Newborn Screening Saves Lives Act of 2007

Bill: 110-hr-1634
Sponsor: Rep. Roybal-Allard, Lucille [D-CA-34]
Introduced: 2007-03-21 in the House
Policy area: Health
Subjects: Ambulatory care
Authorization
Birth defects
Clinical trials
Communication in medicine
Conferences
Congress
Congressional reporting requirements
Continuing education
Demography
Economics and Public Finance
Education
Emergency Management
Emergency medicine
Environmental Protection
Environmental health
Epidemiology
Families
Federal advisory bodies
Federal aid to Indians
Federal aid to child health services
Federal aid to education
Federal aid to health facilities
Genetic counseling
Government Operations and Politics
Health education
Health planning
Hereditary diseases
Higher education
Hospitals
Indian medical care
Infants
Medical education
Medical laboratories
Medical research
Medical screening
Medical statistics
Medical supplies
Medical technology
Medical tests
Minorities
Minority health
Nonprofit organizations
Nursing education
Preventive medicine
Quality of care
Research grants
Risk
Science, Technology, Communications
Social Welfare
Technological innovations
Technology transfer

Summary:
action_date: 2007-03-21
text: 
Newborn Screening Saves Lives Act of 2007 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (2) develop educational programs about newborn screening for parents, families, and patient advocacy and support groups; and (3) establish operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.
 
Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to develop a national contingency plan for newborn screening for use in the event of a public health emergency that results in disruption of newborn screening services.
 
Requires the Advisory Committee on Heritable Disorders in Newborns and Children to: (1) recommend a uniform screening panel for newborn screening programs that includes the heritable disorders for which all newborns should be screened; and (2) develop a model decision-matrix for newborn screening program expansion.
 
Directs the Secretary to adopt or reject recommendations by the Advisory Committee.
 
Requires the Secretary, acting through the Director of CDC, to: (1) provide for quality assurance for screening laboratories; (2) provide for population-based pilot testing for evaluating new screening tools; (3) collect, analyze, and make available data on certain heritable disorders; and (4) operate regional centers for the conduct of applied epidemiological research on the prevention of such disorders.


Legislative actions:
action_date: 2007-03-22
text: Referred to the Subcommittee on Health.
action_date: 2007-03-21
text: Referred to the House Committee on Energy and Commerce.
action_date: 2007-03-21
text: Introduced in House
action_date: 2007-03-21
text: Introduced in House