood diseases
Environmental assessment, monitoring, research
Environmental health
Government information and archives
Hazardous wastes and toxic substances
Health care quality
Health information and medical records
Health programs administration and funding
Medical research
Medical tests and diagnostic methods
Minority health
Research administration and funding

Summary:
action_date: 2009-02-26
text: 
Bone Marrow Failure Disease Research and Treatment Act of 2009 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on acquired bone marrow failure diseases; (2) establish the National Acquired Bone Marrow Failure Disease Registry; and (3) establish the Advisory Committee on Acquired Bone Marrow Failure Diseases to provide recommendations to the Secretary on the Registry.
 
Allows the Secretary, acting through the Director, to award grants to, and enter to contracts and cooperative agreements with, public or private nonprofit entities for the management of the Registry.

Requires the Secretary, acting through the Administrator of the Agency for Toxic Substances and Disease Registry, to conduct pilot studies to determine which environmental factors may cause acquired bone marrow failure diseases.

Requires the Secretary, acting through the Deputy Assistant Secretary for Minority Health, to: (1) establish outreach and information programs targeted to minority populations affected by such diseases; (2) undertake a coordinated outreach effort to connect Hispanic, Asian American, and Pacific Islander communities with comprehensive services focused on treatment of, and information about, such diseases; and (3) awards grants to, or enter into cooperative agreements with, entities to perform research on such diseases.

Requires the Secretary, acting through the Director of the Agency for Healthcare Research and Quality (AHRQ), to award grants to entities to improve diagnostic practices and quality of care with respect to patients with such diseases.

action_date: 2010-09-30
text: 
Acquired Bone Marrow Failure Disease Research and Treatment Act of 2010 - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services (HHS) to conduct research on acquired bone marrow failure diseases, which may address factors including: (1) trends in the characteristics of individuals who are diagnosed with such diseases, including age, race and ethnicity, general geographic location, sex, and family history; (2) the genetic and environmental factors, including exposure to toxins, that may be associated with developing such diseases; (3) approaches to treating such diseases; and (4) outcomes for individuals treated for such diseases, including outcomes for recipients of stem cell therapeutic products.
 
Authorizes the Secretary to collaborate with the Radiation Injury Treatment Network of the C.W. Bill Young Cell Transplantation Program to: (1) augment data for studies; (2) access technical assistance that may be provided by the Network; or (3) perform joint research projects.
 
(Sec. 3) Authorizes the Secretary to establish and coordinate outreach and informational programs targeted to minority populations, including Hispanic, Asian-American, Native Hawaiian, and Pacific Islander populations, that are affected by acquired bone marrow failure diseases. Includes among program activities: (1) making information about treatment options and clinical trials for such diseases publicly available; and (2) providing referral services for treatment options and clinical trials.
 
(Sec. 4) Authorizes the Secretary, acting through the Director of the Agency for Healthcare Research and Quality, to award grants to researchers to study best practices with respect to diagnosing acquired bone marrow failure diseases and providing care to individuals with such diseases.


Legislative actions:
action_date: 2010-11-15
text: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2010-09-30
text: The title of the measure was amended. Agreed to without objection.
action_date: 2010-09-30
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2010-09-30
text: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR 9/28/2010 H7193)
action_date: 2010-09-30
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR 9/28/2010 H7193)
action_date: 2010-09-30
text: Considered as unfinished business. (consideration: CR H7380)
action_date: 2010-09-28
text: At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Burgess objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.
action_date: 2010-09-28
text: DEBATE - The House proceeded with forty minutes of debate on H.R. 1230.
action_date: 2010-09-28
text: Considered under suspension of the rules. (consideration: CR H7193-7194)
action_date: 2010-09-28
text: Mr. Pallone moved to suspend the rules and pass the bill, as amended.
action_date: 2010-09-28
text: Placed on the Union Calendar, Calendar No. 377.
action_date: 2010-09-28
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-637.
action_date: 2010-09-28
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-637.
action_date: 2010-09-23
text: Ordered to be Reported (Amended) by Voice Vote.
action_date: 2010-09-23
text: Committee Consideration and Mark-up Session Held.
action_date: 2010-09-16
text: Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
action_date: 2010-09-16
text: Subcommittee Consideration and Mark-up Session Held.
action_date: 2010-09-15
text: Subcommittee Hearings Held.
action_date: 2009-03-06
text: Referred to the Subcommittee on Health.
action_date: 2009-02-26
text: Referred to the House Committee on Energy and Commerce.
action_date: 2009-02-26
text: Introduced in House
action_date: 2009-02-26
text: Introduced in House