Christopher and Dana Reeve Quality of Life for Persons with Paralysis Act

Bill: 109-hr-1554
Sponsor: Rep. Bilirakis, Michael [R-FL-9]
Introduced: 2005-04-12 in the House
Policy area: Health
Subjects: Access to health care
Armed Forces and National Security
Caregivers
Clinical trials
Clinics
Communication in medicine
Communication in science
Community health services
Congress
Congressional reporting requirements
Continuing education
Department of Health and Human Services
Directories
Disabled
Economics and Public Finance
Education
Federal aid to education
Federal aid to health facilities
Federal aid to research
Government Operations and Politics
Government paperwork
Government publicity
Governmental investigations
Health education
Health information systems
Health planning
Higher education
Home care services
Labor and Employment
Medical education
Medical research
Medical technology
Mental health services
Nervous system diseases
Neurology
Nonprofit organizations
Paralysis
Quality of life
Rehabilitation of the disabled
Research centers
Research grants
Science, Technology, Communications
Self-help devices for the disabled
Social Welfare
Spinal cord injuries
Stroke
Veterans' hospitals
Veterans' medical care
Veterans' rehabilitation

Summary:
action_date: 2005-04-12
text: 
Christopher Reeve Paralysis Act - Amends the Public Health Service Act to permit the Director of the National Institutes of Health (NIH): (1) acting through the Director of the National Institute of Neurological Disorders and Stroke, to expand and coordinate NIH activities on paralysis research; (2) to award grants to plan, establish, improve, and provide basic operating support for Christopher Reeve Paralysis Research Consortia; (3) to educate and disseminate information and receive public comment on NIH programs and research regarding paralysis; (4) acting through the Director of the National Institute on Child Health and Human Development and the National Center for Rehabilitation Research, to expand and coordinate NIH research with implications for enhancing daily function for persons with paralysis; and (5) to make grants to plan, establish, improve, and provide basic operating support for multicenter clinical trial networks to design clinical rehabilitation intervention protocols and measures of outcomes on paralysis. 
 
Permits the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to study the health challenges associated with paralysis and other physical disabilities and carry out projects and interventions to improve the quality of life and long-term health status of individuals with such conditions. 
Permits the Secretary to award grants for activities related to paralysis, including to: (1) establish paralysis registries; and (2) disseminate information to the public. 
Allows the Secretary of Veterans Affairs to: (1) establish Paralysis Research, Education and Clinical Care Centers; and (2) award grants to medical centers of the Department of Veterans Affairs (VA) to translate clinical findings and recommendations on paralysis into evidence-based best practices.
action_date: 2006-12-09
text: 
Christopher and Dana Reeve Quality of Life for Persons with Paralysis Act - Permits the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to study the health challenges associated with paralysis and other physical disabilities and carry out projects and interventions to improve the quality of life and long-term health status of individuals with such conditions. Provides that such activities may include: (1) development of a national paralysis and physical disability quality-of-life action plan; (2) support for programs to disseminate information involving care and rehabilitation options and quality-of-life grant programs; (3) establishment of a hospital-based registry and the conduct of relevant population-based research on motor disability; and (4) development of programs, services, and demonstrations designed to support and advance quality-of-life programs for persons living with paralysis and other physical disabilities.
 
Allows the Secretary to award grants for activities related to paralysis, including to: (1) establish paralysis registries; (2) develop comprehensive paralysis and other physical disability action plans; (3) coordinate paralysis and physical disability activities with existing state-based disability and health programs; (4) provide education and training for health professionals and allied caregivers; (5) develop, test, evaluate, and replicate effective intervention programs to maintain and improve health and quality of life; (6) disseminate information to the public; (7) improve access to services for persons living with paralysis and other physical disabilities and their caregivers; and (8) test model intervention programs to improve health and quality of life. 
Sets forth reporting requirements. 
Authorizes appropriations. 
Expresses the sense of Congress that: (1) as science and research have advanced, so too has the need to increase strategic planning across the National Institutes of Health (NIH) to identify research that is important to the advancement of biomedical science; and (2) research involving collaboration among NIH national research institutes and national centers is crucial for advancing research on paralysis.

Legislative actions:
action_date: 2006-12-09
text: Received in the Senate.
action_date: 2006-12-09
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2006-12-09
text: On passage Passed without objection.
action_date: 2006-12-09
text: Passed/agreed to in House: On passage Passed without objection.
action_date: 2006-12-09
text: Considered by unanimous consent. (consideration: CR 12/8/2006 H9296, H9296-9299; text of measure as introduced: CR 12/8/2006 H9296-9298)
action_date: 2006-12-09
text: Mr. Barton (TX) asked unanimous consent to discharge from committee and consider.
action_date: 2006-12-09
text: Committee on Veterans' Affairs discharged.
action_date: 2006-12-09
text: Committee on Veterans' Affairs discharged.
action_date: 2006-12-09
text: Committee on Energy and Commerce discharged.
action_date: 2006-12-09
text: Committee on Energy and Commerce discharged.
action_date: 2005-04-25
text: Referred to the Subcommittee on Health.
action_date: 2005-04-22
text: Referred to the Subcommittee on Health.
action_date: 2005-04-12
text: Referred to the Committee on Energy and Commerce, and in addition to the Committee on Veterans' Affairs, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
action_date: 2005-04-12
text: Referred to the Committee on Energy and Commerce, and in addition to the Committee on Veterans' Affairs, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
action_date: 2005-04-12
text: Referred to the Committee on Energy and Commerce, and in addition to the Committee on Veterans' Affairs, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
action_date: 2005-04-12
text: Introduced in House
action_date: 2005-04-12
text: Introduced in House