Expressing the sense of the House of Representatives with respect to Diamond-Blackfan Anemia.

Bill: 110-hres-524
Sponsor: Rep. McCarthy, Carolyn [D-NY-4]
Introduced: 2007-06-27 in the House
Policy area: Health
Subjects: Birth defects
Blood diseases
Cancer
Child health
Clinics
Commemorations
Congressional tributes
Data banks
Directories
Economics and Public Finance
Families
Federal aid to health facilities
Federal aid to research
Foundations
Health education
Health information systems
Hereditary diseases
Hospitals
Laboratories
Medical centers
Medical records
Medical research
Proteins
Research centers
Science, Technology, Communications
Social Welfare

Summary:
action_date: 2007-06-27
text: 
Recognizes: (1) the importance of the federal government's continued support of Diamond-Blackfan Anemia (DBA) research; and (2) that federal support of comprehensive centers for rare disease patients enhances the ability for experienced doctors to provide the most complete care for each patient.

Commends: (1) Schneider Children's Hospital for providing the first DBA Comprehensive Clinical Care Center and developing the DBA Patient Registry; and (2) the Daniella Maria Arturi Foundation and the Diamon-Blackfan Anemia Foundation for their efforts to facilitate collaboration among the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to achieve a successful multidisciplinary approach aimed at shortening the life cycle of success realized between the laboratory and applied patient care.

Expresses the sense of the House of Representatives that the government has a responsibility to encourage further efforts to clarify the natural history of DBA, continue efforts to raise awareness and ease access to information about DBA, encourage research efforts that will advance treatment options and seek a cure, encourage NIH to develop a cross-institutional research initiative to study ribosomal protein deficiencies in rare inherited disease, and encourage continued federal support of the DBA Comprehensive Clinical Care Centers.

action_date: 2007-10-15
text: 
Recognizes: (1) the value of the identification of Diamond-Blackfan Anemia (DBA) in identifying implications of cancer predisposition and understanding human development and the molecular basis for certain birth defects; and (2) the importance of centers providing complete care and treatment leading to an increase in correct and early diagnosis.

Commends: (1) Schneider Children's Hospital for providing the first DBA Comprehensive Clinical Care Center and developing the DBA Patient Registry; and (2) the Daniella Maria Arturi Foundation and the Diamond-Blackfan Anemia Foundation for their efforts to facilitate collaboration among the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to achieve a successful multidisciplinary approach aimed at shortening the life cycle of success between the laboratory and applied patient care.

Encourages research efforts to further understand ribosomal protein deficiencies in rare inherited diseases and to advance the treatment options available to those with DBA.


Legislative actions:
action_date: 2007-10-15
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2007-10-15
text: On motion to suspend the rules and agree to the resolution, as amended Agreed to by voice vote. (text: CR H11524)
action_date: 2007-10-15
text: Passed/agreed to in House: On motion to suspend the rules and agree to the resolution, as amended Agreed to by voice vote.(text: CR H11524)
action_date: 2007-10-15
text: DEBATE - The House proceeded with forty minutes of debate on H. Res. 524.
action_date: 2007-10-15
text: Considered under suspension of the rules. (consideration: CR H11524-11526)
action_date: 2007-10-15
text: Ms. Baldwin moved to suspend the rules and agree to the resolution, as amended.
action_date: 2007-06-27
text: Referred to the Subcommittee on Health.
action_date: 2007-06-27
text: Referred to the House Committee on Energy and Commerce.
action_date: 2007-06-27
text: Introduced in House
action_date: 2007-06-27
text: Introduced in House