Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008

Bill: 110-hr-5265
Sponsor: Rep. Engel, Eliot L. [D-NY-17]
Introduced: 2008-02-07 in the House
Policy area: Health
Subjects: Commemorations
Communication in medicine
Congress
Congressional reporting requirements
Congressional tributes
Ex-Members of Congress
Government Operations and Politics
Government publicity
Health education
Health surveys
Medical research
Medical statistics
Muscular diseases
Names
Research centers
Science, Technology, Communications
Senate

Summary:
action_date: 2008-02-07
text: 
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.

Requires the Muscular Dystrophy Interagency Coordinating Committee to give special consideration to enhancing the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy.

Requires the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to: (1) report to the appropriate congressional committees on MD STARnet and data collection; and (2) provide prospective health outcome data on the health and survival of people with muscular dystrophy.

Requires the Director of CDC, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; and (2) widely disseminate the Duchenne-Becker muscular dystrophy care considerations.

Requires the Director of the Agency for Healthcare Research and Quality to: (1) evaluate the available scientific evidence to develop and issue an initial set of care considerations for Duchenne-Becker muscular dystrophy and provide ongoing review and updates where appropriate; and (2) replicate the same methodology used to develop such care considerations as a model for other muscular dystrophies.

action_date: 2008-10-08
text: 
Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers.

Authorizes the Muscular Dystrophy Interagency Coordinating Committee to evaluate the potential need to enhance the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy.

Authorizes the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to report to the appropriate congressional committees on MD STARnet and data collection. Authorizes the Secretary to provide prospective health outcome data on the health and survival of people with muscular dystrophy.

Authorizes the Secretary, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; (2) cooperate with professional organizations and the patient community to develop, issue, and update care considerations for Duchenne-Baker muscular dystrophy and other forms of muscular dystrophy; and (3) widely disseminate such care considerations as broadly as possible, including through partnership opportunities with the muscular dystrophy patient community.


Legislative actions:
action_date: 2008-10-08
text: Became Public Law No: 110-361.
action_date: 2008-10-08
text: Became Public Law No: 110-361.
action_date: 2008-10-08
text: Signed by President.
action_date: 2008-10-08
text: Signed by President.
action_date: 2008-09-30
text: Presented to President.
action_date: 2008-09-30
text: Presented to President.
action_date: 2008-09-27
text: Cleared for White House.
action_date: 2008-09-27
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2008-09-27
text: On motion that the House agree to the Senate amendment Agreed to without objection. (text as House agreed to Senate amendment: CR H10176-10177)
action_date: 2008-09-27
text: Resolving differences -- House actions: On motion that the House agree to the Senate amendment Agreed to without objection.(text as House agreed to Senate amendment: CR H10176-10177)
action_date: 2008-09-27
text: Mr. Pallone asked unanimous consent that the House agree to the Senate amendment. (consideration: CR H10176-10177)
action_date: 2008-09-26
text: Message on Senate action sent to the House.
action_date: 2008-09-26
text: Passed Senate with an amendment by Unanimous Consent.
action_date: 2008-09-26
text: Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.
action_date: 2008-09-26
text: Measure laid before Senate by unanimous consent. (consideration: CR S9605-9606)
action_date: 2008-09-25
text: Received in the Senate.
action_date: 2008-09-24
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2008-09-24
text: On motion to suspend the rules and pass the bill, as amended Agreed to by recorded vote (2/3 required): 418 - 2 (Roll no. 633). (text: CR 9/23/2008 H8676-8677)
action_date: 2008-09-24
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by recorded vote (2/3 required): 418 - 2 (Roll no. 633).(text: CR 9/23/2008 H8676-8677)
action_date: 2008-09-24
text: Considered as unfinished business. (consideration: CR H9305-9306)
action_date: 2008-09-23
text: At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Burgess objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.
action_date: 2008-09-23
text: DEBATE - The House proceeded with forty minutes of debate on H.R. 5265.
action_date: 2008-09-23
text: Considered under suspension of the rules. (consideration: CR H8676-8678)
action_date: 2008-09-23
text: Mr. Pallone moved to suspend the rules and pass the bill, as amended.
action_date: 2008-09-17
text: Ordered to be Reported (Amended) by Voice Vote.
action_date: 2008-09-17
text: Committee Consideration and Mark-up Session Held.
action_date: 2008-02-07
text: Referred to the Subcommittee on Health.
action_date: 2008-02-07
text: Referred to the House Committee on Energy and Commerce.
action_date: 2008-02-07
text: Introduced in House
action_date: 2008-02-07
text: Introduced in House

Enacted as: number: 110-361