Supporting the goals and ideals of "Fragile X Awareness Day".

Bill: 111-hres-611
Sponsor: Rep. Hare, Phil [D-IL-17]
Introduced: 2009-07-07 in the House
Policy area: Health
Subjects: Commemorative events and holidays
Congressional tributes
Disability and paralysis
Genetics
Health care costs and insurance
Health care coverage and access
Health information and medical records
Health programs administration and funding
Hereditary and development disorders
Medical research
Medical tests and diagnostic methods
Research administration and funding

Summary:
action_date: 2009-07-07
text: 
Expresses support for: (1) the goals and ideals of Fragile X Awareness Day; (2) raising awareness and educating the public about fragile X syndrome and associated disorders; and (3) increased funding for research into the causes, treatment, and cure for fragile X syndrome.
 
Applauds efforts to encourage awareness, promote research, and provide education, support, and hope to those impacted by fragile X syndrome. Recognizes the commitment of those dedicated to finding an effective treatment and cure.
 
Urges physicians, health care providers, and specialists, with respect to the syndrome and related disorders, to: (1) learn the clinical signs and symptoms; (2) use diagnostic, developmental screening, and surveillance modalities for detection; (3) test individuals exhibiting signs of developmental delay or an autism spectrum disorder to determine the status of their FMR1 gene; (4) gain a full understanding of the genetic implications and make appropriate referrals to a geneticist or genetic counselor; and (5) provide diagnosed patients with supplemental information.
 
Encourages health insurance entities to provide full coverage for screening technologies, appropriate follow-up referrals, and genetic counseling services.
 
Recommends that the National Institutes of Health (NIH) and related member institutes fully implement the research plan on fragile X syndrome and associated disorders developed by the Trans-NIH Fragile X Research Coordinating Group and Scientific Working Groups.

action_date: 2010-07-21
text: 
Expresses support for: (1) the goals and ideals of Fragile X Awareness Day; (2) raising awareness and educating the public about fragile X syndrome and associated disorders; and (3) funding for research into the causes, treatment, and cure for fragile X syndrome.

Applauds efforts to encourage awareness, promote research, and provide education, support, and hope to those impacted by fragile X syndrome. Recognizes the commitment of those dedicated to finding an effective treatment and cure.

Urges physicians, health care providers, and specialists, with respect to the syndrome and related disorders, to: (1) learn the clinical signs and symptoms; (2) use diagnostic, developmental screening, and surveillance modalities for detection; (3) test individuals exhibiting signs of developmental delay or an autism spectrum disorder to determine the status of their FMR1 gene; (4) gain a full understanding of the genetic implications and make appropriate referrals to a geneticist or genetic counselor; and (5) provide diagnosed patients with supplemental information.

Recommends that the National Institutes of Health (NIH) and related member institutes implement the research plan on fragile X syndrome and associated disorders developed by the Trans-NIH Fragile X Research Coordinating Group and Scientific Working Groups.


Legislative actions:
action_date: 2010-07-21
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2010-07-21
text: On motion to suspend the rules and agree to the resolution, as amended Agreed to by voice vote. (text: CR H5880)
action_date: 2010-07-21
text: Passed/agreed to in House: On motion to suspend the rules and agree to the resolution, as amended Agreed to by voice vote.(text: CR H5880)
action_date: 2010-07-21
text: DEBATE - The House proceeded with forty minutes of debate on H. Res. 611.
action_date: 2010-07-21
text: Considered under suspension of the rules. (consideration: CR H5880-5882)
action_date: 2010-07-21
text: Mr. Pallone moved to suspend the rules and agree to the resolution, as amended.
action_date: 2009-07-08
text: Referred to the Subcommittee on Health.
action_date: 2009-07-07
text: Referred to the House Committee on Energy and Commerce.
action_date: 2009-07-07
text: Introduced in House
action_date: 2009-07-07
text: Introduced in House