National Neurological Diseases Surveillance System Act of 2010

Bill: 111-hr-1362
Sponsor: Rep. Van Hollen, Chris [D-MD-8]
Introduced: 2009-03-05 in the House
Policy area: Health
Subjects: Advisory bodies
Government information and archives
Health information and medical records
Health programs administration and funding
Medical research
Neurological disorders

Summary:
action_date: 2009-03-05
text: 
National MS and Parkinson's Disease Registries Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Director of the Agency for Toxic Substances and Disease Registry, to: (1) develop a system to collect data on multiple sclerosis (MS) and a system to collect data on Parkinson's disease; (2) establish a national surveillance system for the collection and storage of data for each such disease, including population-based registries of U.S. cases of MS and Parkinson's disease; (3) provide analysis regarding expansion of national disease surveillance systems for other neurological diseases and disorders; and (4) establish the Advisory Committee on Neurological Disease Registries.
 
Allows the Secretary, acting through the Director, to provide for the collection, analysis, and reporting of data on MS and Parkinson's disease.
 
Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to Parkinson's disease and MS data.
 
Requires the Secretary to ensure that epidemiological and other types of information collected are made available to agencies such as the National Institutes of Health (NIH), the Food and Drug Administration (FDA), the Department of Veterans Affairs (VA), and the Department of Defense (DOD).

action_date: 2010-09-28
text: 
National Neurological Diseases Surveillance System Act of 2010 - Amends the Public Health Service Act to require the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) enhance and expand infrastructure and activities to track the epidemiology of neurological diseases, including multiple sclerosis and Parkinson's disease; and (2) incorporate information obtained through such activities into a National Neurological Diseases Surveillance System. Requires the Secretary to ensure that the System is designed in a manner that facilitates further research on neurological diseases.
 
Requires the Secretary to provide for the collection and storage of information on the incidence and prevalence of neurological diseases in the United States and other information on neurological diseases, such as demographics information, risk factors, or diagnosis and progression markers. Authorizes the Secretary to: (1) provide for the collection and storage of information relevant to analysis on neurological diseases, such as information concerning the epidemiology, natural history, prevention, detection, management, and treatment of the diseases and the development of outcomes measures; and (2) address issues identified through consultations with individuals with appropriate expertise.
 
Authorizes the Secretary to award grants to, or enter into contracts or cooperative agreements with, public or private nonprofit entities to carry out activities under this Act.
 
Requires the Secretary to: (1) make information and analysis in the System available to federal agencies and to the public, including researchers; and (2) ensure that privacy and security protections applicable to the System are at least as stringent as the health privacy and security protections under current federal law.
 
Sets forth reporting requirements. Authorizes appropriations for FY2012-FY2016.


Legislative actions:
action_date: 2010-09-29
text: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2010-09-28
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2010-09-28
text: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H7185-7186)
action_date: 2010-09-28
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H7185-7186)
action_date: 2010-09-28
text: DEBATE - The House proceeded with forty minutes of debate on H.R. 1362.
action_date: 2010-09-28
text: Considered under suspension of the rules. (consideration: CR H7185-7186)
action_date: 2010-09-28
text: Mr. Pallone moved to suspend the rules and pass the bill, as amended.
action_date: 2010-09-28
text: Placed on the Union Calendar, Calendar No. 376.
action_date: 2010-09-28
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-636.
action_date: 2010-09-28
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 111-636.
action_date: 2010-09-23
text: Ordered to be Reported (Amended) by Voice Vote.
action_date: 2010-09-23
text: Committee Consideration and Mark-up Session Held.
action_date: 2010-09-16
text: Committee Consideration and Mark-up Session Held.
action_date: 2010-09-16
text: Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
action_date: 2010-09-16
text: Subcommittee Consideration and Mark-up Session Held.
action_date: 2010-09-15
text: Subcommittee Hearings Held.
action_date: 2009-03-06
text: Referred to the Subcommittee on Health.
action_date: 2009-03-05
text: Referred to the House Committee on Energy and Commerce.
action_date: 2009-03-05
text: Sponsor introductory remarks on measure. (CR E565)
action_date: 2009-03-05
text: Introduced in House
action_date: 2009-03-05
text: Introduced in House