Caroline Pryce Walker Conquer Childhood Cancer Act of 2008

Bill: 110-hr-1553
Sponsor: Rep. Pryce, Deborah [R-OH-15]
Introduced: 2007-03-15 in the House
Policy area: Health
Subjects: Cancer
Child health
Clinical trials
Communication in medicine
Data banks
Economics and Public Finance
Families
Federal aid to research
Government Operations and Politics
Grants-in-aid
Health education
Health information systems
Medical research
Preventive medicine
Research grants
Science, Technology, Communications

Summary:
action_date: 2007-03-15
text: 
Conquer Childhood Cancer Act of 2007 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), acting through the National Cancer Institute, to establish special programs of research excellence in the area of pediatric cancers. 
 
Requires the Secretary of Health and Human Services to develop a grant mechanism for the establishment of Research Fellowships in Pediatric Cancer to support adequate numbers of pediatric focused clinical and translational investigators.
 
Requires the Director to award a grant for the operation of a population-based national childhood cancer database, the Childhood Cancer Research Network.
 
Requires the Secretary to award grants to recognized childhood cancer professional and advocacy organizations to raise public awareness of currently available information, treatment, and research with intent to ensure access to best available therapies for pediatric cancers.

action_date: 2008-07-29
text: 
Caroline Pryce Walker Conquer Childhood Cancer Act of 2008 - (Sec. 4) Amends the Public Health Service Act to require the Secretary of Health and Human Services to continue to enhance, expand, and intensify pediatric cancer research and other activities related to pediatric cancer, including therapeutically applicable research to generate effective treatments, pediatric preclinical testing, and pediatric clinical trials through National Cancer Institute-supported pediatric cancer clinical trials groups and their member institutions. Encourages the Secretary to take into consideration the application of such research and other activities for minority, health disparity, and medically underserved communities. 

Authorizes the Secretary to award grants to childhood cancer professional and direct service organizations for the expansion and widespread implementation of: (1) activities that provide information on treatment protocols to ensure early access to the best available therapies and clinical trials for pediatric cancers; (2) activities that provide available information on the late effects of pediatric cancer treatment to ensure access to necessary long-term medical and psychological care; and (3) direct resource services such as educational outreach for parents, information on school reentry and postsecondary education, and resource directories or referral services for financial assistance, psychological counseling, and other support services. Encourages the Secretary to take into consideration the extent to which an entity would use such grant for purposes of making activities and services available to minority, health disparity, and medically underserved communities. Requires the Secretary to develop and implement metrics-based performance measures to assess the effectiveness of activities funded under such grants. Requires any information made available pursuant to a grant to be: (1) culturally and linguistically appropriate as needed by patients and families affected by childhood cancer; and (2) approved by the Secretary.

Authorizes appropriations for FY2009-FY2013. 

Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to award a grant to enhance and expand infrastructure to track the epidemiology of pediatric cancer into a comprehensive nationwide registry of actual occurrences of pediatric cancer. Requires such registry to be updated to include an actual occurrence within weeks of the date of such occurrence. Subjects such registry to federal laws regarding records maintained on individuals, health information privacy regulations, informed consent regulations, and any other federal laws relating to the privacy of patient information.


Legislative actions:
action_date: 2008-07-29
text: Became Public Law No: 110-285.
action_date: 2008-07-29
text: Became Public Law No: 110-285.
action_date: 2008-07-29
text: Signed by President.
action_date: 2008-07-29
text: Signed by President.
action_date: 2008-07-25
text: Presented to President.
action_date: 2008-07-25
text: Presented to President.
action_date: 2008-07-17
text: Message on Senate action sent to the House.
action_date: 2008-07-16
text: Cleared for White House.
action_date: 2008-07-16
text: Passed Senate without amendment by Unanimous Consent. (consideration: CR S6857-6858)
action_date: 2008-07-16
text: Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR S6857-6858)
action_date: 2008-06-16
text: Received in the Senate, read twice.
action_date: 2008-06-12
text: The title of the measure was amended. Agreed to without objection.
action_date: 2008-06-12
text: On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 416 - 0 (Roll no. 409).
action_date: 2008-06-12
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2008-06-12
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 416 - 0 (Roll no. 409).
action_date: 2008-06-12
text: Considered as unfinished business. (consideration: CR H5344-5345)
action_date: 2008-06-11
text: At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
action_date: 2008-06-11
text: DEBATE - The House resumed debate on H.R. 1553.
action_date: 2008-06-11
text: DEBATE - The House proceeded with forty minutes of debate on H.R. 1553.
action_date: 2008-06-11
text: Considered under suspension of the rules. (consideration: CR H5296-5300; text of measure as reported in House: CR H5296-5297)
action_date: 2008-06-11
text: Mr. Pallone moved to suspend the rules and pass the bill, as amended.
action_date: 2008-06-10
text: Placed on the Union Calendar, Calendar No. 448.
action_date: 2008-06-10
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-706.
action_date: 2008-06-10
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-706.
action_date: 2008-05-07
text: Ordered to be Reported in the Nature of a Substitute by Voice Vote.
action_date: 2008-05-07
text: Committee Consideration and Mark-up Session Held.
action_date: 2008-04-23
text: Forwarded by Subcommittee to Full Committee by Voice Vote .
action_date: 2008-04-23
text: Subcommittee Consideration and Mark-up Session Held.
action_date: 2007-03-16
text: Referred to the Subcommittee on Health.
action_date: 2007-03-15
text: Referred to the House Committee on Energy and Commerce.
action_date: 2007-03-15
text: Introduced in House
action_date: 2007-03-15
text: Introduced in House

Enacted as: number: 110-285