Prenatally and Postnatally Diagnosed Conditions Awareness Act

Bill: 110-s-1810
Sponsor: Sen. Brownback, Sam [R-KS]
Introduced: 2007-07-18 in the Senate
Policy area: Health
Subjects: Adoption
Birth defects
Child development
Civil Rights and Liberties, Minority Issues
Communication in medicine
Communication in science
Congress
Congressional investigations
Congressional reporting requirements
Data banks
Directories
Down's syndrome
Economics and Public Finance
Electronic government information
Epidemiology
Families
Family services
Fetus
Genetic counseling
Government Operations and Politics
Government paperwork
Government publicity
Grants-in-aid
Health counseling
Health education
Health information systems
Health surveys
Hereditary diseases
Imaging systems in medicine
Informed consent (Medical law)
Internet
Law
Life expectancy
Maternal health services
Medical records
Medical screening
Medical statistics
Medical tests
Patients' rights
Quality of life
Right of privacy
Science, Technology, Communications
Telephone
Vital statistics
Web sites

Summary:
action_date: 2007-07-18
text: 
Prenatally and Postnatally Diagnosed Conditions Awareness Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally or postnatally diagnosed conditions, including the awarding of grants, contracts or cooperative agreements to: (1) collect, synthesize, and disseminate current scientific information; and (2) coordinate the provision of, and access to, supportive services for patients affected.
 
Requires the Secretary, acting through the Director of CDC, to provide assistance to state and local heath departments to integrate the results of prenatal or postnatal testing into state-based vital statistics and birth defects surveillance programs. Prohibits such results from being reported unless the patient consents.
 
Requires a health care provider to provide certain information to a patient who receives a positive test result from a prenatal or postnatal test for such a condition, including: (1) up-to-date scientific information concerning the life expectancy, clinical course, and intellectual and functional development and treatment options for a fetus diagnosed with, or a child born with, such conditions; and (2) referrals to supportive service providers.
 
 Requires the Government Accountability Office (GAO) to submit a report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.

action_date: 2008-04-21
text: 
Prenatally and Postnatally Diagnosed Conditions Awareness Act - (Sec. 3) Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally or postnatally diagnosed conditions. Includes among such activities the awarding of grants, contracts or cooperative agreements to eligible entities to: (1) collect, synthesize, and disseminate current evidence-based information relating to such conditions; and (2) coordinate the provision of, and access to, new or existing supportive services for patients receiving a positive diagnosis for such conditions. Includes within such supportive services: (1) the establishment of a resource telephone hotline; (2) the expansion of the National Dissemination Center for Children with Disabilities; (3) the expansion of national and local peer-support programs; (4) the establishment of a national registry, or network of local registries, of families willing to adopt newborns with such conditions; and (5) the establishment of awareness and education programs for health care providers who provide, interpret, or inform parents of the results of prenatal tests for such conditions.

Requires the Secretary to place an emphasis on funding partnerships between health care professional groups and disability advocacy organizations in distributing funds.

Requires a grantee under this Act to make available to health care providers of parents who receive a prenatal or postnatal diagnosis: (1) up-to-date, evidence-based, written information concerning the range of outcomes for individuals living with the diagnosed condition, including physical, developmental, educational, and psychosocial outcomes; and (2) contact information regarding support services, including information hotlines, resource centers or clearinghouses, national and local peer support groups, and other educational and support programs. Requires information provided to be culturally and linguistically appropriate and to be approved by the Secretary.

Requires the Government Accountability Office (GAO) to report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.

Authorizes appropriations for FY2008-FY2012.

action_date: 2008-10-08
text: 
Prenatally and Postnatally Diagnosed Conditions Awareness Act - (Sec. 3) Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through either the Director of the National Institutes of Health (NIH), the Director of the Centers for Disease Control and Prevention (CDC), or the Administrator of the Health Resources and Services Administration (HRSA), to authorize and oversee certain activities relating to Down syndrome or other prenatally or postnatally diagnosed conditions. Includes among such activities the awarding of grants, contracts or cooperative agreements to eligible entities to: (1) collect, synthesize, and disseminate current evidence-based information relating to such conditions; and (2) coordinate the provision of, and access to, new or existing supportive services for patients receiving a positive diagnosis for such conditions. Includes within such supportive services: (1) the establishment of a resource telephone hotline; (2) the expansion of the National Dissemination Center for Children with Disabilities; (3) the expansion of national and local peer-support programs; (4) the establishment of a national registry, or network of local registries, of families willing to adopt newborns with such conditions; and (5) the establishment of awareness and education programs for health care providers who provide, interpret, or inform parents of the results of prenatal tests for such conditions.
 
Requires the Secretary to place an emphasis on funding partnerships between health care professional groups and disability advocacy organizations in distributing funds.

Requires a grantee under this Act to make available to health care providers of parents who receive a prenatal or postnatal diagnosis: (1) up-to-date, evidence-based, written information concerning the range of outcomes for individuals living with the diagnosed condition, including physical, developmental, educational, and psychosocial outcomes; and (2) contact information regarding support services, including information hotlines, resource centers or clearinghouses, national and local peer support groups, and other educational and support programs. Requires information provided to be culturally and linguistically appropriate and to be approved by the Secretary.

Requires the Government Accountability Office (GAO) to report to Congress concerning the effectiveness of current health care and family support programs serving as resources for the families of children with disabilities.


Legislative actions:
action_date: 2008-10-08
text: Became Public Law No: 110-374.
action_date: 2008-10-08
text: Became Public Law No: 110-374.
action_date: 2008-10-08
text: Signed by President.
action_date: 2008-10-08
text: Signed by President.
action_date: 2008-09-29
text: Presented to President.
action_date: 2008-09-29
text: Presented to President.
action_date: 2008-09-25
text: Cleared for White House.
action_date: 2008-09-25
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2008-09-25
text: On motion to suspend the rules and pass the bill Agreed to by voice vote. (text: CR H9918)
action_date: 2008-09-25
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by voice vote.(text: CR H9918)
action_date: 2008-09-25
text: DEBATE - The House proceeded with forty minutes of debate on S. 1810.
action_date: 2008-09-25
text: Considered under suspension of the rules. (consideration: CR H9918-9920)
action_date: 2008-09-25
text: Mr. Pallone moved to suspend the rules and pass the bill.
action_date: 2008-09-24
text: Referred to the House Committee on Energy and Commerce.
action_date: 2008-09-24
text: Message on Senate action sent to the House.
action_date: 2008-09-24
text: Received in the House.
action_date: 2008-09-23
text: Passed Senate with an amendment by Unanimous Consent.
action_date: 2008-09-23
text: Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.
action_date: 2008-09-23
text: The committee substitute as amended agreed to by Unanimous Consent.
action_date: 2008-09-23
text: Measure laid before Senate by unanimous consent. (consideration: CR S9341-9343; text of measure as reported in Senate: CR S9341-9342)
action_date: 2008-04-21
text: Placed on Senate Legislative Calendar under General Orders. Calendar No. 701.
action_date: 2008-04-21
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
action_date: 2008-04-21
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
action_date: 2008-03-13
text: Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
action_date: 2007-07-18
text: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2007-07-18
text: Introduced in Senate

Enacted as: number: 110-374